Participating Institutes
National Human Genome Research Institute, National Institute on Deafness and Other Communication Disorders, National Institute of Environmental Health Sciences, National Institute of General Medical Sciences
Working Group Members
Nancy J. Bloch, Executive Director, National Association of the Deaf
Karen Emmorey, Ph.D., The Salk Institute of Biological Studies
Stephen Epstein, M.D., A.G. Bell Association of the Deaf **
Robert E. Johnson, Ph.D., Professor, Department of ASL, Linguistics, and Interpretation, Gallaudet University
John P. Madison, Ed.D. (co-chair), Department of English, National Technical Institute for the Deaf
Evelyn McClave, Ph.D., Department of English and Linguistics, California State University-Northridge
John Niparko, M.D., Professor in the Johns Hopkins School of Medicine and Director of The Listening Center, The Johns Hopkins Cochlear Implant Program
Brenda Schick, Ph.D., University of Colorado
Carolyn Stern, M.D., (co-chair) Marion B. Folsom Center/ Lifetime Health, Rochester, NY
NIH Presenters/Participants
Marin P. Allen, Ph.D., Chief, Office of Health Communication and Public Liaison, NIDCD
James F. Battey, Jr., M.D., Ph.D., Director, NIDCD
Amy Donahue, Ph.D., Chief, Hearing, Balance/Vestibular Sciences Branch, NIDCD
Gary B. Ellis, Ph.D., Director, Office for Protection from Research Risks, NIH
Thomas B. Friedman, Ph.D., NIDCD, Laboratory of Molecular Genetics, NIDCD
Benjamin Wilfond, M.D., Co-Director, Office of Bioethics and Special Populations Research, National Human Genome Research Institute
Patricia A. Kvochak, JD., Deputy Director, NIH Legal Advisor
Observers
Jamie-Lynne Huffman, Partnership Program Intern from Gallaudet University
Kelby N. Brick, Legal Counsel for Government Affairs, National Association of the Deaf
(Additional NIH and NIDCD staff observed)
**Dr. Epstein was called away on an emergency and could not participate.