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Recurrent Respiratory Papillomatosis Foundation (RRPF)

President and Director: Jennifer Woo
Vice President: Marlene Stern

Address:
P.O. Box 6643
Lawrenceville, NJ 08648-0643
Voice: (609) 530-1095
Fax: (866) 498-7559
Web Address: http://www.rrpf.org
Secondary Web Address: https://www.facebook.com/RRPFORG/
Description:

The Recurrent Respiratory Papillomatosis Foundation (RRPF) was created to provide family support; promote public awareness; and aid in the prevention, cure, and treatment of recurrent respiratory papillomatosis (RRP), a rare disease that affects the voice. The most common symptoms of RRP are a hoarse or strained voice, dysphonia (difficulty in speaking), or aphonia (loss of voice). The organization focuses primarily on networking within the RRP community, including patients, families, medical practitioners, and researchers. Its goal is to stimulate more RRP-related research that may lead to more effective treatments and, ultimately, a cure for this disease. Professional/consumer brochures/pamphlets are available.

Publications:

RRP Medical Reference Service
Frequency: annually
Type: listing of current references/abstracts
RRP Newsletter
Frequency: annually
Type: other

Last Updated Date: