Recurrent Respiratory Papillomatosis Foundation (RRPF)

The Recurrent Respiratory Papillomatosis Foundation (RRPF) was created to provide family support; promote public awareness; and aid in the prevention, cure, and treatment of recurrent respiratory papillomatosis (RRP), a rare disease that affects the voice. The most common symptoms of RRP are a hoarse or strained voice, dysphonia (difficulty in speaking), or aphonia (loss of voice). The organization focuses primarily on disseminating information on RRPF and research efforts to patients, families, medical practitioners, and researchers. The organization also maintains an RRPF patient registry. Its goal is to stimulate more RRP-related research that may lead to more effective treatments and, ultimately, a cure for this disease. Professional/consumer brochures/pamphlets, a database of RRP clinicians, and an online support group are available.