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Neurofibromatosis Network

President: Ryan Geier

PO Box 1530
Wheaton, IL 60187
Voice: (630) 510-1115
Toll-Free Voice: (800) 942-6825

Neurofibromatosis, Inc., (NF, Inc.) is a national nonprofit organization dedicated to all people affected by neurofibromatosis (NF) and other related disorders. NF, Inc., distributes materials on NF1 and NF2; promotes national, state, and local community involvement; supports research; has a governing board with NF2 representation; and provides real-time captioning at meetings. A toll-free helpline and website provide access to peer counseling and information 24 hours a day. A professional directory and professional/consumer publications are available.


Neurofibromatosis Ink
Frequency: semiannual
Type: professional/consumer newsletter

Last Updated Date: