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Neurofibromatosis Network

President: Cheri Stewart

Address: 
213 S. Wheaton Avenue
Wheaton
IL
60187
Voice: 
(630) 510-1115
Toll-Free Voice: 
(800) 942-6825
Web Address: 
Description: 

Neurofibromatosis, Inc., (NF, Inc.) is a national nonprofit organization dedicated to all people affected by neurofibromatosis (NF) and other related disorders. NF, Inc., distributes materials on NF1 and NF2; promotes national, state, and local community involvement; supports research; has a governing board with NF2 representation; and provides real-time captioning at meetings. A toll-free helpline and website provide access to peer counseling and information 24 hours a day. A professional directory and professional/consumer publications are available.

Publications: 

Neurofibromatosis Ink
Frequency: semiannual
Type: professional/consumer newsletter

Last Updated Date: 
May 21, 2019