President/CEO: Peter L. Saltonstall
Vice President, Information Services: Mary Dunkle, Vice President of Educational Initiatives
The National Organization for Rare Disorders (NORD) is a nonprofit voluntary health agency that serves as a clearinghouse for information on rare disorders. A rare disorder is a disease or condition that affects fewer than 200,000 Americans. Cumulatively, there are more than 7,000 rare diseases affecting more than 30 million Americans. NORD is committed to the identification, treatment, and cure of rare diseases through education, advocacy, research, and service programs. NORD administers medication assistance programs for certain rare-disease drugs as well as research grants and fellowships.
NORD Resource Guide
Frequency: every two years
Type: resource guide
Orphan Disease Update