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MdDS Balance Disorder Foundation

President: Marilyn Josselyn
Contact Foundation Board Members: Linda McManus, Deb Russo

Address: 
22406 Shannondell Drive
Audubon
PA
19403
Voice: 
(484) 232-9194
Fax: 
(210) 641-6077
Last Updated Date: 
September 24, 2018
Description: 

The MdDS Balance Disorder Foundation is an all-volunteer 501(c)(3) organization that seeks to promote awareness of, and to support bio-medical research into a cause, treatment, and a cure for MdDS. In addition, the Foundation assists medical professionals and patients suffering with MdDS through its website, which contains a list of related bio-medical research,  and social media based support groups. Mal de debarquement syndrome (MdDS) or disembarkment syndrome is a rare disorder of perceived motion that most often develops after a motion event including, but not limited to. ocean cruises, plane, train, automobile or other type of travel.  Although there are more cases reported in females, there are many men diagnosed with MdDS.  MdDS symptoms include persistent and long-lasting sensations of motion (rocking, swaying, or bobbing); this perceived motion is associated with fatigue, imbalance, and impaired cognitive function. MdDS is frequently misdiagnosed or goes undiagnosed because many in the health care community are unaware. Unfortunately, effective MdDS treatments/therapies are lacking and the cause of MdDS remains unknown.

Publications: 

Mal de Debarquement Support News
Frequency: quarterly
Type: newsletter