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Children’s Tumor Foundation (CTF)

President: Annette Bakker PhD

Address:
132 East 43rd St. Suite 418
New York, NY 10017
Voice: 212-344-6633
Toll-Free Voice: 800-323-7938
Toll-Free TTY: 800-323-7938
Fax: 212-747-0004
Web Address: https://www.ctf.org/
Description:

The Children’s Tumor Foundation is a 501(c)(3) not-for-profit organization dedicated to funding and driving innovative research that will result in effective treatments for the millions of people worldwide living with neurofibromatosis (NF), a term for three distinct disorders: NF1, NF2, and schwannomatosis. NF causes tumors to grow on nerves throughout the body and may lead to blindness, deafness, bone abnormalities, disfigurement, learning disabilities, disabling pain, and cancer. NF affects 1 in every 3,000 births across all populations equally. There is no cure yet – but the Children’s Tumor Foundation mission of driving research, expanding knowledge, and advancing care for the NF community fosters our vision of one day ending NF. For more information, please visit www.ctf.org.

Publications:

“Fact Sheets & Brochures”
Type: free, downloadable, in-depth information about NF and research underway to find a cure
Audience: public, patients, patient advocates
https://www.ctf.org/resources/resource-library

"NF News"
Frequency: quarterly
Type: free, downloadable and print, newsletter/report
https://www.ctf.org/news/newsletter

“Educational Videos”
Frequency: monthly
Type: videos about NF diagnosis, management, and research from patient forums and from our “AskKate” YouTube series from CTF’s Patient Support Coordinator, Kate Kelts, RN.< br /> https://www.ctf.org/resources/resource-library

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