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NIH Offers New Resources on Usher Syndrome, Most Common Cause of Vision and Hearing Loss

April 15, 2008

June 1, 2017 update: The Usher syndrome website is no longer available. Please see our Usher syndrome information page.

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Usher syndrome is the most common genetic condition that affects both hearing and vision. In the United States, about four babies in 100,000 are born with it. The National Institutes of Health, which conducts and sponsors research on Usher syndrome, has two new resources for affected families.

The National Institute on Deafness and Other Communication Disorders (NIDCD) has teamed with the National Eye Institute, both components of NIH, to create a new Web site devoted to Usher syndrome at The design of the site is simple and uses large type to ease readability for people with low vision. The new Web site offers basic facts about Usher syndrome, resources for patients and families, information on clinical studies, and resources for scientists.

NIDCD also has updated its fact sheet on Usher syndrome. The new version is available online at or in print. To request print copies, contact the NIDCD Information Clearinghouse by calling 800-241-1044 or sending an Email to

Last Updated Date: 
May 31, 2017