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Advocure NF2, Inc.

Chairperson: Marie Drew
Treasurer: Cynthia Henrion

Address: 
P.O. Box 4118
Clearwater
Florida
33758-4118
Last Updated Date: 
June 30, 2011
Description: 

Neurofibromatosis Type II (NF2) is a rare, genetic disease that causes tumors to grow throughout the brain and spinal cord, threatening hearing, vision, mobility, and even basic life functions such as swallowing. Advocure NF2, Inc., is a 501(c)(3) public charity and liaison group that advocates for the NF2 Crew (an online-based support community for patients and others) and the NF2 international community. Advocure NF2, Inc., monitors research and drug developments worldwide and works to expedite systemic therapy that may treat and possibly even cure NF2. Its website offers
information on understanding and living with NF2, research, and other resources. A quarterly newsletter is available online.

Publications: 

NF2 Compass
Frequency: quarterly
Type: newsletter