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NIDCD Resources Available for Deaf-Blind Awareness Week 

Elderly couple looking at each other

More than a million people in the United States are deaf-blind, according to the Helen Keller National Center (HKNC), and the numbers are on the rise as the portion of the population over age 55 increases. This week is Deaf-Blind Awareness Week, and the National Institute on Deafness and Other Communication Disorders (NIDCD) joins the HKNC’s efforts to raise awareness about deaf-blindness and the people who live with hearing and vision loss.

The NIDCD offers health education materials on hearing and hearing loss to patients, their family members, and hearing health professionals. This information is available online at www.nidcd.nih.gov, or through the NIDCD Information Clearinghouse at (800) 241-1044 or (800) 241-1055 (TTY).

Usher Syndrome fact sheet
Usher syndrome is the most common condition that affects both hearing and vision. Learn about the syndrome, including its characteristics, cause, and treatment.

Usher Syndrome website
This website, which is a collaboration of the NIDCD and the National Eye Institute (NEI), presents information for patients and their families, guidance on how to participate in a clinical trial, and resources for research scientists.

Hearing Loss and Older Adults fact sheet
Thinking that you or someone you know needs a hearing test? If you answer “yes” to at least three of the questions listed in this fact sheet, you may need to see a doctor. Also, learn about treatment and devices available.

Hearing Aids fact sheet
This fact sheet describes what hearing aids are, and details how they can help you as well as the different styles and types available. It also includes a list of questions that you should ask your doctor before buying a hearing aid.

NIDCD Directory of Organizations
This Web-based resource provides a list of national organizations with an interest in communication disorders. Search the database using the keyword “deaf-blindness” for a list of organizations providing services or support for people with hearing and vision loss.