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Special Parents Section
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New Directions in Health Communication
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Clearinghouse Update
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CHID Online: Database News
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WISE EARS!®Update--Coalition Members
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Calendar of Events
NIH Pub. No. 00-4202 |
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CHID Online: Deafness and Communication Disorders Database News
Resources for Parents
The Combined Health Information Database (CHID) is a searchable bibliographic meta-database composed of 16 separate databases, each sponsored by a health-related Federal agency. Tens of thousands of people use CHID each month to find leads to journal articles, books, patient education pamphlets, videos, Spanish-language resources, and other materials.
The Deafness and Other Communication Disorders (DC) database, sponsored by NIDCD, is part of CHID. The DC database serves as a national resource and includes descriptions and abstracts of more than 6,000 materials dealing with both normal and disordered communication processes. The database contains many leads to information for parents of children with communication disorders. Here are some helpful parent resources listed in CHID:
- So Your Child Has a Hearing Loss. This booklet by the Alexander Graham Bell Association for the Deaf and Hard of Hearing (A.G. Bell) gives a brief overview of the issues faced by parents of children with a hearing loss. These include early identification of hearing loss, early intervention, selection of communication methods and hearing technology, and education options. The booklet concludes with a list of resources parents can use to obtain more information. Contact A.G. Bell by phone at (202) 337-5220 (voice) or (202) 337-5221 (TTY) or on the Internet at www.agbell.org. Single copies are free to individuals and may be purchased in bulk.
- Language, Speech, and Social-Emotional Development of Children Who Are Deaf or Hard of Hearing: The Early Years. A.G. Bell's quarterly journal, The Volta Review, has published this monograph focusing on language, speech, social, and emotional development in the first few years of a deaf or hard-of-hearing child's life. Eleven different articles discuss a variety of topics, such as expressive and receptive vocabulary development, early identification of hearing loss and intervention, universal newborn hearing screening, and the social-emotional availability in children with hearing loss and their mothers. This publication is available for $22.95 from A.G. Bell.
- Autism-PDD. Usually evident by age three, autism and pervasive developmental disorder (PDD) are neurological disorders that affect a child's ability to communicate, understand language, play, and relate to others. This fact sheet discusses the characteristics and educational implications of these disabilities. It also includes references to several resources designed for parents of children with autism. The fact sheet is available free of charge from the National Information Center for Children and Youth with Disabilities (NICHCY) at (800) 695-0285 (voice/TTY) or www.nichcy.org.
- Speech and Language Delay: What Does This Mean for My Child? Many factors, including hearing loss, can contribute to a speech and language delay. Autism, elective mutism (the child chooses not to talk), bilingualism, or cerebral palsy may also be the cause of a delay. This parent education handout explains identification, causes, diagnosis, and treatment of speech delays. This handout was published in the June 1999 issue of American Family Physician and is available at www.aafp.org/afp.
For more materials on these topics, search CHID anytime for free. Just visit the CHID web site. Also, if your organization has produced videos, booklets, fact sheets, or other materials on these topics, we encourage you to send us a copy for potential listing in the DC database. Please contact the clearinghouse for shipping instructions. By phone, call us at (800) 241-1044 (voice) or (800) 241-1055 (TTY). Or you can e-mail us at nidcdinfo@nidcd.nih.gov. |