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Special Parents Section
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New Directions in Health Communication
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Clearinghouse Update
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CHID Online: Database News
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WISE EARS!®Update--Coalition Members
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Calendar of Events
NIH Pub. No. 00-4202 |
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Clearinghouse Update
NIDCD Releases 2000 Directory
NIDCD has released the newest version of its Directory: Information Resources for Human Communication Disorders. The directory features more than 130 organizations committed to health issues related to hearing, balance, smell, taste, voice, speech, and language. Along with contact information, short descriptions that explain the scope and mission of each organization are provided.
New organizations added to the Directory include:
- Communication Services for the Deaf (CSD) offers human resource and telecommunication services. CSD works to help deaf or hard-of-hearing people gain greater independence and accessible communication services. The group also promotes public awareness of issues that affect the deaf and hard-of-hearing communities.
- Hope for Hearing Research Foundation works to stimulate and support research on disorders affecting the ears and the education of people who are deaf or hard of hearing. The foundation gives grants for research and conducts community outreach programs that provide workshops, counseling, support groups, lip-reading instruction, and lectures.
- Rehabilitation Research and Training Center for Persons Who Are Hard of Hearing or Late Deafened (RRTC) is a federally funded organization that serves the deaf and hard-of-hearing communities in employment and personal matters. RRTC staff is composed of a multidisciplinary team of professionals.
- The Hear Me Foundation is a resource for families with children who are deaf or hard of hearing. The foundation provides camps and year-round events primarily for oral deaf and hard-of-hearing children. For families, the foundation is a resource for learning skills that aid in monitoring their child's learning, speech, language, and socialization skills.
You can order a free copy of the Directory, by contacting the NIDCD Information Clearinghouse.
New NIDCD Quick Facts
Here's the scoop on some of this year's additions to the topics on the NIDCD web site.
American Sign Language
Find out about the origins of American Sign Language (ASL) and how it functions as its own complete, complex language. The fact sheet covers the importance of early language learning to users of ASL and recent research on sign language.
Cochlear Implants
Learn how cochlear implants can be used by profoundly deaf people (and sometimes severely hard-of-hearing people) to achieve a useful auditory understanding of their environment. Get answers to fundamental questions about cochlear implants, including how the implant works, how a person receives one, and who may be the best candidates. A print version is also available.
Sudden Deafness
Discover the causes, diagnosis, and treatments of sudden sensorineural hearing loss, or sudden deafness. There are approximately 4,000 new cases of rapid hearing loss each year in the United States. Important research relating to sudden deafness is highlighted.
All of these fact sheets include listings of additional resources and are accessible at no cost at the NIDCD web site.
Now Available: Summary Packet on Communicating Informed Consent to Individuals Who Are Deaf or Hard-of-Hearing
The report from a 1999 NIDCD working group session on Communicating Informed Consent to Individuals Who Are Deaf or Hard-of-Hearing is now available. Informed consent, a crucial part of participation in scientific research, has become an increasingly complex issue in recent years. To facilitate participation in clinical research by deaf and hard-of-hearing individuals, NIDCD-supported scientists, experts in legal and informed consent issues, and members of the deaf and hard-of-hearing communities met to clarify the issues, develop recruitment guidelines for scientists, and discuss materials that guide the process of obtaining informed consent.
The report, including a growing bibliography, is now available from NIDCD. If you would like a complimentary copy, contact the NIDCD Information Clearinghouse. |