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Directory of Organizations

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American Otological Society (AOS)

President: Clough Shelton, M.D.
Public Information Contact: Shirley Gossard, Administrator
Address: Administrative Office, 3096 Riverdale Road, The Villages, FL, 32162
Voice: (352) 751-0932
Fax: (352) 751-0696
E-mail: segossard@aol.com
Internet: www.americanotologicalsociety.org

Description:
The American Otological Society (AOS) is a professional organization whose missions are to advance and promote medical and surgical otology/neurotology, including the rehabilitation of individuals with hearing and balance disorders, and to encourage, promote, and sponsor research in otology/neurotology, lateral skull base surgery, and related disciplines. The educational mission of AOS is to foster dialogue and share information on advances in the understanding and management of otological and neurotologic disorders. Holds annual meeting for members; visit the AOS Web site for date and location. AOS also publishes peer-reviewed papers and discussions presented during the scientific program of its meeting as well as proceedings of its business meetings.

Acoustical Society of America (ASA)

Executive Director: Charles E. Schmid, Ph.D.
Public Information Contact: Elaine Moran
Address: 2 Huntington Quadrangle, Suite 1NO1, Melville, NY, 11747-4502
Voice: (516) 576-2360
TTY: (516) 576-2360
Fax: (516) 576-2377
E-mail: asa@aip.org
Internet: asa.aip.org

Description:
The mission of the Acoustical Society of America (ASA) is to promote the understanding and practical applications of acoustics. ASA publishes a monthly journal covering all topics in acoustics, including speech and hearing. A magazine, a professional directory, and professional brochures and monographs/books also are available. Holds two meetings each year; refer to the ASA home page for dates and locations.

Association for Research in Otolaryngology (ARO)

President: P. Ashley Wackym, M.D.
Public Information Contact: Darla M. Dobson, Executive Director
Address: 19 Mantua Road, Mt. Royal, NJ, 08061
Voice: (856) 423-0041
Fax: (856) 423-3420
E-mail: headquarters@aro.org
Internet: www.aro.org

Description:
The Association for Research in Otolaryngology (ARO) is an international scientific society of researchers who investigate basic science and clinical problems associated with hearing, speech, balance, smell and taste, and diseases of the head and neck. ARO’s goals are to encourage both basic and clinical research in the broad field of otolaryngology and related areas and to foster friendly assembly and stimulate scientific interest among its members. Holds mid-winter research meeting; contact ARO for date and location.

American Auditory Society (AAS)

President: Michael Gorga, Ph.D.
Public Information Contact: Jay Rubinstein, Ph.D., President-elect
Address: 352 Sundial Ridge Circle, Dammeron Valley, UT, 84783-5196
Voice: (435) 574-0062
Fax: (435) 574-0063
E-mail: aas@amauditorysoc.org
E-mail: amaudsoc@aol.com
Internet: www.amauditorysoc.org

Description:
The purpose of the American Auditory Society (AAS) is to increase knowledge and understanding of the ear, hearing, and balance; their disorders and how to prevent them; and habilitation and rehabilitation of individuals with hearing and balance dysfunction. AAS coordinates and disseminates information, particularly through regular meetings, sponsorships, and publication of a professional journal and newsletter and other informational materials. Holds annual meeting; contact AAS for date and location.

Association of Late-Deafened Adults (ALDA)

President: Edgar Palmer
Address: 8038 Macintosh Lane, Rockford, IL, 61107
Toll-free Voice: (866) 402-ALDA (2532)
Toll-free TTY: (866) 402-ALDA (2532)
E-mail: info@alda.org
Internet: www.alda.org

Description:
The Association of Late-Deafened Adults (ALDA) serves as a resource center providing information and referrals, self-help, and support groups for people deafened as adults. ALDA works to increase public awareness of the special needs of deafened adults. Holds annual conference; contact ALDA for date and location. A professional/consumer directory, proceedings of conventions, and fact sheets are available.

AUDIENT

President: Mike Langhout
Public Information Contacts: Sharon Kerpel, Thlayla Potter, and Marsha Rastatter
Address: 901 Boren Avenue, Suite 810, Seattle, WA, 98104
Voice: (206) 838-7194
Toll-free Voice: (877) AUDIENT (283-4368)
Fax: (206) 838-7195
E-mail: info@audientalliance.org
Internet: www.audientalliance.org

Description:
AUDIENT provides hearing care to low-income individuals who qualify. Hearing care costs for participants range between $760 and $1,500, depending on the type of hearing aid and whether a person receives a monaural (one ear) or binaural (both ears) fitting. AUDIENT products and services include hearing aids, ear molds, fittings, and three follow-up visits.

Academy of Rehabilitative Audiology (ARA)

President: Patricia Kricos, Ph.D.
Administrative Assistant: Karen Dannheim
Address: P.O. Box 952, DeSoto, TX, 75123
Fax: (972) 534-1281
E-mail: ara@audrehab.org
Internet: www.audrehab.org

Description:
The Academy of Rehabilitative Audiology (ARA) was founded in 1966 as a forum for the exchange of ideas, knowledge, and experience related to rehabilitative aspects of audiology and associated disciplines. Membership in ARA is open to professionals holding a graduate degree in audiology, speech-language pathology, or the education of persons with hearing impairment. Associate and student memberships also are available. Holds annual institute; contact ARA for date and location. A professional newsletter/bulletin, directory, and books and monographs are available.

American Tinnitus Association (ATA)

Chief Executive Officer: David Fagerlie
Public Information Contact: Jennifer DuPriest, Director of Public Affairs
Address: P.O. Box 5, Portland, OR, 97207-0005
Voice: (503) 248-9985
Toll-free Voice: (800) 634-8978
Fax: (503) 248-0024
E-mail: jennifer@ata.org
Internet: www.ata.org

Description:
The mission of the American Tinnitus Association (ATA) is to cure tinnitus by developing resources that advance tinnitus research. Founded in 1971, ATA has raised and allocated millions of dollars toward medical research projects focused on a cure. ATA also advocates for effective public policies that support its mission. ATA publishes a triannual magazine that is written for a non-medical audience. The magazine includes detailed articles on current research, treatment, and other information for those living with tinnitus and others interested in staying current in this field. Articles from prior issues are available on the ATA Web site. A consumer directory, fact sheets, and other publications for professionals and consumers also are available online and in print.

Academy of Doctors of Audiology (ADA) (formerly the Academy of Dispensing Audiologists)

President: Larry Englemann, Au.D.
Association Manager: Erin Butler
Address: 401 North Michigan Avenue, Suite 2200, Chicago, IL, 60611-4267
Voice: (866) 493-5544
Fax: (312) 673-6725
E-mail: info@audiologist.org
Internet: www.audiologist.org

Description:
The Academy of Doctors of Audiology (ADA), founded in 1976, provides valuable resources to the private practitioner in audiology and to other audiology professionals who have responsibility for quality patient care and business operations. Member benefits include a quarterly business-focused journal, online forums, and various practice management resources. ADA strives to be the leader in professional development, high ethical standards, career enhancement, practice improvement, and student outreach.

American Association of the Deaf-Blind (AADB)

Executive Director: Jamie Pope
Address: 8630 Fenton Street, Suite 121, Silver Spring, MD, 20910
Voice: (301) 495-4403
TTY: (301) 495-4402
Fax: (301) 495-4404
E-mail: aadb-info@aadb.org
Internet: www.aadb.org

Description:
The American Association of the Deaf-Blind (AADB) is a national consumer organization of, for, and by people who have dual hearing and vision loss. The mission of AADB is to ensure that all deaf-blind persons achieve their maximum potential through increased independence, productivity, and integration into the community. Holds biennial conference; contact AADB for date and location.

ABLEDATA

Director: Katherine Belknap, M.A.
Information Specialist: Juanita Hardy
Address: 8630 Fenton Street, Suite 930, Silver Spring, MD, 20910
Voice: (301) 608-8998
Toll-free Voice: (800) 227-0216
TTY: (301) 608-8912
Fax: (301) 608-8958
E-mail: abledata@orcmacro.com
Internet: www.abledata.com

Description:
The ABLEDATA project helps people who have disabilities, including communication disorders, by providing information about assistive devices, rehabilitation equipment, and other products. Resources include a database of more than 34,000 products. A database of citations of books, articles, and other resources related to assistive technology also is available, along with fact sheets, brochures, and online publications.

American Academy of Audiology (AAA)

Interim Executive Director: Cheryl Kreider Carey, CAE
Public Information Contact: Sydney Hawthorne Davis, Director of Communications
Address: 11730 Plaza America Drive, Suite 300, Reston, VA, 20190
Voice: (703) 790-8466
Toll-free Voice: (800) 222-2336
TTY: (703) 790-8466
Fax: (703) 790-8631
E-mail: info@audiology.org
Internet: www.audiology.org / www.audiologyfoundation.org

Description:
With more than 10,000 members, the American Academy of Audiology (AAA) is the world’s largest professional organization of, by, and for audiologists. Dedicated to providing quality hearing care to the public, AAA enhances the ability of its members to achieve career and practice objectives through professional development, education, research, and increased public awareness of hearing and balance disorders and audiologic services. Holds annual convention; see AAA Web site for date and location. Resources include a professional magazine and journal as well as professional computer software/assisted education. Online professional/consumer publications, an audiologist locator, and a professional membership directory also are available. Some Spanish materials are available.

American Broncho-Esophagological Association (ABEA)

President: Clarence Sasaki
Public Information Contact: Peter J. Koltai, M.D., Secretary
Address: Stanford University, 801 Welch Road, Stanford, CA, 94305-5739
Voice: (650) 725-6500
Voice: (801) 587-7678
Fax: (801) 585-5744
E-mail: koltai@stanford.edu
Internet: www.abea.net

Description:
The American Broncho-Esophagological Association (ABEA) is an association of physicians with interest in the function and diseases of the upper aerodigestive tract and the relevant applications of endoscopy. The goals of ABEA are to educate and update physicians in evaluating and managing aerodigestive tract disorders; stimulate and support basic and clinical research; advocate and support endoscopy training in residency and fellowship programs; and provide information useful to patients, industry, scientists, physicians, and other health care professionals at a national otolaryngology meeting.

Autism Network for Hearing and Visually Impaired Persons

Directors: Dolores Bartel and Alan Bartel, M.D.
Address: 7510 Ocean Front Avenue, Virginia Beach, VA, 23451
Voice: (757) 428-0019
Fax: (757) 428-0019

Description:
The Autism Network for Hearing and Visually Impaired Persons provides a support group and a database for parents and professionals to share experiences and advice on education, services, and management problems. One long-term goal is the establishment of regional resource and evaluation centers for people with autism and hearing and visual disabilities. A directory is available.

Audiology and Speech Pathology Services, U.S. Department of Veterans Affairs (VA)

Director: Lucille B. Beck, Ph.D.
Public Information Contact: Cathy Greener
Address: VA Medical Center, 50 Irving Street, NW, Washington, DC, 20422
Voice: (202) 745-8578
Voice: (202) 745-8270
Fax: (202) 745-8579
E-mail: cathy.greener@va.gov

Description:
Audiology and Speech Pathology Services of the U.S. Department of Veterans Affairs (VA) provides high-quality, comprehensive, state-of-the-art clinical services to eligible veterans. Diagnostic and treatment services are offered in a timely manner and in an environment that fosters respect, communication, and compassion. Audiology services include evaluation and treatment of hearing loss and tinnitus, along with assessment of balance problems and, in some locations, balance rehabilitation. Diagnostic auditory and vestibular assessment, provision of hearing aids and assistive and alerting devices, cochlear implant management, and auditory rehabilitation also are available. Speech pathology services include evaluation and treatment of speech, language, voice, and swallowing disorders.

American Academy of Otolaryngology--Head and Neck Surgery (AAO-HNS)

Executive Vice President: David R. Nielsen, M.D.
Public Information Contact: Jeanne McIntyre, Director of Communications
Address: One Prince Street, Alexandria, VA, 22314-3357
Voice: (703) 836-4444
Fax: (703) 683-5100
E-mail: webmaster@entnet.org
Internet: www.entnet.org

Description:
The nonprofit American Academy of Otolaryngology—Head and Neck Surgery (AAO-HNS) strives to unite, serve, and represent the interests of ear, nose, and throat specialists and their patients to the public, government, other medical specialists, and related organizations. AAO-HNS provides leaflets and geographic lists of physicians to the public at no charge. Holds annual meeting; contact AAO-HNS for date and location. AAO-HNS provides a professional bulletin, journal, directory, books, and other materials. Professional/consumer publications are available online and in print, with some in Spanish.

American Neurotology Society (ANS)

President: D. Bradley Welling, M.D., Ph.D.
Public Information Contact: Shirley Gossard, Administrator
Address: Administrative Office, 3096 Riverdale Road, The Villages, FL, 32162
Voice: (352) 751-0932
Fax: (352) 751-0696
E-mail: segossard@aol.com
Internet: www.americanneurotologysociety.com

Description:
The American Neurotology Society (ANS) is composed of physicians and audiologists devoted to the fields of neurotology and otology. The purpose of ANS is to exchange and disseminate information about the physiology, pathology, and clinical management of the sensorineural systems of audition and equilibrium, and to stimulate education and basic and clinical research relating to these systems. Holds two scientific meetings per year, which are open to anyone in the health sciences and particularly to individuals with major interest areas in hearing and balance. For meeting dates and locations, contact the ANS administrative office.

American Laryngological Association (ALA)

Public Information Contact: Marvin P. Fried, M.D.
Address: Vanderbilt University Medical Center, Department of Otolaryngology, 7302 MCE South Tower, Nashville, TN, 37232
Voice: (615) 322-6326
Fax: (615) 322-9102
E-mail: maxine@alahns.org
Internet: www.alahns.org

Description:
The mission of the American Laryngological Association (ALA) is to promote education and research and to disseminate important new scientific information relative to laryngology, which is the study of basic science, evaluation, and management of disorders relating to the larynx. ALA strives to accomplish this mission by promoting and presenting the latest scientific discoveries, publishing peer-reviewed reports, establishing funding sources for pilot research studies that facilitate subsequent funding by the National Institutes of Health, and sponsoring educational seminars and courses as well as public service announcements.

Alexander Graham Bell Association for the Deaf and Hard of Hearing (AG Bell)

Interim Executive Director: Frederick T. Spahr
Senior Director, Marketing and Communications: Jessica Ripper
Address: 3417 Volta Place, NW, Washington, DC, 20007-2778
Voice: (202) 337-5220
Toll-free Voice: (866) 337-5220
TTY: (202) 337-5221
Fax: (202) 337-8314
E-mail: info@agbell.org
Internet: www.agbell.org

Description:
The Alexander Graham Bell Association for the Deaf and Hard of Hearing (AG Bell) is a lifelong resource, support network, and advocate for listening, learning, talking, and living independently with hearing loss. Through publications, advocacy, training, scholarships, and financial aid, AG Bell promotes the use of spoken language and hearing technology. Headquartered in Washington, DC, AG Bell has chapters located in the United States and Canada and also includes a network of international affiliates.

Association for Chemoreception Sciences (AChemS)

Associate Executive Director: Tisha Kehn
Address: 5841 Cedar Lake Road, Suite 204, Minneapolis, MN, 55416
Voice: (952) 646-2035
Fax: (952) 545-6073
E-mail: info@achems.org
Internet: www.achems.org

Description:
The Association for Chemoreception Sciences (AChemS) is an international association that advances understanding of the senses of taste and smell. It encourages basic, clinical, and applied research in the chemical senses (gustation, olfaction, and trigeminal sensation); promotes an appreciation of chemosensory research; represents the interests of the chemosensory research community; and serves as a resource for those requiring chemosensory expertise. Holds annual meeting; contact AChemS for date and location. A professional newsletter and directory are available.

American Hearing Research Foundation (AHRF)

Executive Director: William L. Lederer
Public Information Contact: Richard G. Muench, Chairman
Address: 8 South Michigan Avenue, Suite 814, Chicago, IL, 60603-4539
Voice: (312) 726-9670
Fax: (312) 726-9695
E-mail: blederer@american-hearing.org
Internet: www.american-hearing.org

Description:
The American Hearing Research Foundation (AHRF) is a nonprofit organization. Its purposes are to promote, conduct, and furnish financial assistance for medical research into the causes, prevention, and cure of deafness, impaired hearing, and balance disorders. See the AHRF Web site for additional information.

Agency for Healthcare Research and Quality (AHRQ)

Director: Carolyn Clancy, M.D.
Public Information Contact: Kevin Murray
Address: 540 Gaither Road, Rockville, MD, 20850
Voice: (301) 427-1853
Toll-free Voice: (800) 358-9295
Toll-free TTY: (888) 586-6340
E-mail: info@ahrq.gov
Internet: www.ahrq.gov

Description:
The Agency for Healthcare Research and Quality (AHRQ) provides practical health care information, research findings, and data to help consumers, health providers, health insurers, researchers, and policymakers make informed decisions about health care issues. A professional/consumer newsletter/bulletin, fact sheets, brochures/pamphlets, online publications, and professional reports are available. Some Spanish materials are available.

AG Bell Academy for Listening and Spoken Language

Executive Director: Alexander T. Graham
Director of Communications: Catherine Murphy
Address: 3417 Volta Place, NW, Washington, DC, 20007
Voice: (202) 204-4700
TTY: (202) 337-5221
Fax: (202) 337-1637
E-mail: shall@agbellacademy.org
Internet: www.agbellacademy.org

Description:
The AG Bell Academy for Listening and Spoken Language is a nonprofit organization dedicated to promoting the delivery of comprehensive services to children and adults who are deaf or hard-of-hearing through the certification of professionals who work with these individuals. The newly formed academy develops and manages certification programs, with an initial focus on the continued growth and recognition of the certified auditory-verbal therapist designation. The academy incorporated Auditory-Verbal International and is closely affiliated with the Alexander Graham Bell Association for the Deaf and Hard of Hearing, which offers information and resources to the general public as well as to professionals.

Aphasia Hope Foundation (AHF)

Founder/Executive Director: Judi Stradinger
Public Information Contact: Sandy Caudell, Program Director
Address: P.O. Box 26304, Shawnee Mission, KS, 66225-6304
Voice: (913) 839-8083
E-mail: sandycaudell@aphasiahope.org
E-mail: judistradinger@aphasiahope.org
Internet: www.aphasiahope.org

Description:
The Aphasia Hope Foundation (AHF) is a nonprofit organization with a twofold mission: (1) to promote research into the cure and prevention of aphasia and (2) to provide survivors of aphasia and their caregivers access to the best possible treatments, both physical and emotional, for living with this disease. AHF maintains an electronic bulletin board and a Web-based forum for posting questions to aphasia professionals and caregivers. AHF also provides information on ongoing research and legislation focusing on aphasia and offers an outlet through which persons with aphasia can share their stories.

American Academy of Facial Plastic and Reconstructive Surgery, Inc. (AAFPRS)

Executive Vice President: Stephen Duffy
Public Information Contact: Rita Chua Magness, Director of Publications and Marketing
Address: 310 South Henry Street, Alexandria, VA, 22314
Voice: (703) 299-9291
Fax: (703) 299-8898
E-mail: info@aafprs.org
Internet: www.aafprs.org

Description:
The American Academy of Facial Plastic and Reconstructive Surgery, Inc., (AAFPRS) is the largest association of facial plastic and reconstructive surgeons in the world. The academy’s bylaws provide that AAFPRS fellows be board-certified surgeons with training and experience in facial plastic surgery as well as fellows of the American College of Surgeons or the Royal College of Surgeons. The AAFPRS Web site provides visitors with information about facial plastic surgery and the names of AAFPRS fellows in their area. Professional and consumer publications are available, with some in Spanish.

American Society for Deaf Children (ASDC)

Executive Director: Don Rhoten
Public Information Contact: Jessica Wells, Associate Executive Director
Address: 3820 Hartzdale Drive, Camp Hill, PA, 17011
Voice: (717) 703-0073
Toll-free Voice: (866) 895-4206
TTY: (717) 703-0073
E-mail: ASDC4U@aol.com
Internet: www.deafchildren.org

Description:
The American Society for Deaf Children (ASDC) supports and educates families of deaf and hard-of-hearing children, and advocates for high-quality programs and services. Holds biennial convention; contact ASDC for date and location. Consumer brochures and a magazine are available.

Association of University Centers on Disabilities (AUCD)

Executive Director: George Jesien, Ph.D.
Address: 1010 Wayne Avenue, Suite 920, Silver Spring, MD, 20910
Voice: (301) 588-8252
Fax: (301) 588-2842
E-mail: info@aucd.org
Internet: www.aucd.org

Description:
The Association of University Centers on Disabilities (AUCD) is the national association representing University Centers for Excellence in Developmental Disabilities, Maternal and Child Health Leadership Education in Neurodevelopmental Disabilities Programs, and Developmental Disabilities Research Centers. Its mission is to help member centers by advancing policy and practice for and with people with developmental and other disabilities, their families, and communities. Contact AUCD for date and location of annual meeting. A professional newsletter/bulletin, proceedings, and fact sheets are available.

Autism Society of America Address: 7910 Woodmont Avenue, Suite 300, Bethesda, MD, 20814
Voice: (301) 657-0881
Toll-free Voice: (800) 3-AUTISM (28-8476)
E-mail: info@autism-society.org
Internet: www.autism-society.org

Description:
The mission of the Autism Society of America (ASA) is to promote lifelong access and opportunities for persons within the autism spectrum and their families to be fully included, participating members of their communities. ASA works to achieve this mission through advocacy, public awareness, education, and research related to autism.

Acoustic Neuroma Association (ANA)

Executive Director: Judy B. Vitucci
Address: 600 Peachtree Parkway, Suite 108, Cumming, GA, 30041
Voice: (770) 205-8211
Toll-free Voice: (877) 200-8211
Fax: (877) 202-0239
E-mail: info@anausa.org
Internet: www.anausa.org

Description:
An acoustic neuroma, also called a vestibular schwannoma, is a slow-growing, benign tumor that develops on the balance portion of the eighth cranial nerve. Early symptoms include hearing loss, balance problems, and tinnitus. The Acoustic Neuroma Association (ANA) is a patient-focused organization that provides information and support to those affected by acoustic neuroma. Holds a national symposium; contact ANA for date and location. ANA also publishes a quarterly newsletter and other consumer information, organizes local support groups, promotes research, and maintains an interactive Web site.

American Association for the Advancement of Science (AAAS), EntryPoint!

Director: Virginia Stern
Program Manager: Laureen Summers
Address: 1200 New York Avenue, NW, Washington, DC, 20005
Voice: (202) 326-6649
TTY: (202) 326-6649
Fax: (202) 371-9849
E-mail: lsummers@aaas.org
Internet: www.entrypoint.org

Description:
In 1975, the American Association for the Advancement of Science (AAAS) initiated the Project on Science, Technology, and Disability to improve entry and advancement in science, math, and engineering for people with disabilities. Students with disabilities and their families, professors, teachers, and counselors are linked with scientists, mathematicians, and engineers who also have disabilities and who can share their coping strategies in technical fields. Through its program EntryPoint!, the project recruits college students with disabilities who are majoring in science, engineering, mathematics, computer science, and some business fields for summer opportunities at large corporations, federal agencies, and university science laboratories.

American Speech-Language-Hearing Foundation (ASHFoundation)

Executive Director: Nancy J. Minghetti
Public Information Contact: Emily Diaz
Address: 10801 Rockville Pike, Rockville, MD, 20852
Voice: (301) 897-5700, ext. 4314
TTY: (301) 897-0157
Fax: (301) 571-0457
E-mail: foundation@asha.org
Internet: www.ASHfoundation.org

Description:
The American Speech-Language-Hearing Foundation (ASHFoundation) supports the advancement of knowledge and the improvement of practice in serving children and adults with speech, language, or hearing disorders. ASHFoundation supports research, master’s and doctoral scholarships, and special projects that facilitate innovative directions in the field of communication sciences and disorders. This private organization is supported, in part, by the tax-deductible contributions of individuals, corporations, and organizations. See the Web site for information and funding guidelines.

American Speech-Language-Hearing Association (ASHA)

Executive Director: Arlene A. Pietranton, Ph.D.
Public Information Contact: Action Center
Address: 2200 Research Blvd., Rockville, MD, 20852
Toll-free Voice: (800) 638-8255
Toll-free TTY: (800) 638-8255
E-mail: actioncenter@asha.org
Internet: www.asha.org

Description:
The mission of the American Speech-Language-Hearing Association (ASHA) is to promote the interests of and provide the highest quality services for professionals in audiology, speech-language pathology, and speech and hearing science, and to advocate for people with communication disabilities. Holds annual conference; contact ASHA for date and location. Professional brochures/pamphlets, journals, and professional/consumer online publications are available. Some Spanish materials are available.

American Cleft Palate-Craniofacial Association (ACPA) and Cleft Palate Foundation (CPF)

Executive Director: Nancy C. Smythe
Public Information Contact: Lisa Gist, Cleftline Manager
Address: 1504 East Franklin Street, Suite 102, Chapel Hill, NC, 27514
Voice: (919) 933-9044
Toll-free Voice: (800) 24-CLEFT (2-5338)
Fax: (919) 933-9604
E-mail: CPF E-mail: info@cleftline.org
E-mail: ACPA E-mail: info@acpa-cpf.org
Internet: www.cleftline.org / www.acpa-cpf.org

Description:
The American Cleft Palate-Craniofacial Association (ACPA) is an international nonprofit association of more than 2,500 health care professionals who are involved in the treatment and research of cleft lip, cleft palate, and other craniofacial abnormalities. ACPA optimizes the interdisciplinary care of persons affected by craniofacial abnormalities. The Cleft Palate Foundation (CPF), which is the public service arm of ACPA, educates and assists the public regarding craniofacial anomalies and encourages research in the field. Holds annual convention; contact ACPA or CPF for date and location. A directory and professional/consumer fact sheets and brochures are available, with some in Spanish.

Association of Academic Physiatrists (AAP)

Executive Director: Carolyn L. Braddom-Ritzler, Ed.D.
Public Information Contact: Vincent A. Fields, Sr., M.B.A., Deputy Director
Address: 1106 North Charles Street, Suite 201, Baltimore, MD, 21201
Voice: (410) 637-8300
Fax: (410) 637-8399
E-mail: clbexec@physiatry.org
E-mail: vfields@physiatry.org
Internet: www.physiatry.org

Description:
The mission of the Association of Academic Physiatrists (AAP) is to promote excellence in the education, research, and practice of physical medicine and rehabilitation (PM&R) in the academic arena. To accomplish this, AAP facilitates the exchange of ideas and information on teaching the art and science of PM&R. AAP promotes the dissemination of information and academic life skills to future physicians who will be practicing PM&R and encourages information exchange with other fields of medicine. Holds annual conference; contact AAP for date and location. A professional newsletter, journal, brochures, and a residency training directory are available.

AARP

Chief Executive Officer: William D. Novelli
Manager, Media Services: Steve Hahn
Address: 601 E Street, NW, Washington, DC, 20049
Toll-free Voice: (888) 687-2277
TTY: (202) 434-6561
Toll-free TTY: (877) 434-7598
Fax: (202) 434-6499
E-mail: media@aarp.org
Internet: www.aarp.org

Description:
AARP is a nonprofit, nonpartisan membership organization that helps people who are ages 50 and older to have independence, choice, and control in ways that are beneficial and affordable to them and society as a whole. The AARP Foundation is an affiliated charity that provides security, protection, and empowerment to older persons in need with support from thousands of volunteers, donors, and sponsors. AARP has staffed offices in all 50 states, the District of Columbia, Puerto Rico, and the U.S. Virgin Islands.

Autism Speaks

President: Mark Roithmayr
Public Information Contact: Alison Singer, Executive Vice President, Communications
Address: 2 Park Avenue, 11th floor, New York, NY, 10016
Voice: (212) 252-8584
Fax: (212) 252-8676
E-mail: contactus@autismspeaks.org
Internet: www.autismspeaks.org

Description:
The goal of Autism Speaks is to change the future for all who struggle with autism spectrum disorders. This organization is dedicated to funding global biomedical research into the causes, prevention, treatments, and cure for autism; raising public awareness about autism and its effects on individuals, families, and society; and bringing hope to all who deal with the hardships of autism.

ADARA: Professional Networking for Excellence in Service Delivery with Individuals Who Are Deaf or Hard of Hearing

President: David Tout
Public Information Contact: Sherri Gallagher, National Office Coordinator
Address: P.O. Box 480, Myersville, MD, 21773
Voice: (301) 293-8969
TTY: (301) 293-8969
Fax: (301) 293-9698
E-mail: adaraorg@comcast.net
Internet: www.adara.org

Description:
The mission of ADARA is to facilitate professional development,networking opportunities, and public policies for a multidisciplinary membership of professionals who provide human services to persons who are deaf, hard-of-hearing, late-deafened, and deaf-blind. Holds biannual convention; contact ADARA for date and location. A professional/consumer newsletter/bulletin and professional online publications are available.

Better Hearing Institute (BHI)

President: Brian Kinnerk
Public Information Contact: Sergei Kochkin, Ph.D., Executive Director
Address: 1444 I Street, Suite 700, Washington, DC, 20005
Voice: (202) 449-1100
Toll-free Voice: (800) EAR-WELL (327-9355)
Fax: (202) 216-9646
E-mail: mail@betterhearing.org
Internet: www.betterhearing.org

Description:
The Better Hearing Institute (BHI) is a nonprofit corporation that educates the public about the neglected problem of hearing loss and what can be done about it. BHI maintains a “Hearing Helpline” telephone service that provides information on hearing loss, sources of assistance, and other available hearing help to callers anywhere in the United States and Canada. The institute also publishes an annual study of issues related to hearing loss. BHI receives funding from the hearing aid industry to support its professional/consumer outreach efforts.

Boys Town National Research Hospital (BTNRH)

Director: Patrick Brookhouser, M.D.
Public Information Contact: Mary Pat Moeller, Ph.D.
Address: 555 North 30th Street, Omaha, NE, 68131
Voice: (402) 498-6511
Voice: (402) 452-5068
TTY: (402) 498-6543
Fax: (402) 452-5027
E-mail: moeller@boystown.org
E-mail: johnsm@boystown.org
Internet: www.boystownhospital.org / www.babyhearing.org

Description:
The Boys Town National Research Hospital (BTNRH) is internationally recognized for clinical service and research into the treatment of childhood deafness and communication disorders. Research is conducted in 20 state-of-the-art laboratories and represents three broad areas: neurobiological studies of hearing; hereditary communication disorders; and clinical, educational, and behavioral studies of human communication.

Birth Defect Research for Children, Inc. (BDRC)

Executive Director: Betty Mekdeci
Address: 800 Celebration Avenue, Suite 225, Celebration, FL, 34747
Voice: (407) 566-8304
Fax: (407) 566-8341
E-mail: staff@birthdefects.org
Internet: www.birthdefects.org

Description:
Birth Defect Research for Children, Inc., (BDRC) provides parents and expectant parents with information about specific birth defects and their causes and treatments, support group referrals, and parent-matching services. BDRC also provides information about environmental exposures that may be associated with birth defects. To study these exposures further, BDRC sponsors the National Birth Defect Registry, an online research project that collects data on birth defects and prenatal/preconception exposures of both parents. A consumer newsletter, fact sheets, and other publications are available.

Brain Injury Association of America

President/CEO: Susan Connors
Address: 8201 Greensboro Drive, Suite 611, McLean, VA, 22102
Voice: (703) 761-0750
Toll-free Voice: (800) 444-6443
Fax: (703) 761-0755
E-mail: braininjuryinfo@biausa.org
Internet: www.biausa.org

Description:
The mission of the Brain Injury Association of America is to create a better future through brain injury prevention, research, education, and advocacy. Its Helpline offers information about brain injury to persons with brain injury, their families, professionals, and other interested callers. Educational materials, such as a consumer newsletter, brochures/pamphlets, a professional/consumer directory, fact sheets, and online publications, are available. Information also is available in Spanish.

BEGINNINGS for Parents of Children Who Are Deaf or Hard of Hearing, Inc. (BEGINNINGS)

Executive Director: Joni Alberg, Ph.D.
Public Information Contact: Judy Werbicki, Administrative Assistant
Address: P.O. Box 17646, Raleigh, NC, 27619
Voice: (919) 850-2746
Toll-free Voice: (800) 541-4327 (In-state only)
TTY: (919) 850-2746
Fax: (919) 850-2804
E-mail: info@ncbegin.org
Internet: www.ncbegin.org

Description:
BEGINNINGS for Parents of Children Who Are Deaf or Hard of Hearing, Inc., (BEGINNINGS) provides support and information in an impartial manner to parents and professionals dealing with deaf and hard-of-hearing issues in children. BEGINNINGS also provides impartial information on communication options, placement, and educational programs; workshops for professional personnel who work with children who are deaf and hard-of-hearing; and advocacy and support for young people. Fact sheets, brochures, a parent manual, and reports are available, with some materials in Spanish.

Council for Accreditation in Occupational Hearing Conservation (CAOHC)

Executive Director: Eloiza Altoro-Acevedo, MS CAE CPS
Executive Director: Eloiza Altoro-Acevedo
Address: 555 East Wells Street, Suite 1100, Milwaukee, WI, 53202-3823
Voice: (414) 276-5338
Fax: (414) 276-2146
E-mail: info@caohc.org
Internet: www.caohc.org

Description:
The main objective of the Council for Accreditation in Occupational Hearing Conservation CAOHC) is to provide education, information, and guidance to industry and mining and to those serving industry and mining for the successful implementation of an occupational hearing conservation program. See the Web site for the “Scope of Practice: The Professional Supervisor of the Audiometric Monitoring Program” (the audiometric portion of a hearing conservation program), “CAOHC Certified Occupational Hearing conservationist Scope of Practice and Limitations,” archived newsletters, and other comprehensive information.

CHERAB Foundation

Founder: Lisa Geng
Address: P.O. Box 8524, Port St. Lucie , FL, 34952
Voice: (772) 335-5135
Fax: (772) 337-4812
E-mail: help@cherab.org
Internet: www.cherab.org / www.speechville.com

Description:
The CHERAB Foundation (CHERAB) is a worldwide nonprofit organization that helps individuals with speech and language delays and disorders through communication help, education, and research that is apraxia-based. Its area of emphasis is verbal and oral apraxia—severe neurologically based speech and language disorders that hinder children’s ability to speak. The foundation is committed to assisting with the development of new therapeutic approaches to, and prevention and cure of, neurologically based speech disorders. CHERAB brings together parents and medical, research, and educational professionals to help give a voice to all.

Conference of Educational Administrators of Schools and Programs for the Deaf (CEASD)

Executive Director: Joe Finnegan
Address: P.O. Box 1778, St. Augustine, FL, 32085-1778
Voice: (904) 810-5200
TTY: (904) 810-5200
Fax: (904) 810-5525
E-mail: nationaloffice@ceasd.org
Internet: www.ceasd.org

Description:
The Conference of Educational Administrators of Schools and Programs for the Deaf (CEASD) is an association of schools and programs involved with the education of deaf and hard-of-hearing individuals. Founded in 1868, CEASD is committed to promoting excellence within a continuum of equitable educational opportunities for children and adults who are deaf or hard-of-hearing. At the national level, CEASD serves as an advocate for the deaf and hard-of-hearing with governmental bodies that establish educational policy and implement federal legislation. Holds annual convention; contact CEASD for date and location. A professional journal, newsletter, directory, brochures/pamphlets, and online publications are available.

Centers for Medicare and Medicaid Services (CMS)

Acting Deputy Administrator: Herb Kuhn
Public Information Contact: Jeff Nelligan, Director of Media Affairs
Address: 7500 Security Boulevard, Baltimore, MD, 21244-1850
Voice: (410) 786-3000
Voice: (202) 690-6145
Toll-free Voice: (877) 267-2323
Internet: www.cms.gov / www.medicare.gov

Description:
The Centers for Medicare and Medicaid Services (CMS) is a federal agency with responsibilities that include the Medicare and Medicaid programs, two national health care programs benefiting about 75 million Americans; the State Children’s Health Insurance Program; regulation of all non-research laboratory testing performed on humans in the United States; and programs assisting millions of Americans and small companies in obtaining health insurance coverage. The Web site www.cms.gov targets health care providers and the public, while www.medicare.gov offers information about services to beneficiaries. Publications are available.

Clearinghouse on Disability Information, Office of Special Education and Rehabilitative Services (OSERS) Public Information Contact: Carolyn Corlett
Address: 550 12th Street, SW, Room 5133, Washington, DC, 20004
Voice: (202) 245-7303
TTY: (202) 205-5637
Fax: (202) 245-7636
Internet: www.ed.gov/about/offices/list/osers/index.html

Description:
The Clearinghouse on Disability Information, a service of the U.S. Department of Education, responds to people with disabilities and others who request information by conducting research and providing documents related to federal funding available for disability-related programs. Clearinghouse staff members also may refer requests to other sources of disability-related information. Information provided may be useful to disabled individuals and their families, schools and universities, teachers and school administrators, and organizations who serve people with disabilities.

Children of Deaf Adults International, Inc. (CODA)

President: Carmel Batson
National CODA Outreach Contact: Thomas Bull
Address: P.O. Box 30715, Santa Barbara, CA, 93130
Voice: (805) 682-0997
TTY: (805) 682-0997
Internet: www.coda-international.org

Description:
Children of Deaf Adults International, Inc., (CODA) promotes family awareness and individual growth in hearing children of deaf parents. CODA provides educational opportunities, promotes self-help, organizes advocacy efforts, and acts as a resource for the membership and various communities. Holds annual conference; contact CODA for date and location. A professional/consumer newsletter, directory, fact sheets, brochures, and books are available.

Council for Learning Disabilities (CLD)

Executive Director: Linda Nease
Address: 11184 Antioch Road, #405, Overland Park, KS, 66210
Voice: (913) 491-1011
Fax: (913) 491-1012
E-mail: lnease@cldinternational.org
Internet: www.cldinternational.org

Communication Service for the Deaf, Inc. (CSD)

Chief Executive Officer: Benjamin Soukup, L.L.D.
Public Information Contact: Rick Norris, Corporate Communications Officer
Address: 102 North Krohn Place, Sioux Falls, SD, 57103
Voice: (605) 367-5760
Toll-free Voice: (800) 642-6410
TTY: (605) 367-5761
Toll-free TTY: (866) 273-3323
Fax: (605) 367-5958
E-mail: rnorris@c-s-d.org
Internet: www.c-s-d.org

Description:
Communication Service for the Deaf, Inc. (CSD), is a world leader in providing broad-based quality human service programs and telecommunication relay services for consumers who are deaf and hard-of-hearing. CSD has a staff of approximately 2,000 people in facilities across the United States. CSD endeavors to increase opportunities for greater independence, ensure communication accessibility, and promote public awareness of issues affecting everyone who is deaf or hard-of-hearing.

Center on Human Policy (CHP)

Director: Steven J. Taylor, Ph.D.
Public Information Contact: Rachael A. Zubal-Ruggieri, Information Coordinator
Address: Syracuse University, School of Education, 805 South Crouse Avenue, Syracuse, NY, 13244-2280
Voice: (315) 443-3851
Toll-free Voice: (800) 894-0826
Fax: (315) 443-4338
E-mail: thechp@syr.edu
Internet: thechp.syr.edu

Description:
The Center on Human Policy (CHP) is a Syracuse University-based policy, research, and advocacy organization involved in the national movement to ensure the rights of people with disabilities. CHP is involved in a broad range of local, state, national, and international activities, including policy studies, research, information and referral, advocacy, training and consultation, and information dissemination. Professional/consumer fact sheets, brochures/pamphlets, online publications, monographs/books, audiovisuals, and reports are available. Some materials are available in Spanish and French.

Council for Exceptional Children (CEC)

Executive Director: Bruce Ramirez
Public Information Contact: Lynda Van Kuren, Communications Director
Address: 1110 North Glebe Road, Suite 300, Arlington, VA, 22201
Voice: (703) 620-3660
Toll-free Voice: (800) 224-6830
Toll-free TTY: (866) 915-5000
Fax: (703) 264-9494
E-mail: service@cec.sped.org
Internet: www.cec.sped.org

Description:
The Council for Exceptional Children (CEC) is the largest professional organization dedicated to improving the educational success of individuals with disabilities or gifts. CEC advocates for appropriate government policies, sets professional standards, provides professional development, advocates for underserved individuals with exceptionalities, and helps professionals obtain conditions and resources for effective professional practice. Holds annual convention; contact CEC for date and location. A professional journal, brochures, and a newsletter are available.

Central Institute for the Deaf (CID)

Executive Director: Robin Feder
Public Information Contact: Kim Readmond
Address: 825 South Taylor Avenue, St. Louis, MO, 63110
Voice: (314) 977-0243
TTY: (314) 977-0037
Fax: (314) 977-0033
E-mail: kreadmond@cid.edu
Internet: www.cid.edu

Description:
Founded in 1914, the Central Institute for the Deaf (CID) is a nonprofit organization that helps deaf children learn to speak, listen,and read with proficiency without the use of sign language. CID provides pediatric audiology; research collaborations; continuing education workshops for professionals; and books, tests, and curricula used to help deaf children throughout the world. CID has a proud history of training professionals and conducting pioneering educational, clinical, and biological research in hearing and deafness. CID is a financially independent affiliate of the Washington University School of Medicine.

Council on Education of the Deaf (CED)

Executive Director: Karen Dilka
Address: Gallaudet University, P.O. Box 2094, 800 Florida Avenue, NE , Washington, DC, 20002
Voice: (859) 622-1043
Fax: (859) 622-4443
E-mail: cedoffice@gallaudet.edu
Internet: www.deafed.net

Description:
The Council on Education of the Deaf (CED) is a national professional organization responsible for setting and implementing policy related to education of deaf and hard-of-hearing students in schools. This includes setting certification and accreditation standards, certifying teachers, and evaluating university teacher preparation programs for accreditation approval. Established in 1930, CED has fostered cooperative networks in the field of education of deaf students. The CED board is composed of representatives from its seven member organizations, which are identified on the CED Web site. Professional online publications, application forms,and standards and manuals are available.

Childhood Apraxia of Speech Association of North America (CASANA)

President: Mary Sturm, M.D.
Public Information Contact: Kathy Bauer
Address: 1151 Freeport Road, #243, Pittsburgh, PA, 15238
Voice: (412) 343-7102
E-mail: helpdesk@apraxia-kids.org
Internet: www.apraxia-kids.org

Description:
Childhood Apraxia of Speech Association of North America The Childhood Apraxia of Speech Association of North America (CASANA)is the only national nonprofit 501(c)(3) charity representing the needs of children with apraxia and their families. CASANA’s goal is to provide credible, reliable, and comprehensive information on apraxia of speech in children. Guided by a professional advisory board of experts in childhood apraxia of speech, CASANA offers information and resources based on the current prevailing professional literature and expert opinion. CASANA raises awareness and provides online services, educational training, workshops for professionals and parents, and research support. Educational DVDs are available on topics that include an introduction to childhood apraxia of speech, treatment strategies for childhood apraxia of speech, and ways to help children with apraxia practice speaking at home and in the community.

Council of Academic Programs in Communication Sciences and Disorders (CAPCSD)

President: Celia Hooper, PH.D
Executive Administrator: Frances Laven, M.S., CCC
Address: P.O. Box 26532, Minneapolis, MN, 55426
Voice: (952) 920-0966
Fax: (952) 920-6098
E-mail: cap@incnet.com
Internet: www.capcsd.org

Description:
The Council of Academic Programs in Communication Sciences and Disorders (CAPCSD) is an organization of university programs in speechlanguage pathology; audiology; and speech, language, and hearing sciences. It represents more than 2,000 faculty and administrators from universities in the United States and abroad. CAPCSD advocates for academic programs in communication sciences and disorders and facilitates information exchange among programs and personnel. It also serves as an advisory group to professional associations, legislative bodies, and government agencies. Holds annual conference; contact CAPCSD for date and location. A professional directory, brochures/pamphlets, and reports are available.

Described and Captioned Media Program (DCMP), National Association of the Deaf

Project Director: Bill Stark
Address: 1447 East Main Street, Spartanburg, SC, 29307
Toll-free Voice: (800) 237-6213
Toll-free TTY: (800) 237-6819
Fax: (800) 538-5636
E-mail: info@dcmp.org
Internet: www.dcmp.org

Description:
The Described and Captioned Media Program (DCMP) provides services designed to support and improve the academic achievement of students who are blind, visually impaired, deaf, hard-of-hearing, or deaf-blind. These services include (1) a library of free-loan described and captioned educational media; (2) a clearinghouse of information related to educational media access, including a gateway to Internet resources related to accessibility; and (3) a center for training and evaluation of any service provider desiring to appear on the DCMP’s approved lists of description and captioning service providers. There are no user registration or service fees. The DCMP is funded by the U.S. Department of Education and administered by the National Association of the Deaf.

Disability Rights Office, Consumer & Governmental Affairs Bureau, Federal Communications Commission (FCC)

Chief: Thomas Chandler
Address: 445 12th Street, SW, Washington, DC, 20554
Voice: (202) 418-2516
Toll-free Voice: (888) 225-5322
TTY: (202) 418-0189
Toll-free TTY: (888) 835-5322
Fax: (866) 418-0232
E-mail: fccinfo@fcc.gov
Internet: www.fcc.gov/cgb/dro

Description:
The Disabilities Rights Office, housed within the Consumer & Governmental Affairs Bureau at the Federal Communications Commission (FCC), ensures that FCC actions and policies enable people with disabilities to have the same access as everyone else to telecommunications. FCC implements mandates for nationwide telephone relay services, accessibility, and usability of telecommunications wireline and wireless products and services. These services include hearing aid compatibility of phones, closed captioning of television programming, and accessibility of emergency information on television.

Deafness Research Foundation (DRF)

Chief Operating Officer: Andrea Kardonsky
Address: 641 Lexington Avenue, 15th Floor, New York, NY, 10022
Voice: (212) 328-9480
Toll-free Voice: (866) 454-3924
TTY: (888) 435-6104
Toll-free TTY: (888) 435-6104
Fax: (202) 338-8182
E-mail: info@drf.org
Internet: www.drf.org

Description:
The Deafness Research Foundation (DRF) is committed to making a lifetime of hearing health possible for all through the funding of quality research, public education, and advocacy. Throughout its 49-year history, DRF has awarded thousands of “seed money” grants to researchers who explore new avenues of hearing science. DRF-funded research has led to innovations in the diagnosis and treatment of otitis media (middle ear infections), cochlear implants, and implantable hearing aids as well as breakthroughs in molecular biology and hair cell regeneration. A free quarterly magazine is available; visit the Web site to subscribe.

Disability Rights Section, Civil Rights Division, U.S. Department of Justice (DOJ) Public Information Contact: Information Specialists
Address: 950 Pennsylvania Avenue, NW, Washington, DC, 20530
Toll-free Voice: (800) 514-0301
Toll-free TTY: (800) 514-0383
Fax: (202) 514-0404
Internet: www.ada.gov

Description:
The Disability Rights Section (DRS) is part of the Civil Rights Division of the U.S. Department of Justice (DOJ). DRS focuses on all disabilities and is especially knowledgeable about the interpretation of the Americans with Disabilities Act of 1990. The organization offers an information line for all inquiries as well as assistance to state and local government entities, private-sector business professionals, and the general public. Fact sheets, brochures/pamphlets, online publications, and a professional report are available. Some materials in Spanish and other languages are available.

Dyslexia Research Institute (DRI)

Director: Patricia K. Hardman, Ph.D.
Public Information Contact: Amber Mitchell
Address: 5746 Centerville Road, Tallahassee, FL, 32309
Voice: (850) 893-2216
Fax: (850) 893-2440
E-mail: dri@talstar.com
Internet: www.dyslexia-add.org

Description:
The goal of the Dyslexia Research Institute (DRI) is to expand the knowledge of parents and professionals in the areas of dyslexia and attention deficit disorders. Direct instruction is provided through a full multisensoral curriculum for both adults and children. DRI runs a full-time school, called Woodland Hall Academy, for dyslexic individuals. DRI provides instruction through informational seminars,teacher training, and advocacy/consultation. Research papers are available.

DB-LINK at the National Consortium on Deaf-Blindness (formerly the National Information Clearinghouse on Children Who Are Deaf-Blind)

Associate Director, NCDB: John Reiman, Ph.D.
Address: 345 North Monmouth Avenue, Monmouth, OR, 97361
Toll-free Voice: (800) 438-9376
Toll-free TTY: (800) 854-7013
Fax: (503) 838-8150
E-mail: info@nationaldb.org
Internet: www.nationaldb.org

Description:
DB-LINK, part of the National Consortium on Deaf-Blindness (NCDB), is home to the largest collection of information related to deaf-blindness worldwide. A team of information specialists make this extensive resource available in response to direct requests and via our Web site. Contact DB-LINK to access quality information about deaf-blindness, order our newsletter and other publications, find resources in your state, receive tailored information packets to support teaching or training, and connect to a network of experts and families. Information is provided free of charge. NCDB is funded by the U.S. Department of Education's Office of Special Education Programs.

Dogs for the Deaf, Inc.

President/CEO: Robin Dickson
Public Information Contact: Judi Rubert
Address: 10175 Wheeler Road, Central Point, OR, 97502
Voice: (541) 826-9220
Toll-free Voice: (800) 990-DOGS (3647)
TTY: (541) 826-9220
Fax: (541) 826-6696
E-mail: info@dogsforthedeaf.org
Internet: www.dogsforthedeaf.org

Description:
Dogs for the Deaf, Inc., rescues dogs from shelters and trains them to respond to environmental sounds such as smoke alarms, door bells, alarm clocks, baby cries, telephones, and the sound of a person’s name. The dogs also are obedience-trained and socialized. They are then placed, free of charge, in the homes of deaf and hard-of-hearing applicants who live in the United States and Canada and who want and need the benefits of a professionally trained hearing dog. Professional/consumer newsletter, fact sheets, and online publications are available.

Disability, Inc./Sign Language USA, Inc./CAPCOM

Executive Director: Richard F. Rosen, Esq.
Address: P.O. Box 1246, McLean, VA, 22101
Voice: (703) 628-5472
TTY: (703) 628-5472 (via relay)
Fax: (520) 544-8911
E-mail: rosenlaw@att.net
Internet: www.disability-world.com / www.attorneysworldwide.com

Description:
Disability, Inc./Sign Language USA, Inc./CAPCOM provides sign language interpreters and support services for people with disabilities. Live or live-video sign language interpreting is available 24 hours a day, 7 days a week. Services include legal counsel to deaf persons, other legal services, assistance with home mortgages, product information, and the accessibility status of places and businesses. Fact sheets and brochures are available, with some materials in Spanish.

Easter Seals, Inc.

President/Chief Executive Officer: James E. Williams, Jr.
Information and Referral Specialist: Rosemary Garza
Address: 230 West Monroe, Suite 1800, Chicago, IL, 60606
Voice: (312) 726-6200
Toll-free Voice: (800) 221-6827
TTY: (312) 726-4258
Fax: (312) 726-1494
E-mail: info@easterseals.com
Internet: www.easterseals.com

Description:
The mission of Easter Seals, Inc., is to create solutions that change the lives of children and adults with disabilities and their families. Easter Seals operates 450 sites in the United States. Its eight primary services are medical rehabilitation with early intervention; physical therapy; occupational therapy; speech therapy; job training and employment; children’s services (including inclusive childcare); adult and senior services; and camping, recreation, and respite.

EAR Foundation

Executive Director: Suzanne Wyatt
Address: P.O. Box 330867, Nashville, TN, 37203
Voice: (615) 627-2724
Toll-free Voice: (800) 545-4327
Toll-free TTY: (800) 545-4327
Fax: (615) 627-2728
E-mail: amy@earfoundation.org
Internet: www.earfoundation.org

Friends of Libraries for Deaf Action (FOLDA)

Founding Director: Alice L. Hagemeyer, M.L.S.
Address: 2930 Craiglawn Road, Silver Spring, MD, 20904-1816
TTY: (301) 572-5168
Fax: (301) 572-5168 (VP)
E-mail: folda86@aol.com
Internet: www.folda.net

Description:
Friends of Libraries for Deaf Action (FOLDA) is a public service of Library for Deaf Action, the deaf-owned business of Alice L. Hagemeyer. FOLDA has no membership dues. FOLDA encourages the deaf community to become involved in activities of their local public library and its friends. Some public libraries have FOLDA’s copy of “The Red Notebook,” a regularly updated binder containing fact sheets, library reprints, and announcements about library and information services for the deaf community. Check the FOLDA Web site to keep up with library access and quality resources for the deaf community.

Foundation Fighting Blindness, Inc. (FFB)

Chief Executive Officer: William T. Schmidt
Constituent Service Coordinator: Mitsy Palmer
Address: 11435 Cronhill Drive, Owings Mills, MD, 21117-2220
Voice: (410) 568-0150
Toll-free Voice: (800) 683-5555
Toll-free TTY: (800) 683-5551
Fax: (410) 363-2393
E-mail: info@blindness.org
Internet: www.fightblindness.org

Description:
The mission of the Foundation Fighting Blindness, Inc., (FFB) is to drive the research that will provide prevention, treatments, and cures for people affected by retinitis pigmentosa (RP), macular degeneration (MD), Usher syndrome, and the entire spectrum of retinal degenerative diseases. Usher syndrome is the most common condition involving both hearing and vision and is characterized by hearing impairment and RP. FFB offers information and referral services for affected individuals, their families, and doctors and eye care professionals. FFB also provides information kits on RP, MD, and Usher syndrome. Holds biannual national conference; contact FFB for date and location.

Gallaudet University (GU) and Laurent Clerc National Deaf Education Center

President: Robert Davila, Ph.D.
Address: 800 Florida Avenue, NE, Washington, DC, 20002-3695
Voice: (202) 651-5000
TTY: (202) 651-5000
Fax: (202) 651-5704
E-mail: public.relations@gallaudet.edu
Internet: www.gallaudet.edu

Description:
Gallaudet University (GU) is the world’s only university in which all programs and services are specifically designed to accommodate deaf and hard-of-hearing students. The Kendall Demonstration Elementary School serves infants through eighth grade, and the Model Secondary School for the Deaf offers programs in grades nine through 12. The Research Institute is a leading center for research on deafness. National and international programs, including regional extension centers, conferences, sign language classes, summer programs, and international outreach, annually serve approximately 33,000 people. professional/consumer publications and computer software/assisted education are available.

Genetic Alliance (GA)

President /CEO: Sharon F. Terry, M.A.
Public Information Contact: Sharon F. Terry, M.A.
Address: 4301 Connecticut Avenue, NW, Suite 404, Washington, DC, 20008-2369
Voice: (202) 966-5557
Toll-free Voice: (800) 336-GENE (4363)
Fax: (202) 966-8553
E-mail: information@geneticalliance.org
Internet: www.geneticalliance.org

Description:
Genetic Alliance (GA) is an international coalition composed of more than 600 advocacy, research, and health care organizations that represent millions of individuals with genetic conditions and their interests. As a broad-based coalition of key stakeholders, GA leverages the voices of millions of individuals living with genetic conditions.

Gallaudet University, Laurent Clerc National Deaf Education Center, Public Relations and Publications

Director of Public Relations and Publications: Daniellie Puzio
Coordinator, Information Services: Anita Gilbert
Address: 800 Florida Avenue, NE, Washington, DC, 20002
Voice: (202) 651-5051
TTY: (202) 651-5051
Fax: (202) 651-5708
E-mail: clearinghouse.infotogo@gallaudet.edu
Internet: clerccenter.gallaudet.edu

Description:
The Public Relations and Publications Office at Gallaudet University’s (GU’s) Laurent Clerc National Deaf Education Center provides information about diverse topics related to deaf and hard-of-hearing children and young adults from infancy to age 21. The office responds to inquiries and also collaborates with authors from within the Gallaudet community and nationwide to design, produce, and disseminate books, videotapes, periodicals, and other information related to deaf and hard-of-hearing children, their families, and the professionals who serve them. Fact sheets, brochures, and a directory are available.

Goodwill Industries International, Inc.

President/CEO: George W. Kessinger
Public Information Contact: Christine Nyirjesy Bragale, Director of Media Relations
Address: 15810 Indianola Drive, Rockville, MD, 20855
Voice: (301) 530-6500
Toll-free Voice: (800) 664-6577
TTY: (301) 530-9759
Fax: (301) 530-1516
E-mail: contactus@goodwill.org
Internet: www.goodwill.org

Description:
Goodwill Industries International, Inc., is a network of 205 community-based, autonomous member organizations in the United States, Canada, and 22 other countries. Each organization serves people with workplace disabilities and disadvantages, including those who are deaf or hard-of-hearing or who have other communication disorders, by providing career training and employment services as well as job placement opportunities and post-employment support. A magazine and other publications are available, with some materials in Spanish.

HEATH Resource Center (National Clearinghouse on Postsecondary Education for Individuals with Disabilities)

Director: Donna Martinez
Address: 2134 G Street, NW , Washington, DC, 20052
Voice: (202) 974-3365
E-mail: askheath@gwu.edu
Internet: www.heath.gwu.edu

Description:
The HEATH Resource Center of the George Washington University Graduate School of Education and Human Development is an online clearinghouse on postsecondary education for individuals with disabilities. Support from the Lumina Foundation enables the clearinghouse to provide information exchange about educational support services, procedures, adaptations, and opportunities at American campuses, vocational-technical schools, and other postsecondary training institutions and centers.

Hearing Education and Awareness for Rockers (H.E.A.R.)

Executive Director: Kathy Peck
Address: P.O. Box 460847, San Francisco, CA, 94146
Voice: (415) 409-EARS (3277)
Fax: (415) 409-LOUD (5683)
E-mail: hear@hearnet.com
Internet: www.hearnet.com

Description:
Hearing Education and Awareness for Rockers (H.E.A.R.) is world-renowned for its efforts to educate the public about the dangers of excessive noise and to provide adequate hearing protection to musicians and music fans. H.E.A.R. promotes awareness about hearing damage by disseminating public service announcements to the media and by establishing information and earplug tables at concerts in the United States. H.E.A.R. programs include affiliate programs in cities worldwide, custom musicians’ hearing protection programs, hearing screening clinics, and online hearing health and music resources. Professional/consumer publications and computer software/assisted education are available.

Helen Keller National Center for Deaf-Blind Youths and Adults (HKNC)

Executive Director: Joseph J. McNulty
Address: 141 Middle Neck Road, Sands Point, NY, 11050
Voice: (516) 944-8900
TTY: (516) 944-8637
Fax: (516) 944-7302
E-mail: hkncinfo@hknc.org
Internet: www.hknc.org

Description:
The mission of the Helen Keller National Center for Deaf-Blind Youths and Adults (HKNC) is to enable all individuals who are deaf-blind to live and work in the community of their choice. HKNC provides comprehensive vocational rehabilitation training and assistance with job and residential placements. Services in the field include 10 regional offices, more than 40 affiliated agencies, a National Training Team, the Older Adult Program, and the National Consortium on Deaf-Blindness (see page 58). HKNC serves all adult mericans who are deaf-blind or have severe vision and hearing impairments and maintains a national registry of individuals who are deaf-blind. Professional fact sheets and brochures/pamphlets are available, with some materials in Braille.

HEAR NOW

Public Information Contact: Joanita Stelter
Address: 6700 Washington Avenue South, Eden Prairie, MN, 55344
Toll-free Voice: (800) 648-4327
Fax: (952) 828-6946
E-mail: joanita@sotheworldmayhear.org
Internet: www.sotheworldmayhear.org

Description:
HEAR NOW, a domestic program of the Starkey Hearing Foundation, provides hearing aids to people with limited financial resources. HEAR NOW is a program of last resort; all other options must be used before service is awarded. Professional/consumer fact sheets and brochures are available.

Hearing Loss Association of America

Executive Director: Brenda Batlat, MA
Address: 7910 Woodmont Avenue, Suite 1200, Bethesda, MD, 20814
Voice: (301) 657-2248
TTY: (301) 657-2249
Fax: (301) 913-9413
E-mail: info@hearingloss.org
Internet: www.hearingloss.org