Directory of Organizations
American Broncho-Esophagological Association (ABEA)
President: Clarence Sasaki
Public Information Contact: Peter J. Koltai, M.D., Secretary
Address: Stanford University, 801 Welch Road, Stanford, CA, 94305-5739
Voice: (650) 725-6500
Voice: (801) 587-7678
Fax: (801) 585-5744
E-mail: koltai@stanford.edu
Internet: www.abea.net
Description:
The American Broncho-Esophagological Association (ABEA) is an association of physicians with interest in the function and diseases of the upper aerodigestive tract and the relevant applications of endoscopy. The goals of ABEA are to educate and update physicians in evaluating and managing aerodigestive tract disorders; stimulate and support basic and clinical research; advocate and support endoscopy
training in residency and fellowship programs; and provide information useful to patients, industry, scientists, physicians, and other health care professionals at a national otolaryngology meeting.
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Audiology and Speech Pathology Services, U.S. Department of Veterans Affairs (VA)
Director: Lucille B. Beck, Ph.D.
Public Information Contact: Cathy Greener
Address: VA Medical Center, 50 Irving Street, NW, Washington, DC, 20422
Voice: (202) 745-8578
Voice: (202) 745-8270
Fax: (202) 745-8579
E-mail: cathy.greener@va.gov
Description:
Audiology and Speech Pathology Services of the U.S. Department of Veterans Affairs (VA) provides high-quality, comprehensive, state-of-the-art clinical services to eligible veterans. Diagnostic and treatment services are offered in a timely manner and in an environment that
fosters respect, communication, and compassion. Audiology services include evaluation and treatment of hearing loss and tinnitus, along with assessment of balance problems and, in some locations, balance rehabilitation. Diagnostic auditory and vestibular assessment, provision of hearing aids and assistive and alerting devices, cochlear implant
management, and auditory rehabilitation also are available. Speech pathology services include evaluation and treatment of speech, language, voice, and swallowing disorders.
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Alexander Graham Bell Association for the Deaf and Hard of Hearing (AG Bell)
Interim Executive Director: Frederick T. Spahr
Senior Director, Marketing and Communications: Jessica Ripper
Address: 3417 Volta Place, NW, Washington, DC, 20007-2778
Voice: (202) 337-5220
Toll-free Voice: (866) 337-5220
TTY: (202) 337-5221
Fax: (202) 337-8314
E-mail: info@agbell.org
Internet: www.agbell.org
Description:
The Alexander Graham Bell Association for the Deaf and Hard
of Hearing (AG Bell) is a lifelong resource, support network, and advocate for listening, learning, talking, and living independently with hearing loss. Through publications, advocacy, training, scholarships, and financial aid, AG Bell promotes the use of spoken language and hearing technology. Headquartered in Washington, DC, AG Bell has chapters located in the United States and Canada
and also includes a network of international affiliates.
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Aphasia Hope Foundation (AHF)
Founder/Executive Director: Judi Stradinger
Public Information Contact: Sandy Caudell, Program Director
Address: P.O. Box 26304, Shawnee Mission, KS, 66225-6304
Voice: (913) 839-8083
E-mail: sandycaudell@aphasiahope.org
E-mail: judistradinger@aphasiahope.org
Internet: www.aphasiahope.org
Description:
The Aphasia Hope Foundation (AHF) is a nonprofit organization with a twofold mission: (1) to promote research into the cure and prevention of aphasia and (2) to provide survivors of aphasia and their caregivers access to the best possible treatments, both physical and emotional, for living with this disease. AHF maintains an electronic bulletin board and a Web-based forum for posting questions to aphasia professionals and caregivers. AHF also provides
information on ongoing research and legislation focusing on aphasia and offers an outlet through which persons with aphasia can share their stories.
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American Speech-Language-Hearing Association (ASHA)
Executive Director: Arlene A. Pietranton, Ph.D.
Public Information Contact: Action Center
Address: 2200 Research Blvd., Rockville, MD, 20850
Toll-free Voice: (800) 638-8255
Toll-free TTY: (800) 638-8255
E-mail: actioncenter@asha.org
Internet: www.asha.org
Description:
The mission of the American Speech-Language-Hearing Association (ASHA) is to promote the interests of and provide the highest quality services for professionals in audiology, speech-language pathology, and speech and hearing science, and to advocate for people with communication disabilities. Holds annual conference; contact ASHA for date and location. Professional brochures/pamphlets, journals, and professional/consumer online publications are available. Some Spanish materials are available.
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American Cleft Palate-Craniofacial Association (ACPA) and Cleft Palate Foundation (CPF)
Executive Director: Nancy C. Smythe
Public Information Contact: Lisa Gist, Cleftline Manager
Address: 1504 East Franklin Street, Suite 102, Chapel Hill, NC, 27514
Voice: (919) 933-9044
Toll-free Voice: (800) 24-CLEFT (2-5338)
Fax: (919) 933-9604
E-mail: CPF E-mail: info@cleftline.org
E-mail: ACPA E-mail: info@acpa-cpf.org
Internet: www.cleftline.org
/ www.acpa-cpf.org
Description:
The American Cleft Palate-Craniofacial Association (ACPA) is an international nonprofit association of more than 2,500 health care professionals who are involved in the treatment and research of cleft lip, cleft palate, and other craniofacial abnormalities. ACPA optimizes the interdisciplinary care of persons affected by craniofacial abnormalities. The Cleft Palate Foundation (CPF), which
is the public service arm of ACPA, educates and assists the public regarding craniofacial anomalies and encourages research in the field. Holds annual convention; contact ACPA or CPF for date and location. A directory and professional/consumer fact sheets and brochures are available, with some in Spanish.
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Brain Injury Association of America
President/CEO: Susan Connors
Address: 8201 Greensboro Drive, Suite 611, McLean, VA, 22102
Voice: (703) 761-0750
Toll-free Voice: (800) 444-6443
Fax: (703) 761-0755
E-mail: braininjuryinfo@biausa.org
Internet: www.biausa.org
Description:
The mission of the Brain Injury Association of America is to create a better future through brain injury prevention, research, education, and advocacy. Its Helpline offers information about brain injury to persons with brain injury, their families, professionals, and other interested callers. Educational materials, such as a consumer newsletter, brochures/pamphlets, a professional/consumer directory, fact sheets, and online publications, are available. Information also is available in Spanish.
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Boys Town National Research Hospital (BTNRH)
Director: Patrick Brookhouser, M.D.
Public Information Contact: Mary Pat Moeller, Ph.D.
Address: 555 North 30th Street, Omaha, NE, 68131
Voice: (402) 498-6511
Voice: (402) 452-5068
TTY: (402) 498-6543
Fax: (402) 452-5027
E-mail: moeller@boystown.org
E-mail: johnsm@boystown.org
Internet: www.boystownhospital.org
/ www.babyhearing.org
Description:
The Boys Town National Research Hospital (BTNRH) is internationally recognized for clinical service and research into the treatment of childhood deafness and communication disorders. Research is conducted in 20 state-of-the-art laboratories and represents three broad areas: neurobiological studies of hearing; hereditary communication disorders; and clinical, educational, and behavioral studies of human communication.
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CHERAB Foundation
Founder: Lisa Geng
Address: P.O. Box 8524, Port St. Lucie , FL, 34952
Voice: (772) 335-5135
Fax: (772) 337-4812
E-mail: help@cherab.org
Internet: www.cherab.org
/ www.speechville.com
Description:
The CHERAB Foundation (CHERAB) is a worldwide nonprofit
organization that helps individuals with speech and language
delays and disorders through communication help, education, and research that is apraxia-based. Its area of emphasis is verbal and oral apraxia—severe neurologically based speech and language disorders that hinder children’s ability to speak. The foundation is committed to assisting with the development of new therapeutic approaches to, and prevention and cure of, neurologically based speech disorders. CHERAB brings together parents and medical, research, and educational professionals to help give a voice to all.
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Council of Academic Programs in Communication Sciences and Disorders (CAPCSD)
President: Celia Hooper, PH.D
Executive Administrator: Frances Laven, M.S., CCC
Address: P.O. Box 26532, Minneapolis, MN, 55426
Voice: (952) 920-0966
Fax: (952) 920-6098
E-mail: cap@incnet.com
Internet: www.capcsd.org
Description:
The Council of Academic Programs in Communication Sciences and Disorders (CAPCSD) is an organization of university programs in speechlanguage pathology; audiology; and speech, language, and hearing sciences. It represents more than 2,000 faculty and administrators from universities in the United States and abroad. CAPCSD advocates for academic programs in communication sciences and disorders and
facilitates information exchange among programs and personnel. It also serves as an advisory group to professional associations, legislative bodies,
and government agencies. Holds annual conference; contact CAPCSD for date and location. A professional directory, brochures/pamphlets, and reports are available.
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Childhood Apraxia of Speech Association of North America (CASANA)
President: Mary Sturm, M.D.
Public Information Contact: Kathy Bauer
Address: 1151 Freeport Road, #243, Pittsburgh, PA, 15238
Voice: (412) 343-7102
E-mail: helpdesk@apraxia-kids.org
Internet: www.apraxia-kids.org
Description:
Childhood Apraxia of Speech Association of North America The Childhood Apraxia of Speech Association of North America (CASANA)is the only national nonprofit 501(c)(3) charity representing the needs of children with apraxia and their families. CASANA’s goal is to provide credible, reliable, and comprehensive information on apraxia of speech in children. Guided by a professional advisory board of experts in childhood apraxia of speech, CASANA offers information and resources based on the current prevailing professional literature and expert opinion. CASANA raises
awareness and provides online services, educational training, workshops for professionals and parents, and research support. Educational DVDs are available on topics that include an introduction to childhood apraxia of
speech, treatment strategies for childhood apraxia of speech, and ways to help children with apraxia practice speaking at home and in the community.
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Easter Seals, Inc.
President/Chief Executive Officer: James E. Williams, Jr.
Information and Referral Specialist: Rosemary Garza
Address: 230 West Monroe, Suite 1800, Chicago, IL, 60606
Voice: (312) 726-6200
Toll-free Voice: (800) 221-6827
TTY: (312) 726-4258
Fax: (312) 726-1494
E-mail: info@easterseals.com
Internet: www.easterseals.com
Description:
The mission of Easter Seals, Inc., is to create solutions that change the lives of children and adults with disabilities and their families. Easter Seals operates 450 sites in the United States. Its eight primary services are medical rehabilitation with early intervention; physical
therapy; occupational therapy; speech therapy; job training and employment; children’s services (including inclusive childcare); adult and senior services; and camping, recreation, and respite.
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Gallaudet University (GU) and Laurent Clerc National Deaf Education Center
President: Robert Davila, Ph.D.
Address: 800 Florida Avenue, NE, Washington, DC, 20002-3695
Voice: (202) 651-5000
TTY: (202) 651-5000
Fax: (202) 651-5704
E-mail: public.relations@gallaudet.edu
Internet: www.gallaudet.edu
Description:
Gallaudet University (GU) is the world’s only university in which all programs and services are specifically designed to accommodate deaf and hard-of-hearing students. The Kendall Demonstration Elementary School serves infants through eighth grade, and the Model Secondary School for the Deaf offers programs in grades nine through 12. The Research Institute is a leading center for research
on deafness. National and international programs, including regional extension centers, conferences, sign language classes, summer programs, and international outreach, annually serve approximately 33,000 people. professional/consumer publications and computer
software/assisted education are available.
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Hyperacusis Network
Publisher: Dan Malcore
Address: Post Office Box 8007, Green Bay, WI, 54308
Voice: (920) 866-3377
E-mail: earhelp@yahoo.com
Internet: www.hyperacusis.net
Description:
The Hyperacusis Network is an international support group
established to care for individuals with collapsed tolerance to sound. The network helps educate the medical community and families about this rare auditory disorder by sharing ways to cope, providing advice on how to secure disability assistance, and reporting on current research and treatment options. Membership is free. A professional/consumer newsletter, directory, fact sheets, brochures/pamphlets, and online publications are available.
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National Cued Speech Association (NCSA), Deaf Children’s Literacy Project
President: Sarina Roffé
Public Information Contact : Amy Ruberl, Executive Director
Address: 5619 McLean Drive, Bethesda, MD, 20814
Voice: (301) 915-8009
Toll-free Voice: (800) 459-3529
Toll-free TTY: (800) 459-3529
E-mail: info@cuedspeech.org
Internet: www.cuedspeech.org
Description:
The National Cued Speech Association (NCSA) and its Deaf
Children’s Literacy Project promote the effective use of cued speech for communication, language acquisition (in more than 50 languages), and literacy through the use of cued speech. NCSA provides education, awareness, and support for people with language, hearing, speech, and learning needs through publications, exhibits, family/professional learning vacations, and conferences.
NCSA sets standards of cueing and certifies instructors of cued speech. Visit NCSA’s bookstore for books, games, computer software, and more.
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National Aphasia Association (NAA)
Executive Director: Ellayne Ganzfried, M.S., CCC-SLP
Address: 350 7th Avenue, Suite 902, New York, NY, 10001
Voice: (212) 267-2814
Toll-free Voice: (800) 922-4622
Fax: (212) 267-2812
E-mail: naa@aphasia.org
Internet: www.aphasia.org
Description:
The mission of the National Aphasia Association (NAA) is to educate the public about aphasia as a disorder that impairs a person’s ability to communicate without impairing a person’s intellect. NAA provides people with aphasia, their families, support systems, and health care professionals with resources that can help individuals affected
by aphasia recover lost skills, compensate for skills that cannot be recovered, and minimize the psychosocial impact of a language impairment. Holds biennial conference; contact NAA for date and location. A professional/consumer newsletter, directory, fact sheets, and other publications are available.
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National Spasmodic Dysphonia Association, Inc. (NSDA)
Executive Director: Kimberly A. Kuman
Address: 300 Park Boulevard, Suite 415, Itasca, IL, 60143
Voice: (630) 250-4504
Toll-free Voice: (800) 795-NSDA (6732)
Fax: (630) 250-4505
E-mail: NSDA@dysphonia.org
Internet: www.dysphonia.org
Description:
The National Spasmodic Dysphonia Association (NSDA) is a nonprofit 501(c)(3) organization dedicated to advancing medical research into the causes of and treatments for spasmodic dysphonia; promoting physician and public awareness of the disorder through outreach; and sponsoring support activities for people with spasmodic dysphonia and their families through educational materials, annual
symposiums, support groups, and online resources. NSDA is the only organization that is dedicated solely to spasmodic dysphonia.
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National Black Association for Speech-Language and Hearing (NBASLH)
Chairperson: Cathy Runnels
Public Information Contact: Diane Yenerall
Address: 800 Perry Highway, Suite 3, Pittsburgh, PA, 15229
Voice: (412) 366-1177
Fax: (412) 366-8804
E-mail: nbaslh@nbaslh.org
Internet: www.nbaslh.org
Description:
The National Black Association for Speech-Language and Hearing (NBASLH) is a nonprofit organization dedicated to promoting the sharing of information about communication impairments and differences among black people; professional development of speech-language pathologists, audiologists, and students; and advocacy of quality service delivery to the black community. Holds annual convention; contact NBASLH for date and location. A professional journal and newsletter/bulletin are available.
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National Center for Voice and Speech (NCVS)
Director: Ingo Titze, Ph.D.
Public Information Contact: Suzanne Collins
Address: The Denver Center for the Performing Arts, 1101 13th Street, Denver, CO, 80204-5319
Voice: (303) 446-4834
Voice: (303) 893-6080
Fax: (303) 893-6487
E-mail: NCVSWebmaster@dcpa.org
E-mail: kmontgomery@dcpa.org
Internet: www.ncvs.org
Description:
The National Center for Voice and Speech (NCVS) is an interdisciplinary team of investigators and health care professionals dedicated to vocology, which deals with the powers, limitations, and enhancement of voice and speech. A primary outreach of NCVS is the Summer Vocology Institute, which provides background in vocology and related topics as
well as real-world experience in applying those concepts in laboratory, performance, and health services settings. NCVS is headquartered as a division of the Denver Center for the Performing Arts and is the only facility of its kind to be associated with a performing arts center. NCVS also performs research at the University of Iowa Department of Speech Pathology and Audiology. Professional/consumer publications are available, with some materials in Spanish and French.
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Rehabilitation Engineering and Assistive Technology Society of North America (RESNA)
Executive Director: Tom Gorski
Public Information Contact: Emily Gegg, Director of Operations
Address: 1700 North Moore Street, Suite 1540, Arlington, VA, 22209-1903
Voice: (703) 524-6686
TTY: (703) 524-6639
Fax: (703) 524-6630
E-mail: info@resna.org
Internet: www.resna.org
Description:
The Rehabilitation Engineering and Assistive Technology Society of North America (RESNA) is an interdisciplinary association for the advancement of rehabilitation and assistive technologies. Members range from rehabilitation professionals to providers and consumers. RESNA is dedicated to promoting the exchange of ideas and information for the advancement of assistive technology. Holds annual meeting; contact RESNA for date and location. RESNA also administers a federal grant that provides technical assistance and information to the 50 states and U.S. territories. Professional books and audiovisuals are available. Materials in alternative formats are available upon request.
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Stuttering Foundation of America (SFA)
President: Jane Fraser
Public Information Contact: Joan Warner, Coordinator
Address: 3100 Walnut Grove Road, Suite 603, Memphis, TN, 38111
Voice: (901) 452-7343
Toll-free Voice: (800) 992-9392
Fax: (901) 452-3931
E-mail: info@stutteringhelp.org
Internet: www.stutteringhelp.org
/ www.tartamudez.org
Description:
The Stuttering Foundation of America (SFA) provides resources, services, and support to individuals who stutter, their families, and professionals who serve them. SFA offers comprehensive, up-to-date information on stuttering in the form of DVDs, books, brochures, workshops, and conferences. In addition, SFA supports research into the causes of stuttering. SFA’s worldwide referral list provides names of speech-language pathologists who specialize in stuttering treatment. SFA also sponsors the annual National Stuttering Awareness Week during the second week of May. Some materials are online and may be available in Spanish, French, and Italian. SFA
also provides information through its Spanish-language Web site, www.tartamudez.org.
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Sertoma International
Executive Director: Stephen Murphy
Address: 1912 East Meyer Blvd., Kansas City, MO, 64132-1174
Voice: (816) 333-8300
Toll-free Voice: (800) 593-5646
TTY: (816) 333-8300
Fax: (816) 333-4320
E-mail: infosertoma@sertomahq.org
Internet: www.sertoma.org
Description:
Sertoma International (SERvice TO MAnkind) is a volunteer service organization of 18,000 members in 650 clubs across North America. Its primary focus is communication disorders, but its clubs also sponsor projects focusing on national heritage, youth, and other community needs. Sertoma offers scholarships for graduate study in audiology and speech pathology and for undergraduate students with hearing loss who are pursuing degrees in any field. Holds annual convention; contact Sertoma for date and location.
Professional online publications are available.
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Testing, Evaluation, and Certification Unit, Inc. (TECUnit )
President: Shellie Burrow
Public Information Contact: Tarina Cornia, Office Manager
Address: 6567 S. Cedar Creek Circle, Salt Lake City, UT, 84118
Toll-free Voice: (800) 523-0964
Fax: (435) 654-0319
E-mail: ilove2cue@yahoo.com
Internet: www.TECUnit.org
Description:
The Testing, Evaluation, and Certification Unit, Inc., (TECUnit) is the national certifying body for transliterators who work primarily between spoken and cued English. TECUnit administers the Cued Language Transliterator National Certification Examination and also
has developed an assessment tool for use by state agencies. TECUnit also administers standardized tests designed to assess expressive and receptive cueing proficiency. Ultimately, TECUnit is responsible for establishing, maintaining, and promulgating national standards for the profession of cued language transliteration. Professional fact sheets and online publications are available.
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TASH
Executive Director: Barb Trader
Public Information Contact: Tabitha Johnson-Graham, Membership Coordinator
Address: 1025 Vermont Avenue, 7th Floor, Washington, DC, 20005
Voice: (202) 263-5600
Fax: (202) 637-0138
E-mail: info@tash.org
Internet: www.tash.org
Description:
TASH is an international membership association of people with disabilities, their family members, other advocates, and professionals who work in the disability field. The association promotes the full participation of people with disabilities in integrated community settings that support the same quality of life available to people without disabilities. Sponsors an annual conference and topical
workshops. TASH provides information and referral resources,
renders targeted advocacy, and produces a magazine and
quarterly journal.
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United States Society for Augmentative and Alternative Communication (USSAAC)
President: Patricia Ourand, M.S., CCC-SLP
Public Information Contact: Barbara Figueiredo, USSAAC Office Manager
Address: P.O. Box 10906, Baltimore, MD, 21214
Voice: (877) 887-2222
Fax: (410) 296-5710
E-mail: Barbara@ussaac.org
Internet: www.USSAAC.org
Description:
The purposes of the United States Society for Augmentative and Alternative Communication (USSAAC) are to enhance the communication effectiveness of people who can benefit from augmentative and alternative communication and to support the goals of the International Society for Augmentative and Alternative Communication. USSAAC supports individuals in their right to communicate and participate fully in society; promotes public awareness; influences national and state public policy and legislation; disseminates legislative, regulatory, and funding information; facilitates high-quality service delivery; and promotes transdisciplinary professional education. Sponsors a bienniel conference; visit the USSAAC Web site for date and location.
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The Voice Foundation
Chairman: Robert T. Sataloff, M.D., D.M.A.
Public Information Contact: Katherine Darius, Executive Director
Address: 1721 Pine Street, Philadelphia, PA, 19103
Voice: (215) 735-7999
Fax: (215) 735-9293
E-mail: office@voicefoundation.org
Internet: www.voicefoundation.org
Description:
The Voice Foundation is the world’s oldest and leading organization dedicated to voice medicine, science, and education. This nonprofit organization is committed to funding research; sponsoring an annual, international symposium; publishing professional and scientific publications and audiovisual materials; and disseminating
knowledge internationally. Holds annual symposium (Care of the Professional Voice) in Philadelphia, PA, usually the first week of June; contact the Voice Foundation for date and location.
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Voice Academy
Project Director: Julie Ostrem, M.B.A.
Public Information Contact: Thea Carruth, M.P.H., Health Education Consultant
Address: University of Iowa, Speech Pathology & Audiology, Iowa City, IA, 52242
Voice: (319) 335-6600
Fax: (319) 335-6603
E-mail: julie-ostrem@uiowa.edu
Internet: www.voiceacademy.org
Description:
The Voice Academy is a self-paced, no-cost Web site created to help school teachers prevent and self-manage voice disorders, which, unfortunately, are common in the profession. This Web site features a virtual school where teachers explore topics such as voice production basics, safe classroom acoustics, amplification system use, and the healthy body/healthy voice connection. The Web site also features an auxiliary curriculum for school-based speech/language pathologists or other advocates to present a 50-minute healthy voice seminar to their teacher colleagues.
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