Directory of Organizations
Association of Late-Deafened Adults (ALDA)
President: Cynthia Amerman
ALDA eNews: Ken Arcia
Address: 8038 Macintosh Lane, Rockford, IL, 61107
Voice: (815) 332-1515
Toll-free Voice: (866) 402-ALDA (2532)
Toll-free TTY: (866) 402-ALDA (2532)
E-mail: info@alda.org
E-mail: president@alda.org
Internet: www.alda.org
Description:
The Association of Late-Deafened Adults (ALDA) serves as a resource center providing information and referrals, self-help, and support groups for people deafened as adults. ALDA works to increase public awareness of the special needs of deafened adults. Holds annual conference; contact ALDA for date and location. A professional/consumer directory, proceedings of conventions, and fact sheets are available.
Publications:
ALDANews
Frequency: quarterly
Type: professional/consumer newsletter
ALDA eNews
Frequency: monthly, or as needed
Type: e-mail news update
ALDA eNews
Frequency: monthly, or as needed
Type: e-mail news update
American Tinnitus Association (ATA)
Executive Director: Michael Malusevic
Director of Public Affairs: Jennifer Born
Address: P.O. Box 5, Portland, OR, 97207-0005
Voice: (503) 248-9985
Voice: 800-634-8978
Toll-free Voice: (800) 634-8978
Fax: (503) 248-0024
E-mail: jennifer@ata.org
E-mail: mike@ata.org
Internet: www.ata.org
Description:
The American Tinnitus Association (ATA) exists to cure tinnitus by developing resources that advance tinnitus research. Founded in 1971, ATA has raised and allocated millions of dollars toward medical research projects focused on a cure for tinnitus. ATA also advocates for effective public policies that support its mission. ATA publishes a triannual magazine in April, August, and December. The magazine includes detailed articles on current research, treatment, and other information for those living with tinnitus and others interested in staying current in this field. Articles from prior issues are available on the ATA website. A consumer directory, fact sheets, and other publications for professionals and consumers also are available online and in print.
Publications:
Tinnitus Today
Frequency: triannual
Type: journal
ATA Electronic Newsletter
Frequency: triannual
Type: newsletter
ATA Electronic Newsletter
Frequency: triannual
Type: newsletter
American Academy of Audiology (AAA)
Executive Director: Cheryl Kreider Carey, C.A.E.
Senior Director of Communications: Amy Miedema
Address: 11480 Commerce Park Drive, Suite 220, Reston, VA, 20191
Voice: (703) 790-8466
Toll-free Voice: (800) 222-2336
TTY: (703) 790-8466
Fax: (703) 790-8631
E-mail: info@audiology.org
Internet: www.audiology.org
/ www.audiologyfoundation.org
Description:
With more than 10,000 members, the American Academy of Audiology (AAA) is the world’s largest professional organization of, by, and for audiologists. Dedicated to providing quality hearing care to the public, AAA enhances
the ability of its members to achieve career and practice objectives through professional development, education, research, and increased public awareness of hearing and balance disorders and audiologic services. Holds annual
convention; see AAA website for date and location. Resources include a professional magazine and journal, professional computer software/assisted education, online professional/consumer publications (some in Spanish), an
audiologist locator, and a professional membership directory. The American Academy of Audiology Foundation promotes philanthropy in support of research, education, and public awareness in audiology and hearing science.
Publications:
Audiology Today
Frequency: bimonthly
Type: magazine for members
Audiology Today
Frequency: monthly
Type: e-newsletter
Audiology Today
Frequency: monthly
Type: e-newsletter
American Academy of Otolaryngology--Head and Neck Surgery (AAO-HNS)
Executive Vice President: David R. Nielsen, M.D.
Public Information Contact: Jeanne McIntyre, Director of Communications
Address: 1650 Diagonal Road, Alexandria, VA, 22314-2857
Voice: (703) 836-4444
Fax: (703) 683-5100
E-mail: webmaster@entnet.org
Internet: www.entnet.org
Description:
The nonprofit American Academy of Otolaryngology—Head and Neck Surgery (AAO-HNS) strives to unite, serve, and represent the interests of ear, nose, and throat specialists and their patients to the public, government, other medical specialists, and related organizations. AAO-HNS provides leaflets and geographic lists of physicians to the public at no charge. Holds annual meeting; contact AAO-HNS for date and location. AAO-HNS provides a professional bulletin, journal, directory, books, and other materials. Professional/consumer publications are available online and in print, with some in Spanish.
Publications:
The Bulletin
Frequency: monthly
Type: professional magazine
Otolaryngology--Head and Neck Surgery
Frequency: monthly
Type: scientific journal
Otolaryngology--Head and Neck Surgery
Frequency: monthly
Type: scientific journal
American Speech-Language-Hearing Association (ASHA)
Executive Director: Arlene A. Pietranton, Ph.D., C.A.E.
Public Information Contact: ASHA Action Center
Address: 2200 Research Boulevard, Rockville, MD, 20850
Voice: (301) 296-5700
Toll-free Voice: (800) 638-8255
TTY: (301) 296-5650
E-mail: actioncenter@asha.org
Internet: www.asha.org
Description:
The mission of the American Speech-Language-Hearing Association (ASHA) is to promote the interests of and provide the highest quality services for professionals in audiology, speech-language pathology, and speech and hearing science, and to advocate for people with communication disabilities. Holds annual conference; contact ASHA for date and location. Professional brochures/pamphlets, journals, and professional/consumer online publications are available. Some materials are available in Spanish.
Publications:
American Journal of Audiology
Frequency: semiannual
Type: journal
American Journal of Speech-Language Pathology
Frequency: quarterly
Type: journal
American Journal of Speech-Language Pathology
Frequency: quarterly
Type: journal
Better Hearing Institute (BHI)
President: Cathy Henderson Jones
Public Information Contact: Sergei Kochkin, Ph.D., Executive Director
Address: 1444 I Street, Suite 700, Washington, DC, 20005
Voice: (202) 449-1100
Toll-free Voice: (800) EAR-WELL (327-9355)
Fax: (202) 216-9646
E-mail: mail@betterhearing.org
Internet: www.betterhearing.org
Description:
Founded in 1973, the Better Hearing Institute (BHI) conducts research and engages in hearing health education with the goal of helping people with hearing loss benefit from proper treatment. BHI maintains a “Hearing Helpline” telephone service that provides information on hearing loss, sources of assistance, and other hearing help to callers anywhere in the United States and Canada. BHI also publishes periodic studies of the hearing-impaired population based on its survey of 80,000 households. BHI receives funding from the hearing aid industry to support its professional/consumer outreach efforts.
Publications:
MarkeTrak
Frequency: published periodically
Type: reports based on survey data
Your Guide to Better Hearing, A Guide to Your Child's Hearing Health, and Your Guide to Hearing Aids
Frequency:
Type: consumer information brochures
Your Guide to Better Hearing, A Guide to Your Child's Hearing Health, and Your Guide to Hearing Aids
Frequency:
Type: consumer information brochures
Gallaudet University, Laurent Clerc National Deaf Education Center, Public Relations and Publications
Director of Public Relations and Publications: Danielle Puzio
Information Services Coordinator: Anita Gilbert
Address: 800 Florida Avenue, NE, Washington, DC, 20002
Voice: (202) 651-5051
TTY: (202) 651-5051
Fax: (202) 651-5708
E-mail: clearinghouse.infotogo@gallaudet.edu
Internet: clerccenter.gallaudet.edu
Description:
The Public Relations and Publications Office at Gallaudet University’s (GU’s) Laurent Clerc National Deaf Education Center provides information about diverse topics related to deaf and hard-of-hearing children and young adults from infancy to age 21. The office responds to inquiries and also collaborates with authors from within the Gallaudet community and nationwide to design, produce, and disseminate books, videotapes, periodicals, and other information related to deaf and hard-of-hearing children, their families, and the professionals who serve them. Fact sheets, brochures, and a directory are available.
Odyssey
Frequency: semiannual
Type: magazine
Odyssey
Frequency: semiannual
Type: magazine
Hearing Health Foundation
Executive Director: Andrea Boidman
Associate, Development and Operations: Leticia Bido
Address: 363 Seventh Avenue, 10th Floor, New York, NY, 10001-3904
Voice: (212) 257-6140
Toll-free Voice: (866) 454-3924
TTY: (888) 435-6104
Toll-free TTY: (888) 435-6104
Fax: (212) 257-6139
E-mail: info@hearinghealthfoundation.org
Internet: hearinghealthfoundation.org
Description:
The Hearing Health Foundation's mission is to help individuals attain a lifetime of healthy hearing and balance through quality research, education, and advocacy. Throughout its 53-year history, the Hearing Health Foundation (formerly the Deafness Research Foundation) has awarded over 2,200 grants totaling more than $26 million to researchers exploring new avenues in hearing and balance science. Foundation-funded research has led to innovations in the diagnosis and treatment of otitis media (middle ear infections), cochlear implants, and implantable hearing aids as well as breakthroughs in molecular biology and hair cell regeneration.
Publications:
Hearing Health
Frequency: quarterly
Type: magazine
Hearing Health E-News
Frequency: monthly
Type: e-newsletter
Hearing Health E-News
Frequency: monthly
Type: e-newsletter
Hearing Loss Association of America
Executive Director: Brenda Battat, M.A.
Address: 7910 Woodmont Avenue, Suite 1200, Bethesda, MD, 20814
Voice: (301) 657-2248
TTY: (301) 657-2249
Fax: (301) 913-9413
E-mail: info@hearingloss.org
Internet: www.hearingloss.org
Description:
The Hearing Loss Association of America (HLAA) is a nonprofit organization with a mission to open the world of communication to people with hearing loss through education, information, support, and advocacy. HLAA provides assistance and resources for people with hearing loss and their families to learn how to adjust to living with hearing loss. HLAA is working to eradicate the stigma associated with hearing loss and raise public awareness about the need for prevention and the importance of regular hearing screenings throughout life. Its national support network includes an office in the District of Columbia area, 14 state organizations, and 200 local chapters. HLAA also holds annual conventions for people with hearing loss and professionals; see website for details.
Publications:
Hearing Loss Magazine
Frequency: bimonthly
Type: magazine
Hyperacusis Network
Publisher: Dan Malcore
Address: P.O. Box 8007, Green Bay, WI, 54308
Voice: (920) 866-3377
E-mail: earhelp@yahoo.com
Internet: www.hyperacusis.net
/ chat-hyperacusis.net
Description:
The Hyperacusis Network is an international support group established to care for individuals with collapsed tolerance to sound. The network helps educate the medical community and families about this rare auditory disorder by sharing ways to cope, providing advice on how to secure disability assistance, and reporting on current research and treatment options. Membership is free. A professional/consumer newsletter, directory, fact sheets, brochures/pamphlets, and online publications are available.
Publications:
The Hyperacusis Network
Frequency: biannual
Type: professional/consumer newsletter
National Organization for Hearing Research Foundation (NOHR)
President: Geraldine Dietz Fox
Public Information Contact: Sarah Schreiner
Address: 225 Haverford Avenue, Suite 1, Narberth, PA, 19072-2234
Voice: (610) 664-3135
Fax: (610) 668-1428
E-mail: smsnohr@att.net
Internet: www.nohrfoundation.org
Description:
The National Organization for Hearing Research Foundation (NOHR) is a 501(c)(3) public charity whose primary objective is to fund research into the prevention, causes, treatments, and cures for hearing loss and deafness. NOHR funds grant proposals that target innovative auditory projects; proposal submissions are reviewed by members of NOHR’s Scientific Review Committee. The most important review criteria for research proposals are scientific value and potential to yield significant new insights in the field of auditory science. Regeneration of sensory hair cells of the inner ear is a research funding priority, and examinations by other scientific disciplines are encouraged. Grant application information is available upon request.
National Cued Speech Association (NCSA), Deaf Children's Literacy Project
President: Shannon Howell
Executive Director: Marah Baltzell
Address: 1300 Pennsylvania Avenue, NW, Suite 190-713, Washington, DC, 20004
Toll-free Voice: (800) 459-3529
Toll-free TTY: (800) 459-3529
E-mail: info@cuedspeech.org
E-mail: president@cuedspeech.org
Internet: www.cuedspeech.org
Description:
The National Cued Speech Association (NCSA) and its Deaf Children's Literacy Project promote the effective use of cued speech for communication, language acquisition (in more than 50 languages), and literacy through the use of cued speech. NCSA provides education, awareness, and support for people with language, hearing, speech, and learning needs through publications, exhibits, family/professional learning vacations, and conferences. NCSA sets standards of cueing and certifies instructors of cued speech. Visit NCSA's bookstore for books, games, computer software, and more.
Publications:
On Cue
Frequency: triannual
Type: newsletter
National Institute on Deafness and Other Communication Disorders (NIDCD) Information Clearinghouse
Project Officer: Susan Dambrauskas
Project Manager: Charlotte Ball
Address: 1 Communication Avenue, Bethesda, MD, 20892-3456
Toll-free Voice: (800) 241-1044
Toll-free TTY: (800) 241-1055
Fax: (301) 770-8977
E-mail: nidcdinfo@nidcd.nih.gov
Internet: www.nidcd.nih.gov
Description:
The National Institute on Deafness and Other Communication Disorders (NIDCD) Information Clearinghouse, a service of NIDCD, is a national resource center for health information on hearing, balance, smell, taste, voice, speech, and language for health professionals, patients, and the public.
National Institute on Deafness and Other Communication Disorders (NIDCD)
Director: James F. Battey, Jr., M.D., Ph.D.
Public Information Contact: Susan Dambrauskas, Chief, Office of Health Communication and Public Liaison
Address: Office of Health Communication and Public Liaison, 31 Center Drive, MSC 2320, Bethesda, MD, 20892-2320
Voice: (301) 496-7243
Toll-free Voice: (800) 241-1044
Toll-free TTY: (800) 241-1055
Fax: (301) 402-0018
E-mail: nidcdinfo@nidcd.nih.gov
Internet: www.nidcd.nih.gov
/ www.noisyplanet.nidcd.nih.gov
Description:
The National Institute on Deafness and Other Communication Disorders (NIDCD), one of the National Institutes of Health, supports and conducts research and research training on the normal and disordered processes of hearing, balance, taste, smell, voice, speech, and language. The NIDCD develops health information based on scientific discovery and disseminates it to the public. In October 2008, the NIDCD launched It's a Noisy Planet. Protect Their Hearing (www.noisyplanet.nidcd.nih.gov). This national campaign is designed to increase awareness among parents of youth ages 8 to 12 about the causes and prevention of noise-induced hearing loss. The NIDCD provides a toll-free telephone service through its information clearinghouse. Fact sheets, brochures, teaching curricula, and reports are available, with many in Spanish.
Publications:
Inside
Frequency: quarterly
Type: newsletter
NIDCD Resources Directory
Frequency: biannual
Type: print and online directory of organizations and their resources
NIDCD Resources Directory
Frequency: biannual
Type: print and online directory of organizations and their resources
St. Joseph Institute for the Deaf (SJI)
President: Deborah S. Wilson
Chief Operating Officer: Cindy Costello
Address: 1809 Clarkson Road, Chesterfield, MO, 63017
Voice: (636) 532-3211
Fax: (636) 532-4560
E-mail: info@sjid.org
Internet: www.sjid.org
Description:
St. Joseph Institute for the Deaf (SJI) is committed to the spiritual and emotional growth and personal development of hearing-impaired children and young adults. SJI teaches children with hearing loss to hear, speak, and read from birth to eighth grade, regardless of race, religion, gender, or finances. Programs include early intervention; toddler, preschool, and kindergarten through eighth-grade classes; I-Hear teletherapy services; evaluations; local district partnerships; and mainstream consultancy. SJI has an onsite audiology clinic in Chesterfield, Mo.
Vestibular Disorders Association (VEDA)
Executive Director: Lisa Haven, Ph.D.
Address: P.O. Box 13305, Portland, OR, 97213-0305
Voice: (503) 229-7705
Toll-free Voice: (800) 837-8428
Fax: (503) 229-8064
E-mail: info@vestibular.org
Internet: www.vestibular.org
Description:
The Vestibular Disorders Association (VEDA) is a nonprofit organization that provides information, support, and advocacy to people with vestibular disorders and the health professionals who treat them. Such disorders include labyrinthitis, benign paroxysmal positional vertigo (BPPV), Ménière’s disease, ototoxicity, and perilymph fistula. Frequently reported symptoms of these disorders are dizziness, unsteadiness or imbalance, vertigo, nausea, hearing loss, visual disturbances, and tinnitus. A provider directory of health care specialists, newsletter, short publications, books, and DVDs/videos are available, with some in Spanish.
Publications:
On the Level
Frequency: quarterly
Type: newsletter
Virginia Merrill Bloedel Hearing Research Center (VMBHRC)
Director: Jay Rubinstein, M.D., Ph.D.
Business Development Manager: Carolyn Higgins
Address: University of Washington, Box 357923, Seattle, WA, 98195-7923
Voice: (206) 685-2962
Voice: (206) 616-4105
Fax: (206) 616-1828
E-mail: bloedel@uw.edu
Internet: depts.washington.edu/hearing
Description:
The Virginia Merrill Bloedel Hearing Research Center (VMBHRC) at the University of Washington conducts interdisciplinary research on hearing, hearing loss, and related communication disorders. Through its diverse programs that foster national and international collaboration between top experts in the field, the center advances the fight against deafness and disequilibrium on the fronts of protection, intervention, and regeneration. The center provides invaluable support to patients, the scientific community, and the general public.
Publications:
Bloedel Sound
Frequency: annually
Type: newsletter
