Directory of Organizations
Association of Late-Deafened Adults (ALDA)
President: Cynthia Amerman
ALDA eNews: Ken Arcia
Address: 8038 Macintosh Lane, Rockford, IL, 61107
Voice: (815) 332-1515
Toll-free Voice: (866) 402-ALDA (2532)
Toll-free TTY: (866) 402-ALDA (2532)
E-mail: info@alda.org
E-mail: president@alda.org
Internet: www.alda.org
Description:
The Association of Late-Deafened Adults (ALDA) serves as a resource center providing information and referrals, self-help, and support groups for people deafened as adults. ALDA works to increase public awareness of the special needs of deafened adults. Holds annual conference; contact ALDA for date and location. A professional/consumer directory, proceedings of conventions, and fact sheets are available.
Publications:
ALDANews
Frequency: quarterly
Type: professional/consumer newsletter
ALDA eNews
Frequency: monthly, or as needed
Type: e-mail news update
ALDA eNews
Frequency: monthly, or as needed
Type: e-mail news update
American Society for Deaf Children (ASDC)
Director of Advocacy: Cheri Dowling
:
Address: 800 Florida Avenue, NE, #2047, Washington, DC, 20002-3695
Voice: (800) 942-2732
Toll-free Voice: (800) 942-2732
TTY:
Fax: (410) 795-0965
E-mail: asdc@deafchildren.org
Internet: www.deafchildren.org
Description:
The American Society for Deaf Children (ASDC) supports and educates families of deaf and hard-of-hearing children, and advocates for high-quality programs and services. Holds convention every two years; contact ASDC for date and location. Consumer brochures and a magazine are available.
Publications:
The Endeavor
Frequency: quarterly
Type: consumer magazine
ADARA: Professional Networking for Excellence in Service Delivery with Individuals Who Are Deaf or Hard of Hearing
President: Timothy Beatty
Public Information Contact: Sherri Gallagher, National Office Coordinator
Address: P.O. Box 480, Myersville, MD, 21773
Voice: (301) 293-8969
TTY: (301) 293-8969
Fax: (301) 293-9698
E-mail: adaraorg@comcast.net
Internet: www.adara.org
Description:
The mission of ADARA is to facilitate professional development, networking opportunities, and public policies for a multidisciplinary membership of professionals who provide personal services to individuals who are deaf, hard-of-hearing, late-deafened, and deaf-blind. Holds biannual convention; contact ADARA for date and location. A professional/consumer newsletter/bulletin and professional online publications are available.
Publications:
JADARA
Frequency: quarterly
Type: journal
The Update
Frequency: quarterly
Type: professional newsletter
The Update
Frequency: quarterly
Type: professional newsletter
Communication Service for the Deaf, Inc. (CSD)
Chief Executive Officer: Benjamin Soukup, L.L.D.
Public Information Contact: Rick Norris, Public Relations
Address: 102 North Krohn Place, Sioux Falls, SD, 57103
Voice: (605) 367-5760
Toll-free Voice: (800) 642-6410
TTY: (605) 367-5761
Toll-free TTY: (866) 273-3323
Fax: (605) 367-5958
E-mail: rnorris@c-s-d.org
Internet: www.c-s-d.org
Description:
Communication Service for the Deaf, Inc., (CSD) is a world leader in providing broad-based quality human service programs and telecommunication relay services for consumers who are deaf and hard-of-hearing. CSD has a staff of approximately 2,000 people in facilities across the United States. CSD endeavors to increase opportunities for greater independence, ensure communication accessibility, and promote public awareness of issues affecting everyone who is deaf or hard-of-hearing.
Publications:
SIGNews
Frequency: monthly
Type: newspaper for the signing community
Childhood Apraxia of Speech Association of North America (CASANA)
President: Mary Sturm, M.D.
Public Information Contact: Kathy Hennessy
Address: 416 Lincoln Avenue, Pittsburgh, PA, 15209
Voice: (412) 343-7102
E-mail: helpdesk@apraxia-kids.org
Internet: www.apraxia-kids.org
Description:
The Childhood Apraxia of Speech Association of North America (CASANA) is the only national nonprofit 501(c)(3) charity representing the needs of children with apraxia and their families. CASANA’s goal is to provide credible, reliable, and comprehensive information on apraxia of speech in children. Guided by a professional advisory board of experts in childhood apraxia of speech, CASANA offers information and resources based on the current prevailing professional literature and expert opinion. CASANA raises awareness and provides online services, educational training, workshops for professionals and parents, and research support. Educational DVDs are available on topics that include an introduction to childhood apraxia of speech, treatment strategies, and ways to help children with apraxia practice speaking at home and in the community.
Publications:
Apraxia-KIDS Newsletter
Frequency: published bimonthly
Type: other
CHERAB Foundation
Founder: Lisa Geng
Address: P.O. Box 8524, Port St. Lucie , FL, 34985
Voice: (772) 335-5135
E-mail: help@cherab.org
Internet: www.cherab.org
/ www.apraxia.org
Description:
The CHERAB Foundation (CHERAB) is a worldwide nonprofit organization that helps individuals with speech and language delays and disorders through communication help, education, and research that is apraxia-based. Its area of emphasis is verbal and oral apraxia, which are severe neurologically based speech and language disorders that hinder children's ability to speak. The foundation is committed to assisting with the development of new therapeutic approaches to, and prevention and cure of, neurologically based speech disorders. CHERAB brings together parents and medical, research, and educational professionals to help give a voice to all. Sign up to receive updates at http://twitter.com/TheLateTalker.
Disability, Inc./Sign Language USA, LLC/CAPCOM
Executive Director: Richard F. Rosen, Ph.D.
Address: P.O. Box 1246, McLean, VA, 22101
Voice: (703) 628-5472
Voice: 1-855-SIGNUSA 1-855-744-6872
TTY: (703) 628-5472 (via relay)
Fax: (520) 544-8911
E-mail: rosenlaw@att.net
Internet: www.signlanguageusa.com
/ www.attorneysworldwide.com
Description:
Disability, Inc./Sign Language USA, LLC/CAPCOM provides sign language interpreters and support services for people with disabilities. Live or live-video sign language interpreting is available 24 hours a day, 7 days a week. Services include legal counsel to deaf persons, other legal services, assistance with home mortgages, product information, and the accessibility status of businesses and other locations. Fact sheets and brochures are available.
Described and Captioned Media Program (DCMP), National Association of the Deaf
Project Director: Bill Stark
Address: 1447 East Main Street, Spartanburg, SC, 29307
Toll-free Voice: (800) 237-6213
Toll-free TTY: (800) 237-6819
Fax: (800) 538-5636
E-mail: info@dcmp.org
Internet: www.dcmp.org
Description:
The Described and Captioned Media Program (DCMP) provides services designed to support and improve the academic achievement of students who are blind, visually impaired, deaf, hard-of-hearing, or deaf-blind. These services include: (1) a library of free-loan described and captioned educational media; (2) a clearinghouse of information related to educational media access, including a gateway to Internet resources related to accessibility; and (3) a center for training and evaluation of any service provider desiring to appear on the DCMP’s approved lists of description and captioning service providers. There are no user registration or service fees. The DCMP is funded by the U.S. Department of Education and administered by the National Association of the Deaf.
Educational Audiology Association
Executive Administrator: Jesse Haynes
Educational Audiology Association:
Address: 3030 West 81st Avenue, Westminster, CO, 80031-4111
Voice: (800) 460-7322
Fax: (303) 458-0002
E-mail: admin@edaud.org
Internet: www.edaud.org
Description:
The Educational Audiology Association (EAA) is an international organization of audiologists and related professionals who deliver a full spectrum of hearing services to all children, particularly those in educational settings. The mission of EAA is to act as the primary resource and active advocate for its members through its publications and products, continuing educational activities, networking opportunities, and other professional endeavors. EAA was established
in 1984 to advocate for educational audiologists and the students they serve. The American Academy of Audiology and the American Speech-Language-Hearing Association recognize EAA as a related professional organization that facilitates direct communication between these organizations and others to provide a forum for EAA issues.
Publications:
Educational Audiology Review
Frequency: quarterly
Type: newsletter
Journal of Educational Audiology
Frequency: annually
Type: professional journal
Journal of Educational Audiology
Frequency: annually
Type: professional journal
Friends of Libraries for Deaf Action (FOLDA)
Founding President: Alice L. Hagemeyer, M.L.S.
Address: 2930 Craiglawn Road, Silver Spring, MD, 20904-1816
Voice: (301) 563-9062 (VP)ophone)
TTY: (301) 572-5168
Fax: (301) 572-5168
E-mail: folda86@aol.com
Internet: www.folda.net
Description:
Friends of Libraries for Deaf Action (FOLDA) is a public service of Library for Deaf Action, the deaf-owned deaf cultural programming business of Alice L. Hagemeyer. FOLDA has no membership dues. FOLDA encourages the deaf community to become involved in activities of their local public library and its friends. Organizations serving the deaf wishing to keep up with library news and deaf cultural programs may register at http://imadeamericagreat.webs.com/foldaenews.htm.
Publications:
FOLDA E: News
Frequency: regularly updated
Type: newsletter
Gallaudet University (GU) and Laurent Clerc National Deaf Education Center
President: Dr. T. Alan Hurwitz
Executive Director, Communications and Public Relations: Catherine Murphy
Address: 800 Florida Avenue, NE, Washington, DC, 20002-3695
Voice: (202) 651-5000
Toll-free Voice: (800) 995-0550
TTY: (202) 651-5000
TTY: (202) 651-5866 (videophone)
Fax: (202) 651-5508
E-mail: public.relations@gallaudet.edu
E-mail: admissions@gallaudet.edu
Internet: www.gallaudet.edu
Description:
Gallaudet University is the world’s only university in which all programs and services are specifically designed to accommodate deaf and hard-of-hearing students. The Laurent Clerc National Deaf Education Center ensures that the diverse population of deaf and hard-of-hearing students (birth through age 21) in the nation are educated and empowered and have the linguistic competence to maximize their potential as productive and contributing members of society. The Research Institute is a leading center for research on deafness. National and international programs, including regional extension centers, conferences, sign language classes, summer programs, and international outreach, annually serve approximately 33,000 people.
Publications:
Gallaudet Today
Frequency: quarterly
Type: magazine/newsletter combination
On the Green
Frequency: biweekly
Type: newsletter
On the Green
Frequency: biweekly
Type: newsletter
Gallaudet University, Laurent Clerc National Deaf Education Center, Public Relations and Publications
Director of Public Relations and Publications: Danielle Puzio
Information Services Coordinator: Anita Gilbert
Address: 800 Florida Avenue, NE, Washington, DC, 20002
Voice: (202) 651-5051
TTY: (202) 651-5051
Fax: (202) 651-5708
E-mail: clearinghouse.infotogo@gallaudet.edu
Internet: clerccenter.gallaudet.edu
Description:
The Public Relations and Publications Office at Gallaudet University’s (GU’s) Laurent Clerc National Deaf Education Center provides information about diverse topics related to deaf and hard-of-hearing children and young adults from infancy to age 21. The office responds to inquiries and also collaborates with authors from within the Gallaudet community and nationwide to design, produce, and disseminate books, videotapes, periodicals, and other information related to deaf and hard-of-hearing children, their families, and the professionals who serve them. Fact sheets, brochures, and a directory are available.
Odyssey
Frequency: semiannual
Type: magazine
Odyssey
Frequency: semiannual
Type: magazine
Hands & Voices National
Executive Director: Leeanne Seaver, M.A.
Address: P.O. Box 3093, Boulder, CO, 80307
Voice: (217) 357-3647
Toll-free Voice: (866) 422-0422
Toll-free TTY: (866) 422-0422
Fax: (217) 357-3647
E-mail: parentadvocate@handsandvoices.org
Internet: www.handsandvoices.org
Description:
Hands & Voices National is a nationwide nonprofit organization dedicated to supporting families and their children who are deaf or hard-of-hearing as well as the professionals who serve them. This organization is a parent-driven, parent/professional collaborative group that is unbiased toward any communication modes and methods. Its membership includes those who are deaf or hard-of hearing and their families who communicate orally or with signs, cued speech, or combined methods. Hands & Voices National exists to help children reach their highest potential. See the website for local chapters.
Publications:
The Communicator
Frequency: quarterly
Type: newsletter
National Association of the Deaf (NAD)
Chief Executive Officer: Howard Rosenblum
Address: 8630 Fenton Street, Suite 820, Silver Spring, MD, 20910-4500
Voice: (301) 587-1788
Fax: (301) 587-1791
E-mail: www.nad.org/contactus
E-mail: nad.info@nad.org
Internet: www.nad.org
Description:
The National Association of the Deaf (NAD), founded in 1880, is a federation of state associations, organizational and corporate affiliates, and individuals advocating for the civil rights of deaf and hard-of-hearing Americans. NAD’s advocacy work encompasses a broad spectrum of areas such as accessibility, education, employment, health care, mental health, rehabilitation, technology, telecommunications, and transportation. The NAD Web site offers advocacy information and resources related to legal rights and other concerns affecting individuals who are deaf or hard-of-hearing.
Publications:
NADmag
Frequency: published two times a year (Summer/Winter)
Type: professional/consumer magazine
National Institute on Deafness and Other Communication Disorders (NIDCD) Information Clearinghouse
Project Officer: Susan Dambrauskas
Project Manager: Charlotte Ball
Address: 1 Communication Avenue, Bethesda, MD, 20892-3456
Toll-free Voice: (800) 241-1044
Toll-free TTY: (800) 241-1055
Fax: (301) 770-8977
E-mail: nidcdinfo@nidcd.nih.gov
Internet: www.nidcd.nih.gov
Description:
The National Institute on Deafness and Other Communication Disorders (NIDCD) Information Clearinghouse, a service of NIDCD, is a national resource center for health information on hearing, balance, smell, taste, voice, speech, and language for health professionals, patients, and the public.
National Center on Deafness (NCOD)
Director: Roslyn Rosen
Address: 18111 Nordhoff Street, California State University, Northridge, CA, 91330-8267
Voice: (818) 677-2611
TTY: (818) 677-2611
Fax: (818) 677-4899
E-mail: ncod@csun.edu
Internet: www.csun.edu/ncod
Description:
The National Center on Deafness (NCOD) is housed in Jeanne M. Chisholm Hall on the campus of California State University, Northridge. Established in 1962, NCOD was the first postsecondary program in the nation to provide paid professional sign language interpreters for deaf and hard-of-hearing students as well as captioning services as requested. The program has grown to be the largest of its type in the western United States, serving approximately 200 students who are deaf and hard-of-hearing each year. NCOD also provides transition services, academic and career planning, tutorial assistance, and cocurricular events for the students. Additionally, NCOD provides outreach and training through a federal grant.
Postsecondary Education Programs Network (pepnet 2)
pepnet 2 Director: Cathy McLeod
Address: 18111 Nordhoff Street, Northridge, CA 91330-8267,
E-mail: help@pepnet.ogr
Internet: www.pepnet.org
Description:
Pepnet2 (pn2) recognizes the full range of postsecondary education and training options available for individuals who are deaf or hard-of-hearing, including those with co-occurring disabilities, and strives to enhance the capacity of those institutions to appropriately serve this diverse student population. Pn2 is a national collaboration of professionals with expertise in a broad array of content areas and a variety of environments, including research, technology, personnel development, media production, and technical assistance. Our mission and the focus of our resources is to increase the education, career, and lifetime choices available to individuals who are deaf or hard-of- hearing. Our resources include live, one-on-one assistance in a variety of communication modes, in-person and online training, and materials that are downloadable, printable or available as hard copies. Pn2 is funded through a cooperative agreement with the Research to Practice Division, Office of Special Education Programs, U.S. Department of Education.
Publications:
PEPNet Perspectives
Frequency: semiannual
Type: newsletter
Registry of Interpreters for the Deaf, Inc. (RID)
President: Brenda Walker Prudhom
Director of Communications: Tina Schultz
Address: 333 Commerce Street, Alexandria, VA, 22314
Voice: (703) 838-0030
TTY: (703) 838-0459
Fax: (703) 838-0454
E-mail: publications@rid.org
Internet: www.rid.org
Description:
The mission of the Registry of Interpreters for the Deaf, Inc., (RID) is to provide international, national, regional, state, and local forums with an organizational structure for the continued growth and development of the profession of interpretation and transliteration of American Sign Language and English. Holds biennial conference; contact RID for date and location. Professional journal, newsletter, directory, fact sheets, brochures, and books are available.
Publications:
Journal of Interpretation
Frequency: annual
Type: professional journal
VIEWS
Frequency: quarterly
Type: magazine
VIEWS
Frequency: quarterly
Type: magazine
Telecommunications for the Deaf and Hard of Hearing Inc. (TDI)
Executive Director: Claude L. Stout
Public Relations Director: James D. House
Address: 8630 Fenton Street, Suite 604, Silver Spring, MD, 20910-3803
Voice: (301) 589-3786
Voice: (301) 563-9112
TTY: (301) 589-3006
Fax: (301) 589-3797
E-mail: info@TDIforAccess.org
Internet: www.TDIforAccess.org
/ www.cepintdi.org
Description:
Telecommunications for the Deaf and Hard of Hearing, Inc., (TDI) is a consumer advocacy organization that provides leadership in achieving equal access to telecommunications, media, and information technologies for 36 million Americans who are deaf and hard-of-hearing.TDI administers the E911 Stakeholder Council, dedicated to increasing access to emergency services, as well as the Community Emergency Preparedness Information Network (www.cepintdi.org), a program funded by the Federal Emergency Management Agency, and administers biennial conferences in odd-numbered years.
Publications:
Blue Book
Frequency: annual
Type: directory
TDI eNotes
Frequency:
Type: periodic e-mail news updates
TDI eNotes
Frequency:
Type: periodic e-mail news updates
Holley Institute
President: Ardis J. Gardella
Address: 22151 Moross Road, Professional Building I, Suite 223, Detroit, MI, 48236-2172
Voice: (313) 343-7583
Voice: (313) 343-7484
TTY: (313) 343-8789
Fax: (313) 343-4111
E-mail: ardis.gardella@stjohn.org
E-mail: pamela.wong.stjohn.org
Internet: www.stjohn.org/holley
Description:
The mission of the Holley Institute, a nonprofit organization founded in 1993, is to assist deaf, deaf-blind, and hard-of-hearing individuals by providing services and programs aimed at improving their quality of life. Institute volunteers screen newborn infants for hearing loss at St. John Hospital in Detroit, MI. The institute owns and operates the Holley Family Village, located in Brooklyn, MI, where it offers educational, recreational, and mental health programs for deaf, deaf-blind, and hard-of-hearing children, teens, adults, and their families. The institute also offers American Sign Language classes at some Michigan locations.
Publications:
The Holley Institute Newsletter
Frequency: published quarterly
Type: other
Virginia Merrill Bloedel Hearing Research Center (VMBHRC)
Director: Jay Rubinstein, M.D., Ph.D.
Business Development Manager: Carolyn Higgins
Address: University of Washington, Box 357923, Seattle, WA, 98195-7923
Voice: (206) 685-2962
Voice: (206) 616-4105
Fax: (206) 616-1828
E-mail: bloedel@uw.edu
Internet: depts.washington.edu/hearing
Description:
The Virginia Merrill Bloedel Hearing Research Center (VMBHRC) at the University of Washington conducts interdisciplinary research on hearing, hearing loss, and related communication disorders. Through its diverse programs that foster national and international collaboration between top experts in the field, the center advances the fight against deafness and disequilibrium on the fronts of protection, intervention, and regeneration. The center provides invaluable support to patients, the scientific community, and the general public.
Publications:
Bloedel Sound
Frequency: annually
Type: newsletter
