Directory of Organizations
Academy of Rehabilitative Audiology (ARA)
President: Patricia Kricos, Ph.D.
Administrative Assistant: Karen Dannheim
Address: P.O. Box 952, DeSoto, TX, 75123
Fax: (972) 534-1281
E-mail: ara@audrehab.org
Internet: www.audrehab.org
Description:
The Academy of Rehabilitative Audiology (ARA) was founded
in 1966 as a forum for the exchange of ideas, knowledge, and
experience related to rehabilitative aspects of audiology and associated disciplines. Membership in ARA is open to professionals holding a graduate degree in audiology, speech-language pathology, or the education of persons with hearing impairment. Associate and student memberships also are available. Holds annual institute; contact ARA for date and location. A professional newsletter/bulletin, directory, and books and monographs are available.
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Alexander Graham Bell Association for the Deaf and Hard of Hearing (AG Bell)
Interim Executive Director: Frederick T. Spahr
Senior Director, Marketing and Communications: Jessica Ripper
Address: 3417 Volta Place, NW, Washington, DC, 20007-2778
Voice: (202) 337-5220
Toll-free Voice: (866) 337-5220
TTY: (202) 337-5221
Fax: (202) 337-8314
E-mail: info@agbell.org
Internet: www.agbell.org
Description:
The Alexander Graham Bell Association for the Deaf and Hard
of Hearing (AG Bell) is a lifelong resource, support network, and advocate for listening, learning, talking, and living independently with hearing loss. Through publications, advocacy, training, scholarships, and financial aid, AG Bell promotes the use of spoken language and hearing technology. Headquartered in Washington, DC, AG Bell has chapters located in the United States and Canada
and also includes a network of international affiliates.
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American Society for Deaf Children (ASDC)
Executive Director: Don Rhoten
Public Information Contact: Jessica Wells, Associate Executive Director
Address: 3820 Hartzdale Drive, Camp Hill, PA, 17011
Voice: (717) 703-0073
Toll-free Voice: (866) 895-4206
TTY: (717) 703-0073
E-mail: ASDC4U@aol.com
Internet: www.deafchildren.org
Description:
The American Society for Deaf Children (ASDC) supports and
educates families of deaf and hard-of-hearing children, and
advocates for high-quality programs and services. Holds biennial convention; contact ASDC for date and location. Consumer brochures and a magazine are available.
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Central Institute for the Deaf (CID)
Executive Director: Robin Feder
Public Information Contact: Kim Readmond
Address: 825 South Taylor Avenue, St. Louis, MO, 63110
Voice: (314) 977-0243
TTY: (314) 977-0037
Fax: (314) 977-0033
E-mail: kreadmond@cid.edu
Internet: www.cid.edu
Description:
Founded in 1914, the Central Institute for the Deaf (CID) is a nonprofit organization that helps deaf children learn to speak, listen,and read with proficiency without the use of sign language. CID provides pediatric audiology; research collaborations; continuing education workshops for professionals; and books, tests, and curricula used to help deaf children throughout the world. CID has a proud history of training professionals and conducting pioneering
educational, clinical, and biological research in hearing and deafness. CID is a financially independent affiliate of the Washington University School of Medicine.
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Deafness Research Foundation (DRF)
Chief Operating Officer: Andrea Kardonsky
Address: 641 Lexington Avenue, 15th Floor, New York, NY, 10022
Voice: (212) 328-9480
Toll-free Voice: (866) 454-3924
TTY: (888) 435-6104
Toll-free TTY: (888) 435-6104
Fax: (202) 338-8182
E-mail: info@drf.org
Internet: www.drf.org
Description:
The Deafness Research Foundation (DRF) is committed to making a lifetime of hearing health possible for all through the funding of quality research, public education, and advocacy. Throughout its 49-year history, DRF has awarded thousands of “seed money” grants to researchers who explore new avenues of hearing science. DRF-funded research has led to innovations in the diagnosis and treatment of otitis media (middle ear infections), cochlear implants,
and implantable hearing aids as well as breakthroughs in molecular biology and hair cell regeneration. A free quarterly magazine is available; visit the Web site to subscribe.
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Hyperacusis Network
Publisher: Dan Malcore
Address: Post Office Box 8007, Green Bay, WI, 54308
Voice: (920) 866-3377
E-mail: earhelp@yahoo.com
Internet: www.hyperacusis.net
Description:
The Hyperacusis Network is an international support group
established to care for individuals with collapsed tolerance to sound. The network helps educate the medical community and families about this rare auditory disorder by sharing ways to cope, providing advice on how to secure disability assistance, and reporting on current research and treatment options. Membership is free. A professional/consumer newsletter, directory, fact sheets, brochures/pamphlets, and online publications are available.
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Hands & Voices National
Executive Director: Leeanne Seaver, M.A.
Address: P.O. Box 3093, Boulder, CO, 80307
Voice: (217) 357-3647
Toll-free Voice: (866) 422-0422
Toll-free TTY: (866) 422-0422
Fax: (217) 357-3647
E-mail: parentadvocate@handsandvoices.org
Internet: www.handsandvoices.org
Description:
Hands & Voices National is a nationwide nonprofit organization dedicated to supporting families and their children who are deaf or hard-of-hearing as well as the professionals who serve them. This organization is a parent-driven, parent/professional collaborative group that is unbiased toward any communication modes and methods. Its membership includes those who are deaf or hard-ofhearing
and their families who communicate orally or with signs,
cued speech, or combined methods. Hands & Voices National exists to help children reach their highest potential. See the Web site for local chapters.
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House Ear Institute (HEI)
Chief Executive Officer: James D. Boswell
Public Information Contact: Christa Spieth Nuber, Director of Media Relations and Communications
Address: 2100 West Third Street, Los Angeles, CA, 90057
Voice: (213) 483-4431
TTY: (213) 484-2642
Fax: (213) 483-8789
E-mail: webmaster@hei.org
Internet: www.hei.org
Description:
The House Ear Institute (HEI) is a private, nonprofit 501(c)(3)organization dedicated to advancing hearing science through research and education to improve quality of life. Scientists are exploring the developing ear and ear diseases at the cellular and molecular level as well as investigating the complex ear-brain interaction. They also are working to improve hearing aids and auditory implants, clinical treatments, and intervention methods. Professional/consumer brochures, books, and audiovisuals
are available.
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John Tracy Clinic
President: Barbara F. Hecht, Ph.D.
Address: 806 West Adams Boulevard, Los Angeles, CA, 90007
Voice: (213) 748-5481
Toll-free Voice: (800) 522-4582
TTY: (213) 747-2924
Fax: (213) 749-1651
E-mail: bhecht@jtc.org
Internet: www.jtc.org
Description:
The John Tracy Clinic provides free services to parents of children, ages birth to 5 years, with hearing loss. The clinic has more than 60 years of experience in early intervention and the spoken language option. Correspondence courses are available worldwide. Threeweek summer sessions are offered. A master’s and credential program in teacher education is offered both onsite and online. A professional/consumer newsletter and fact sheets, brochures/
pamphlets, and online publications are available. Most materials are available in Spanish.
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League for the Hard of Hearing (LHH)
Executive Director: Laurie Hanin, Ph.D.
Director of Public Education: Amy K. Boyle
Address: 50 Broadway, New York, NY, 10004
Voice: (917) 305-7700
TTY: (917) 305-7999
Fax: (917) 305-7888
Internet: www.lhh.org
Description:
The nonprofit League for the Hard of Hearing (LHH) works to
improve the quality of life for people with all degrees of hearing loss and to offer comprehensive services regardless of age or mode of communication. Services include hearing assessment, hearing aid fitting and dispensing, speech-language and auditory evaluation and therapy, otology, cochlear implant evaluation and training, career
development and job placement, research projects, and a speakers bureau. Holds monthly cochlear implant support group and other meetings. Print and online publications are available.
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National Institute on Deafness and Other Communication Disorders (NIDCD) Information Clearinghouse
Project Officer: Jennifer Wenger
Project Manager: Charlotte Ball
Address: 1 Communication Avenue, Bethesda, MD, 20892-3456
Toll-free Voice: (800) 241-1044
Toll-free TTY: (800) 241-1055
Fax: (301) 770-8977
E-mail: nidcdinfo@nidcd.nih.gov
Internet: www.nidcd.nih.gov
Description:
The National Institute on Deafness and Other Communication Disorders (NIDCD) Information Clearinghouse, a service of NIDCD, is a national resource center for health information on hearing, balance, smell, taste, voice, speech, and language for health professionals, patients, and the public. The clearinghouse collects and disseminates information through its e-mail and helpline service, the Combined Health Information Database (CHID) at http://chid.nih.gov, and online and print publications on the normal and disordered processes of human communication.
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National Cued Speech Association (NCSA), Deaf Children’s Literacy Project
President: Sarina Roffé
Public Information Contact : Amy Ruberl, Executive Director
Address: 5619 McLean Drive, Bethesda, MD, 20814
Voice: (301) 915-8009
Toll-free Voice: (800) 459-3529
Toll-free TTY: (800) 459-3529
E-mail: info@cuedspeech.org
Internet: www.cuedspeech.org
Description:
The National Cued Speech Association (NCSA) and its Deaf
Children’s Literacy Project promote the effective use of cued speech for communication, language acquisition (in more than 50 languages), and literacy through the use of cued speech. NCSA provides education, awareness, and support for people with language, hearing, speech, and learning needs through publications, exhibits, family/professional learning vacations, and conferences.
NCSA sets standards of cueing and certifies instructors of cued speech. Visit NCSA’s bookstore for books, games, computer software, and more.
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TASH
Executive Director: Barb Trader
Public Information Contact: Tabitha Johnson-Graham, Membership Coordinator
Address: 1025 Vermont Avenue, 7th Floor, Washington, DC, 20005
Voice: (202) 263-5600
Fax: (202) 637-0138
E-mail: info@tash.org
Internet: www.tash.org
Description:
TASH is an international membership association of people with disabilities, their family members, other advocates, and professionals who work in the disability field. The association promotes the full participation of people with disabilities in integrated community settings that support the same quality of life available to people without disabilities. Sponsors an annual conference and topical
workshops. TASH provides information and referral resources,
renders targeted advocacy, and produces a magazine and
quarterly journal.
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