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Directory of Organizations
American Association of the Deaf-Blind (AADB) Address: 3417 Volta Place, NW, Washington, DC, 20007-2778 E-mail: info@agbell.org Internet: www.agbell.org 
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Boys Town National Research Hospital (BTNRH) Address: 555 North 30th Street, Omaha, NE, 68131 E-mail: moeller@boystown.org Internet: www.boystownhospital.org / www.babyhearing.org
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Birth Defect Research for Children, Inc. (BDRC) Address: 800 Celebration Avenue, Suite 225, Celebration, FL, 34747 E-mail: staff@birthdefects.org Internet: www.birthdefects.org
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DB-LINK at the National Consortium on Deaf-Blindness (formerly the National Information Clearinghouse on Children Who Are Deaf-Blind) Address: 345 North Monmouth Avenue, Monmouth, OR, 97361 E-mail: info@nationaldb.org Internet: www.nationaldb.org
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Deafness Research Foundation (DRF) Address: 641 Lexington Avenue, 15th Floor, New York, NY, 10022 E-mail: info@drf.org Internet: www.drf.org
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Foundation Fighting Blindness, Inc. (FFB) Address: 11435 Cronhill Drive, Owings Mills, MD, 21117-2220 E-mail: info@blindness.org Internet: www.fightblindness.org
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National Institute on Deafness and Other Communication Disorders (NIDCD) Information Clearinghouse Address: 1 Communication Avenue, Bethesda, MD, 20892-3456 E-mail: nidcdinfo@nidcd.nih.gov Internet: www.nidcd.nih.gov
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National Temporal Bone, Hearing, and Balance Pathology Resource Registry Address: Massachusetts Eye and Ear Infirmary, 243 Charles Street, Boston, MA, 02114-3096 E-mail: tbregistry@meei.harvard.edu Internet: www.tbregistry.org
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National Organization for Hearing Research Foundation (NOHR) Address: 225 Haverford Avenue, Suite 1, Narberth, PA, 19072-2234 E-mail: smsnohr@att.net Internet: www.nohrfoundation.org
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National Organization for Rare Disorders (NORD) Address: P.O. Box 1968, 55 Kenosia Avenue, Danbury, CT, 06813-1968 E-mail: orphan@rarediseases.org Internet: www.rarediseases.org
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National Institute on Deafness and Other Communication Disorders (NIDCD) Address: Office of Health Communication and Public Liaison, 31 Center Drive, MSC 2320, Bethesda, MD, 20892-2320 E-mail: nidcdinfo@nidcd.nih.gov Internet: www.nidcd.nih.gov
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Testing, Evaluation, and Certification Unit, Inc. (TECUnit ) Address: 6567 S. Cedar Creek Circle, Salt Lake City, UT, 84118 E-mail: ilove2cue@yahoo.com Internet: www.TECUnit.org
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United States Society for Augmentative and Alternative Communication (USSAAC) Address: P.O. Box 10906, Baltimore, MD, 21214 E-mail: Barbara@ussaac.org Internet: www.USSAAC.org
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Vestibular Disorders Association (VEDA) Address: P.O. Box 13305, Portland, OR, 97213-0305 E-mail: info@vestibular.org Internet: www.vestibular.org
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