Directory of Organizations
Advocure NF2, Inc.
Address: P.O. Box 4118, Clearwater, FL, 33758-4118
E-mail: contact@advocurenf2.org
Internet: www.advocurenf2.org
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Address: 976 Lake Baldwin Lane, Suite 104, Orlando, FL, 32814
E-mail: staff@birthdefects.org
Internet: www.birthdefects.org
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Boys Town National Research Hospital (BTNRH) Address: 555 North 30th Street, Omaha, NE, 68131
E-mail: marypat.moeller@boystown.org
Internet: www.boystownhospital.org / www.babyhearing.org
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Collaborative for Communication Access via Captioning (CCAC) Address: , , ,
E-mail: ccacaptioning@gmail.com
Internet: www.ccacaptioning.org
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CHERAB Foundation Address: P.O. Box 8524, Port St. Lucie , FL, 34985
E-mail: help@cherab.org
Internet: www.cherab.org / www.apraxia.org
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Dysphagia Research Society Address: 4550 Post Oak Place, Suite 342, Houston, TX, 77027
E-mail: drs@meetingmanagers.com
Internet: www.dysphagiaresearch.org
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Gallaudet University, Laurent Clerc National Deaf Education Center, Public Relations and Publications Address: 800 Florida Avenue, NE, Washington, DC, 20002
E-mail: clearinghouse.infotogo@gallaudet.edu
Internet: clerccenter.gallaudet.edu
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Genetic Alliance Address: 4301 Connecticut Avenue, NW, Suite 404, Washington, DC, 20008-2369
E-mail: info@geneticalliance.org
Internet: www.geneticalliance.org
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Hearing Health Foundation Address: 363 Seventh Avenue, 10th Floor, New York, NY, 10001-3904
E-mail: info@hearinghealthfoundation.org
Internet: hearinghealthfoundation.org
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House Research Institute Address: 2100 West Third Street, Los Angeles, CA, 90057
E-mail: webmaster@hei.org
Internet: www.hei.org
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Monell Chemical Senses Center Address: 3500 Market Street, Philadelphia, PA, 19104
E-mail: mcsc@monell.org
Internet: www.monell.org
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National Organization for Rare Disorders (NORD) Address: P.O. Box 1968, 55 Kenosia Avenue, Danbury, CT, 06813-1968
E-mail: orphan@rarediseases.org
Internet: www.rarediseases.org
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National Institute on Deafness and Other Communication Disorders (NIDCD) Address: Office of Health Communication and Public Liaison, 31 Center Drive, MSC 2320, Bethesda, MD, 20892-2320
E-mail: nidcdinfo@nidcd.nih.gov
Internet: www.nidcd.nih.gov / www.noisyplanet.nidcd.nih.gov
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National Organization for Hearing Research Foundation (NOHR) Address: 225 Haverford Avenue, Suite 1, Narberth, PA, 19072-2234
E-mail: smsnohr@att.net
Internet: www.nohrfoundation.org
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National Institute on Disability and Rehabilitation Research, Office of Special Education and Rehabilitative Services (OSERS) Address: 550 12th Street, SW, Room 6056, Washington, DC, 20024-6122
E-mail: ruth.brannon@ed.gov
Internet: www.ed.gov/about/offices/list/osers/nidrr/index.html
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Neurofibromatosis, Inc. (NF, Inc.) Address: P.O. Box 66884, Chicago, IL, 60666
E-mail: admin@nfinc.org
Internet: www.nfinc.org
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Stuttering Foundation of America (SFA) Address: 1805 Moriah Woods Boulevard, Suite 3, Memphis, TN, 38111-0749
E-mail: info@StutteringHelp.org
Internet: www.StutteringHelp.org / www.tartamudez.org
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St. Joseph Institute for the Deaf (SJI) Address: 1809 Clarkson Road, Chesterfield, MO, 63017
E-mail: info@sjid.org
Internet: www.sjid.org
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Vestibular Disorders Association (VEDA) Address: P.O. Box 13305, Portland, OR, 97213-0305
E-mail: info@vestibular.org
Internet: www.vestibular.org
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Virginia Merrill Bloedel Hearing Research Center (VMBHRC) Address: University of Washington, Box 357923, Seattle, WA, 98195-7923
E-mail: bloedel@uw.edu
Internet: depts.washington.edu/hearing
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