Directory of Organizations
American Association of the Deaf-Blind (AADB)
Address: 8630 Fenton Street, Suite 121, Silver Spring, MD, 20910
E-mail: aadb-info@aadb.org
Internet: www.aadb.org
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Address: 3417 Volta Place, NW, Washington, DC, 20007-2778
E-mail: info@agbell.org
Internet: www.agbell.org
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Boys Town National Research Hospital (BTNRH) Address: 555 North 30th Street, Omaha, NE, 68131
E-mail: marypat.moeller@boystown.org
Internet: www.boystownhospital.org / www.babyhearing.org
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Birth Defect Research for Children, Inc. (BDRC) Address: 976 Lake Baldwin Lane, Suite 104, Orlando, FL, 32814
E-mail: staff@birthdefects.org
Internet: www.birthdefects.org
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Collaborative for Communication Access via Captioning (CCAC) Address: , , ,
E-mail: ccacaptioning@gmail.com
Internet: www.ccacaptioning.org
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DB-LINK at the National Consortium on Deaf-Blindness (formerly the National Information Clearinghouse on Children Who Are Deaf-Blind) Address: 345 North Monmouth Avenue, Monmouth, OR, 97361
E-mail: info@nationaldb.org
Internet: www.nationaldb.org
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Foundation Fighting Blindness, Inc. (FFB) Address: 11435 Cronhill Drive, Owings Mills, MD, 21117-2220
E-mail: info@fightblindness.org
Internet: www.fightblindness.org
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Genetic Alliance Address: 4301 Connecticut Avenue, NW, Suite 404, Washington, DC, 20008-2369
E-mail: info@geneticalliance.org
Internet: www.geneticalliance.org
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Hearing Health Foundation Address: 363 Seventh Avenue, 10th Floor, New York, NY, 10001-3904
E-mail: info@hearinghealthfoundation.org
Internet: hearinghealthfoundation.org
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Hear Me Foundation Address: 4814 Woodstream Village Drive, Kingwood, TX, 77345
E-mail: info@hearmefoundation.org
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National Organization for Hearing Research Foundation (NOHR) Address: 225 Haverford Avenue, Suite 1, Narberth, PA, 19072-2234
E-mail: smsnohr@att.net
Internet: www.nohrfoundation.org
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National Institute on Deafness and Other Communication Disorders (NIDCD) Address: Office of Health Communication and Public Liaison, 31 Center Drive, MSC 2320, Bethesda, MD, 20892-2320
E-mail: nidcdinfo@nidcd.nih.gov
Internet: www.nidcd.nih.gov / www.noisyplanet.nidcd.nih.gov
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National Organization for Rare Disorders (NORD) Address: P.O. Box 1968, 55 Kenosia Avenue, Danbury, CT, 06813-1968
E-mail: orphan@rarediseases.org
Internet: www.rarediseases.org
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National Institute on Deafness and Other Communication Disorders (NIDCD) Information Clearinghouse Address: 1 Communication Avenue, Bethesda, MD, 20892-3456
E-mail: nidcdinfo@nidcd.nih.gov
Internet: www.nidcd.nih.gov
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National Temporal Bone, Hearing, and Balance Pathology Resource Registry Address: Massachusetts Eye and Ear Infirmary, 243 Charles Street, Boston, MA, 02114-3096
E-mail: tbregistry@meei.harvard.edu
Internet: www.tbregistry.org
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St. Joseph Institute for the Deaf (SJI) Address: 1809 Clarkson Road, Chesterfield, MO, 63017
E-mail: info@sjid.org
Internet: www.sjid.org
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Vestibular Disorders Association (VEDA) Address: P.O. Box 13305, Portland, OR, 97213-0305
E-mail: info@vestibular.org
Internet: www.vestibular.org
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United States Society for Augmentative and Alternative Communication (USSAAC) Address: P.O. Box 1195, Burlingame, CA, 94011
E-mail: info@ussaac.org
Internet: www.USSAAC.org
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Virginia Merrill Bloedel Hearing Research Center (VMBHRC) Address: University of Washington, Box 357923, Seattle, WA, 98195-7923
E-mail: bloedel@uw.edu
Internet: depts.washington.edu/hearing
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