Directory of Organizations
Coalition for Usher Syndrome Research
The Coalition for Usher Syndrome Research is dedicated to helping families cope with Usher syndrome while working diligently to find a cure. Its goal is to provide hope to families with Usher syndrome. Hope here comes in many forms, from the opportunity to connect with other families, to the ability to access the latest information from the world's leading researchers, to the chance to directly participate in the search for a cure. The coalition counts a number of leading institutions and researchers among its national members, who also share information with the finest international institutions.