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Directory of Organizations

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American Academy of Otolaryngology--Head and Neck Surgery (AAO-HNS)

Executive Vice President: David R. Nielsen, M.D.
Public Information Contact: Jeanne McIntyre, Director of Communications
Address: 1650 Diagonal Road
Voice: (703) 836-4444
Fax: (703) 683-5100
Internet: www.entnet.org
Last updated: 2011 Jun 30

Description:
The nonprofit American Academy of Otolaryngology—Head and Neck Surgery (AAO-HNS) strives to unite, serve, and represent the interests of ear, nose, and throat specialists and their patients to the public, government, other medical specialists, and related organizations. AAO-HNS provides leaflets and geographic lists of physicians to the public at no charge. Holds annual meeting; contact AAO-HNS for date and location. AAO-HNS provides a professional bulletin, journal, directory, books, and other materials. Professional/consumer publications are available online and in print, with some in Spanish.

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American Cleft Palate-Craniofacial Association (ACPA) and Cleft Palate Foundation (CPF)

Executive Director: Nancy C. Smythe
Public Information Contact: Lisa Gist, Director of Family Services
Address: 1504 East Franklin Street, Suite 102
Voice: (919) 933-9044
Toll-free Voice: (800) 24-CLEFT (2-5338)
Fax: (919) 933-9604
Last updated: 2011 Jun 30

Description:
The American Cleft Palate-Craniofacial Association (ACPA) is an international nonprofit association of more than 2,500 health care professionals who are involved in the treatment and research of cleft lip, cleft palate, and other craniofacial abnormalities. ACPA optimizes the interdisciplinary care of persons affected by craniofacial abnormalities. The Cleft Palate Foundation (CPF), which is the public service arm of ACPA, educates and assists the public regarding craniofacial anomalies and encourages research in the field. Holds annual convention; contact ACPA or CPF for date and location. A directory and professional/consumer fact sheets and brochures are available, with some in Spanish.

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Association for Chemoreception Sciences (AChemS)

Executive Director: Tisha Kehn
Address: 5841 Cedar Lake Road, Suite 204
Voice: (952) 646-2035
Fax: (952) 545-6073
Internet: www.achems.org
Last updated: 2011 Jun 30

Description:
The Association for Chemoreception Sciences (AChemS) is an international association that advances understanding of the senses of taste and smell. It encourages basic, clinical, and applied research in the chemical senses (gustation, olfaction, and trigeminal sensation); promotes an appreciation of chemosensory research; represents the interests of the chemosensory research community; and serves as a resource for those requiring chemosensory expertise. Holds annual meeting; contact AChemS for date and location. A professional newsletter and directory are available.

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Association for Research in Otolaryngology (ARO)

President: Debara Tucci, M.D.
Executive Director: Darla M. Eastlack
Address: 19 Mantua Road
Voice: (856) 423-0041
Fax: (856) 423-3420
Internet: www.aro.org
Last updated: 2011 Jun 30

Description:
The Association for Research in Otolaryngology (ARO) is an international scientific society of researchers who investigate basic science and clinical problems associated with hearing, speech, balance, taste and smell, and diseases of the head and neck. ARO’s goals are to encourage both basic and clinical research in the broad field of otolaryngology and related areas and to foster friendly assembly and stimulate scientific interest among its members. Holds mid-winter research meeting; contact ARO for date and location.

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Centers for Medicare and Medicaid Services (CMS)

Acting Administrator: Charlene Frizzera
Public Information Contact: Peter Ashkenaz, Acting Director
Address: 7500 Security Boulevard
Voice: (410) 786-3000
Voice: (202) 690-6145
Toll-free Voice: (877) 267-2323
Last updated: 2011 Jun 30

Description:
The Centers for Medicare and Medicaid Services (CMS) is a federal agency with responsibilities that include the Medicare and Medicaid programs, two national health care programs benefiting about 75 million Americans; the State Children’s Health Insurance Program; regulation of all non-research laboratory testing performed on humans in the United States; and programs assisting millions of Americans and small companies in obtaining health insurance coverage. The website www.cms.gov targets health care providers and the public, while www.medicare.gov offers information about services to beneficiaries. Publications are available.

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Dysphagia Research Society

President: Rosemary Martino, Ph.D., M.Sc., M.A. (until June 30, 2012)
Association Manager: Angela Davis, C.A.E.
Address: 4550 Post Oak Place, Suite 342
Voice: (713) 965-0566
Fax: (713) 960-0488
Last updated: 2011 Jun 30

Description:
The Dysphagia Research Society (DRS) was established to serve researchers and clinicians from different areas of inquiry who share a research interest in normal and disordered swallowing and related functions. Its purposes are to enhance and encourage research in these areas, attract new investigators to the field and encourage interdisciplinary research, promote the dissemination of knowledge, provide a multidisciplinary forum for presenting research, and foster new methodologies and instrumentation in dysphagia research and its clinical applications. DRS holds an annual conference; see website for details. DRS also publishes a professional journal and a newsletter biannually.

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Monell Chemical Senses Center

Director/President: Gary K. Beauchamp, Ph.D.
Public Information Contact: Leslie Stein, Ph.D.
Address: 3500 Market Street
Voice: (267) 519-4700
Fax: (215) 573-0909
Internet: www.monell.org
Last updated: 2011 Jun 30

Description:
The Monell Chemical Senses Center (Monell) is the world’s only nonprofit basic research institute devoted to the study of taste, smell, and chemical irritation. Its mission is to advance knowledge of the mechanisms and functions of the chemical senses to benefit human health and well-being. Monell’s interdisciplinary research relates to significant public health and quality-of-life issues across the lifespan, including obesity, diabetes, hypertension, pediatric health, occupational safety, and environmental issues. It has an education and training program for postdoctoral scientists, senior scientists, and graduate students. Monell is a resource for information about the chemical senses for the public, medical professionals, the media, and academics. A newsletter is available.

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National Institute on Deafness and Other Communication Disorders (NIDCD)

Director: James F. Battey, Jr., M.D., Ph.D.
Public Information Contact: Susan Dambrauskas, Chief, Office of Health Communication and Public Liaison
Address: Office of Health Communication and Public Liaison, 31 Center Drive, MSC 2320
Voice: (301) 496-7243
Toll-free Voice: (800) 241-1044
Toll-free TTY: (800) 241-1055
Fax: (301) 402-0018
Last updated: 2011 Jun 30

Description:
The National Institute on Deafness and Other Communication Disorders (NIDCD), one of the National Institutes of Health, supports and conducts research and research training on the normal and disordered processes of hearing, balance, taste, smell, voice, speech, and language. The NIDCD develops health information based on scientific discovery and disseminates it to the public. In October 2008, the NIDCD launched It's a Noisy Planet. Protect Their Hearing (www.noisyplanet.nidcd.nih.gov). This national campaign is designed to increase awareness among parents of youth ages 8 to 12 about the causes and prevention of noise-induced hearing loss. The NIDCD provides a toll-free telephone service through its information clearinghouse. Fact sheets, brochures, teaching curricula, and reports are available, with many in Spanish.

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National Institute on Deafness and Other Communication Disorders (NIDCD) Information Clearinghouse

Project Officer: Susan Dambrauskas
Project Manager: Charlotte Ball
Address: 1 Communication Avenue
Toll-free Voice: (800) 241-1044
Toll-free TTY: (800) 241-1055
Fax: (301) 770-8977
Last updated: 2011 Jun 30

Description:
The National Institute on Deafness and Other Communication Disorders (NIDCD) Information Clearinghouse, a service of NIDCD, is a national resource center for health information on hearing, balance, smell, taste, voice, speech, and language for health professionals, patients, and the public.

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Rocky Mountain Taste and Smell Center

Co-directors: Diego Restrepo, Ph.D. and Thomas E. Finger, Ph.D.
Address: 12801 East 17th Avenue, MS 8108, P.O. Box 6511
Voice: (303) 724-3405
Fax: (303) 724-3420
Last updated: 2011 Jun 30

Description:
The Rocky Mountain Taste and Smell Center (RMTSC) brings together multidisciplinary investigators to examine the fundamental cellular processes that underlie the chemical senses, including their dysfunctions and clinical implications. The program includes collaborative, multifaceted studies on the neurobiology of the senses of taste and smell in humans and other vertebrates, with a focus on elucidating basic biological and clinical problems related to chemical senses. The center receives support from the National Institute on Deafness and Other Communication Disorders.

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Society for Ear, Nose, and Throat Advances in Children (SENTAC)

President: David Parons, M.D.
Address: Charlotte Eye, Ear, Nose, and Throat Associates, 6035 Fairview Road
Voice: (704) 295-3000
Fax: (704) 295-3220
Internet: www.sentac.org
Last updated: 2011 Jun 30

Description:
The Society of Ear, Nose, and Throat Advances in Children (SENTAC) is an interdisciplinary society of health professionals who share an interest in ear, nose, and throat diseases in children, including communication disorders. Its membership includes physicians, nurses, speech therapists, audiologists, and social workers. The annual meeting provides a forum for the presentation and exchange of ideas and information; contact SENTAC for date and location. A professional newsletter, directory, and brochures are available.

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Society of Otorhinolaryngology and Head-Neck Nurses, Inc. (SOHN)

Executive Director: Sandra Schwartz, M.S., R.N., CORLN
Address: 202 Julia Street
Voice: (386) 428-1695
Fax: (386) 423-7566
Last updated: 2011 Jun 30

Description:
The Society of Otorhinolaryngology and Head-Neck Nurses, Inc., (SOHN), an organization of professional registered nurses, promotes continuing education opportunities within the field of otorhinolaryngology nursing and endorses professional standards for clinical practice and research. Holds annual congress and symposium; contact SOHN for date and location. A professional newsletter and journal are available.

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UConn Taste and Smell Clinic

Clinic Director: Norman Mann, M.D.
Address: University of Connecticut Health Center, Taste and Smell Clinic, 263 Farmington Avenue, MC 1718
Voice: (860) 679-2459
Fax: (860) 679-4760
Last updated: 2011 Jun 30

Description:
The UConn Taste and Smell Clinic is run by a multidisciplinary team of clinicians dedicated to developing ways to evaluate and treat patients with chemosensory disorders. Data from the evaluation enable the clinic to maintain an extensive research database on chemosensory problems. The UConn Taste and Smell Clinic was established with funding from the National Institute on Deafness and Other Communication Disorders. Professional/consumer print and online publications are available.

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University of Pennsylvania Smell and Taste Center

Director: Richard L. Doty, Ph.D.
Administrative Assistant: Geraldine Fischer
Address: 3400 Spruce Street, 5 Ravdin Pavilion
Voice: (215) 662-6580
Fax: (215) 349-5266
Last updated: 2011 Jun 30

Description:
The University of Pennsylvania Smell and Taste Center has three primary goals: to provide clinical evaluation, treatment, and counseling for patients experiencing smell and taste disorders; to provide facilities and intellectual focus for research in basic and applied aspects of chemosensation; and to provide training for students, doctoral-level scientists, and other professionals interested in chemoreception sciences. Professional/consumer brochures are available.

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