Skip to main content
Skip to main content

Directory of Organizations

Your search provided 117 results. New Search

AARP

Chief Executive Officer: William D. Novelli
Manager, Media Services: Steve Hahn
Address: 601 E Street, NW
Toll-free Voice: (888) 687-2277
TTY: (202) 434-6561
Toll-free TTY: (877) 434-7598
Fax: (202) 434-6499
Last updated: 2011 Jun 30

Description:
AARP is a nonprofit, nonpartisan membership organization that helps people who are ages 50 and older to have independence, choice, and control in ways that are beneficial and affordable to them and society as a whole. The AARP Foundation is an affiliated charity that provides security, protection, and empowerment to older persons in need with support from thousands of volunteers, donors, and sponsors. AARP has offices in all 50 states, the District of Columbia, Puerto Rico, and the U.S. Virgin Islands.

seperator

Top

AbleData

Director: Katherine Belknap, M.A.
Information Specialist: Juanita Hardy
Address: 8630 Fenton Street, Suite 930
Voice: (301) 608-8998
Toll-free Voice: (800) 227-0216
TTY: (301) 608-8912
Fax: (301) 608-8958
Last updated: 2014 Apr 1

Description:
The AbleData project helps people who have disabilities, including communication disorders, by providing information about assistive devices, rehabilitation equipment, and other products for people with disabilities. Resources include a database of more than 40,000 products. A database of citations of books, articles, and other resources related to assistive technology also is available, along with fact sheets, brochures, and online publications. AbleData is sponsored by the National Institute on Disability and Rehabilitation Research.

seperator

Top

Academy of Doctors of Audiology (ADA)

President: Charles Stone, Au.D.
Executive Director: Stephanie Czuhajewski
Address: 1020 Monarch Street, Suite 300 B
Toll-free Voice: (866) 493-5544
Fax: (859) 321-1595
Last updated: 2011 Jun 30

Description:
The Academy of Doctors of Audiology (ADA), founded in 1976, provides valuable resources to the private practitioner in audiology and to other audiology professionals who have responsibility for quality patient care and business operations. Member benefits include a quarterly business-focused publication, online forums, and various practice management resources. ADA strives to be the leader in professional development, high ethical standards, career enhancement, practice improvement, and student outreach.

seperator

Top

Academy of Rehabilitative Audiology (ARA)

President: Linda Thibodeau, Ph.D.
Association Coordinator: Joy Benn
Address: P.O. Box 2323
Fax: (888) 552-7441
Last updated: 2014 May 2

Description:
The Academy of Rehabilitative Audiology (ARA) was founded in 1966 as a forum for the exchange of ideas, knowledge, and experience related to rehabilitative aspects of audiology and associated disciplines. Membership in ARA is open to professionals holding a graduate degree in audiology, speech-language pathology,or the education of persons with hearing impairment. Associate and student memberships are also available. Holds annual institute;contact ARA for date and location. A professional newsletter/bulletin, directory, and books and monographs are available.

seperator

Top

Acoustic Neuroma Association (ANA)

Executive Director: Judy B. Vitucci
Address: 600 Peachtree Parkway, Suite 108
Voice: (770) 205-8211
Toll-free Voice: (877) 200-8211
Fax: (877) 202-0239
Last updated: 2011 Jun 30

Description:
The Acoustic Neuroma Association (ANA) is a patient-focused organization that provides information and support to those affected by acoustic neuroma. An acoustic neuroma, also called a vestibular schwannoma, is a slow-growing, benign tumor that develops on the eighth cranial nerve: early symptoms include hearing loss, balance problems, and tinnitus. ANA publishes a quarterly newsletter and other consumer information, organizes local support groups, promotes research, and maintains an interactive website. Also holds a national symposium; contact ANA for date and location.

seperator

Top

Acoustical Society of America (ASA)

Executive Director: Charles E. Schmid, Ph.D.
Public Information Contact: Elaine Moran
Address: 2 Huntington Quadrangle, Suite 1NO1
Voice: (516) 576-2360
TTY: (516) 576-2360
Fax: (516) 576-2377
Last updated: 2014 Apr 29

Description:
The mission of the Acoustical Society of America (ASA) is to promote the understanding and practical applications of acoustics. ASA publishes a monthly journal covering all topics in acoustics, including speech and hearing. A magazine, a professional directory, and professional brochures and monographs/books also are available. Holds two meetings each year; see the ASA website for dates and locations.

seperator

Top

ADARA: Professional Networking for Excellence in Service Delivery with Individuals Who Are Deaf or Hard of Hearing

President: Timothy Beatty
Public Information Contact: Sherri Gallagher, National Office Coordinator
Address: P.O. Box 480
Voice: (301) 293-8969
TTY: (301) 293-8969
Fax: (301) 293-9698
Last updated: 2011 Jun 30

Description:
The mission of ADARA is to facilitate professional development, networking opportunities, and public policies for a multidisciplinary membership of professionals who provide personal services to individuals who are deaf, hard-of-hearing, late-deafened, and deaf-blind. Holds biannual convention; contact ADARA for date and location. A professional/consumer newsletter/bulletin and professional online publications are available.

seperator

Top

Advocure NF2, Inc.

Chairperson: Marie Drew
Treasurer: Cynthia Henrion
Address: P.O. Box 4118
Last updated: 2011 Jun 30

Description:
Neurofibromatosis Type II (NF2) is a rare, genetic disease that causes tumors to grow throughout the brain and spinal cord, threatening hearing, vision, mobility, and even basic life functions such as swallowing. Advocure NF2, Inc., is a 501(c)(3) public charity and liaison group that advocates for the NF2 Crew (an online-based support community for patients and others) and the NF2 international community. Advocure NF2, Inc., monitors research and drug developments worldwide and works to expedite systemic therapy that may treat and possibly even cure NF2. Its website offers information on understanding and living with NF2, research, and other resources. A quarterly newsletter is available online.

seperator

Top

Alexander Graham Bell Association for the Deaf and Hard of Hearing (AG Bell)

Chief Executive Officer: Emilio Alonso-Mendoza, J.D., CFRE
Director of Communications and Marketing: Susan Boswell
Address: 3417 Volta Place, NW
Voice: (202) 337-5220
Toll-free Voice: (866) 337-5220
TTY: (202) 337-5221
Fax: (202) 337-8314
Last updated: 2014 Apr 4

Description:
The Alexander Graham Bell Association for the Deaf and Hard of Hearing (AG Bell) helps families, health care providers, and education professionals understand childhood hearing loss and the importance of early diagnosis and intervention. Through advocacy, education, research, and financial aid, AG Bell helps to ensure that every child and adult with hearing loss has the opportunity to listen, talk, and thrive. With chapters located throughout the United States and a network of international affiliates, AG Bell supports its mission: advocating independence through listening and talking!

seperator

Top

American Academy of Audiology (AAA)

Executive Director: Cheryl Kreider Carey, C.A.E.
Senior Director of Communications: Amy Miedema
Address: 11480 Commerce Park Drive, Suite 220
Voice: (703) 790-8466
Toll-free Voice: (800) 222-2336
TTY: (703) 790-8466
Fax: (703) 790-8631
Last updated: 2011 Jun 30

Description:
With more than 10,000 members, the American Academy of Audiology (AAA) is the world’s largest professional organization of, by, and for audiologists. Dedicated to providing quality hearing care to the public, AAA enhances the ability of its members to achieve career and practice objectives through professional development, education, research, and increased public awareness of hearing and balance disorders and audiologic services. Holds annual convention; see AAA website for date and location. Resources include a professional magazine and journal, professional computer software/assisted education, online professional/consumer publications (some in Spanish), an audiologist locator, and a professional membership directory. The American Academy of Audiology Foundation promotes philanthropy in support of research, education, and public awareness in audiology and hearing science.

seperator

Top

American Academy of Otolaryngology--Head and Neck Surgery (AAO-HNS)

Executive Vice President: David R. Nielsen, M.D.
Public Information Contact: Jeanne McIntyre, Director of Communications
Address: 1650 Diagonal Road
Voice: (703) 836-4444
Fax: (703) 683-5100
Last updated: 2014 Apr 25

Description:
The nonprofit American Academy of Otolaryngology—Head and Neck Surgery (AAO-HNS) strives to unite, serve, and represent the interests of ear, nose, and throat specialists and their patients to the public, government, other medical specialists, and related organizations. AAO-HNS provides leaflets and geographic lists of physicians to the public at no charge. Holds annual meeting; contact AAO-HNS for date and location. AAO-HNS provides a professional bulletin, journal, directory, books, and other materials. Professional/consumer publications are available online and in print, with some in Spanish.

seperator

Top

American Association for the Advancement of Science (AAAS), Entry Point Internship Program

Director: Richard Weibl
Program Manager: Laureen Summers
Address: 1200 New York Avenue, NW
Voice: (202) 326-6649
TTY: (202) 326-6649
Fax: (202) 371-9849
Last updated: 2014 May 5

Description:
In 1975, the American Association for the Advancement of Science (AAAS) initiated the Project on Science, Technology, and Disability to improve entry and advancement in science, math, and engineering for people with disabilities. The Entry Point Internship Program for Students with Disabilities recruits undergraduate and graduate students with disabilities who are majoring in science, engineering, mathematics, computer science, and some business fields for paid, 10-week, summer opportunities at corporations, federal agencies, and university science laboratories. Interested students should visit the website and fill out a pre-application.

seperator

Top

American Association of the Deaf-Blind (AADB)

Address: P.O. Box 2831
Voice: (301) 495-4403
Fax: (301) 495-4404
Last updated: 2014 May 5

Description:
The American Association of the Deaf-Blind (AADB) is a national consumer organization of, for, and by people who have dual hearing and vision loss. The mission of AADB is to ensure that all deaf-blind persons achieve their maximum potential through increased independence, productivity, and integration into the community.

seperator

Top

American Auditory Society (AAS)

President: Timothy Trine, Ph.D.
Executive Director: Darla M. Eastlack
Address: 19 Mantua Road
Voice: (856) 423-3118
Fax: (856) 423-3420
Last updated: 2011 Jun 30

Description:
The purpose of the American Auditory Society (AAS) is to increase knowledge and understanding of the ear, hearing, and balance; their disorders and how to prevent them; and habilitation and rehabilitation of individuals with hearing and balance dysfunction. AAS coordinates and disseminates information, particularly through regular meetings, sponsorships, and publication of a professional journal and newsletter and other informational materials. Holds annual meeting; contact AAS for date and location.

seperator

Top

American Cochlear Implant Alliance (ACI Alliance)

Executive Director: Donna L. Sorkin, M.A.
Address: P.O. Box 103
Voice: 703-534-6146
Last updated: 2014 Apr 3

Description:
The American Cochlear Implant (ACI) Alliance is committed to eliminating barriers to cochlear implantation by sponsoring research, driving heightened awareness and advocating for improved access to cochlear implants for patients of all ages across the United States. The ACI Alliance educates health care plan executives and government officials about cochlear implant technology, its economic and social benefits, and the relative value associated with coverage. The ACI Alliance engages in collaborative efforts to encourage best clinical practices for standardized outcomes.

seperator

Top

American Hearing Research Foundation (AHRF)

Executive Director: Sharon Parmet
Executive Director: Sharon Parmet
Address: 8 South Michigan Avenue, Suite 814
Voice: (312) 726-9670
Fax: (312) 726-9695
Last updated: 2011 Jun 30

Description:
The American Hearing Research Foundation (AHRF) is a nonprofit organization. Its purposes are to promote, conduct, and furnish financial assistance for medical research into the causes, prevention, and cure of deafness, impaired hearing, and balance disorders. See the AHRF website for additional information.

seperator

Top

American Neurotology Society (ANS)

President: Jeffrey T. Vrabec, M.D.
Public Information Contact: Kristen Bordignon, Administrator
Address: Administrative Office, 1980 Warson Road
Voice: (217) 638-0801
Fax: (217) 679-1677
Last updated: 2011 Jun 30

Description:
The American Neurotology Society (ANS) is composed of physicians and audiologists devoted to the fields of neurotology and otology. The purpose of ANS is to exchange and disseminate information about the physiology, pathology, and clinical management of the sensorineural systems of audition and equilibrium, and to stimulate education and basic and clinical research relating to these systems. Holds two scientific meetings per year, which are open to anyone in the health sciences and particularly to individuals with major interest areas in hearing and balance. For meeting dates and locations, contact the ANS administrative office.

seperator

Top

American Otological Society (AOS)

President: John W. House, M.D.
Public Information Contact: Kristen Bordignon, Administrator
Address: Administrative Office, 1980 Warson Rd
Voice: (217) 638-0801
Fax: (217) 679-1677
Last updated: 2014 May 5

Description:
The American Otological Society (AOS) is a professional organization that works to advance and promote medical and surgical otology/neurotology, including the rehabilitation of individuals with hearing and balance disorders, and to encourage, promote, and sponsor research in otology/neurotology, lateral skull base surgery, and related disciplines. The educational mission of AOS is to foster dialogue and share information on advances in the understanding and management of otological and neurotologic disorders. Holds annual meeting for members; visit the AOS website for date and location. AOS also publishes peer-reviewed papers and discussions presented during the scientific program of its meeting as well as proceedings of its business meetings.

seperator

Top

American Society for Deaf Children (ASDC)

Director of Advocacy: Cheri Dowling
:
Address: 800 Florida Avenue, NE, #2047
Voice: (800) 942-2732
Toll-free Voice: (800) 942-2732
TTY:
Fax: (410) 795-0965
Last updated: 2011 Jun 30

Description:
The American Society for Deaf Children (ASDC) supports and educates families of deaf and hard-of-hearing children, and advocates for high-quality programs and services. Holds convention every two years; contact ASDC for date and location. Consumer brochures and a magazine are available.

seperator

Top

American Speech-Language-Hearing Association (ASHA)

Executive Director: Arlene A. Pietranton, Ph.D., C.A.E.
Public Information Contact: ASHA Action Center
Address: 2200 Research Boulevard
Voice: (301) 296-5700
Toll-free Voice: (800) 638-8255
TTY: (301) 296-5650
Last updated: 2014 May 5

Description:
The mission of the American Speech-Language-Hearing Association (ASHA) is to promote the interests of and provide the highest quality services for professionals in audiology, speech-language pathology, and speech and hearing science, and to advocate for people with communication disabilities. Holds annual conference; contact ASHA for date and location. Professional brochures/pamphlets, journals, and professional/consumer online publications are available. Some materials are available in Spanish.

seperator

Top

American Speech-Language-Hearing Foundation (ASHFoundation)

Executive Director: Nancy J. Minghetti
Public Information Contact: Emily Diaz
Address: 2200 Research Boulevard
Voice: (301) 296-8703
Last updated: 2014 Apr 25

Description:
The American Speech-Language-Hearing Foundation (ASHFoundation) supports the advancement of knowledge and the improvement of practice in serving children and adults with speech, language, or hearing disorders. ASHFoundation supports research, master’s and doctoral scholarships, and special projects that facilitate innovative directions in the field of communication sciences and disorders. This private organization is supported, in part, by the tax-deductible contributions of individuals, corporations, and organizations. See the website for information and funding guidelines.

seperator

Top

American Tinnitus Association (ATA)

Executive Director: Michael Malusevic
Director of Public Affairs: Jennifer Born
Address: P.O. Box 5
Voice: (503) 248-9985
Voice: 800-634-8978
Toll-free Voice: (800) 634-8978
Fax: (503) 248-0024
Last updated: 2011 Jun 30

Description:
The American Tinnitus Association (ATA) exists to cure tinnitus by developing resources that advance tinnitus research. Founded in 1971, ATA has raised and allocated millions of dollars toward medical research projects focused on a cure for tinnitus. ATA also advocates for effective public policies that support its mission. ATA publishes a triannual magazine in April, August, and December. The magazine includes detailed articles on current research, treatment, and other information for those living with tinnitus and others interested in staying current in this field. Articles from prior issues are available on the ATA website. A consumer directory, fact sheets, and other publications for professionals and consumers also are available online and in print.

seperator

Top

Association for Research in Otolaryngology (ARO)

President: Jay T. Rubenstein, M.D., Ph.D.
Executive Director: Haley Brust
Address: 19 Mantua Road
Voice: (856) 423-0041
Fax: (856) 423-3420
Last updated: 2014 May 5

Description:
The Association for Research in Otolaryngology (ARO) is an international scientific society of researchers who investigate basic science and clinical problems associated with hearing, speech, balance, taste and smell, and diseases of the head and neck. ARO’s goals are to encourage both basic and clinical research in the broad field of otolaryngology and related areas and to foster friendly assembly and stimulate scientific interest among its members. Holds mid-winter research meeting; contact ARO for date and location.

seperator

Top

Association of Late-Deafened Adults (ALDA)

President: Mary Lou Mistretta
ALDA eNews: Ken Arcia
Address: 8038 Macintosh Lane
Voice: (815) 332-1515
Toll-free Voice: (866) 402-ALDA (2532)
Toll-free TTY: (866) 402-ALDA (2532)
Last updated: 2014 Apr 29

Description:
The Association of Late-Deafened Adults (ALDA) serves as a resource center providing information and referrals, self-help, and support groups for people deafened as adults. ALDA works to increase public awareness of the special needs of deafened adults. Holds annual conference; contact ALDA for date and location. A professional/consumer directory, proceedings of conventions, and fact sheets are available.

seperator

Top

AUDIENT

Program Manager: Sharon Kerpel
Public Information Contacts: Sharon Kerpel, Casey Tart, and Marsha Rastatter
Address: 221 Yale Ave N, Suite 450
Voice: (206) 838-7194
Toll-free Voice: (877) AUDIENT (283-4368)
Fax: (206) 838-7195
Last updated: 2011 Jun 30

Description:
AUDIENT is a nationwide program that helps low-income individuals obtain hearing aids at a reduced cost. Program fees include either one or two new digital hearing aids, the fitting, and three follow-up visits. The cost to the patient for one hearing aid is approximately $760 to $1,400; for two hearing aids, the cost is approximately $1,290 to $2,400.

seperator

Top

Audiology and Speech Pathology Services, U.S. Department of Veterans Affairs (VA)

Director: Lucille B. Beck, Ph.D.
Public Information Contact: Cathy Greener
Address: VA Medical Center, 50 Irving Street, NW
Voice: (202) 745-8578
Voice: (202) 745-8270
Fax: (202) 745-8579
Last updated: 2014 Apr 29

Description:
Audiology and Speech Pathology Services of the U.S. Department of Veterans Affairs (VA) provides high-quality, comprehensive, state-of-the-art clinical services to eligible veterans. Diagnostic and treatment services are offered in a timely manner and in an environment that fosters respect, communication, and compassion. Audiology services include evaluation and treatment of hearing loss and tinnitus, along with assessment of balance problems and, in some locations, balance rehabilitation. Diagnostic auditory and vestibular assessment, provision of hearing aids and assistive and alerting devices, cochlear implant management, and auditory rehabilitation also are available. Speech pathology services include evaluation and treatment of speech, language, voice, and swallowing disorders.

seperator

Top

BEGINNINGS for Parents of Children Who Are Deaf or Hard of Hearing, Inc. (BEGINNINGS)

Executive Director: Joni Alberg, Ph.D.
Public Information Contact: Judy Werbicki, Administrative Assistant
Address: 302 Jefferson Street, Suite 110
Voice: (919) 715-4092
Toll-free Voice: (800) 541-4327 (In-state only)
TTY: (919) 715-4092
Fax: (919) 715-4093
Last updated: 2014 Apr 29

Description:
BEGINNINGS for Parents of Children Who Are Deaf or Hard of Hearing, Inc., (BEGINNINGS) provides support and information in an impartial manner to parents and professionals dealing with deaf and hard-of-hearing issues in children. BEGINNINGS also provides impartial information on communication options, placement, and educational programs; workshops for professional personnel who work with children who are deaf and hard-of-hearing; and advocacy and support for young people. Fact sheets, brochures, a parent manual, and reports are available, with some materials in Spanish.

seperator

Top

Better Hearing Institute (BHI)

Executive Director: Carole Rogin
Public Information Contact: Carole Rogin
Address: 1444 I Street, Suite 700
Voice: (202) 449-1100
Toll-free Voice: (800) EAR-WELL (327-9355)
Fax: (202) 216-9646
Last updated: 2014 Apr 29

Description:
Founded in 1973, the Better Hearing Institute (BHI) conducts research and engages in hearing health education with the goal of helping people with hearing loss benefit from proper treatment. BHI maintains a “Hearing Helpline” telephone service that provides information on hearing loss, sources of assistance, and other hearing help to callers anywhere in the United States and Canada. BHI also publishes periodic studies of the hearing-impaired population based on its survey of 80,000 households. BHI receives funding from the hearing aid industry to support its professional/consumer outreach efforts.

seperator

Top

Birth Defect Research for Children, Inc. (BDRC)

Executive Director: Betty Mekdeci
Address: 976 Lake Baldwin Lane, Suite 104
Voice: (407) 895-0802
Last updated: 2011 Jun 30

Description:
Birth Defect Research for Children, Inc., (BDRC) provides parents and expectant parents with information about specific birth defects and their causes and treatments, support group referrals, and parent-matching services. BDRC also provides information about environmental exposures that may be associated with birth defects. To study these exposures further, BDRC sponsors the National Birth Defect Registry, an online research project that collects data on birth defects and prenatal/preconception exposures of both parents. A consumer newsletter, fact sheets, and other publications are available.

seperator

Top

Boys Town National Research Hospital (BTNRH)

Director: John K. Arch, FACHE
Public Information Contact: Mary Pat Moeller, Ph.D.
Address: 555 North 30th Street
Voice: (402) 452-5033
Voice: (402) 452-5068
TTY: (402) 498-6543
Fax: (402) 452-5027
Last updated: 2014 Apr 29

Description:
The Boys Town National Research Hospital (BTNRH) is internationally recognized for clinical service and research into the treatment of childhood deafness and communication disorders. Research is conducted in 20 state-of-the-art laboratories and represents three broad areas: neurobiological studies of hearing; hereditary communication disorders; and clinical, educational, and behavioral studies of human communication.

seperator

Top

Center for Hearing and Communication

Executive Director: Laurie Hanin, Ph.D.
Director, Audiology Services: Ellen Lafargue
Director, Communication Services: Lois Kam Heymann
Address: 50 Broadway
Voice: (917) 305-7700
TTY: (917) 305-7999
Fax: (917) 305-7888
Last updated: 2011 Jun 30

Description:
The nonprofit Center for Hearing and Communication works to improve the quality of life for people with all degrees of hearing loss and to offer comprehensive services regardless of age or mode of communication. State-of-the-art services include hearing assessment, hearing aid fitting and dispensing, speech-language and auditory evaluation and therapy, otology, cochlear implant evaluation and training, assistive listening devices and FM system counseling, tinnitus and hyperacusis therapy, and evaluation/treatment of children with auditory processing disorder (APD) and other listening challenges. Holds quarterly cochlear implant support group, weekly group assistive device demonstrations, and other meetings. Print and online publications are available.

seperator

Top

Center on Human Policy (CHP)

Director: Steven J. Taylor, Ph.D.
Information Coordinator: Rachael A. Zubal-Ruggieri
Address: Syracuse University, School of Education, 805 South Crouse Avenue
Voice: (315) 443-3851
Toll-free Voice: (800) 894-0826
Fax: (315) 443-4338
Last updated: 2011 Jun 30

Description:
The Center on Human Policy (CHP) is a Syracuse University-based policy, research, and advocacy organization involved in the national movement to ensure the rights of people with disabilities. CHP is involved in a variety of activities, including policy studies, research, information and referral, training and consultation, and information dissemination. A range of professional/consumer publications is available. The Center on Human Policy, Law, and Disability Studies (CHPLDS) is an expansion of CHP. CHPLDS is a network of academic programs, centers, student organizations, and affiliated faculty that—through research, teaching, and advocacy—promotes and protects the rights of people with disabilities and examines disability as an aspect of diversity in society.

seperator

Top

Centers for Medicare and Medicaid Services (CMS)

Acting Administrator: Charlene Frizzera
Public Information Contact: Peter Ashkenaz, Acting Director
Address: 7500 Security Boulevard
Voice: (410) 786-3000
Voice: (202) 690-6145
Toll-free Voice: (877) 267-2323
Last updated: 2011 Jun 30

Description:
The Centers for Medicare and Medicaid Services (CMS) is a federal agency with responsibilities that include the Medicare and Medicaid programs, two national health care programs benefiting about 75 million Americans; the State Children’s Health Insurance Program; regulation of all non-research laboratory testing performed on humans in the United States; and programs assisting millions of Americans and small companies in obtaining health insurance coverage. The website www.cms.gov targets health care providers and the public, while www.medicare.gov offers information about services to beneficiaries. Publications are available.

seperator

Top

CHERAB Foundation

Founder: Lisa Geng
Address: P.O. Box 8524
Voice: (772) 335-5135
Last updated: 2011 Jun 30

Description:
The CHERAB Foundation (CHERAB) is a worldwide nonprofit organization that helps individuals with speech and language delays and disorders through communication help, education, and research that is apraxia-based. Its area of emphasis is verbal and oral apraxia, which are severe neurologically based speech and language disorders that hinder children's ability to speak. The foundation is committed to assisting with the development of new therapeutic approaches to, and prevention and cure of, neurologically based speech disorders. CHERAB brings together parents and medical, research, and educational professionals to help give a voice to all. Sign up to receive updates at http://twitter.com/TheLateTalker.

seperator

Top

Children of Deaf Adults International, Inc. (CODA)

President: Carmel Batson
National CODA Outreach Contact: Thomas Bull
Address: P.O. Box 30715
Voice: (805) 682-0997
TTY: (805) 682-0997
Last updated: 2011 Jun 30

Description:
Children of Deaf Adults International, Inc., (CODA) promotes family awareness and individual growth in hearing children of deaf parents. CODA provides educational opportunities, promotes self-help, organizes advocacy efforts, and acts as a resource for the membership and various communities. Holds annual conference; contact CODA for date and location. A professional/consumer newsletter, directory, fact sheets, brochures, and books are available.

seperator

Top

CID - Central Institute for the Deaf

Executive Director: Robin Feder
Communication Director: Kim Readmond
Address: 825 South Taylor Avenue
Voice: (314) 977-0243
TTY:
Fax: (314) 977-0033
Last updated: 2011 Jun 30

Description:
Founded in 1914, the Central Institute for the Deaf (CID) is a nonprofit organization that helps deaf children learn to speak, listen, and read with proficiency without the use of sign language. CID provides pediatric audiology; research collaborations; continuing education for professionals; and books, tests, and curricula used to help deaf children throughout the world. CID has a proud history of training professionals and conducting pioneering educational, clinical, and biological research in hearing and deafness. CID is a financially independent affiliate of the Washington University School of Medicine.

seperator

Top

Clearinghouse on Disability Information, Office of Special Education and Rehabilitative Services (OSERS)

Director of Communications/Customer Service Team: James Button
Public Information Contact: Carolyn Corlett
Address: 550 12th Street, SW, Room 5133
Voice: (202) 245-7307
TTY: (202) 205-5637
Fax: (202) 245-7636
Last updated: 2011 Jun 30

Description:
The Clearinghouse on Disability Information, a service of the U.S. Department of Education, responds to people with disabilities and others who request information by conducting research and providing documents related to federal funding available for disability-related programs. Clearinghouse staff members also may refer requests to other sources of disability-related information. Information provided may be useful to disabled individuals and their families, schools and universities, teachers and school administrators, and organizations who serve people with disabilities.

seperator

Top

Collaborative for Communication Access via Captioning (CCAC)

Founder and Chairperson: Lauren E. Storck, Ph.D.
Address: No mailing address
Last updated: 2011 Jun 30

Description:
The Collaborative for Communication Access via Captioning (CCAC) is a grassroots volunteer network that advocates for the universal inclusion of quality captioning (subtitles and real-time captioning). Membership forms are available on the website. CCAC collaborates with other groups and individuals to ensure that captioning becomes available in all needed places (education, employment, entertainment, transportation, government, telecommunications, the Internet, social participation, etc.). Members use an active online forum to request and provide guidance to facilitate inclusion of captioning whenever possible. CCAC members also offer local education and awareness workshops, conference presentations, and articles. Consumer members are eligible to request free captioning services from provider members in selected situations.

seperator

Top

Communication Service for the Deaf, Inc. (CSD)

Chief Executive Officer: Benjamin Soukup, L.L.D.
Public Information Contact: Rick Norris, Public Relations
Address: 102 North Krohn Place
Voice: (605) 367-5760
Toll-free Voice: (800) 642-6410
TTY: (605) 367-5761
Toll-free TTY: (866) 273-3323
Fax: (605) 367-5958
Last updated: 2011 Jun 30

Description:
Communication Service for the Deaf, Inc., (CSD) is a world leader in providing broad-based quality human service programs and telecommunication relay services for consumers who are deaf and hard-of-hearing. CSD has a staff of approximately 2,000 people in facilities across the United States. CSD endeavors to increase opportunities for greater independence, ensure communication accessibility, and promote public awareness of issues affecting everyone who is deaf or hard-of-hearing.

seperator

Top

Conference of Educational Administrators of Schools and Programs for the Deaf (CEASD)

Executive Director: Joe Finnegan
Executive Director: Joe Finnegan
Address: P.O. Box 1778
Voice: (904) 810-5200
TTY: (904) 810-5200
Fax: (904) 810-5525
Last updated: 2011 Jun 30

Description:
The Conference of Educational Administrators of Schools and Programs for the Deaf (CEASD) is an association of schools and programs involved with the education of deaf and hard-of-hearing individuals. Founded in 1868, CEASD is committed to promoting excellence within a continuum of equitable educational opportunities for children and adults who are deaf or hard-of-hearing. At the national level, CEASD serves as an advocate for the deaf and hard-of-hearing with governmental bodies that establish educational policy and implement federal legislation. Holds annual convention; contact CEASD for date and location. A professional journal, newsletter, directory, brochures/pamphlets, and online publications are available.

seperator

Top

Council for Accreditation in Occupational Hearing Conservation (CAOHC)

Executive Director: Kim Breitbach
Executive Director: Kim Breitbach
Address: 555 East Wells Street, Suite 1100
Voice: (414) 276-5338
Fax: (414) 276-2146
Last updated: 2011 Jun 30

Description:
The main objective of the Council for Accreditation in Occupational Hearing Conservation CAOHC) is to provide education, information, and guidance to industry and mining and to those serving industry and mining for the successful implementation of an occupational hearing conservation program. See the website for the “Scope of Practice: The Professional Supervisor of the Audiometric Monitoring Program” (the audiometric portion of a hearing conservation program), “CAOHC Certified Occupational Hearing Conservationist Scope of Practice and Limitations,” archived newsletters, and other comprehensive information.

seperator

Top

Council of Academic Programs in Communication Sciences and Disorders (CAPCSD)

President: Ken Apel
Executive Director: Mary Chavez Rudolph, Ph.D.
Address: 3000 So. Jamaica Ct., Suite 390
Voice: (303) 835-9089
Fax: (800) 805-5932
Last updated: 2014 May 5

Description:
The Council of Academic Programs in Communication Sciences and Disorders (CAPCSD) is an organization of university programs in speech-language pathology; audiology; and speech, language, and hearing sciences. It represents more than 2,000 faculty and administrators from universities in the United States and abroad. CAPCSD advocates for academic programs in communication sciences and disorders and facilitates information exchange among programs and personnel. It also serves as an advisory group to professional associations, legislative bodies, and government agencies. Holds annual conference; contact CAPCSD for date and location. A professional directory, brochures/pamphlets, and reports are available.

seperator

Top

Council of American Instructors of the Deaf (CAID)

President: Larry K. Quinsland
Address: P.O. Box 377
Voice: (817) 354-8414
TTY: (817) 354-8414
Last updated: 2011 Jun 30

seperator

Top

Council on Education of the Deaf (CED)

Executive Director: Joseph Fischgrund
Address: Gallaudet University, P.O. Box 2074, 800 Florida Avenue, NE
Voice: (202) 250-2661
Fax: (859) 622-4443
Last updated: 2014 Apr 29

Description:
The Council on Education of the Deaf (CED) is an organization sponsored by five major national organizations dedicated to quality education for all deaf and hard of hearing students. CED promulgates nationally recognized students for teachers of deaf and hard of hearing students in all educational settings, accredits university programs preparing teachers of deaf and hard-of-hearing students, and collaborates with a variety of other related organizations through several national committees and workgroups.

seperator

Top

DB-LINK at the National Consortium on Deaf-Blindness (formerly the National Information Clearinghouse on Children Who Are Deaf-Blind)

Associate Director, NCDB: John Reiman, Ph.D.
Address: 345 North Monmouth Avenue
Toll-free Voice: (800) 438-9376
Toll-free TTY: (800) 854-7013
Fax: (503) 838-8150
Last updated: 2011 Jun 30

Description:
DB-LINK, part of the National Consortium on Deaf-Blindness (NCDB), is home to the largest collection of information related to deaf-blindness worldwide. A team of information specialists makes this extensive resource available in response to direct requests and via the website. Contact DB-LINK to access quality information about deaf-blindness, order a newsletter and other publications, find resources by state, receive tailored information packets to support teaching or training, and connect to a network of experts and families. Information is free. NCDB is funded by the U.S. Department of Education’s Office of Special Education Programs.

seperator

Top

Described and Captioned Media Program (DCMP), National Association of the Deaf

Project Director: Jason Stark
Address: 1447 East Main Street
Voice: (800) 237-6213
Toll-free Voice: (800) 237-6213
Toll-free TTY: (800) 237-6819
Fax: (800) 538-5636
Last updated: 2011 Jun 30

Description:
The Described and Captioned Media Program (DCMP) provides services designed to support and improve the academic achievement of students who are blind, visually impaired, deaf, hard-of-hearing, or deaf-blind. These services include: (1) a library of free-loan described and captioned educational media; and (2) a clearinghouse of information related to educational media access, including a gateway to Internet resources related to accessibility. There are no user registration or service fees. The DCMP is funded by the U.S. Department of Education and administered by the National Association of the Deaf.

seperator

Top

Disability Rights Office, Consumer & Governmental Affairs Bureau, Federal Communications Commission (FCC)

Chief: Thomas Chandler
Address: 445 12th Street, SW
Voice: (202) 418-2516
Toll-free Voice: (888) 225-5322
TTY: (202) 418-0189
Toll-free TTY: (888) 835-5322
Fax: (866) 418-0232
Last updated: 2011 Jun 30

Description:
The Disabilities Rights Office, housed within the Consumer and Governmental Affairs Bureau at the Federal Communications Commission (FCC), ensures that FCC actions and policies enable people with disabilities to have the same access as everyone else to telecommunications. FCC implements mandates for nationwide telephone relay services, accessibility, and usability of telecommunications wireline and wireless products and services. These services include hearing aid compatibility of phones, closed captioning of television programming, and accessibility of emergency information on television.

seperator

Top

Disability Rights Section, Civil Rights Division, U.S. Department of Justice (DOJ)

Public Information Contact: Information Specialists
Address: 950 Pennsylvania Avenue, NW
Toll-free Voice: (800) 514-0301
Toll-free TTY: (800) 514-0383
Fax: (202) 514-0404
Last updated: 2011 Jun 30

Description:
The Disability Rights Section (DRS) is part of the Civil Rights Division of the U.S. Department of Justice (DOJ). DRS focuses on all disabilities and is especially knowledgeable about the interpretation of the Americans with Disabilities Act of 1990. The organization offers an information line for all inquiries as well as assistance to state and local government entities, private-sector business professionals, and the general public. Fact sheets, brochures/pamphlets, online publications, and a professional report are available. Some materials in Spanish and other languages are available.

seperator

Top

Disability, Inc./Sign Language USA, LLC/CAPCOM

Executive Director: Richard F. Rosen, Ph.D.
Address: P.O. Box 1246
Voice: (703) 628-5472
Voice: 1-855-SIGNUSA 1-855-744-6872
TTY: (703) 628-5472 (via relay)
Fax: (520) 544-8911
Last updated: 2011 Jun 30

Description:
Disability, Inc./Sign Language USA, LLC/CAPCOM provides sign language interpreters and support services for people with disabilities. Live or live-video sign language interpreting is available 24 hours a day, 7 days a week. Services include legal counsel to deaf persons, other legal services, assistance with home mortgages, product information, and the accessibility status of businesses and other locations. Fact sheets and brochures are available.

seperator

Top

Dogs for the Deaf, Inc.

President/CEO: Robin Dickson
Information Resources Coordinator: Kimberly Miller
Address: 10175 Wheeler Road
Voice: (541) 826-9220
Toll-free Voice: (800) 990-DOGS (3647)
TTY: (541) 826-9220
Fax: (541) 826-6696
Last updated: 2014 Apr 30

Description:
Dogs for the Deaf, Inc.'s mission is to rescue and professionally train dogs to help people and enhance lives, maintaining a lifelong commitment to all dogs we rescue and all people we serve. Our Hearing Dogs are trained to alert people to household sounds that are necessary for everyday safety and independence. Autism Assistance Dogs are trained to enhance the safety of children with autism by acting as an anchor and preventing the child from bolting. Program Assistance Dogs go to work with and assist professionals such as physicians, teachers, counselors, and court room advocates. Career Change Dogs are wonderful dogs who are happy and healthy but just not suited to working for a living.

seperator

Top

Easter Seals, Inc.

President/Chief Executive Officer: James E. Williams, Jr.
Information and Referral Specialist: Rosemary Garza
Address: 233 South Wacker Drive, Suite 2400
Voice: (312) 726-6200
Toll-free Voice: (800) 221-6827
TTY: (312) 726-4258
Fax: (312) 726-1494
Last updated: 2011 Jun 30

Description:
The mission of Easter Seals, Inc., is to create solutions that change the lives of children and adults with disabilities and their families. Easter Seals operates 450 sites in the United States. Its primary services are medical rehabilitation with early intervention, physical therapy, occupational therapy, speech therapy, job training and employment, children’s services (including inclusive childcare), adult and senior services, camping, recreation, and respite.

seperator

Top

Educational Audiology Association

Executive Administrator: Jesse Haynes
Educational Audiology Association:
Address: 3030 West 81st Avenue
Voice: (800) 460-7322
Fax: (303) 458-0002
Last updated: 2011 Jun 30

Description:
The Educational Audiology Association (EAA) is an international organization of audiologists and related professionals who deliver a full spectrum of hearing services to all children, particularly those in educational settings. The mission of EAA is to act as the primary resource and active advocate for its members through its publications and products, continuing educational activities, networking opportunities, and other professional endeavors. EAA was established in 1984 to advocate for educational audiologists and the students they serve. The American Academy of Audiology and the American Speech-Language-Hearing Association recognize EAA as a related professional organization that facilitates direct communication between these organizations and others to provide a forum for EAA issues.

seperator

Top

Foundation Fighting Blindness, Inc. (FFB)

Chief Executive Officer: William T. Schmidt
Constituent Service Coordinator: Mitsy Palmer
Address: 11435 Cronhill Drive
Voice: (410) 568-0150
Toll-free Voice: (800) 683-5555
Toll-free TTY: (800) 683-5551
Fax: (410) 363-2393
Last updated: 2011 Jun 30

Description:
The mission of the Foundation Fighting Blindness, Inc., (FFB) is to drive the research that will provide preventions, treatments, and cures for people affected by retinitis pigmentosa, macular degeneration, Usher syndrome, and the entire spectrum of retinal degenerative diseases. FFB offers its information and referral services to affected individuals and their families as well as to doctors and eye care professionals. FFB also provides comprehensive information kits on retinitis pigmentosa, macular degeneration, and Usher syndrome. Holds a national conference approximately yearly: contact FFB for details. Publications feature articles on coping, research updates, and foundation news.

seperator

Top

Friends of Libraries for Deaf Action (FOLDA)

Founding President: Alice L. Hagemeyer, M.L.S.
Address: 2930 Craiglawn Road
Voice: (301) 563-9062
Fax: (301) 572-5168
Last updated: 2014 Apr 30

Description:
Friends of Libraries for Deaf Action (FOLDA) is a public service of Library for Deaf Action, the deaf-owned deaf cultural programming business of Alice L. Hagemeyer. FOLDA has no membership dues. FOLDA serves members of library friends groups and OSD (Organizations Serving the Deaf) in their need of library resources to advocate cost effective and efficient library services for the deaf community in their jurisdiction - locally, nationally, and globally. We welcome announcements and news relating deaf resources and library programs. To register for free subscription to FOLDA-E NEWS, please email your name, email address, and the name of your town to folda86@aol.com.

seperator

Top

Gallaudet University (GU) and Laurent Clerc National Deaf Education Center

President: Dr. T. Alan Hurwitz
Executive Director, Communications and Public Relations: Catherine Murphy
Address: 800 Florida Avenue, NE
Voice: (202) 651-5000
Toll-free Voice: (800) 995-0550
TTY: (202) 651-5000
TTY: (202) 651-5866 (videophone)
Fax: (202) 651-5508
Last updated: 2011 Jun 30

Description:
Gallaudet University is the world’s only university in which all programs and services are specifically designed to accommodate deaf and hard-of-hearing students. The Laurent Clerc National Deaf Education Center ensures that the diverse population of deaf and hard-of-hearing students (birth through age 21) in the nation are educated and empowered and have the linguistic competence to maximize their potential as productive and contributing members of society. The Research Institute is a leading center for research on deafness. National and international programs, including regional extension centers, conferences, sign language classes, summer programs, and international outreach, annually serve approximately 33,000 people.

seperator

Top

Gallaudet University, Laurent Clerc National Deaf Education Center, Public Relations and Publications

Director of Public Relations and Publications: Danielle Puzio
Information Services Coordinator: Anita Gilbert
Address: 800 Florida Avenue, NE
Voice: (202) 651-5051
TTY: (202) 651-5051
Fax: (202) 651-5708
Last updated: 2011 Jun 30

Description:
The Public Relations and Publications Office at Gallaudet University’s (GU’s) Laurent Clerc National Deaf Education Center provides information about diverse topics related to deaf and hard-of-hearing children and young adults from infancy to age 21. The office responds to inquiries and also collaborates with authors from within the Gallaudet community and nationwide to design, produce, and disseminate books, videotapes, periodicals, and other information related to deaf and hard-of-hearing children, their families, and the professionals who serve them. Fact sheets, brochures, and a directory are available.

seperator

Top

Genetic Alliance

President /CEO: Sharon F. Terry, M.A.
Address: 4301 Connecticut Avenue, NW, Suite 404
Voice: (202) 966-5557
Toll-free Voice: (800) 336-GENE (4363)
Fax: (202) 966-8553
Last updated: 2011 Jun 30

Description:
Genetic Alliance improves health through the authentic engagement of communities and individuals. The organization is committed to transforming health through genetics and promoting an environment of openness centered on the health of individuals, families, and communities. Genetic Alliance’s network includes disease-specific advocacy organizations, universities, private companies, government agencies, and public policy organizations.

seperator

Top

Goodwill Industries International, Inc.

President/CEO: Jim Gibbons
Public Information Contact: Lauren Lawson, Media Relations Manager
Address: 15810 Indianola Drive
Voice: (301) 530-6500
Toll-free Voice: (800) 741-0197
TTY: (301) 530-9759
Fax: (301) 530-1516
Last updated: 2011 Jun 30

Description:
Goodwill Industries International, Inc., is a network of 183 community-based, independent agencies in the United States, Canada, and 14 other countries. Each organization serves people with workplace disabilities and disadvantages, including those who are deaf or hard-of-hearing or who have other communication disorders, by providing career training and employment services as well as job placement opportunities and post-employment support. To pay for its programs, Goodwill sells donated clothes and other household items in more than 2,300 retail stores, and online at www.shopgoodwill.com. A magazine and other publications are available, with some materials in Spanish.

seperator

Top

Hands & Voices Headquarters

Executive Director: Janet DesGeorges
Address: P.O. Box 3093
Voice: (303) 492-6283
Toll-free Voice: (866) 422-0422
Toll-free TTY: (866) 422-0422
Fax: (303) 492-3274
Last updated: 2014 Apr 30

Description:
Hands & Voices Headquarters is an international nonprofit organization dedicated to supporting families and their children who are deaf or hard-of-hearing as well as the professionals who serve them. This organization is a parent-driven, parent/professional collaborative group that is unbiased toward any communication modes and methods. Its membership includes those who are deaf or hard-of hearing and their families who communicate orally or with signs, cued speech, or combined methods. Hands & Voices exists to help children reach their highest potential. See the website for local chapters.

seperator

Top

Hard of Hearing Advocates (HOHA)

Director: Janet Keeler
Address: P.O. Box 1184 or 245 Prospect Street
Voice: (508) 875-8662
Last updated: 2011 Jun 30

Description:
The goal of Hard of Hearing Advocates (HOHA) is to create and implement programs and solutions in areas in which people who are hard-of-hearing have undue problems. HOHA identifies specific problem areas, develops solutions, and seeks support to implement these solutions. The HOHA website has an online discussion board where hard-of-hearing people can discuss problems, solutions, and issues related to hearing loss.

seperator

Top

HEAR NOW

Public Information Contact: Joanita Stelter
Address: 6700 Washington Avenue South
Voice: 800-328-8602
Toll-free Voice: (800) 648-4327
Fax: (952) 947-4997
Last updated: 2011 Jun 30

Description:
HEAR NOW, a domestic program of the Starkey Hearing Foundation, provides hearing aids to people with no other resources to acquire hearing aids. HEAR NOW is a program of last resort; all other options must be used before service is awarded. Professional/consumer fact sheets and brochures are available.

seperator

Top

Hearing Education and Awareness for Rockers (H.E.A.R.)

Executive Director: Kathy Peck
Voice: (415) 409-3277
Last updated: 2014 Apr 30

Description:
Hearing Education and Awareness for Rockers (H.E.A.R.) is world-renowned for its efforts to educate the public about the dangers of excessive noise and to provide adequate hearing protection to musicians and music fans. H.E.A.R. promotes awareness about hearing damage by disseminating public service information and announcements to the media, producing hearing conservation “rocumentary” DVDs, and by establishing information and earplug tables at music events in the United States. H.E.A.R. programs include the H.E.A.R. Partner program in cities worldwide, custom musicians’ hearing protection programs, hearing screening clinics, and online hearing health and music resources. The professional/consumer hearing education conservation program "Listen Smart: Safely Handling the Power of Sound" is available as a DVD.

seperator

Top

Hearing Health Foundation

Executive Director: Andrea Boidman
Address: 363 Seventh Avenue, 10th Floor
Voice: (212) 257-6140
Toll-free Voice: (866) 454-3924
TTY: (888) 435-6104
Toll-free TTY: (888) 435-6104
Fax: (212) 257-6139
Internet: http://hhf.org
Last updated: 2014 Apr 30

Description:
Hearing Health Foundation is the largest private funder of hearing research, with a mission to prevent and cure hearing loss through groundbreaking research. Since 1958, Hearing Health Foundation has given away millions of dollars to hearing and balance research, including work that led to cochlear implant technology and now through the Hearing Restoration Project is working on a cure for hearing loss. Hearing Health Foundation also publishes Hearing Health magazine, a free consumer resource on hearing loss and related technology, research, and products. To learn more, subscribe to our magazine, or support this work, visit www.hhf.org.

seperator

Top

Hearing Industries Association (HIA)

Executive Director: Carole M. Rogin
Address: 1444 I Street, NW, Suite 700
Voice: (202) 449-1090
Fax: (202) 216-9646
Last updated: 2011 Jun 30

Description:
The Hearing Industries Association (HIA) is the national trade association of manufacturers of hearing aids, assistive listening devices, component parts, and power sources. Together, these companies produce the majority of the over 2 million hearing aids that are purchased in the United States on an annual basis. The HIA website maintains a database of media articles related to hearing aids use, research, and proposed legislation affecting their use. Fact sheets and statistical reports are available for purchase by request.

seperator

Top

Hearing Loss Association of America

Address: 7910 Woodmont Avenue, Suite 1200
Voice: (301) 657-2248
Fax: (301) 913-9413
Last updated: 2014 Apr 30

Description:
The Hearing Loss Association of America (HLAA) is a nonprofit organization with a mission to open the world of communication to people with hearing loss through education, information, support, and advocacy. HLAA provides assistance and resources for people with hearing loss and their families to learn how to adjust to living with hearing loss. HLAA is working to eradicate the stigma associated with hearing loss and raise public awareness about the need for prevention and the importance of regular hearing screenings throughout life. HLAA has an extensive network of chapters and state associations across the country. HLAA also holds annual conventions for people with hearing loss and professionals; see website for details.

seperator

Top

HEATH Resource Center at the National Youth Transitions Center (National Clearinghouse on Postsecondary Education for Individuals with Disabilities)

Address: 2134 G Street, NW
Last updated: 2014 May 5

Description:
The HEATH Resource Center is an online clearinghouse on postsecondary education for individuals with disabilities. Since 2000, the HEATH Resource Center has served as a national clearinghouse on postsecondary education for individuals with disabilities, managed by the George Washington University Graduate School of Education and Human Development. Now, the HSC Foundation has partnered with the George Washington University to expand the content of this resource and to designate it as the official resource site of the HSC Foundation's National Youth Transitions Center.

seperator

Top

Helen Keller National Center for Deaf-Blind Youths and Adults (HKNC)

Executive Director: Joseph J. McNulty
Address: 141 Middle Neck Road
Voice: (516) 944-8900
TTY: (516) 944-8637
Fax: (516) 944-7302
Last updated: 2011 Jun 30

Description:
The mission of the Helen Keller National Center for Deaf-Blind Youths and Adults (HKNC) is to enable all individuals who are deaf-blind to live and work in the community of their choice. HKNC provides comprehensive vocational rehabilitation training and assistance with job and residential placements. Services in the field include 10 regional offices, more than 40 affiliated agencies, a National Training Team, the Older Adult Program, and the National Consortium on Deaf-Blindness. HKNC serves all adult Americans who are deaf-blind or have severe vision and hearing impairments and maintains a national registry of individuals who are deaf-blind. Professional fact sheets and brochures/pamphlets are available, with some materials in Braille.

seperator

Top

Holley Institute

President: Ardis J. Gardella
Address: 22151 Moross Road, Professional Building I, Suite 223
Voice: (313) 343-7583
Voice: (313) 343-7484
TTY: (313) 343-8789
Fax: (313) 343-4111
Last updated: 2011 Jun 30

Description:
The mission of the Holley Institute, a nonprofit organization founded in 1993, is to assist deaf, deaf-blind, and hard-of-hearing individuals by providing services and programs aimed at improving their quality of life. Institute volunteers screen newborn infants for hearing loss at St. John Hospital in Detroit, MI. The institute owns and operates the Holley Family Village, located in Brooklyn, MI, where it offers educational, recreational, and mental health programs for deaf, deaf-blind, and hard-of-hearing children, teens, adults, and their families. The institute also offers American Sign Language classes at some Michigan locations.

seperator

Top

House Research Institute

Chief Executive Officer: James D. Boswell
Director of Community Education and Outreach: Marilee J. Potthoff
Address: 2100 West Third Street
Voice: (213) 483-4431
TTY: (213) 484-2642
Fax: (213) 483-8789
Last updated: 2014 Apr 30

Description:
The House Research Institute (formerly called the House Ear Institute) is a private, nonprofit 501(c)(3) organization dedicated to advancing hearing science through research and education to improve quality of life. Scientists are exploring the developing ear and ear diseases at the cellular and molecular level as well as investigating the complex ear-brain interaction. They also are working to improve hearing aids and auditory implants, clinical treatments, and intervention methods. Professional/consumer brochures, books, and audiovisuals are available.

seperator

Top

Hyperacusis Research Limited

President: Bryan Pollard
Address: P.O. Box 1295
Last updated: 2011 Jun 30

Description:
Hyperacusis Research Limited is dedicated to improving the quality of life for patients who suffer from hyperacusis and hyperacusis-related disorders. Hyperacusis Research is working through research conferences to raise awareness of this challenging auditory disorder. Central to the mission of Hyperacusis Research is facilitating and supporting biomedical research that will lead to novel, effective therapies for the treatment of hyperacusis. Hyperacusis Research is supporting innovative research projects across borders and disciplines with an emphasis on collaboration and knowledge sharing between supported individuals and institutions. Information about managing noise and ongoing research is available on the Hyperacusis Research website.

seperator

Top

International Deaf/Tek, Inc.

President: Brenda Monene, R.N., M.Ed.
Address: 104 Catbriar Court
Voice: (843) 873-8444
Last updated: 2011 Jun 30

Description:
International Deaf/Tek, Inc., maintains Deaftek.USA, a website that focuses on employment opportunities for deaf individuals and the people who serve them. Organizations, agencies, schools, businesses, and other entities wishing to fill positions may send employment announcements to this site at no charge. Employment opportunities are posted according to category and remain on the site for two months unless longer or shorter times are requested.

seperator

Top

International Hearing Society (IHS)

Executive Director: Kathleen Mennillo, M.B.A.
Public Information Contact: Amanda Ciccantelli
Address: 16880 Middlebelt Road, Suite 4
Voice: (734) 522-7200
Toll-free Voice: (800) 521-5247
Fax: (734) 522-0200
Last updated: 2011 Jun 30

Description:
The International Hearing Society (IHS) was formed in 1951 as a professional organization of hearing instrument specialists, the professionals who test hearing and select, fit, and dispense hearing instruments. The society conducts programs pertaining to competence qualification, education, and training, and promotes specialty-level accreditation. IHS sponsors a national toll-free Hearing Aid Helpline, which provides consumers with information and referrals to hearing instrument specialists. Holds annual convention and exhibition; contact IHS for date and location. Consumer fact sheets and brochures are available.

seperator

Top

Job Accommodation Network (JAN)

Co-directors: Anne Hirsh and Lou Orslene
Address: P.O. Box 6080
Toll-free Voice: (800) 526-7234 or (800) ADA-WORK (232-9675)
Toll-free TTY: (877) 781-9403
Fax: (304) 293-5407
Last updated: 2011 Jun 30

Description:
The Job Accommodation Network (JAN) is funded by the U.S. Department of Labor’s Office of Disability Employment Policy. JAN is an information and consulting service that provides users with individualized solutions for workplace accommodations. JAN also provides information regarding the Americans with Disabilities Act, the Rehabilitation Act, and other disability-related legislation. In addition, JAN consultants have access to a vast network of resources, organizations, support groups, government agencies, and more that can provide assistance to persons with disabilities. JAN is used primarily by employers, rehabilitation professionals, and individuals with disabilities. All services are free and confidential. Professional/consumer publications are available.

seperator

Top

John Tracy Clinic

President: Barbara F. Hecht, Ph.D.
Address: 806 West Adams Boulevard
Voice: (213) 748-5481
Toll-free Voice: (800) 522-4582
TTY: (213) 747-2924
Fax: (213) 749-1651
Last updated: 2011 Jun 30

Description:
The John Tracy Clinic provides free services to parents of children, ages birth to 5 years, with hearing loss. The clinic has more than 60 years of experience in early intervention and the spoken language option. Correspondence courses are available worldwide. Three-week summer sessions are offered. A master’s and credential program in teacher education is offered both onsite and online. A professional/consumer newsletter and fact sheets, brochures/ pamphlets, and online publications are available. Most materials are available in Spanish.

seperator

Top

Learning Disabilities Association of America (LDA)

Executive Director: Mary-Clare Reynolds
Address: 4156 Library Road
Voice: (412) 341-1515
Toll-free Voice: (888) 300-6710
Fax: (412) 344-0224
Last updated: 2014 Apr 30

Description:
The Learning Disabilities Association of America (LDA) is a nonprofit organization dedicated to identifying causes and promoting prevention of learning disabilities and to enhancing the quality of life for all individuals with learning disabilities and their families. LDA encourages effective identification and intervention, fosters research, and protects the rights of individuals with learning disabilities under the law. The association is an information and referral service for both parents and professionals. LDA, which has more than 100 state and local chapters across the country, sponsors an annual conference and offers membership. A professional journal, membership newsletter (Newsbriefs), and information via our website are all available. Some materials in Spanish are also available.

seperator

Top

MAAP Services for Autism, Asperger, and PDD/NOS (MAAP Services)

President: Susan J. Moreno
Address: P.O. Box 524
Voice: (219) 662-1311
Fax: (219) 662-0638
Last updated: 2011 Jun 30

Description:
MAAP Services for the Autism Spectrum (MAAP Services) is a nonprofit 501(c)(3) organization dedicated to providing information and advice to families of more advanced individuals with autism, Asperger syndrome, and other pervasive developmental disorders. MAAP Services provides information and referrals to parents, caregivers, and professionals who are experiencing this spectrum of challenges as well as helping the individuals themselves. The organization also provides a website; printed materials; annual conferences; public presentations; and personal contact via e-mail, phone, and written correspondence. The MAAP Services newsletter is distributed in 56 countries.

seperator

Top

Media Access Group at WGBH

Director: Larry Goldberg
Public Information Contact: Mary Watkins
Address: 1 Guest Street
Voice: (617) 300-3400
TTY: (617) 300-2489
Fax: (617) 300-1035
Last updated: 2011 Jun 30

Description:
The Media Access Group at WGBH consists of the Caption Center, which provides captioning for television, Web-based media, and feature films; the Descriptive Video Service, which creates audio descriptions for blind and visually impaired audiences for these and other media formats; and the WGBH-Carl and Ruth Shapiro Family National Center for Accessible Media (NCAM), which promotes accessibility for classrooms, the Internet, movie theaters, and more through ongoing research and development, outreach, and public policy initiatives. E-mail news updates and professional/consumer fact sheets are available.

seperator

Top

National Association of the Deaf (NAD)

Chief Executive Officer: Howard Rosenblum
Address: 8630 Fenton Street, Suite 820
Voice: (301) 587-1788
Fax: (301) 587-1791
Last updated: 2011 Jun 30

Description:
The National Association of the Deaf (NAD), founded in 1880, is a federation of state associations, organizational and corporate affiliates, and individuals advocating for the civil rights of deaf and hard-of-hearing Americans. NAD’s advocacy work encompasses a broad spectrum of areas such as accessibility, education, employment, health care, mental health, rehabilitation, technology, telecommunications, and transportation. The NAD Web site offers advocacy information and resources related to legal rights and other concerns affecting individuals who are deaf or hard-of-hearing.

seperator

Top

National Black Association for Speech-Language and Hearing (NBASLH)

Chairperson: Arnell Brady
Public Information Contact: Diane Yenerall
Address: 700 McKnight Park Drive, Suite 708
Voice: (855) 727-2836
Fax: (888) 729-3489
Last updated: 2014 Apr 30

Description:
The National Black Association for Speech-Language and Hearing (NBASLH) is a nonprofit organization dedicated to the sharing of information about communication impairments and differences among black people; the professional development of speech-language pathologists, audiologists, and students; and the advocacy of quality service delivery to the black community. Holds annual convention; contact NBASLH for date and location. A professional journal and newsletter/bulletin are available.

seperator

Top

National Board for Certification in Hearing Instrument Sciences (NBC-HIS)

Executive Director: Linda K. Jackson
Executive Assistant: Carolyne Pope
Address: 33966 W. 8 Mile Road, Suite 101
Voice: (734) 522-2900
Fax: (734) 522-0900
Last updated: 2014 May 2

Description:
The National Board for Certification in Hearing Instrument Sciences (NBC-HIS) is an independent, nonprofit corporation established to develop and promulgate eligibility standards for certification; to develop, process, administer, and score certification examinations based on research; and to award board certification to successful applicants. A professional directory, fact sheets, and online publications are available.

seperator

Top

National Captioning Institute (NCI)

President /CEO: Gene Chao
National Director of Sales and Marketing: Juan Mario Agudelo
Address: 3725 Concorde Parkway, #100
Voice: (703) 917-7600
TTY: (703) 917-7600
Fax: (703) 917-9853
Last updated: 2011 Jun 30

Description:
The National Captioning Institute (NCI) is a nonprofit organization that provides closed-captioning services to television networks, program producers, advertisers, producers of home entertainment videos, and other organizations in the government and private sectors. It was established in 1979, with the mission of ensuring that deaf and hard-of-hearing people have access to television’s entertainment and news through the technology of closed captioning. As part of its commitment to media access, NCI now offers Internet captioning as well as described video service for people who are blind or have low vision.

seperator

Top

National Center for Health Statistics, Centers for Disease Control and Prevention (CDC)

Acting Director: Charles J. Rothwell, M.S., M.B.A.
Address: 3311 Toledo Road, Room 7204
Voice: (301) 458-4000
Toll-free Voice: (866) 441-NCHS (6247)
Last updated: 2014 May 5

Description:
The National Center for Health Statistics (NCHS), part of the Centers for Disease Control and Prevention (CDC), compiles statistical information to help guide policies to improve the health of Americans. Holds a biennial data user conference; consult the NCHS website for date and location. NCHS disseminates data and statistics online and in print.

seperator

Top

National Center on Deafness (NCOD)

Director: Roslyn Rosen
Address: 18111 Nordhoff Street, California State University
Voice: (818) 677-2611
TTY: (818) 677-2611
Fax: (818) 677-4899
Last updated: 2011 Jun 30

Description:
The National Center on Deafness (NCOD) is housed in Jeanne M. Chisholm Hall on the campus of California State University, Northridge. Established in 1962, NCOD was the first postsecondary program in the nation to provide paid professional sign language interpreters for deaf and hard-of-hearing students as well as captioning services as requested. The program has grown to be the largest of its type in the western United States, serving approximately 200 students who are deaf and hard-of-hearing each year. NCOD also provides transition services, academic and career planning, tutorial assistance, and cocurricular events for the students. Additionally, NCOD provides outreach and training through a federal grant.

seperator

Top

National Cued Speech Association (NCSA), Deaf Children's Literacy Project

President: Shannon Howell
Executive Director: Sarina Roffe
Address: 1300 Pennsylvania Avenue, NW, Suite 190-713
Toll-free Voice: (800) 459-3529
Toll-free TTY: (800) 459-3529
Last updated: 2014 May 1

Description:
The National Cued Speech Association (NCSA) and its Deaf Children's Literacy Project promote the effective use of cued speech for communication, language acquisition (in more than 67 languages), and literacy through the use of cued speech. NCSA provides education, awareness, and support for people with language, hearing, speech, and learning needs through publications, exhibits, family/professional learning vacations, and conferences. NCSA sets standards of cueing and certifies instructors of cued speech. Visit NCSA's bookstore for books, games, computer software, and more.

seperator

Top

National Dissemination Center for Children with Disabilities (NICHCY)

Director: Elaine M. Mulligan
Address: 1825 Connecticut Avenue, NW
Voice: (202) 884-8200
Toll-free Voice: (800) 695-0285
TTY: (202) 884-8200
Toll-free TTY: (800) 695-0285
Fax: (202) 884-8441
Last updated: 2014 May 5

Description:
The National Dissemination Center for Children with Disabilities (NICHCY) is a national information and referral center that provides information on disabilities and disability-related issues to families, educators, and other professionals. With a special focus on children and young adults ages birth to 22, NICHCY answers questions in both English and Spanish. Fact sheets on specific disabilities, state resource sheets, and information about the Individuals with Disabilities Education Act are available. All NICHCY publications are available online at nichcy.org/publications.

seperator

Top

National Family Association for Deaf-Blind (NFADB)

President: Clara Berg
Public Information Contact: Lori Bookstaver
Address: 141 Middle Neck Road
Voice: (516) 944-8900
Toll-free Voice: (800) 255-0411
Toll-free TTY: (800) 255-0411
Fax: (516) 883-9060
Last updated: 2014 May 1

Description:
The National Family Association for Deaf-Blind (NFADB) is founded on the belief that people who are deaf-blind are valued members of society and are entitled to the same opportunities and choices as other people. NFADB supports national policy to benefit people who are deaf-blind, encourages the founding and strengthening of family organizations in each state, shares information related to deaf-blindness, provides resources and referrals, and assists in the development of materials that benefit family members.

seperator

Top

National Hearing Conservation Association (NHCA)

President: Rick Neitzel
Public Information Contact: Erin Erickson, Executive Director
Address: 3030 West 81st Avenue
Voice: (303) 224-9022
Fax: (303) 458-0002
Last updated: 2011 Jun 30

Description:
The National Hearing Conservation Association (NHCA), an association of hearing conservation professionals, is dedicated to preventing hearing loss caused by noise and other environmental factors in all sectors of society. NHCA promotes professional development by improving its members’ skills and practices, providing education and encouraging research, stimulating information exchange and distribution, promoting development of improved and more effective occupational hearing conservation programs, and participating in standards and regulatory activities. Holds annual conference; contact NHCA for date and location.

seperator

Top

National Institute for Occupational Safety and Health (NIOSH)

Director: John Howard, M.D., J.D.
Public Affairs Director: Fred Blosser
Address: 395 E Street, SW, Suite 9200, Patriots Plaza Building
Toll-free Voice: (800) 232-4636
Fax: (202) 245-0664
Last updated: 2014 May 19

Description:
Job-related hearing loss affects workers across many occupational sectors, including agriculture, construction, manufacturing and utilities, mining, and transportation. The National Institute for Occupational Safety and Health (NIOSH) conducts research in hearing loss and noise exposure surveillance, noise control engineering, hearing protection devices, hearing conservation programs, and other risk factors for occupational hearing loss. Together with the National Institute on Deafness and Other Communication Disorders, NIOSH supports the National Health and Nutrition Examination Survey, which collects a representative sample of the hearing health status of persons in the United States. NIOSH scientists participate in providing scientific bases for federal regulations, making authoritative recommendations to prevent occupational hearing loss, and developing acoustic standards. Professional and consumer information related to workplace noise and hearing safety are available in print and online.

seperator

Top

National Institute on Deafness and Other Communication Disorders (NIDCD)

Director: James F. Battey, Jr., M.D., Ph.D.
Public Information Contact: Susan Dambrauskas, Chief, Office of Health Communication and Public Liaison
Address: Office of Health Communication and Public Liaison, 31 Center Drive, MSC 2320
Voice: (301) 496-7243
Toll-free Voice: (800) 241-1044
Toll-free TTY: (800) 241-1055
Fax: (301) 402-0018
Last updated: 2011 Jun 30

Description:
The National Institute on Deafness and Other Communication Disorders (NIDCD), one of the National Institutes of Health, supports and conducts research and research training on the normal and disordered processes of hearing, balance, taste, smell, voice, speech, and language. The NIDCD develops health information based on scientific discovery and disseminates it to the public. In October 2008, the NIDCD launched It's a Noisy Planet. Protect Their Hearing (www.noisyplanet.nidcd.nih.gov). This national campaign is designed to increase awareness among parents of youth ages 8 to 12 about the causes and prevention of noise-induced hearing loss. The NIDCD provides a toll-free telephone service through its information clearinghouse. Fact sheets, brochures, teaching curricula, and reports are available, with many in Spanish.

seperator

Top

National Institute on Deafness and Other Communication Disorders (NIDCD) Information Clearinghouse

Project Officer: Susan Dambrauskas
Address: 1 Communication Avenue
Toll-free Voice: (800) 241-1044
Toll-free TTY: (800) 241-1055
Fax: (301) 770-8977
Last updated: 2014 May 5

Description:
The National Institute on Deafness and Other Communication Disorders (NIDCD) Information Clearinghouse, a service of NIDCD, is a national resource center for health information on hearing, balance, smell, taste, voice, speech, and language for health professionals, patients, and the public.

seperator

Top

National Institute on Disability and Rehabilitation Research, Office of Special Education and Rehabilitative Services (OSERS)

Acting Director: Ruth Brannon
Address: 550 12th Street, SW, Room 6056
Voice: (202) 245-7640
Fax: (202) 245-7630
Last updated: 2011 Jun 30

Description:
The National Institute on Disability and Rehabilitation Research (NIDRR) is part of the Office of Special Education and Rehabilitative Services (OSERS), U.S. Department of Education. NIDRR supports a comprehensive program of national and international research into all aspects of the rehabilitation of people with disabilities and their successful integration into education, work, and community life. Grants are awarded to institutions of higher education and qualified organizations; the fellowship program provides grants to individuals with advanced rehabilitation credentials. NIDRR administers the Interagency Committee on Disability Research. An online directory of projects and publications is available.

seperator

Top

National Organization for Hearing Research Foundation (NOHR)

President: Geraldine Dietz Fox
Public Information Contact: Sarah Schreiner
Address: P.O. Box 421
Voice: (610) 664-3135
Fax: (610) 668-1428
Last updated: 2014 May 2

Description:
The National Organization for Hearing Research Foundation (NOHR) is a 501(c)(3) public charity whose primary objective is to fund research into the prevention, causes, treatments, and cures for hearing loss and deafness. NOHR funds grant proposals that target innovative auditory projects; proposal submissions are reviewed by members of NOHR’s Scientific Review Committee. The most important review criteria for research proposals are scientific value and potential to yield significant new insights in the field of auditory science. Regeneration of sensory hair cells of the inner ear is a research funding priority, and examinations by other scientific disciplines are encouraged. Grant application information is available upon request.

seperator

Top

National Organization for Rare Disorders (NORD)

President/CEO: Peter L. Saltonstall
Vice President, Information Services: Mary Dunkle, Vice President for Communications
Address: 55 Kenosia Avenue
Voice: (203) 744-0100
Toll-free Voice: (800) 999-6673
TTY: (203) 797-9590
Fax: (203) 798-2291
Last updated: 2014 May 1

Description:
The National Organization for Rare Disorders (NORD) is a nonprofit voluntary health agency that serves as a clearinghouse for information on rare disorders. A rare disorder is a disease or condition that affects fewer than 200,000 Americans. Cumulatively, there are more than 6,000 rare diseases affecting more than 25 million Americans. NORD is committed to the identification, treatment, and cure of rare diseases through education, advocacy, research, and service programs. NORD administers medication assistance programs for certain rare-disease drugs as well as research grants and fellowships.

seperator

Top

National Rehabilitation Information Center (NARIC)

Project Director: Mark X. Odum
Public Information Contact: Catherine Graves, Library Information Specialist II
Address: 8201 Corporate Drive, Suite 600
Voice: (301) 459-5900
Toll-free Voice: (800) 346-2742
TTY: (301) 459-5984
Fax: (301) 459-4263
Last updated: 2011 Jun 30

Description:
The National Rehabilitation Information Center (NARIC) is a library and information center focusing on disability and rehabilitation research. NARIC’s collection contains more than 40,000 documents, both federally funded and commercially produced. NARIC’s information specialists provide quick information and referrals, customized database searches, and document delivery. Internet users can access NARIC’s databases, bulletins, and a live reference chat service at the NARIC website. Referral sheets, general information packets, and customized literature searches are available.

seperator

Top

National Service Animal Center (NSAC)

President/CEO: Lawrence L. Norvell
Information and Resources: Michelle Cobey
Address: 875 124th Avenue, NE, #101
Voice: (425) 679-5500
Fax: (425) 679-5539
Last updated: 2011 Jun 30

Description:
The National Service Animal Resource Center, a department of the Delta Society, provides information through its website about the selection, training, stewardship, and roles of service dogs; referral to service-dog training programs and related resources; education for businesses, health care professionals, and the general public on service-dog issues; and self-advocacy on behalf of people with service dogs.

seperator

Top

National Technical Institute for the Deaf (NTID)

President of NTID & Vice President and Dean for RIT: Gerard Buckley, Ph.D.
Address: 52 Lomb Memorial Drive
Voice: (585) 475-6400
TTY: (585) 475-6400
Fax: (585) 475-5623
Last updated: 2011 Jun 30

Description:
The National Technical Institute for the Deaf (NTID), a college of the Rochester Institute of Technology (RIT), is the world’s first and largest technological college for students who are deaf or hard-of-hearing. NTID offers associate degrees in more than 30 technological and professional programs as well as bachelor’s or master’s degrees in more than 200 programs offered by RIT’s nine other colleges. A professional journal, other publications, and computer software/assisted education are available.

seperator

Top

National Temporal Bone, Hearing, and Balance Pathology Resource Registry

Director: Joseph B. Nadol, Jr., M.D.
Public Information Contact: Nicole Pelletier, Registry Coordinator
Address: Massachusetts Eye and Ear Infirmary, 243 Charles Street
Voice: (617) 573-3711
Toll-free Voice: (800) 822-1327
Toll-free TTY: (800) 439-0183
Fax: (617) 573-3838
Last updated: 2011 Jun 30

Description:
The National Temporal Bone, Hearing, and Balance Pathology Resource Registry, which is sponsored by the National Institute on Deafness and Other Communication Disorders, promotes research into hearing and balance disorders through the study of the temporal bone and related brain structures. The registry maintains a computerized database of all U.S. temporal bone collections, disseminates information on temporal bone donation, enrolls individuals with hearing/balance disorders as temporal bone donors, educates professionals about temporal bone research, and conserves at-risk collections. Free searches of the registry’s database are available to interested otopathologic researchers. A professional/consumer newsletter, brochures/pamphlets, and online publications are available.

seperator

Top

Neurofibromatosis Network

President: Cheri Stewart
Address: 213 Wheaton Avenue
Voice: (630) 510-1115
Last updated: 2014 May 5

Description:
Neurofibromatosis, Inc., (NF, Inc.) is a national nonprofit organization dedicated to all people affected by neurofibromatosis (NF) and other related disorders. NF, Inc., distributes materials on NF1 and NF2; promotes national, state, and local community involvement; supports research; has a governing board with NF2 representation; and provides real-time captioning at meetings. A toll-free helpline and website provide access to peer counseling and information 24 hours a day. A professional directory and professional/consumer publications are available.

seperator

Top

Noise Pollution Clearinghouse (NPC)

Executive Director: Les Blomberg
Public Information Contact: Information Specialists
Address: P.O. Box 1137
Voice: (802) 229-1659
Toll-free Voice: (888) 200-8332
Fax: (802) 223-3266
Last updated: 2011 Jun 30

Description:
The mission of the Noise Pollution Clearinghouse (NPC) is to create more livable cities and more natural rural and wilderness areas by reducing noise pollution at the source. NPC seeks to raise awareness about noise pollution; creates, collects, and distributes resources on noise pollution; and establishes networks among environmental, professional, medical, governmental, citizen, and activist groups working on noise pollution issues. Consumer fact sheets and newsletters are available.

seperator

Top

Occupational Safety and Health Administration (OSHA)

Director: Francis Meilinger
Public Information Contact: Francis Meilinger
Address: 200 Constitution Avenue, NW, Room N-3647
Voice: (202) 693-1999
Toll-free Voice: (800) 321-OSHA (6742)
Toll-free TTY: (877) 889-5627
Fax: (202) 693-1635
Last updated: 2014 May 5

Description:
The Occupational Safety and Health Administration (OSHA), a division of the U.S. Department of Labor, is the lead federal organization devoted to protecting the safety and health of America’s workers. OSHA produces and enforces protective standards for occupational safety and health and also provides employers and employees with technical and consultative assistance. OSHA also works with employers through various programs and partnerships to help them develop effective safety and health systems to reduce injuries and illnesses in the workplace. Assistance products and tools are available. Additional resources are available through the OSHA Publications Office. The Department of Labor’s Office of Disability Employment Policy (ODEP) provides national leadership by developing and influencing disability and related employment policy as well as practices that affect the employment of people with disabilities, including communication disorders.

seperator

Top

Office of Disability Employment Policy (ODEP), U.S. Dept. of Labor

Assistant Secretary: Kathy Martinez
Supervisor, Policy Communication and Outreach: Barbara Haight
Address: Suite S1303, 200 Constitution Avenue, NW
Voice: (202) 693-7880
Toll-free Voice: (866) 633-7365
TTY: (202) 693-7881
Fax: (202) 693-7888
Last updated: 2011 Jun 30

Description:
The Department of Labor’s Office of Disability Employment Policy (ODEP) provides national leadership by developing and influencing disability and related employment policy, as well as practices that affect the employment of people with disabilities, including communication disorders.

seperator

Top

Office of Special Education Programs (OSEP), Office of Special Education and Rehabilitative Services (OSERS)

Acting Director/Official Deputy: Patricia J. Guard
Address: U.S. Department of Education, 550 12th Street, SW, Room 4109
Voice: (202) 245-7459
Fax: (202) 245-7616
Last updated: 2011 Jun 30

Description:
The Office of Special Education Programs (OSEP), an office within the U.S. Department of Education, is dedicated to improving results for infants, toddlers, children, and youth with disabilities—including communication disorders—from birth through age 21 and providing leadership and financial support to assist states and local districts. OSEP awards formula grants to states as well as discretionary grants to institutions of higher education and other nonprofit organizations to support research, demonstrations, technical assistance and dissemination, technology and personnel development, and parent-training and information centers. Professional and consumer publications are available.

seperator

Top

Postsecondary Education Programs Network (pepnet 2)

pepnet 2 Director: Cathy McLeod
Address: 18111 Nordhoff Street
Last updated: 2011 Jun 30

Description:
Pepnet2 (pn2) recognizes the full range of postsecondary education and training options available for individuals who are deaf or hard-of-hearing, including those with co-occurring disabilities, and strives to enhance the capacity of those institutions to appropriately serve this diverse student population. Pn2 is a national collaboration of professionals with expertise in a broad array of content areas and a variety of environments, including research, technology, personnel development, media production, and technical assistance. Our mission and the focus of our resources is to increase the education, career, and lifetime choices available to individuals who are deaf or hard-of- hearing. Our resources include live, one-on-one assistance in a variety of communication modes, in-person and online training, and materials that are downloadable, printable or available as hard copies. Pn2 is funded through a cooperative agreement with the Research to Practice Division, Office of Special Education Programs, U.S. Department of Education.

seperator

Top

Registry of Interpreters for the Deaf, Inc. (RID)

President: Brenda Walker Prudhom
Director of Communications: Tina Schultz
Address: 333 Commerce Street
Voice: (703) 838-0030
TTY: (703) 838-0459
Fax: (703) 838-0454
Last updated: 2011 Jun 30

Description:
The mission of the Registry of Interpreters for the Deaf, Inc., (RID) is to provide international, national, regional, state, and local forums with an organizational structure for the continued growth and development of the profession of interpretation and transliteration of American Sign Language and English. Holds biennial conference; contact RID for date and location. Professional journal, newsletter, directory, fact sheets, brochures, and books are available.

seperator

Top

Rehabilitation Engineering and Assistive Technology Society of North America (RESNA)

Executive Director: M. Nell Bailey
Administrative Assistant: Dawn Paulson
Address: 1700 North Moore Street, Suite 1540
Voice: (703) 524-6686
TTY: (703) 524-6639
Fax: (703) 524-6630
Last updated: 2011 Jun 30

Description:
The Rehabilitation Engineering and Assistive Technology Society of North America (RESNA) is an interdisciplinary association for the advancement of rehabilitation and assistive technologies. Members range from rehabilitation professionals to providers and consumers. RESNA is dedicated to promoting the exchange of ideas and information for the advancement of assistive technology and rehabilitation engineering. Administers a certification program that is designed to instill quality assurance offered by professionals who support people with disabilities. RESNA holds an annual conference; contact RESNA for date and location. RESNA also administers a federal grant that provides technical assistance and information to the 50 states and U.S. territories. Professional books and audiovisuals are available. Materials in alternative formats are available upon request.

seperator

Top

Sertoma, Inc.

Executive Director: Stephen Murphy
Address: 1912 East Meyer Boulevard
Voice: (816) 333-8300
Toll-free Voice: (800) 593-5646
TTY: (816) 333-8300
Fax: (816) 333-4320
Last updated: 2011 Jun 30

Description:
Sertoma International (SERvice TO MAnkind) is a volunteer service organization of 18,000 members in 650 clubs across North America. Its primary focus is communication disorders, but its clubs also sponsor projects focusing on national heritage, youth, and other community needs. Sertoma offers scholarships for graduate study in audiology and speech pathology and for undergraduate students with hearing loss who are pursuing degrees in any field. Holds annual convention; contact Sertoma for date and location. Professional online publications are available.

seperator

Top

Society for Ear, Nose, and Throat Advances in Children (SENTAC)

President: David Parons, M.D.
Address: Charlotte Eye, Ear, Nose, and Throat Associates, 6035 Fairview Road
Voice: (704) 295-3000
Fax: (704) 295-3220
Last updated: 2014 Apr 25

Description:
The Society of Ear, Nose, and Throat Advances in Children (SENTAC) is an interdisciplinary society of health professionals who share an interest in ear, nose, and throat diseases in children, including communication disorders. Its membership includes physicians, nurses, speech therapists, audiologists, and social workers. The annual meeting provides a forum for the presentation and exchange of ideas and information; contact SENTAC for date and location. A professional newsletter, directory, and brochures are available.

seperator

Top

Society of Otorhinolaryngology and Head-Neck Nurses, Inc. (SOHN)

Executive Director: Sandra Schwartz, M.S., R.N., CORLN
Address: 202 Julia Street
Voice: (386) 428-1695
Fax: (386) 423-7566
Last updated: 2011 Jun 30

Description:
The Society of Otorhinolaryngology and Head-Neck Nurses, Inc., (SOHN), an organization of professional registered nurses, promotes continuing education opportunities within the field of otorhinolaryngology nursing and endorses professional standards for clinical practice and research. Holds annual congress and symposium; contact SOHN for date and location. A professional newsletter and journal are available.

seperator

Top

Telecommunications for the Deaf and Hard of Hearing Inc. (TDI)

Executive Director: Claude L. Stout
Public Relations Director: James D. House
Address: 8630 Fenton Street, Suite 121
Voice: (301) 563-9112
Last updated: 2014 May 1

Description:
Telecommunications for the Deaf and Hard of Hearing, Inc., (TDI) is a consumer advocacy organization that provides leadership in achieving equal access to telecommunications, media, and information technologies for the communication needs of 48 million Americans who are deaf and hard-of-hearing every day and during emergencies. TDI publishes the TDI World magazine and the TDI National Directory & Resource Guide, also known as the Blue Book, since 1968. In odd numbered years, TDI hosts a biennial conference where consumers, industry leaders, and government officials gather to discuss accessibility trends in technology.

seperator

Top

Testing, Evaluation, and Certification Unit, Inc. (TECUnit )

President: Shellie Burrow
Public Information Contact: Michael Burrow, Office Manager
Address: 1850 South Edwards Lane
Toll-free Voice: (800) 523-0964
Fax: (435) 654-3261
Last updated: 2011 Jun 30

Description:
The Testing, Evaluation, and Certification Unit, Inc., (TECUnit) is the national certifying body for transliterators who work primarily between spoken and cued English. TECUnit administers the Cued Language Transliterator National Certification Examination and also has developed an assessment tool for use by state agencies. TECUnit also administers standardized tests designed to assess expressive and receptive cueing proficiency. Ultimately, TECUnit is responsible for establishing, maintaining, and promulgating national standards for the profession of cued language transliteration. Professional fact sheets and online publications are available.

seperator

Top

The Hyperacusis Network

Publisher: Dan Malcore
Address: 4417 Anapaula Lane
Voice: (920) 866-3377
Last updated: 2014 Apr 30

Description:
The Hyperacusis Network is an international support group established to care for individuals with a decreased sound tolerance (DST). The network helps educate individuals, families, and the medical community and families about this rare auditory disorder by explaining treatment options, sharing ways to cope, and reporting on current ongoing research. In addition, the network provides a listing of clinicians worldwide who are specifically trained to diagnose and treat hyperacusis. A message board is provided so individuals can share their experiences. The network also offers hearing protection products designed specifically for hyperacusis. Fact sheets, brochures/pamphlets, online publications and resources are available through our website. Membership is free.

seperator

Top

United States Society for Augmentative and Alternative Communication (USSAAC)

President: Chris Klein
Public Information Contact: Barbara Figueiredo, USSAAC Office Manager
Address: 34 Market Street
Voice: (928) 585-8525
Fax: (410) 296-5710
Last updated: 2014 May 2

Description:
The purposes of the United States Society for Augmentative and Alternative Communication (USSAAC) are to enhance the communication effectiveness of people who can benefit from augmentative and alternative communication and to support the goals of the International Society for Augmentative and Alternative Communication. USSAAC supports individuals in their right to communicate and participate fully in society; promotes public awareness; influences national and state public policy and legislation; disseminates legislative, regulatory, and funding information; facilitates high-quality service delivery; and promotes transdisciplinary professional education. Sponsors a conference every two years; visit the USSAAC website for date and location.

seperator

Top

Vestibular Disorders Association (VEDA)

Executive Director: Cynthia Ryan
Address: 5108 NE 15th Avenue
Voice: (503) 229-7705
Toll-free Voice: (800) 837-8428
Fax: (503) 229-8064
Last updated: 2014 May 5

Description:
The Vestibular Disorders Association (VEDA) is a nonprofit organization that provides information, support, and advocacy to people with vestibular disorders and the health professionals who treat them. Such disorders include labyrinthitis, benign paroxysmal positional vertigo (BPPV), Ménière’s disease, Mal de Debarquement, ototoxicity, and perilymph fistula. Frequently reported symptoms of these disorders are dizziness, unsteadiness or imbalance, vertigo, nausea, hearing loss, visual disturbances, and tinnitus. A provider directory of health care specialists, a support group directory, resource library, and more are available on our website. Membership benefits include a quarterly newsletter and access to our member support network.

seperator

Top

Virginia Merrill Bloedel Hearing Research Center (VMBHRC)

Director: Jay Rubinstein, M.D., Ph.D.
Business Development Manager: Carolyn Higgins
Address: University of Washington, Box 357923
Voice: (206) 685-2962
Voice: (206) 616-4105
Fax: (206) 616-1828
Last updated: 2011 Jun 30

Description:
The Virginia Merrill Bloedel Hearing Research Center (VMBHRC) at the University of Washington conducts interdisciplinary research on hearing, hearing loss, and related communication disorders. Through its diverse programs that foster national and international collaboration between top experts in the field, the center advances the fight against deafness and disequilibrium on the fronts of protection, intervention, and regeneration. The center provides invaluable support to patients, the scientific community, and the general public.

seperator

Top

World Federation of the Deaf (WFD)

President: Colin Allen
Administrative Secretary: Phillipa Sandholm
Address: P.O. Box 65, FIN-00401
Fax: +358-9-580-3572
Last updated: 2014 May 1

Description:
The World Federation of the Deaf (WFD) is dedicated to promoting the human and social rights of people who are deaf. Phone number: +358-9-580-3573. WFD advocates for their full participation in society by equalizing opportunities, strengthening the status of sign language, advancing educational opportunities for people who are deaf and promoting their access to information, and stimulating the efforts of national associations of the deaf to improve the overall situation of deaf communities in every country. For information about conferences, camps, and meetings, contact WFD. Informational materials are available.

seperator

Top