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Directory of Organizations

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AARP

Chief Executive Officer: William D. Novelli
Manager, Media Services: Steve Hahn
Address: 601 E Street, NW
Toll-free Voice: (888) 687-2277
TTY: (202) 434-6561
Toll-free TTY: (877) 434-7598
Fax: (202) 434-6499
Last updated: 2011 Jun 30

Description:
AARP is a nonprofit, nonpartisan membership organization that helps people who are ages 50 and older to have independence, choice, and control in ways that are beneficial and affordable to them and society as a whole. The AARP Foundation is an affiliated charity that provides security, protection, and empowerment to older persons in need with support from thousands of volunteers, donors, and sponsors. AARP has offices in all 50 states, the District of Columbia, Puerto Rico, and the U.S. Virgin Islands.

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AbleData

Director: Katherine Belknap, M.A.
Information Specialist: Juanita Hardy
Address: 8630 Fenton Street, Suite 930
Voice: (301) 608-8998
Toll-free Voice: (800) 227-0216
TTY: (301) 608-8912
Fax: (301) 608-8958
Last updated: 2014 Apr 1

Description:
The AbleData project helps people who have disabilities, including communication disorders, by providing information about assistive devices, rehabilitation equipment, and other products for people with disabilities. Resources include a database of more than 40,000 products. A database of citations of books, articles, and other resources related to assistive technology also is available, along with fact sheets, brochures, and online publications. AbleData is sponsored by the National Institute on Disability and Rehabilitation Research.

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Academy of Doctors of Audiology (ADA)

President: Charles Stone, Au.D.
Executive Director: Stephanie Czuhajewski
Address: 1020 Monarch Street, Suite 300 B
Toll-free Voice: (866) 493-5544
Fax: (859) 321-1595
Last updated: 2011 Jun 30

Description:
The Academy of Doctors of Audiology (ADA), founded in 1976, provides valuable resources to the private practitioner in audiology and to other audiology professionals who have responsibility for quality patient care and business operations. Member benefits include a quarterly business-focused publication, online forums, and various practice management resources. ADA strives to be the leader in professional development, high ethical standards, career enhancement, practice improvement, and student outreach.

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Acoustic Neuroma Association (ANA)

Executive Director: Judy B. Vitucci
Address: 600 Peachtree Parkway, Suite 108
Voice: (770) 205-8211
Toll-free Voice: (877) 200-8211
Fax: (877) 202-0239
Last updated: 2011 Jun 30

Description:
The Acoustic Neuroma Association (ANA) is a patient-focused organization that provides information and support to those affected by acoustic neuroma. An acoustic neuroma, also called a vestibular schwannoma, is a slow-growing, benign tumor that develops on the eighth cranial nerve: early symptoms include hearing loss, balance problems, and tinnitus. ANA publishes a quarterly newsletter and other consumer information, organizes local support groups, promotes research, and maintains an interactive website. Also holds a national symposium; contact ANA for date and location.

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Advocure NF2, Inc.

Chairperson: Marie Drew
Treasurer: Cynthia Henrion
Address: P.O. Box 4118
Last updated: 2011 Jun 30

Description:
Neurofibromatosis Type II (NF2) is a rare, genetic disease that causes tumors to grow throughout the brain and spinal cord, threatening hearing, vision, mobility, and even basic life functions such as swallowing. Advocure NF2, Inc., is a 501(c)(3) public charity and liaison group that advocates for the NF2 Crew (an online-based support community for patients and others) and the NF2 international community. Advocure NF2, Inc., monitors research and drug developments worldwide and works to expedite systemic therapy that may treat and possibly even cure NF2. Its website offers information on understanding and living with NF2, research, and other resources. A quarterly newsletter is available online.

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American Academy of Otolaryngology--Head and Neck Surgery (AAO-HNS)

Executive Vice President: David R. Nielsen, M.D.
Public Information Contact: Jeanne McIntyre, Director of Communications
Address: 1650 Diagonal Road
Voice: (703) 836-4444
Fax: (703) 683-5100
Last updated: 2014 Apr 25

Description:
The nonprofit American Academy of Otolaryngology—Head and Neck Surgery (AAO-HNS) strives to unite, serve, and represent the interests of ear, nose, and throat specialists and their patients to the public, government, other medical specialists, and related organizations. AAO-HNS provides leaflets and geographic lists of physicians to the public at no charge. Holds annual meeting; contact AAO-HNS for date and location. AAO-HNS provides a professional bulletin, journal, directory, books, and other materials. Professional/consumer publications are available online and in print, with some in Spanish.

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American Auditory Society (AAS)

President: Timothy Trine, Ph.D.
Executive Director: Darla M. Eastlack
Address: 19 Mantua Road
Voice: (856) 423-3118
Fax: (856) 423-3420
Last updated: 2011 Jun 30

Description:
The purpose of the American Auditory Society (AAS) is to increase knowledge and understanding of the ear, hearing, and balance; their disorders and how to prevent them; and habilitation and rehabilitation of individuals with hearing and balance dysfunction. AAS coordinates and disseminates information, particularly through regular meetings, sponsorships, and publication of a professional journal and newsletter and other informational materials. Holds annual meeting; contact AAS for date and location.

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American Hearing Research Foundation (AHRF)

Executive Director: Sharon Parmet
Executive Director: Sharon Parmet
Address: 8 South Michigan Avenue, Suite 814
Voice: (312) 726-9670
Fax: (312) 726-9695
Last updated: 2011 Jun 30

Description:
The American Hearing Research Foundation (AHRF) is a nonprofit organization. Its purposes are to promote, conduct, and furnish financial assistance for medical research into the causes, prevention, and cure of deafness, impaired hearing, and balance disorders. See the AHRF website for additional information.

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American Neurotology Society (ANS)

President: Jeffrey T. Vrabec, M.D.
Public Information Contact: Kristen Bordignon, Administrator
Address: Administrative Office, 1980 Warson Road
Voice: (217) 638-0801
Fax: (217) 679-1677
Last updated: 2011 Jun 30

Description:
The American Neurotology Society (ANS) is composed of physicians and audiologists devoted to the fields of neurotology and otology. The purpose of ANS is to exchange and disseminate information about the physiology, pathology, and clinical management of the sensorineural systems of audition and equilibrium, and to stimulate education and basic and clinical research relating to these systems. Holds two scientific meetings per year, which are open to anyone in the health sciences and particularly to individuals with major interest areas in hearing and balance. For meeting dates and locations, contact the ANS administrative office.

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American Speech-Language-Hearing Association (ASHA)

Executive Director: Arlene A. Pietranton, Ph.D., C.A.E.
Public Information Contact: ASHA Action Center
Address: 2200 Research Boulevard
Voice: (301) 296-5700
Toll-free Voice: (800) 638-8255
TTY: (301) 296-5650
Last updated: 2014 May 5

Description:
The mission of the American Speech-Language-Hearing Association (ASHA) is to promote the interests of and provide the highest quality services for professionals in audiology, speech-language pathology, and speech and hearing science, and to advocate for people with communication disabilities. Holds annual conference; contact ASHA for date and location. Professional brochures/pamphlets, journals, and professional/consumer online publications are available. Some materials are available in Spanish.

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Association for Research in Otolaryngology (ARO)

President: Jay T. Rubenstein, M.D., Ph.D.
Executive Director: Haley Brust
Address: 19 Mantua Road
Voice: (856) 423-0041
Fax: (856) 423-3420
Last updated: 2014 May 5

Description:
The Association for Research in Otolaryngology (ARO) is an international scientific society of researchers who investigate basic science and clinical problems associated with hearing, speech, balance, taste and smell, and diseases of the head and neck. ARO’s goals are to encourage both basic and clinical research in the broad field of otolaryngology and related areas and to foster friendly assembly and stimulate scientific interest among its members. Holds mid-winter research meeting; contact ARO for date and location.

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Audiology and Speech Pathology Services, U.S. Department of Veterans Affairs (VA)

Director: Lucille B. Beck, Ph.D.
Public Information Contact: Cathy Greener
Address: VA Medical Center, 50 Irving Street, NW
Voice: (202) 745-8578
Voice: (202) 745-8270
Fax: (202) 745-8579
Last updated: 2014 Apr 29

Description:
Audiology and Speech Pathology Services of the U.S. Department of Veterans Affairs (VA) provides high-quality, comprehensive, state-of-the-art clinical services to eligible veterans. Diagnostic and treatment services are offered in a timely manner and in an environment that fosters respect, communication, and compassion. Audiology services include evaluation and treatment of hearing loss and tinnitus, along with assessment of balance problems and, in some locations, balance rehabilitation. Diagnostic auditory and vestibular assessment, provision of hearing aids and assistive and alerting devices, cochlear implant management, and auditory rehabilitation also are available. Speech pathology services include evaluation and treatment of speech, language, voice, and swallowing disorders.

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Centers for Medicare and Medicaid Services (CMS)

Acting Administrator: Charlene Frizzera
Public Information Contact: Peter Ashkenaz, Acting Director
Address: 7500 Security Boulevard
Voice: (410) 786-3000
Voice: (202) 690-6145
Toll-free Voice: (877) 267-2323
Last updated: 2011 Jun 30

Description:
The Centers for Medicare and Medicaid Services (CMS) is a federal agency with responsibilities that include the Medicare and Medicaid programs, two national health care programs benefiting about 75 million Americans; the State Children’s Health Insurance Program; regulation of all non-research laboratory testing performed on humans in the United States; and programs assisting millions of Americans and small companies in obtaining health insurance coverage. The website www.cms.gov targets health care providers and the public, while www.medicare.gov offers information about services to beneficiaries. Publications are available.

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CHERAB Foundation

Founder: Lisa Geng
Address: P.O. Box 8524
Voice: (772) 335-5135
Last updated: 2011 Jun 30

Description:
The CHERAB Foundation (CHERAB) is a worldwide nonprofit organization that helps individuals with speech and language delays and disorders through communication help, education, and research that is apraxia-based. Its area of emphasis is verbal and oral apraxia, which are severe neurologically based speech and language disorders that hinder children's ability to speak. The foundation is committed to assisting with the development of new therapeutic approaches to, and prevention and cure of, neurologically based speech disorders. CHERAB brings together parents and medical, research, and educational professionals to help give a voice to all. Sign up to receive updates at http://twitter.com/TheLateTalker.

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Clearinghouse on Disability Information, Office of Special Education and Rehabilitative Services (OSERS)

Director of Communications/Customer Service Team: James Button
Public Information Contact: Carolyn Corlett
Address: 550 12th Street, SW, Room 5133
Voice: (202) 245-7307
TTY: (202) 205-5637
Fax: (202) 245-7636
Last updated: 2011 Jun 30

Description:
The Clearinghouse on Disability Information, a service of the U.S. Department of Education, responds to people with disabilities and others who request information by conducting research and providing documents related to federal funding available for disability-related programs. Clearinghouse staff members also may refer requests to other sources of disability-related information. Information provided may be useful to disabled individuals and their families, schools and universities, teachers and school administrators, and organizations who serve people with disabilities.

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Council of Academic Programs in Communication Sciences and Disorders (CAPCSD)

President: Ken Apel
Executive Director: Mary Chavez Rudolph, Ph.D.
Address: 3000 So. Jamaica Ct., Suite 390
Voice: (303) 835-9089
Fax: (800) 805-5932
Last updated: 2014 May 5

Description:
The Council of Academic Programs in Communication Sciences and Disorders (CAPCSD) is an organization of university programs in speech-language pathology; audiology; and speech, language, and hearing sciences. It represents more than 2,000 faculty and administrators from universities in the United States and abroad. CAPCSD advocates for academic programs in communication sciences and disorders and facilitates information exchange among programs and personnel. It also serves as an advisory group to professional associations, legislative bodies, and government agencies. Holds annual conference; contact CAPCSD for date and location. A professional directory, brochures/pamphlets, and reports are available.

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Disability Rights Section, Civil Rights Division, U.S. Department of Justice (DOJ)

Public Information Contact: Information Specialists
Address: 950 Pennsylvania Avenue, NW
Toll-free Voice: (800) 514-0301
Toll-free TTY: (800) 514-0383
Fax: (202) 514-0404
Last updated: 2011 Jun 30

Description:
The Disability Rights Section (DRS) is part of the Civil Rights Division of the U.S. Department of Justice (DOJ). DRS focuses on all disabilities and is especially knowledgeable about the interpretation of the Americans with Disabilities Act of 1990. The organization offers an information line for all inquiries as well as assistance to state and local government entities, private-sector business professionals, and the general public. Fact sheets, brochures/pamphlets, online publications, and a professional report are available. Some materials in Spanish and other languages are available.

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Easter Seals, Inc.

President/Chief Executive Officer: James E. Williams, Jr.
Information and Referral Specialist: Rosemary Garza
Address: 233 South Wacker Drive, Suite 2400
Voice: (312) 726-6200
Toll-free Voice: (800) 221-6827
TTY: (312) 726-4258
Fax: (312) 726-1494
Last updated: 2011 Jun 30

Description:
The mission of Easter Seals, Inc., is to create solutions that change the lives of children and adults with disabilities and their families. Easter Seals operates 450 sites in the United States. Its primary services are medical rehabilitation with early intervention, physical therapy, occupational therapy, speech therapy, job training and employment, children’s services (including inclusive childcare), adult and senior services, camping, recreation, and respite.

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Hearing Health Foundation

Executive Director: Andrea Boidman
Address: 363 Seventh Avenue, 10th Floor
Voice: (212) 257-6140
Toll-free Voice: (866) 454-3924
TTY: (888) 435-6104
Toll-free TTY: (888) 435-6104
Fax: (212) 257-6139
Internet: http://hhf.org
Last updated: 2014 Apr 30

Description:
Hearing Health Foundation is the largest private funder of hearing research, with a mission to prevent and cure hearing loss through groundbreaking research. Since 1958, Hearing Health Foundation has given away millions of dollars to hearing and balance research, including work that led to cochlear implant technology and now through the Hearing Restoration Project is working on a cure for hearing loss. Hearing Health Foundation also publishes Hearing Health magazine, a free consumer resource on hearing loss and related technology, research, and products. To learn more, subscribe to our magazine, or support this work, visit www.hhf.org.

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Job Accommodation Network (JAN)

Co-directors: Anne Hirsh and Lou Orslene
Address: P.O. Box 6080
Toll-free Voice: (800) 526-7234 or (800) ADA-WORK (232-9675)
Toll-free TTY: (877) 781-9403
Fax: (304) 293-5407
Last updated: 2011 Jun 30

Description:
The Job Accommodation Network (JAN) is funded by the U.S. Department of Labor’s Office of Disability Employment Policy. JAN is an information and consulting service that provides users with individualized solutions for workplace accommodations. JAN also provides information regarding the Americans with Disabilities Act, the Rehabilitation Act, and other disability-related legislation. In addition, JAN consultants have access to a vast network of resources, organizations, support groups, government agencies, and more that can provide assistance to persons with disabilities. JAN is used primarily by employers, rehabilitation professionals, and individuals with disabilities. All services are free and confidential. Professional/consumer publications are available.

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MdDS Balance Disorder Foundation

President: Marilyn Josselyn
Foundation Board Member: Linda McManus
Address: 22406 Shannondell Drive
Voice: (610) 382-2060
Fax: (210) 641-6077
Last updated: 2011 Jun 30

Description:
The MdDS Balance Disorder Foundation is an international, all-volunteer 501(c)(3) organization that seeks to promote awareness of, find a cure for, and assist patients suffering with MdDS. Mal de debarquement syndrome (MdDS) or disembarkment syndrome is a rare disorder of perceived motion that most often develops after an ocean cruise or other type of travel or motion experience. More common in females, MdDS symptoms include persistent and long-lasting sensations of motion (rocking, swaying, or bobbing); this perceived motion is associated with fatigue, imbalance, and impaired cognitive function. MdDS is frequently misdiagnosed or goes undiagnosed because many in the health care community are unaware. Unfortunately, effective MdDS treatments/therapies are lacking and the cause of MdDS remains unknown.

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National AMBUCS, Inc.

Executive Director: Joseph Copeland
Address: P.O. Box 5127
Voice: (336) 852-0052
Fax: (336) 852-6830
Last updated: 2011 Jun 30

Description:
The mission of National AMBUCS, Inc., is to create mobility and independence for people with disabilities. AMBUCS members are committed to performing valuable civic service and improving their communities. Some of our programs include home ramp building for people in wheel chairs and the funding of college scholarships for therapists. One of our most successful programs in recent years has been the distribution of the AmTryke® therapeutic tricycle.

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National Center for Health Statistics, Centers for Disease Control and Prevention (CDC)

Acting Director: Charles J. Rothwell, M.S., M.B.A.
Address: 3311 Toledo Road, Room 7204
Voice: (301) 458-4000
Toll-free Voice: (866) 441-NCHS (6247)
Last updated: 2014 May 5

Description:
The National Center for Health Statistics (NCHS), part of the Centers for Disease Control and Prevention (CDC), compiles statistical information to help guide policies to improve the health of Americans. Holds a biennial data user conference; consult the NCHS website for date and location. NCHS disseminates data and statistics online and in print.

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National Dissemination Center for Children with Disabilities (NICHCY)

Director: Elaine M. Mulligan
Address: 1825 Connecticut Avenue, NW
Voice: (202) 884-8200
Toll-free Voice: (800) 695-0285
TTY: (202) 884-8200
Toll-free TTY: (800) 695-0285
Fax: (202) 884-8441
Last updated: 2014 May 5

Description:
The National Dissemination Center for Children with Disabilities (NICHCY) is a national information and referral center that provides information on disabilities and disability-related issues to families, educators, and other professionals. With a special focus on children and young adults ages birth to 22, NICHCY answers questions in both English and Spanish. Fact sheets on specific disabilities, state resource sheets, and information about the Individuals with Disabilities Education Act are available. All NICHCY publications are available online at nichcy.org/publications.

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National Institute on Deafness and Other Communication Disorders (NIDCD)

Director: James F. Battey, Jr., M.D., Ph.D.
Public Information Contact: Susan Dambrauskas, Chief, Office of Health Communication and Public Liaison
Address: Office of Health Communication and Public Liaison, 31 Center Drive, MSC 2320
Voice: (301) 496-7243
Toll-free Voice: (800) 241-1044
Toll-free TTY: (800) 241-1055
Fax: (301) 402-0018
Last updated: 2011 Jun 30

Description:
The National Institute on Deafness and Other Communication Disorders (NIDCD), one of the National Institutes of Health, supports and conducts research and research training on the normal and disordered processes of hearing, balance, taste, smell, voice, speech, and language. The NIDCD develops health information based on scientific discovery and disseminates it to the public. In October 2008, the NIDCD launched It's a Noisy Planet. Protect Their Hearing (www.noisyplanet.nidcd.nih.gov). This national campaign is designed to increase awareness among parents of youth ages 8 to 12 about the causes and prevention of noise-induced hearing loss. The NIDCD provides a toll-free telephone service through its information clearinghouse. Fact sheets, brochures, teaching curricula, and reports are available, with many in Spanish.

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National Institute on Deafness and Other Communication Disorders (NIDCD) Information Clearinghouse

Project Officer: Susan Dambrauskas
Address: 1 Communication Avenue
Toll-free Voice: (800) 241-1044
Toll-free TTY: (800) 241-1055
Fax: (301) 770-8977
Last updated: 2014 May 5

Description:
The National Institute on Deafness and Other Communication Disorders (NIDCD) Information Clearinghouse, a service of NIDCD, is a national resource center for health information on hearing, balance, smell, taste, voice, speech, and language for health professionals, patients, and the public.

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National Institute on Disability and Rehabilitation Research, Office of Special Education and Rehabilitative Services (OSERS)

Acting Director: Ruth Brannon
Address: 550 12th Street, SW, Room 6056
Voice: (202) 245-7640
Fax: (202) 245-7630
Last updated: 2011 Jun 30

Description:
The National Institute on Disability and Rehabilitation Research (NIDRR) is part of the Office of Special Education and Rehabilitative Services (OSERS), U.S. Department of Education. NIDRR supports a comprehensive program of national and international research into all aspects of the rehabilitation of people with disabilities and their successful integration into education, work, and community life. Grants are awarded to institutions of higher education and qualified organizations; the fellowship program provides grants to individuals with advanced rehabilitation credentials. NIDRR administers the Interagency Committee on Disability Research. An online directory of projects and publications is available.

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National Organization for Rare Disorders (NORD)

President/CEO: Peter L. Saltonstall
Vice President, Information Services: Mary Dunkle, Vice President for Communications
Address: 55 Kenosia Avenue
Voice: (203) 744-0100
Toll-free Voice: (800) 999-6673
TTY: (203) 797-9590
Fax: (203) 798-2291
Last updated: 2014 May 1

Description:
The National Organization for Rare Disorders (NORD) is a nonprofit voluntary health agency that serves as a clearinghouse for information on rare disorders. A rare disorder is a disease or condition that affects fewer than 200,000 Americans. Cumulatively, there are more than 6,000 rare diseases affecting more than 25 million Americans. NORD is committed to the identification, treatment, and cure of rare diseases through education, advocacy, research, and service programs. NORD administers medication assistance programs for certain rare-disease drugs as well as research grants and fellowships.

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National Rehabilitation Information Center (NARIC)

Project Director: Mark X. Odum
Public Information Contact: Catherine Graves, Library Information Specialist II
Address: 8201 Corporate Drive, Suite 600
Voice: (301) 459-5900
Toll-free Voice: (800) 346-2742
TTY: (301) 459-5984
Fax: (301) 459-4263
Last updated: 2011 Jun 30

Description:
The National Rehabilitation Information Center (NARIC) is a library and information center focusing on disability and rehabilitation research. NARIC’s collection contains more than 40,000 documents, both federally funded and commercially produced. NARIC’s information specialists provide quick information and referrals, customized database searches, and document delivery. Internet users can access NARIC’s databases, bulletins, and a live reference chat service at the NARIC website. Referral sheets, general information packets, and customized literature searches are available.

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National Service Animal Center (NSAC)

President/CEO: Lawrence L. Norvell
Information and Resources: Michelle Cobey
Address: 875 124th Avenue, NE, #101
Voice: (425) 679-5500
Fax: (425) 679-5539
Last updated: 2011 Jun 30

Description:
The National Service Animal Resource Center, a department of the Delta Society, provides information through its website about the selection, training, stewardship, and roles of service dogs; referral to service-dog training programs and related resources; education for businesses, health care professionals, and the general public on service-dog issues; and self-advocacy on behalf of people with service dogs.

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National Temporal Bone, Hearing, and Balance Pathology Resource Registry

Director: Joseph B. Nadol, Jr., M.D.
Public Information Contact: Nicole Pelletier, Registry Coordinator
Address: Massachusetts Eye and Ear Infirmary, 243 Charles Street
Voice: (617) 573-3711
Toll-free Voice: (800) 822-1327
Toll-free TTY: (800) 439-0183
Fax: (617) 573-3838
Last updated: 2011 Jun 30

Description:
The National Temporal Bone, Hearing, and Balance Pathology Resource Registry, which is sponsored by the National Institute on Deafness and Other Communication Disorders, promotes research into hearing and balance disorders through the study of the temporal bone and related brain structures. The registry maintains a computerized database of all U.S. temporal bone collections, disseminates information on temporal bone donation, enrolls individuals with hearing/balance disorders as temporal bone donors, educates professionals about temporal bone research, and conserves at-risk collections. Free searches of the registry’s database are available to interested otopathologic researchers. A professional/consumer newsletter, brochures/pamphlets, and online publications are available.

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Neurofibromatosis Network

President: Cheri Stewart
Address: 213 Wheaton Avenue
Voice: (630) 510-1115
Last updated: 2014 May 5

Description:
Neurofibromatosis, Inc., (NF, Inc.) is a national nonprofit organization dedicated to all people affected by neurofibromatosis (NF) and other related disorders. NF, Inc., distributes materials on NF1 and NF2; promotes national, state, and local community involvement; supports research; has a governing board with NF2 representation; and provides real-time captioning at meetings. A toll-free helpline and website provide access to peer counseling and information 24 hours a day. A professional directory and professional/consumer publications are available.

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NISH

President/CEO: E. Robert Chamberlin
Public Information Contact: Nancyellen Gentile, Vice President of Corporate Communications, Marketing, and Government Affairs
Address: 8401 Old Courthouse Road
Voice: (571) 226-4660
TTY: (703) 560-6512
Fax: (703) 849-8916
Last updated: 2014 May 5

Description:
NISH is one of two national, nonprofit agencies designated by the U.S. AbilityOne Commission to enable the creation of employment opportunities for people with significant disabilities. NISH works through a national network of over 550 nonprofit agencies that provide products and services to the Federal Government; contracts range from custodial and food serves to secure document destruction and facilities management. NISH also provides legislative and regulatory assistance, engineering and technical assistance, and extensive professional training.

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Vestibular Disorders Association (VEDA)

Executive Director: Cynthia Ryan
Address: 5108 NE 15th Avenue
Voice: (503) 229-7705
Toll-free Voice: (800) 837-8428
Fax: (503) 229-8064
Last updated: 2014 May 5

Description:
The Vestibular Disorders Association (VEDA) is a nonprofit organization that provides information, support, and advocacy to people with vestibular disorders and the health professionals who treat them. Such disorders include labyrinthitis, benign paroxysmal positional vertigo (BPPV), Ménière’s disease, Mal de Debarquement, ototoxicity, and perilymph fistula. Frequently reported symptoms of these disorders are dizziness, unsteadiness or imbalance, vertigo, nausea, hearing loss, visual disturbances, and tinnitus. A provider directory of health care specialists, a support group directory, resource library, and more are available on our website. Membership benefits include a quarterly newsletter and access to our member support network.

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Virginia Merrill Bloedel Hearing Research Center (VMBHRC)

Director: Jay Rubinstein, M.D., Ph.D.
Business Development Manager: Carolyn Higgins
Address: University of Washington, Box 357923
Voice: (206) 685-2962
Voice: (206) 616-4105
Fax: (206) 616-1828
Last updated: 2011 Jun 30

Description:
The Virginia Merrill Bloedel Hearing Research Center (VMBHRC) at the University of Washington conducts interdisciplinary research on hearing, hearing loss, and related communication disorders. Through its diverse programs that foster national and international collaboration between top experts in the field, the center advances the fight against deafness and disequilibrium on the fronts of protection, intervention, and regeneration. The center provides invaluable support to patients, the scientific community, and the general public.

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