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  • Smell and Taste

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American Academy of Facial Plastic and Reconstructive Surgery, Inc. (AAFPRS)

Executive Vice President: Stephen Duffy
Public Information Contact: Rita Chua Magness, Director of Publications and Marketing
Address: 310 South Henry Street, Alexandria, VA, 22314
Voice: (703) 299-9291
Fax: (703) 299-8898
E-mail: info@aafprs.org
Internet: www.aafprs.org

Description:
The American Academy of Facial Plastic and Reconstructive Surgery, Inc., (AAFPRS) is the largest association of facial plastic and reconstructive surgeons in the world. The academy’s bylaws provide that AAFPRS fellows be board-certified surgeons with training and experience in facial plastic surgery as well as fellows of the American College of Surgeons or the Royal College of Surgeons. The AAFPRS Web site provides visitors with information about facial plastic surgery and the names of AAFPRS fellows in their area. Professional and consumer publications are available, with some in Spanish.

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American Academy of Otolaryngology--Head and Neck Surgery (AAO-HNS)

Executive Vice President: David R. Nielsen, M.D.
Public Information Contact: Jeanne McIntyre, Director of Communications
Address: 1650 Diagonal Road, Alexandria, VA, 22314-2857
Voice: (703) 836-4444
Fax: (703) 683-5100
E-mail: webmaster@entnet.org
Internet: www.entnet.org

Description:
The nonprofit American Academy of Otolaryngology—Head and Neck Surgery (AAO-HNS) strives to unite, serve, and represent the interests of ear, nose, and throat specialists and their patients to the public, government, other medical specialists, and related organizations. AAO-HNS provides leaflets and geographic lists of physicians to the public at no charge. Holds annual meeting; contact AAO-HNS for date and location. AAO-HNS provides a professional bulletin, journal, directory, books, and other materials. Professional/consumer publications are available online and in print, with some in Spanish.

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American Cleft Palate-Craniofacial Association (ACPA) and Cleft Palate Foundation (CPF)

Executive Director: Nancy C. Smythe
Public Information Contact: Lisa Gist, Cleftline Manager
Address: 1504 East Franklin Street, Suite 102, Chapel Hill, NC, 27514
Voice: (919) 933-9044
Toll-free Voice: (800) 24-CLEFT (2-5338)
Fax: (919) 933-9604
E-mail: CPF E-mail: info@cleftline.org
E-mail: ACPA E-mail: info@acpa-cpf.org
Internet: www.cleftline.org / www.acpa-cpf.org

Description:
The American Cleft Palate-Craniofacial Association (ACPA) is an international nonprofit association of more than 2,500 health care professionals who are involved in the treatment and research of cleft lip, cleft palate, and other craniofacial abnormalities. ACPA optimizes the interdisciplinary care of persons affected by craniofacial abnormalities. The Cleft Palate Foundation (CPF), which is the public service arm of ACPA, educates and assists the public regarding craniofacial anomalies and encourages research in the field. Holds annual convention; contact ACPA or CPF for date and location. A directory and professional/consumer fact sheets and brochures are available, with some in Spanish.

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Agency for Healthcare Research and Quality (AHRQ)

Director: Carolyn Clancy, M.D.
Public Information Contact: Kevin Murray
Address: 540 Gaither Road, Rockville, MD, 20850
Voice: (301) 427-1853
Toll-free Voice: (800) 358-9295
Toll-free TTY: (888) 586-6340
E-mail: info@ahrq.gov
Internet: www.ahrq.gov

Description:
The Agency for Healthcare Research and Quality (AHRQ) provides practical health care information, research findings, and data to help consumers, health providers, health insurers, researchers, and policymakers make informed decisions about health care issues. A professional/consumer newsletter/bulletin, fact sheets, brochures/pamphlets, online publications, and professional reports are available. Some Spanish materials are available.

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Association for Chemoreception Sciences (AChemS)

Associate Executive Director: Tisha Kehn
Address: 5841 Cedar Lake Road, Suite 204, Minneapolis, MN, 55416
Voice: (952) 646-2035
Fax: (952) 545-6073
E-mail: info@achems.org
Internet: www.achems.org

Description:
The Association for Chemoreception Sciences (AChemS) is an international association that advances understanding of the senses of taste and smell. It encourages basic, clinical, and applied research in the chemical senses (gustation, olfaction, and trigeminal sensation); promotes an appreciation of chemosensory research; represents the interests of the chemosensory research community; and serves as a resource for those requiring chemosensory expertise. Holds annual meeting; contact AChemS for date and location. A professional newsletter and directory are available.

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Association for Research in Otolaryngology (ARO)

President: P. Ashley Wackym, M.D.
Public Information Contact: Darla M. Dobson, Executive Director
Address: 19 Mantua Road, Mt. Royal, NJ, 08061
Voice: (856) 423-0041
Fax: (856) 423-3420
E-mail: headquarters@aro.org
Internet: www.aro.org

Description:
The Association for Research in Otolaryngology (ARO) is an international scientific society of researchers who investigate basic science and clinical problems associated with hearing, speech, balance, smell and taste, and diseases of the head and neck. ARO’s goals are to encourage both basic and clinical research in the broad field of otolaryngology and related areas and to foster friendly assembly and stimulate scientific interest among its members. Holds mid-winter research meeting; contact ARO for date and location.

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CHERAB Foundation

Founder: Lisa Geng
Address: P.O. Box 8524, Port St. Lucie , FL, 34952
Voice: (772) 335-5135
Fax: (772) 337-4812
E-mail: help@cherab.org
Internet: www.cherab.org / www.speechville.com

Description:
The CHERAB Foundation (CHERAB) is a worldwide nonprofit organization that helps individuals with speech and language delays and disorders through communication help, education, and research that is apraxia-based. Its area of emphasis is verbal and oral apraxia—severe neurologically based speech and language disorders that hinder children’s ability to speak. The foundation is committed to assisting with the development of new therapeutic approaches to, and prevention and cure of, neurologically based speech disorders. CHERAB brings together parents and medical, research, and educational professionals to help give a voice to all.

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Centers for Medicare and Medicaid Services (CMS)

Acting Deputy Administrator: Herb Kuhn
Public Information Contact: Jeff Nelligan, Director of Media Affairs
Address: 7500 Security Boulevard, Baltimore, MD, 21244-1850
Voice: (410) 786-3000
Voice: (202) 690-6145
Toll-free Voice: (877) 267-2323
Internet: www.cms.gov / www.medicare.gov

Description:
The Centers for Medicare and Medicaid Services (CMS) is a federal agency with responsibilities that include the Medicare and Medicaid programs, two national health care programs benefiting about 75 million Americans; the State Children’s Health Insurance Program; regulation of all non-research laboratory testing performed on humans in the United States; and programs assisting millions of Americans and small companies in obtaining health insurance coverage. The Web site www.cms.gov targets health care providers and the public, while www.medicare.gov offers information about services to beneficiaries. Publications are available.

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Gallaudet University (GU) and Laurent Clerc National Deaf Education Center

President: Robert Davila, Ph.D.
Address: 800 Florida Avenue, NE, Washington, DC, 20002-3695
Voice: (202) 651-5000
TTY: (202) 651-5000
Fax: (202) 651-5704
E-mail: public.relations@gallaudet.edu
Internet: www.gallaudet.edu

Description:
Gallaudet University (GU) is the world’s only university in which all programs and services are specifically designed to accommodate deaf and hard-of-hearing students. The Kendall Demonstration Elementary School serves infants through eighth grade, and the Model Secondary School for the Deaf offers programs in grades nine through 12. The Research Institute is a leading center for research on deafness. National and international programs, including regional extension centers, conferences, sign language classes, summer programs, and international outreach, annually serve approximately 33,000 people. professional/consumer publications and computer software/assisted education are available.

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Monell Chemical Senses Center

Director/President: Gary K. Beauchamp, Ph.D.
Public Information Contact: Leslie Stein, Ph.D.
Address: 3500 Market Street, Philadelphia, PA, 19104
Voice: (267) 519-4700
Fax: (267) 519-4702
E-mail: mcsc@monell.org
Internet: www.monell.org

Description:
The Monell Chemical Senses Center is the world’s only nonprofit basic research institute devoted to the study of taste, smell, and chemical irritation. Its research focuses on fundamental knowledge about the chemical senses as well as their relationship to significant public health and quality-of-life issues across the lifespan, including obesity, diabetes, hypertension, pediatric health, occupational safety, and environmental pollution. Monell’s Chemosensory Clinical Research Center, funded by the National Institutes of Health and administered in collaboration with Thomas Jefferson Hospital, evaluates individuals with chemosensory disorders. The center has an education and training program for postdoctoral scientists, senior scientists, and graduate students. Monell is a resource for information about the chemical senses for medical professionals, the media, and academics. A newsletter is available.

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National Institute on Deafness and Other Communication Disorders (NIDCD)

Director: James F. Battey, Jr., M.D., Ph.D.
Public Information Contact: Patricia Blessing, Chief, Office of Health Communication and Public Liaison
Address: Office of Health Communication and Public Liaison, 31 Center Drive, MSC 2320, Bethesda, MD, 20892-2320
Voice: (301) 496-7243
Toll-free Voice: (800) 241-1044
Toll-free TTY: (800) 241-1055
Fax: (301) 402-0018
E-mail: nidcdinfo@nidcd.nih.gov
Internet: www.nidcd.nih.gov

Description:
The National Institute on Deafness and Other Communication Disorders (NIDCD), one of the National Institutes of Health, supports and conducts research and research training on the normal and disordered processes of hearing, balance, smell, taste, voice, speech, and language. NIDCD develops health information based on scientific discovery and disseminates it to health professionals, patients, educators, industry, and the general public. Since 1999, NIDCD has overseen WISE EARS!®, a national public education campaign to prevent noise-induced hearing loss. Currently, NIDCD is expanding its campaign efforts to reach youth ages eight to 12. NIDCD provides a toll-free telephone service through its information clearinghouse. Fact sheets, brochures, teaching curricula, and reports are available, with many in Spanish.

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National Rehabilitation Information Center (NARIC)

Project Director: Mark X. Odum
Public Information Contact: Catherine Graves, Library Information Specialist II
Address: 8201 Corporate Drive, Suite 600, Landover, MD, 20785
Voice: (301) 459-5900
Toll-free Voice: (800) 346-2742
TTY: (301) 459-5984
Fax: (301) 459-4263
E-mail: naricinfo@heitechservices.com
Internet: www.naric.com

Description:
The National Rehabilitation Information Center (NARIC) is a library and information center focusing on disability and rehabilitation research. NARIC’s collection contains more than 40,000 documents, both federally funded and commercially produced. NARIC’s information specialists provide quick information and referrals, customized database searching, and document delivery. Internet users can access NARIC’s databases, bulletins, and a live reference chat service at the NARIC Web site. Referral sheets, general information packets, and customized literature searches are available.

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National Center for Health Statistics (NCHS), Centers for Disease Control and Prevention (CDC)

Director: Edward J. Sondik, Ph.D.
Address: 3311 Toledo Road, Hyattsville, MD, 20782
Voice: (301) 458-4000
Toll-free Voice: (866) 441-NCHS (6247)
Fax: (301) 458-4027
E-mail: nchsquery@cdc.gov
Internet: www.cdc.gov/nchs

Description:
The National Center for Health Statistics (NCHS), part of the Centers for Disease Control and Prevention (CDC), compiles statistical information to help guide policies to improve the health of the American people. Holds a biennial data user conference; consult the NCHS Web site for date and location. NCHS disseminates data and statistics online and in print.

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Rocky Mountain Taste and Smell Center

Director: Thomas E. Finger, Ph.D.
Public Information Contact: Miriam Linschoten, Ph.D.
Address: Box B205, University of Colorado Health Sciences Center, 4200 East Ninth Avenue, Denver, CO, 80262
Voice: (303) 315-6600
Fax: (303) 315-8787
E-mail: miriam.linschoten@uchsc.edu
Internet: www.uchsc.edu/rmtsc/

Description:
The Rocky Mountain Taste and Smell Center (RMTSC) brings together multidisciplinary investigators to examine the fundamental cellular processes that underlie the chemical senses, including their dysfunctions and clinical implications. The program includes collaborative, multifaceted studies on the neurobiology of the senses of taste and smell in humans and other vertebrates, with a focus on elucidating basic biological and clinical problems related to chemical senses. The center receives support from the National Institute on Deafness and Other Communication Disorders.

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Society for Ear, Nose, and Throat Advances in Children (SENTAC)

President: Seth Pransky, M.D.
Address: Children's Hospital of San Diego, 3030 Children's Way, San Diego, CA, 92123
Voice: (760) 942-9965
Fax: (760) 942-7305
E-mail: spransky@chsd.org
Internet: www.sentac.org

Description:
The Society of Ear, Nose, and Throat Advances in Children (SENTAC) is an interdisciplinary society of health professionals who share an interest in ear, nose, and throat diseases in children, including communication disorders. Its membership includes physicians, nurses, speech therapists, audiologists, and social workers. The annual meeting provides a forum for the presentation and exchange of ideas and information; contact SENTAC for date and location. A professional newsletter, directory, and brochures are available.

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Society of Otorhinolaryngology and Head-Neck Nurses, Inc. (SOHN)

Executive Director: Sandra Schwartz, M.S., R.N., CORLN
Address: 202 Julia Street, New Smyrna Beach, FL, 32168
Voice: (386) 428-1695
Fax: (386) 423-7566
E-mail: sohnnet@aol.com
Internet: www.sohnnurse.com

Description:
The Society of Otorhinolaryngology and Head-Neck Nurses, Inc., (SOHN), an organization of professional registered nurses, promotes continuing education opportunities within the field of otorhinolaryngology nursing and endorses professional standards for clinical practice and research. Holds annual congress and symposium; contact SOHN for date and location. A professional newsletter and journal are available.

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The Triological Society (formerly the American Laryngological, Rhinological, and Otological Society)

Executive Secretary: Patrick E. Brookhouser, M.D.
Administrator: Gail Binderup
Address: 555 North 30th Street, Omaha, NE, 68131
Voice: (402) 346-5500
Fax: (402) 346-5300
E-mail: info@triological.org
Internet: www.triological.org

Description:
The Triological Society is an international society of otolaryngologists and head and neck surgeons. The society provides continuing education opportunities for its members through its meetings. Holds an annual meeting as well as four section meetings each year; contact the society for dates and locations.

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University of Pennsylvania Smell and Taste Center

Director: Richard L. Doty, Ph.D.
Public Information Contact: Tiffany Bellamy
Address: 3400 Spruce Street, Ravdin Bldg., 5th Floor, Philadelphia, PA, 19104
Voice: (215) 662-6580
Fax: (215) 349-5266
Internet: www.med.upenn.edu/stc

Description:
The University of Pennsylvania Smell and Taste Center has three primary goals: to provide clinical evaluation, treatment, and counseling for patients experiencing smell and taste disorders; to provide facilities and intellectual focus for research in basic and applied aspects of chemosensation; and to provide training for students, doctoral-level scientists, and other professionals interested in chemoreception sciences. Professional/consumer brochures are available.

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UConn Taste and Smell Clinic

Program Director: Norman Mann, Ph.D.
Address: University of Connecticut Health Center, Taste and Smell Clinic, 263 Farmington Avenue, MC 1718, Farmington, CT, 06030-1718
Voice: (860) 679-2459
Fax: (860) 679-4760
E-mail: tasteandsmell@neuron.uchc.edu
Internet: www.uchc.edu/uconntasteandsmell/

Description:
The UConn Taste and Smell Clinic is run by a multidisciplinary team of clinicians dedicated to developing ways to evaluate and treat patients with chemosensory disorders. Data from the evaluation enable the clinic to maintain an extensive research database on chemosensory problems. The UConn Taste and Smell Clinic was established with funding from the National Institute on Deafness and Other Communication Disorders. Professional/consumer print and online publications are available.

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