NIDCD - Directory of Organizations

Change text size: S M L

Home › Health Information > Directory of Organizations

Directory of Organizations

Your search provided 35 results for

Voice

Show summary of results.

American Speech-Language-Hearing Association (ASHA)

Executive Director: Arlene A. Pietranton, Ph.D.
Public Information Contact: Action Center
Address: 2200 Research Blvd., Rockville, MD, 20850
Toll-free Voice: (800) 638-8255
Toll-free TTY: (800) 638-8255
E-mail: actioncenter@asha.org
Internet: www.asha.org

Description:
The mission of the American Speech-Language-Hearing Association (ASHA) is to promote the interests of and provide the highest quality services for professionals in audiology, speech-language pathology, and speech and hearing science, and to advocate for people with communication disabilities. Holds annual conference; contact ASHA for date and location. Professional brochures/pamphlets, journals, and professional/consumer online publications are available. Some Spanish materials are available.

American Speech-Language-Hearing Foundation (ASHFoundation)

Executive Director: Nancy J. Minghetti
Public Information Contact: Emily Diaz
Address: 2200 Research Blvd., Rockville, MD, 20850
Voice: (301) 296-8703
E-mail: foundation@asha.org
Internet: www.ASHfoundation.org

Description:
The American Speech-Language-Hearing Foundation (ASHFoundation) supports the advancement of knowledge and the improvement of practice in serving children and adults with speech, language, or hearing disorders. ASHFoundation supports research, master’s and doctoral scholarships, and special projects that facilitate innovative directions in the field of communication sciences and disorders. This private organization is supported, in part, by the tax-deductible contributions of individuals, corporations, and organizations. See the Web site for information and funding guidelines.

Association for Research in Otolaryngology (ARO)

President: P. Ashley Wackym, M.D.
Public Information Contact: Darla M. Dobson, Executive Director
Address: 19 Mantua Road, Mt. Royal, NJ, 08061
Voice: (856) 423-0041
Fax: (856) 423-3420
E-mail: headquarters@aro.org
Internet: www.aro.org

Description:
The Association for Research in Otolaryngology (ARO) is an international scientific society of researchers who investigate basic science and clinical problems associated with hearing, speech, balance, smell and taste, and diseases of the head and neck. ARO’s goals are to encourage both basic and clinical research in the broad field of otolaryngology and related areas and to foster friendly assembly and stimulate scientific interest among its members. Holds mid-winter research meeting; contact ARO for date and location.

ABLEDATA

Director: Katherine Belknap, M.A.
Information Specialist: Juanita Hardy
Address: 8630 Fenton Street, Suite 930, Silver Spring, MD, 20910
Voice: (301) 608-8998
Toll-free Voice: (800) 227-0216
TTY: (301) 608-8912
Fax: (301) 608-8958
E-mail: abledata@orcmacro.com
Internet: www.abledata.com

Description:
The ABLEDATA project helps people who have disabilities, including communication disorders, by providing information about assistive devices, rehabilitation equipment, and other products. Resources include a database of more than 34,000 products. A database of citations of books, articles, and other resources related to assistive technology also is available, along with fact sheets, brochures, and online publications.

American Academy of Facial Plastic and Reconstructive Surgery, Inc. (AAFPRS)

Executive Vice President: Stephen Duffy
Public Information Contact: Rita Chua Magness, Director of Publications and Marketing
Address: 310 South Henry Street, Alexandria, VA, 22314
Voice: (703) 299-9291
Fax: (703) 299-8898
E-mail: info@aafprs.org
Internet: www.aafprs.org

Description:
The American Academy of Facial Plastic and Reconstructive Surgery, Inc., (AAFPRS) is the largest association of facial plastic and reconstructive surgeons in the world. The academy’s bylaws provide that AAFPRS fellows be board-certified surgeons with training and experience in facial plastic surgery as well as fellows of the American College of Surgeons or the Royal College of Surgeons. The AAFPRS Web site provides visitors with information about facial plastic surgery and the names of AAFPRS fellows in their area. Professional and consumer publications are available, with some in Spanish.

American Academy of Otolaryngology--Head and Neck Surgery (AAO-HNS)

Executive Vice President: David R. Nielsen, M.D.
Public Information Contact: Jeanne McIntyre, Director of Communications
Address: 1650 Diagonal Road, Alexandria, VA, 22314-2857
Voice: (703) 836-4444
Fax: (703) 683-5100
E-mail: webmaster@entnet.org
Internet: www.entnet.org

Description:
The nonprofit American Academy of Otolaryngology—Head and Neck Surgery (AAO-HNS) strives to unite, serve, and represent the interests of ear, nose, and throat specialists and their patients to the public, government, other medical specialists, and related organizations. AAO-HNS provides leaflets and geographic lists of physicians to the public at no charge. Holds annual meeting; contact AAO-HNS for date and location. AAO-HNS provides a professional bulletin, journal, directory, books, and other materials. Professional/consumer publications are available online and in print, with some in Spanish.

American Association for the Advancement of Science (AAAS), EntryPoint!

Director: Virginia Stern
Program Manager: Laureen Summers
Address: 1200 New York Avenue, NW, Washington, DC, 20005
Voice: (202) 326-6649
TTY: (202) 326-6649
Fax: (202) 371-9849
E-mail: lsummers@aaas.org
Internet: www.entrypoint.org

Description:
In 1975, the American Association for the Advancement of Science (AAAS) initiated the Project on Science, Technology, and Disability to improve entry and advancement in science, math, and engineering for people with disabilities. Students with disabilities and their families, professors, teachers, and counselors are linked with scientists, mathematicians, and engineers who also have disabilities and who can share their coping strategies in technical fields. Through its program EntryPoint!, the project recruits college students with disabilities who are majoring in science, engineering, mathematics, computer science, and some business fields for summer opportunities at large corporations, federal agencies, and university science laboratories.

American Broncho-Esophagological Association (ABEA)

President: Clarence Sasaki
Public Information Contact: Peter J. Koltai, M.D., Secretary
Address: Stanford University, 801 Welch Road, Stanford, CA, 94305-5739
Voice: (650) 725-6500
Voice: (801) 587-7678
Fax: (801) 585-5744
E-mail: koltai@stanford.edu
Internet: www.abea.net

Description:
The American Broncho-Esophagological Association (ABEA) is an association of physicians with interest in the function and diseases of the upper aerodigestive tract and the relevant applications of endoscopy. The goals of ABEA are to educate and update physicians in evaluating and managing aerodigestive tract disorders; stimulate and support basic and clinical research; advocate and support endoscopy training in residency and fellowship programs; and provide information useful to patients, industry, scientists, physicians, and other health care professionals at a national otolaryngology meeting.

American Cleft Palate-Craniofacial Association (ACPA) and Cleft Palate Foundation (CPF)

Executive Director: Nancy C. Smythe
Public Information Contact: Lisa Gist, Cleftline Manager
Address: 1504 East Franklin Street, Suite 102, Chapel Hill, NC, 27514
Voice: (919) 933-9044
Toll-free Voice: (800) 24-CLEFT (2-5338)
Fax: (919) 933-9604
E-mail: CPF E-mail: info@cleftline.org
E-mail: ACPA E-mail: info@acpa-cpf.org
Internet: www.cleftline.org / www.acpa-cpf.org

Description:
The American Cleft Palate-Craniofacial Association (ACPA) is an international nonprofit association of more than 2,500 health care professionals who are involved in the treatment and research of cleft lip, cleft palate, and other craniofacial abnormalities. ACPA optimizes the interdisciplinary care of persons affected by craniofacial abnormalities. The Cleft Palate Foundation (CPF), which is the public service arm of ACPA, educates and assists the public regarding craniofacial anomalies and encourages research in the field. Holds annual convention; contact ACPA or CPF for date and location. A directory and professional/consumer fact sheets and brochures are available, with some in Spanish.

American Laryngological Association (ALA)

Public Information Contact: Marvin P. Fried, M.D.
Address: Vanderbilt University Medical Center, Department of Otolaryngology, 7302 MCE South Tower, Nashville, TN, 37232
Voice: (615) 322-6326
Fax: (615) 322-9102
E-mail: maxine@alahns.org
Internet: www.alahns.org

Description:
The mission of the American Laryngological Association (ALA) is to promote education and research and to disseminate important new scientific information relative to laryngology, which is the study of basic science, evaluation, and management of disorders relating to the larynx. ALA strives to accomplish this mission by promoting and presenting the latest scientific discoveries, publishing peer-reviewed reports, establishing funding sources for pilot research studies that facilitate subsequent funding by the National Institutes of Health, and sponsoring educational seminars and courses as well as public service announcements.

Agency for Healthcare Research and Quality (AHRQ)

Director: Carolyn Clancy, M.D.
Public Information Contact: Kevin Murray
Address: 540 Gaither Road, Rockville, MD, 20850
Voice: (301) 427-1853
Toll-free Voice: (800) 358-9295
Toll-free TTY: (888) 586-6340
E-mail: info@ahrq.gov
Internet: www.ahrq.gov

Description:
The Agency for Healthcare Research and Quality (AHRQ) provides practical health care information, research findings, and data to help consumers, health providers, health insurers, researchers, and policymakers make informed decisions about health care issues. A professional/consumer newsletter/bulletin, fact sheets, brochures/pamphlets, online publications, and professional reports are available. Some Spanish materials are available.

Birth Defect Research for Children, Inc. (BDRC)

Executive Director: Betty Mekdeci
Address: 800 Celebration Avenue, Suite 225, Celebration, FL, 34747
Voice: (407) 566-8304
Fax: (407) 566-8341
E-mail: staff@birthdefects.org
Internet: www.birthdefects.org

Description:
Birth Defect Research for Children, Inc., (BDRC) provides parents and expectant parents with information about specific birth defects and their causes and treatments, support group referrals, and parent-matching services. BDRC also provides information about environmental exposures that may be associated with birth defects. To study these exposures further, BDRC sponsors the National Birth Defect Registry, an online research project that collects data on birth defects and prenatal/preconception exposures of both parents. A consumer newsletter, fact sheets, and other publications are available.

Childhood Apraxia of Speech Association of North America (CASANA)

President: Mary Sturm, M.D.
Public Information Contact: Kathy Bauer
Address: 1151 Freeport Road, #243, Pittsburgh, PA, 15238
Voice: (412) 343-7102
E-mail: helpdesk@apraxia-kids.org
Internet: www.apraxia-kids.org

Description:
Childhood Apraxia of Speech Association of North America The Childhood Apraxia of Speech Association of North America (CASANA)is the only national nonprofit 501(c)(3) charity representing the needs of children with apraxia and their families. CASANA’s goal is to provide credible, reliable, and comprehensive information on apraxia of speech in children. Guided by a professional advisory board of experts in childhood apraxia of speech, CASANA offers information and resources based on the current prevailing professional literature and expert opinion. CASANA raises awareness and provides online services, educational training, workshops for professionals and parents, and research support. Educational DVDs are available on topics that include an introduction to childhood apraxia of speech, treatment strategies for childhood apraxia of speech, and ways to help children with apraxia practice speaking at home and in the community.

Centers for Medicare and Medicaid Services (CMS)

Acting Deputy Administrator: Herb Kuhn
Public Information Contact: Jeff Nelligan, Director of Media Affairs
Address: 7500 Security Boulevard, Baltimore, MD, 21244-1850
Voice: (410) 786-3000
Voice: (202) 690-6145
Toll-free Voice: (877) 267-2323
Internet: www.cms.gov / www.medicare.gov

Description:
The Centers for Medicare and Medicaid Services (CMS) is a federal agency with responsibilities that include the Medicare and Medicaid programs, two national health care programs benefiting about 75 million Americans; the State Children’s Health Insurance Program; regulation of all non-research laboratory testing performed on humans in the United States; and programs assisting millions of Americans and small companies in obtaining health insurance coverage. The Web site www.cms.gov targets health care providers and the public, while www.medicare.gov offers information about services to beneficiaries. Publications are available.

CHERAB Foundation

Founder: Lisa Geng
Address: P.O. Box 8524, Port St. Lucie , FL, 34952
Voice: (772) 335-5135
Fax: (772) 337-4812
E-mail: help@cherab.org
Internet: www.cherab.org / www.speechville.com

Description:
The CHERAB Foundation (CHERAB) is a worldwide nonprofit organization that helps individuals with speech and language delays and disorders through communication help, education, and research that is apraxia-based. Its area of emphasis is verbal and oral apraxia—severe neurologically based speech and language disorders that hinder children’s ability to speak. The foundation is committed to assisting with the development of new therapeutic approaches to, and prevention and cure of, neurologically based speech disorders. CHERAB brings together parents and medical, research, and educational professionals to help give a voice to all.

Disability Rights Office, Consumer & Governmental Affairs Bureau, Federal Communications Commission (FCC)

Chief: Thomas Chandler
Address: 445 12th Street, SW, Washington, DC, 20554
Voice: (202) 418-2516
Toll-free Voice: (888) 225-5322
TTY: (202) 418-0189
Toll-free TTY: (888) 835-5322
Fax: (866) 418-0232
E-mail: fccinfo@fcc.gov
Internet: www.fcc.gov/cgb/dro

Description:
The Disabilities Rights Office, housed within the Consumer & Governmental Affairs Bureau at the Federal Communications Commission (FCC), ensures that FCC actions and policies enable people with disabilities to have the same access as everyone else to telecommunications. FCC implements mandates for nationwide telephone relay services, accessibility, and usability of telecommunications wireline and wireless products and services. These services include hearing aid compatibility of phones, closed captioning of television programming, and accessibility of emergency information on television.

Disability Rights Section, Civil Rights Division, U.S. Department of Justice (DOJ) Public Information Contact: Information Specialists
Address: 950 Pennsylvania Avenue, NW, Washington, DC, 20530
Toll-free Voice: (800) 514-0301
Toll-free TTY: (800) 514-0383
Fax: (202) 514-0404
Internet: www.ada.gov

Description:
The Disability Rights Section (DRS) is part of the Civil Rights Division of the U.S. Department of Justice (DOJ). DRS focuses on all disabilities and is especially knowledgeable about the interpretation of the Americans with Disabilities Act of 1990. The organization offers an information line for all inquiries as well as assistance to state and local government entities, private-sector business professionals, and the general public. Fact sheets, brochures/pamphlets, online publications, and a professional report are available. Some materials in Spanish and other languages are available.

Gallaudet University (GU) and Laurent Clerc National Deaf Education Center

President: Robert Davila, Ph.D.
Address: 800 Florida Avenue, NE, Washington, DC, 20002-3695
Voice: (202) 651-5000
TTY: (202) 651-5000
Fax: (202) 651-5704
E-mail: public.relations@gallaudet.edu
Internet: www.gallaudet.edu

Description:
Gallaudet University (GU) is the world’s only university in which all programs and services are specifically designed to accommodate deaf and hard-of-hearing students. The Kendall Demonstration Elementary School serves infants through eighth grade, and the Model Secondary School for the Deaf offers programs in grades nine through 12. The Research Institute is a leading center for research on deafness. National and international programs, including regional extension centers, conferences, sign language classes, summer programs, and international outreach, annually serve approximately 33,000 people. professional/consumer publications and computer software/assisted education are available.

Job Accommodation Network (JAN)

Associate Director, International Center for Disability Information (ICDI): Deborah Hendricks, Ed.D.
Address: P.O. Box 6080, Morgantown, WV, 26506-6080
Toll-free Voice: (800) 526-7234 or (800) ADA-WORK (232-9675)
Toll-free TTY: (877) 781-9403
Fax: (304) 293-5407
E-mail: jan@jan.wvu.edu
Internet: www.jan.wvu.edu

Description:
The Job Accommodation Network (JAN) is funded by the U.S. Department of Labor’s Office of Disability Employment Policy. JAN is an information and consulting service that provides users with individualized solutions for workplace accommodations. JAN also provides information regarding the Americans with Disabilities Act, the Rehabilitation Act, and other disabilityrelated legislation. In addition, JAN consultants have access to a vast network of resources, organizations, support groups, government agencies, and more that can provide assistance to persons with disabilities. JAN is used primarily by employers, rehabilitation professionals, and individuals with disabilities. All services are free and confidential. Professional/consumer publications are available.

National Association of State Directors of Special Education, Inc. (NASDSE)

Executive Director: Bill East, Ed.D.
Address: 1800 Diagonal Road, Suite 320, Alexandria, VA, 22314
Voice: (703) 519-3800
TTY: (703) 519-7008
Fax: (703) 519-3808
E-mail: nasdse@nasdse.org
Internet: www.nasdse.org

Description:
The National Association of State Directors of Special Education, Inc., (NASDSE) is a nonprofit organization established to promote and support education programs and related services for children and youth with disabilities in the United States and outlying areas. NASDSE provides services to state agencies to facilitate their efforts to maximize educational outcomes for individuals with disabilities. Holds annual meeting; contact NASDSE for date and location. Miscellaneous reports are released throughout the year, with most available online.

National Center for Voice and Speech (NCVS)

Director: Ingo Titze, Ph.D.
Public Information Contact: Suzanne Collins
Address: The Denver Center for the Performing Arts, 1101 13th Street, Denver, CO, 80204-5319
Voice: (303) 446-4834
Voice: (303) 893-6080
Fax: (303) 893-6487
E-mail: NCVSWebmaster@dcpa.org
E-mail: kmontgomery@dcpa.org
Internet: www.ncvs.org

Description:
The National Center for Voice and Speech (NCVS) is an interdisciplinary team of investigators and health care professionals dedicated to vocology, which deals with the powers, limitations, and enhancement of voice and speech. A primary outreach of NCVS is the Summer Vocology Institute, which provides background in vocology and related topics as well as real-world experience in applying those concepts in laboratory, performance, and health services settings. NCVS is headquartered as a division of the Denver Center for the Performing Arts and is the only facility of its kind to be associated with a performing arts center. NCVS also performs research at the University of Iowa Department of Speech Pathology and Audiology. Professional/consumer publications are available, with some materials in Spanish and French.

National Center on Deafness (NCOD)

Director: Roslyn Rosen
Address: 18111 Nordhoff Street, California State University, Northridge, CA, 91330-8267
Voice: (818) 677-2611
TTY: (818) 677-2611
Fax: (818) 677-4899
E-mail: ncod@csun.edu
Internet: ncod.csun.edu

Description:
The National Center on Deafness (NCOD) is housed in Jeanne M. Chisholm Hall on the campus of California State University, Northridge. Established in 1962, NCOD was the first postsecondary program in the nation to provide paid sign language interpreters for deaf students. The program has grown to be the largest of its type in the western United States, serving approximately 250 students who are deaf or hard-of-hearing each year. Access options for print communications are available. NCOD also provides outreach and training through several federal grants.

National Dissemination Center for Children with Disabilities (NICHCY)

Director: Suzanne Ripley, Ph.D.
Public Information Contact:: Information Specialists
Address: P.O. Box 1492, Washington, DC, 20013-1492
Voice: (202) 884-8200
Toll-free Voice: (800) 695-0285
TTY: (202) 884-8200
Toll-free TTY: (800) 695-0285
Fax: (202) 884-8441
E-mail: nichcy@aed.org
Internet: www.nichcy.org

Description:
The National Dissemination Center for Children with Disabilities (NICHCY) is a national information and referral center that provides information on disabilities and disability-related issues to families, educators, and other professionals. With a special focus on children and young adults ages birth to 22, NICHCY provides personalized responses to specific questions in both English and Spanish. Fact sheets on specific disabilities, state resource sheets, parent guides, bibliographies, research briefs, and information about the Individuals with Disabilities Education Act are available.

National Institute on Deafness and Other Communication Disorders (NIDCD)

Director: James F. Battey, Jr., M.D., Ph.D.
Public Information Contact: Patricia Blessing, Chief, Office of Health Communication and Public Liaison
Address: Office of Health Communication and Public Liaison, 31 Center Drive, MSC 2320, Bethesda, MD, 20892-2320
Voice: (301) 496-7243
Toll-free Voice: (800) 241-1044
Toll-free TTY: (800) 241-1055
Fax: (301) 402-0018
E-mail: nidcdinfo@nidcd.nih.gov
Internet: www.nidcd.nih.gov

Description:
The National Institute on Deafness and Other Communication Disorders (NIDCD), one of the National Institutes of Health, supports and conducts research and research training on the normal and disordered processes of hearing, balance, smell, taste, voice, speech, and language. NIDCD develops health information based on scientific discovery and disseminates it to health professionals, patients, educators, industry, and the general public. Since 1999, NIDCD has overseen WISE EARS!®, a national public education campaign to prevent noise-induced hearing loss. Currently, NIDCD is expanding its campaign efforts to reach youth ages eight to 12. NIDCD provides a toll-free telephone service through its information clearinghouse. Fact sheets, brochures, teaching curricula, and reports are available, with many in Spanish.

National Organization for Rare Disorders (NORD)

President: Abbey Meyers
Public Information Contact: Mary Dunkle, Vice President for Communications
Address: P.O. Box 1968, 55 Kenosia Avenue, Danbury, CT, 06813-1968
Voice: (203) 744-0100
Toll-free Voice: (800) 999-6673
TTY: (203) 797-9590
Fax: (203) 798-2291
E-mail: orphan@rarediseases.org
Internet: www.rarediseases.org

Description:
The National Organization for Rare Disorders (NORD) is a nonprofit voluntary health agency that serves as a clearinghouse for information on rare disorders. A rare disorder is a disease or condition that affects fewer than 200,000 Americans. Cumulatively, there are more than 6,000 rare diseases affecting more than 25 million Americans. NORD is committed to the identification, treatment, and cure of rare diseases through education, advocacy, research, and service programs. NORD administers medication assistance programs for certain rare-disease drugs as well as research grants and fellowships.

National Rehabilitation Information Center (NARIC)

Project Director: Mark X. Odum
Public Information Contact: Catherine Graves, Library Information Specialist II
Address: 8201 Corporate Drive, Suite 600, Landover, MD, 20785
Voice: (301) 459-5900
Toll-free Voice: (800) 346-2742
TTY: (301) 459-5984
Fax: (301) 459-4263
E-mail: naricinfo@heitechservices.com
Internet: www.naric.com

Description:
The National Rehabilitation Information Center (NARIC) is a library and information center focusing on disability and rehabilitation research. NARIC’s collection contains more than 40,000 documents, both federally funded and commercially produced. NARIC’s information specialists provide quick information and referrals, customized database searching, and document delivery. Internet users can access NARIC’s databases, bulletins, and a live reference chat service at the NARIC Web site. Referral sheets, general information packets, and customized literature searches are available.

National Spasmodic Dysphonia Association, Inc. (NSDA)

Executive Director: Kimberly A. Kuman
Address: 300 Park Boulevard, Suite 415, Itasca, IL, 60143
Voice: (630) 250-4504
Toll-free Voice: (800) 795-NSDA (6732)
Fax: (630) 250-4505
E-mail: NSDA@dysphonia.org
Internet: www.dysphonia.org

Description:
The National Spasmodic Dysphonia Association (NSDA) is a nonprofit 501(c)(3) organization dedicated to advancing medical research into the causes of and treatments for spasmodic dysphonia; promoting physician and public awareness of the disorder through outreach; and sponsoring support activities for people with spasmodic dysphonia and their families through educational materials, annual symposiums, support groups, and online resources. NSDA is the only organization that is dedicated solely to spasmodic dysphonia.

National Center for Health Statistics (NCHS), Centers for Disease Control and Prevention (CDC)

Director: Edward J. Sondik, Ph.D.
Address: 3311 Toledo Road, Hyattsville, MD, 20782
Voice: (301) 458-4000
Toll-free Voice: (866) 441-NCHS (6247)
Fax: (301) 458-4027
E-mail: nchsquery@cdc.gov
Internet: www.cdc.gov/nchs

Description:
The National Center for Health Statistics (NCHS), part of the Centers for Disease Control and Prevention (CDC), compiles statistical information to help guide policies to improve the health of the American people. Holds a biennial data user conference; consult the NCHS Web site for date and location. NCHS disseminates data and statistics online and in print.

Office of Special Education Programs (OSEP), Office of Special Education and Rehabilitative Services (OSERS)

Acting Deputy/Assistant Secretary: William W. Knudsen
Address: 550 12th Street, SW, Room 4109, Washington, DC, 20202-2600
Voice: (202) 245-7426
Fax: (202) 245-7616
Internet: www.ed.gov/about/offices/list/osers/osep/index.html

Description:
The Office of Special Education Programs (OSEP), an office within the U.S. Department of Education, is dedicated to improving results for infants, toddlers, children, and youth with disabilities from birth through age 21 and to providing leadership and financial support to assist states and local districts. OSEP awards formula grants to states as well as discretionary grants to institutions of higher education and other nonprofit organizations to support research, demonstrations, technical assistance and dissemination, technology and personnel development, and parent-training and information centers. Professional and consumer publications are available.

Recurrent Respiratory Papillomatosis Foundation (RRPF)

Director: Bill Stern
Address: P.O. Box 6643, Lawrenceville, NJ, 08648-0643
Voice: (609) 530-1443
Fax: (866) 498-7559
E-mail: rrpf@rrpf.org
Internet: www.rrpf.org

Description:
The Recurrent Respiratory Papillomatosis Foundation (RRPF) was created to provide family support; promote public awareness; and aid in the prevention, cure, and treatment of recurrent respiratory papillomatosis (RRP), a rare disease that affects the voice. The most common symptoms of RRP are a hoarse or strained voice, dysphonia (i.e., difficulty in speaking), or aphonia (i.e., loss of voice). The organization focuses primarily on networking within the RRP community, including patients, families, medical practitioners, and researchers. Its goal is to stimulate more RRP-related research that may lead to more effective treatments and, ultimately, a cure for this disease. Professional/consumer brochures/pamphlets are available.

Society for Ear, Nose, and Throat Advances in Children (SENTAC)

President: Seth Pransky, M.D.
Address: Children's Hospital of San Diego, 3030 Children's Way, San Diego, CA, 92123
Voice: (760) 942-9965
Fax: (760) 942-7305
E-mail: spransky@chsd.org
Internet: www.sentac.org

Description:
The Society of Ear, Nose, and Throat Advances in Children (SENTAC) is an interdisciplinary society of health professionals who share an interest in ear, nose, and throat diseases in children, including communication disorders. Its membership includes physicians, nurses, speech therapists, audiologists, and social workers. The annual meeting provides a forum for the presentation and exchange of ideas and information; contact SENTAC for date and location. A professional newsletter, directory, and brochures are available.

The Triological Society (formerly the American Laryngological, Rhinological, and Otological Society)

Executive Secretary: Patrick E. Brookhouser, M.D.
Administrator: Gail Binderup
Address: 555 North 30th Street, Omaha, NE, 68131
Voice: (402) 346-5500
Fax: (402) 346-5300
E-mail: info@triological.org
Internet: www.triological.org

Description:
The Triological Society is an international society of otolaryngologists and head and neck surgeons. The society provides continuing education opportunities for its members through its meetings. Holds an annual meeting as well as four section meetings each year; contact the society for dates and locations.

Voice Academy

Project Director: Julie Ostrem, M.B.A.
Public Information Contact: Thea Carruth, M.P.H., Health Education Consultant
Address: University of Iowa, Speech Pathology & Audiology, Iowa City, IA, 52242
Voice: (319) 335-6600
Fax: (319) 335-6603
E-mail: julie-ostrem@uiowa.edu
Internet: www.voiceacademy.org

Description:
The Voice Academy is a self-paced, no-cost Web site created to help school teachers prevent and self-manage voice disorders, which, unfortunately, are common in the profession. This Web site features a virtual school where teachers explore topics such as voice production basics, safe classroom acoustics, amplification system use, and the healthy body/healthy voice connection. The Web site also features an auxiliary curriculum for school-based speech/language pathologists or other advocates to present a 50-minute healthy voice seminar to their teacher colleagues.

The Voice Foundation

Chairman: Robert T. Sataloff, M.D., D.M.A.
Public Information Contact: Katherine Darius, Executive Director
Address: 1721 Pine Street, Philadelphia, PA, 19103
Voice: (215) 735-7999
Fax: (215) 735-9293
E-mail: office@voicefoundation.org
Internet: www.voicefoundation.org

Description:
The Voice Foundation is the world’s oldest and leading organization dedicated to voice medicine, science, and education. This nonprofit organization is committed to funding research; sponsoring an annual, international symposium; publishing professional and scientific publications and audiovisual materials; and disseminating knowledge internationally. Holds annual symposium (Care of the Professional Voice) in Philadelphia, PA, usually the first week of June; contact the Voice Foundation for date and location.

Have a Question? Talk to a health information specialist toll-free
Voice:	(800) 241-1044
TTY:	(800) 241-1055