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Directory of Organizations


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Center for Hearing and Communication

Executive Director: Laurie Hanin, Ph.D.
Director, Audiology Services: Ellen Lafargue
Director, Communication Services: Lois Kam Heymann
Address: 50 Broadway
Voice: (917) 305-7700
TTY: (917) 305-7999
Fax: (917) 305-7888
Last updated: 2011 Jun 30

Description:
The nonprofit Center for Hearing and Communication works to improve the quality of life for people with all degrees of hearing loss and to offer comprehensive services regardless of age or mode of communication. State-of-the-art services include hearing assessment, hearing aid fitting and dispensing, speech-language and auditory evaluation and therapy, otology, cochlear implant evaluation and training, assistive listening devices and FM system counseling, tinnitus and hyperacusis therapy, and evaluation/treatment of children with auditory processing disorder (APD) and other listening challenges. Holds quarterly cochlear implant support group, weekly group assistive device demonstrations, and other meetings. Print and online publications are available.

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Center on Human Policy (CHP)

Director: Steven J. Taylor, Ph.D.
Information Coordinator: Rachael A. Zubal-Ruggieri
Address: Syracuse University, School of Education, 805 South Crouse Avenue
Voice: (315) 443-3851
Toll-free Voice: (800) 894-0826
Fax: (315) 443-4338
Last updated: 2011 Jun 30

Description:
The Center on Human Policy (CHP) is a Syracuse University-based policy, research, and advocacy organization involved in the national movement to ensure the rights of people with disabilities. CHP is involved in a variety of activities, including policy studies, research, information and referral, training and consultation, and information dissemination. A range of professional/consumer publications is available. The Center on Human Policy, Law, and Disability Studies (CHPLDS) is an expansion of CHP. CHPLDS is a network of academic programs, centers, student organizations, and affiliated faculty that—through research, teaching, and advocacy—promotes and protects the rights of people with disabilities and examines disability as an aspect of diversity in society.

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Centers for Medicare and Medicaid Services (CMS)

Acting Administrator: Charlene Frizzera
Public Information Contact: Peter Ashkenaz, Acting Director
Address: 7500 Security Boulevard
Voice: (410) 786-3000
Voice: (202) 690-6145
Toll-free Voice: (877) 267-2323
Last updated: 2011 Jun 30

Description:
The Centers for Medicare and Medicaid Services (CMS) is a federal agency with responsibilities that include the Medicare and Medicaid programs, two national health care programs benefiting about 75 million Americans; the State Children’s Health Insurance Program; regulation of all non-research laboratory testing performed on humans in the United States; and programs assisting millions of Americans and small companies in obtaining health insurance coverage. The website www.cms.gov targets health care providers and the public, while www.medicare.gov offers information about services to beneficiaries. Publications are available.

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CHERAB Foundation

Founder: Lisa Geng
Address: P.O. Box 8524
Voice: (772) 335-5135
Last updated: 2011 Jun 30

Description:
The CHERAB Foundation (CHERAB) is a worldwide nonprofit organization that helps individuals with speech and language delays and disorders through communication help, education, and research that is apraxia-based. Its area of emphasis is verbal and oral apraxia, which are severe neurologically based speech and language disorders that hinder children's ability to speak. The foundation is committed to assisting with the development of new therapeutic approaches to, and prevention and cure of, neurologically based speech disorders. CHERAB brings together parents and medical, research, and educational professionals to help give a voice to all. Sign up to receive updates at http://twitter.com/TheLateTalker.

Frequency:

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Childhood Apraxia of Speech Association of North America (CASANA)

President: Mary Sturm, M.D.
Public Information Contact: Sharon Gretz, M.Ed.
Address: 416 Lincoln Avenue, 2nd Floor
Voice: (412) 343-7102
Last updated: 2014 May 5

Description:
The Childhood Apraxia of Speech Association of North America (CASANA) is the only national nonprofit 501(c)(3) charity representing the needs of children with apraxia and their families. CASANA’s goal is to provide credible, reliable, and comprehensive information on apraxia of speech in children. Guided by a professional advisory board of experts in childhood apraxia of speech, CASANA offers information and resources based on the current prevailing professional literature and expert opinion. CASANA programs include: - Information, support, and awareness: online support and information, multimedia, awareness walks, iPads for Apraxia project, CASANA speech therapy funds - Education and Training: workshops, webinars, an annual national conference, and intensive training institutes - Research Support: connects families with researchers; funds research, hosts research symposiums

Publications:
Apraxia-KIDS Newsletter
Type:

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Children of Deaf Adults International, Inc. (CODA)

President: Carmel Batson
National CODA Outreach Contact: Thomas Bull
Address: P.O. Box 30715
Voice: (805) 682-0997
TTY: (805) 682-0997
Last updated: 2011 Jun 30

Description:
Children of Deaf Adults International, Inc., (CODA) promotes family awareness and individual growth in hearing children of deaf parents. CODA provides educational opportunities, promotes self-help, organizes advocacy efforts, and acts as a resource for the membership and various communities. Holds annual conference; contact CODA for date and location. A professional/consumer newsletter, directory, fact sheets, brochures, and books are available.

Publications:
The CODA Connection
Frequency: quarterly
Type: newsletter

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CID - Central Institute for the Deaf

Executive Director: Robin Feder
Communication Director: Kim Readmond
Address: 825 South Taylor Avenue
Voice: (314) 977-0243
TTY:
Fax: (314) 977-0033
Last updated: 2011 Jun 30

Description:
Founded in 1914, the Central Institute for the Deaf (CID) is a nonprofit organization that helps deaf children learn to speak, listen, and read with proficiency without the use of sign language. CID provides pediatric audiology; research collaborations; continuing education for professionals; and books, tests, and curricula used to help deaf children throughout the world. CID has a proud history of training professionals and conducting pioneering educational, clinical, and biological research in hearing and deafness. CID is a financially independent affiliate of the Washington University School of Medicine.

Publications:
sound effects
Frequency: biannual
Type: newsletter

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Clearinghouse on Disability Information, Office of Special Education and Rehabilitative Services (OSERS)

Director of Communications/Customer Service Team: James Button
Public Information Contact: Carolyn Corlett
Address: 550 12th Street, SW, Room 5133
Voice: (202) 245-7307
TTY: (202) 205-5637
Fax: (202) 245-7636
Last updated: 2011 Jun 30

Description:
The Clearinghouse on Disability Information, a service of the U.S. Department of Education, responds to people with disabilities and others who request information by conducting research and providing documents related to federal funding available for disability-related programs. Clearinghouse staff members also may refer requests to other sources of disability-related information. Information provided may be useful to disabled individuals and their families, schools and universities, teachers and school administrators, and organizations who serve people with disabilities.

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Collaborative for Communication Access via Captioning (CCAC)

Founder and Chairperson: Lauren E. Storck, Ph.D.
Address: No mailing address
Last updated: 2011 Jun 30

Description:
The Collaborative for Communication Access via Captioning (CCAC) is a grassroots volunteer network that advocates for the universal inclusion of quality captioning (subtitles and real-time captioning). Membership forms are available on the website. CCAC collaborates with other groups and individuals to ensure that captioning becomes available in all needed places (education, employment, entertainment, transportation, government, telecommunications, the Internet, social participation, etc.). Members use an active online forum to request and provide guidance to facilitate inclusion of captioning whenever possible. CCAC members also offer local education and awareness workshops, conference presentations, and articles. Consumer members are eligible to request free captioning services from provider members in selected situations.

Publications:
CCAC website articles
Frequency:
CCAC Blog

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Communication Service for the Deaf, Inc. (CSD)

Chief Executive Officer: Benjamin Soukup, L.L.D.
Public Information Contact: Rick Norris, Public Relations
Address: 102 North Krohn Place
Voice: (605) 367-5760
Toll-free Voice: (800) 642-6410
TTY: (605) 367-5761
Toll-free TTY: (866) 273-3323
Fax: (605) 367-5958
Last updated: 2011 Jun 30

Description:
Communication Service for the Deaf, Inc., (CSD) is a world leader in providing broad-based quality human service programs and telecommunication relay services for consumers who are deaf and hard-of-hearing. CSD has a staff of approximately 2,000 people in facilities across the United States. CSD endeavors to increase opportunities for greater independence, ensure communication accessibility, and promote public awareness of issues affecting everyone who is deaf or hard-of-hearing.

Publications:
SIGNews
Frequency: monthly
Type: newspaper for the signing community

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Conference of Educational Administrators of Schools and Programs for the Deaf (CEASD)

Executive Director: Joe Finnegan
Executive Director: Joe Finnegan
Address: P.O. Box 1778
Voice: (904) 810-5200
TTY: (904) 810-5200
Fax: (904) 810-5525
Last updated: 2011 Jun 30

Description:
The Conference of Educational Administrators of Schools and Programs for the Deaf (CEASD) is an association of schools and programs involved with the education of deaf and hard-of-hearing individuals. Founded in 1868, CEASD is committed to promoting excellence within a continuum of equitable educational opportunities for children and adults who are deaf or hard-of-hearing. At the national level, CEASD serves as an advocate for the deaf and hard-of-hearing with governmental bodies that establish educational policy and implement federal legislation. Holds annual convention; contact CEASD for date and location. A professional journal, newsletter, directory, brochures/pamphlets, and online publications are available.

Publications:
American Annals of the Deaf
Frequency: quarterly journal
Type: supplemented by an annual reference issue of schools and programs

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Council for Accreditation in Occupational Hearing Conservation (CAOHC)

Executive Director: Kim Breitbach
Executive Director: Kim Breitbach
Address: 555 East Wells Street, Suite 1100
Voice: (414) 276-5338
Fax: (414) 276-2146
Last updated: 2011 Jun 30

Description:
The main objective of the Council for Accreditation in Occupational Hearing Conservation CAOHC) is to provide education, information, and guidance to industry and mining and to those serving industry and mining for the successful implementation of an occupational hearing conservation program. See the website for the “Scope of Practice: The Professional Supervisor of the Audiometric Monitoring Program” (the audiometric portion of a hearing conservation program), “CAOHC Certified Occupational Hearing Conservationist Scope of Practice and Limitations,” archived newsletters, and other comprehensive information.

Publications:
UPDATE
Frequency: triannual
Type: professional newsletter
Hearing Conservation Manual
Frequency: every 5 years
Type: comprehensive manual related to hearing conservation

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Council for Exceptional Children (CEC)

Executive Director: Bruce Ramirez
Public Information Contact: Diane Shinn, Communications Director
Address: 2900 Crystal Drive, Suite 1000
Voice: (703) 620-3660
Toll-free Voice: (888) 232-7733
Toll-free TTY: (866) 915-5000
Fax: (703) 264-9494
Last updated: 2011 Jun 30

Description:
The Council for Exceptional Children (CEC) is the largest professional organization dedicated to improving the educational success of individuals with disabilities or gifts. CEC advocates for appropriate government policies, sets professional standards, provides professional development, advocates for underserved individuals with exceptionalities, and helps professionals obtain conditions and resources for effective professional practice. Holds annual convention; contact CEC for date and location. Professional journals, brochures, and a newsletter are available.

Publications:
Exceptional Children
Frequency: quarterly
Type: professional journal
Teaching Exceptional Children
Frequency: published six times a year
Type: professional magazine

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Council for Learning Disabilities (CLD)

Executive Director: Linda Nease
Address: 11184 Antioch Road, #405
Voice: (913) 491-1011
Fax: (913) 491-1012
Last updated: 2014 Apr 29

Description:
The Council for Learning Disabilities (CLD) is an international organization that promotes evidence-based teaching, collaboration, research, leadership, and advocacy. CLD is composed of professionals who represent diverse disciplines and are committed to enhancing the education and quality of life for individuals with learning disabilities and others who experience challenges in learning.

Publications:
LD Forum
Frequency: published five times a year
Type: professional newsletter
Learning Disabilities Quarterly
Frequency:

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Council of Academic Programs in Communication Sciences and Disorders (CAPCSD)

President: Ken Apel
Executive Director: Mary Chavez Rudolph, Ph.D.
Address: 3000 So. Jamaica Ct., Suite 390
Voice: (303) 835-9089
Fax: (800) 805-5932
Last updated: 2014 May 5

Description:
The Council of Academic Programs in Communication Sciences and Disorders (CAPCSD) is an organization of university programs in speech-language pathology; audiology; and speech, language, and hearing sciences. It represents more than 2,000 faculty and administrators from universities in the United States and abroad. CAPCSD advocates for academic programs in communication sciences and disorders and facilitates information exchange among programs and personnel. It also serves as an advisory group to professional associations, legislative bodies, and government agencies. Holds annual conference; contact CAPCSD for date and location. A professional directory, brochures/pamphlets, and reports are available.

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Council of American Instructors of the Deaf (CAID)

President: Larry K. Quinsland
Address: P.O. Box 377
Voice: (817) 354-8414
TTY: (817) 354-8414
Last updated: 2011 Jun 30

Publications:
News & Notes
Frequency: quarterly
Type: professional newsletter
American Annals of the Deaf
Frequency: quarterly
Type: professional journal, supplemented by a reference issue

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Council on Education of the Deaf (CED)

Executive Director: Joseph Fischgrund
Address: Gallaudet University, P.O. Box 2074, 800 Florida Avenue, NE
Voice: (202) 250-2661
Fax: (859) 622-4443
Last updated: 2014 Apr 29

Description:
The Council on Education of the Deaf (CED) is an organization sponsored by five major national organizations dedicated to quality education for all deaf and hard of hearing students. CED promulgates nationally recognized students for teachers of deaf and hard of hearing students in all educational settings, accredits university programs preparing teachers of deaf and hard-of-hearing students, and collaborates with a variety of other related organizations through several national committees and workgroups.

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