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BEGINNINGS for Parents of Children Who Are Deaf or Hard of Hearing, Inc. (BEGINNINGS)

Executive Director: Joni Alberg, Ph.D.
Public Information Contact: Judy Werbicki, Administrative Assistant
Address: 302 Jefferson Street, Suite 110
Voice: (919) 715-4092
Toll-free Voice: (800) 541-4327 (In-state only)
TTY: (919) 715-4092
Fax: (919) 715-4093
Last updated: 2014 Apr 29

Description:
BEGINNINGS for Parents of Children Who Are Deaf or Hard of Hearing, Inc., (BEGINNINGS) provides support and information in an impartial manner to parents and professionals dealing with deaf and hard-of-hearing issues in children. BEGINNINGS also provides impartial information on communication options, placement, and educational programs; workshops for professional personnel who work with children who are deaf and hard-of-hearing; and advocacy and support for young people. Fact sheets, brochures, a parent manual, and reports are available, with some materials in Spanish.

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Better Hearing Institute (BHI)

Executive Director: Carole Rogin
Public Information Contact: Carole Rogin
Address: 1444 I Street, Suite 700
Voice: (202) 449-1100
Toll-free Voice: (800) EAR-WELL (327-9355)
Fax: (202) 216-9646
Last updated: 2014 Apr 29

Description:
Founded in 1973, the Better Hearing Institute (BHI) conducts research and engages in hearing health education with the goal of helping people with hearing loss benefit from proper treatment. BHI maintains a “Hearing Helpline” telephone service that provides information on hearing loss, sources of assistance, and other hearing help to callers anywhere in the United States and Canada. BHI also publishes periodic studies of the hearing-impaired population based on its survey of 80,000 households. BHI receives funding from the hearing aid industry to support its professional/consumer outreach efforts.

Publications:
MarkeTrak
Frequency: published periodically
Type: reports based on survey data
Your Guide to Better Hearing, A Guide to Your Child's Hearing Health, and Your Guide to Hearing Aids
Frequency:
Frequency:

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Birth Defect Research for Children, Inc. (BDRC)

Executive Director: Betty Mekdeci
Address: 976 Lake Baldwin Lane, Suite 104
Voice: (407) 895-0802
Last updated: 2011 Jun 30

Description:
Birth Defect Research for Children, Inc., (BDRC) provides parents and expectant parents with information about specific birth defects and their causes and treatments, support group referrals, and parent-matching services. BDRC also provides information about environmental exposures that may be associated with birth defects. To study these exposures further, BDRC sponsors the National Birth Defect Registry, an online research project that collects data on birth defects and prenatal/preconception exposures of both parents. A consumer newsletter, fact sheets, and other publications are available.

Publications:
Birth Defect News
Frequency: monthly
Type: e-mail newsletter

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Boys Town National Research Hospital (BTNRH)

Director: John K. Arch, FACHE
Public Information Contact: Mary Pat Moeller, Ph.D.
Address: 555 North 30th Street
Voice: (402) 452-5033
Voice: (402) 452-5068
TTY: (402) 498-6543
Fax: (402) 452-5027
Last updated: 2014 Apr 29

Description:
The Boys Town National Research Hospital (BTNRH) is internationally recognized for clinical service and research into the treatment of childhood deafness and communication disorders. Research is conducted in 20 state-of-the-art laboratories and represents three broad areas: neurobiological studies of hearing; hereditary communication disorders; and clinical, educational, and behavioral studies of human communication.

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Brain Injury Association of America

President/CEO: Susan Connors
Director of Consumer Services: Greg Ayotte
Address: 1608 Spring Hill Road
Voice: (703) 761-0750
Toll-free Voice: (800) 444-6443
Fax: (703) 761-0755
Last updated: 2011 Jun 30

Description:
A traumatic brain injury can cause a wide range of functional changes affecting thinking, language, learning, emotions, behavior, and sensation. The mission of the Brain Injury Association of America (BIAA) is to be the voice of brain injury, and to offer help, hope, and healing to all those affected by brain injury. BIAA offers a toll-free National Brain Injury Information Center (800-444-6443), with information about brain injury and local resources available to callers. BIAA also offers certification for professionals who work with people with brain injury. Webinars are available on a wide range of topics. Check the BIAA marketplace for information about available webinars.

Publications:
Challenge!
Frequency: quarterly
Type: newsletter

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