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AARP

Chief Executive Officer: William D. Novelli
Manager, Media Services: Steve Hahn
Address: 601 E Street, NW
Toll-free Voice: (888) 687-2277
TTY: (202) 434-6561
Toll-free TTY: (877) 434-7598
Fax: (202) 434-6499
Internet: www.aarp.org
Last updated: 2011 Jun 30

Description:
AARP is a nonprofit, nonpartisan membership organization that helps people who are ages 50 and older to have independence, choice, and control in ways that are beneficial and affordable to them and society as a whole. The AARP Foundation is an affiliated charity that provides security, protection, and empowerment to older persons in need with support from thousands of volunteers, donors, and sponsors. AARP has offices in all 50 states, the District of Columbia, Puerto Rico, and the U.S. Virgin Islands.

Publications:
AARP Bulletin
Frequency: monthly
Type: newsletter
AARP Segunda Juventud
Frequency: bimonthly
Type: Spanish-language magazine
AARP: The Magazine
Frequency: bimonthly
Type: magazine

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AbleData

Director: Katherine Belknap, M.A.
Information Specialist: Juanita Hardy
Address: 8630 Fenton Street, Suite 930
Voice: (301) 608-8998
Toll-free Voice: (800) 227-0216
TTY: (301) 608-8912
Fax: (301) 608-8958
Internet: www.abledata.com
Last updated: 2014 Apr 1

Description:
The AbleData project helps people who have disabilities, including communication disorders, by providing information about assistive devices, rehabilitation equipment, and other products for people with disabilities. Resources include a database of more than 40,000 products. A database of citations of books, articles, and other resources related to assistive technology also is available, along with fact sheets, brochures, and online publications. AbleData is sponsored by the National Institute on Disability and Rehabilitation Research.

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Academy of Doctors of Audiology (ADA)

President: Charles Stone, Au.D.
Executive Director: Stephanie Czuhajewski
Address: 1020 Monarch Street, Suite 300 B
Toll-free Voice: (866) 493-5544
Fax: (859) 321-1595
Last updated: 2011 Jun 30

Description:
The Academy of Doctors of Audiology (ADA), founded in 1976, provides valuable resources to the private practitioner in audiology and to other audiology professionals who have responsibility for quality patient care and business operations. Member benefits include a quarterly business-focused publication, online forums, and various practice management resources. ADA strives to be the leader in professional development, high ethical standards, career enhancement, practice improvement, and student outreach.

Publications:
Audiology Practices
Frequency: quarterly
Type: professional magazine

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Academy of Rehabilitative Audiology (ARA)

President: John Greer Clark, Ph.D.
Association Coordinator: Joy Benn
Address: P.O. Box 86
Fax: (888) 552-7441
Internet: www.audrehab.org
Last updated: 2011 Jun 30

Description:
The Academy of Rehabilitative Audiology (ARA) was founded in 1966 as a forum for the exchange of ideas, knowledge, and experience related to rehabilitative aspects of audiology and associated disciplines. Membership in ARA is open to professionals holding a graduate degree in audiology, speech-language pathology,or the education of persons with hearing impairment. Associate and student memberships are also available. Holds annual institute;contact ARA for date and location. A professional newsletter/bulletin, directory, and books and monographs are available.

Publications:
The Pinnacle
Frequency: quarterly
Type: professional newsletter

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Acoustic Neuroma Association (ANA)

Executive Director: Judy B. Vitucci
Address: 600 Peachtree Parkway, Suite 108
Voice: (770) 205-8211
Toll-free Voice: (877) 200-8211
Fax: (877) 202-0239
Internet: www.ANAUSA.org
Last updated: 2011 Jun 30

Description:
The Acoustic Neuroma Association (ANA) is a patient-focused organization that provides information and support to those affected by acoustic neuroma. An acoustic neuroma, also called a vestibular schwannoma, is a slow-growing, benign tumor that develops on the eighth cranial nerve: early symptoms include hearing loss, balance problems, and tinnitus. ANA publishes a quarterly newsletter and other consumer information, organizes local support groups, promotes research, and maintains an interactive website. Also holds a national symposium; contact ANA for date and location.

Publications:
NOTES
Frequency: quarterly
Type: consumer newsletter

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Acoustical Society of America (ASA)

Executive Director: Charles E. Schmid, Ph.D.
Public Information Contact: Elaine Moran
Address: 2 Huntington Quadrangle, Suite 1NO1
Voice: (516) 576-2360
TTY: (516) 576-2360
Fax: (516) 576-2377
Internet: asa.aip.org
Last updated: 2011 Jun 30

Description:
The mission of the Acoustical Society of America (ASA) is to promote the understanding and practical applications of acoustics. ASA publishes a monthly journal covering all topics in acoustics, including speech and hearing. A magazine, a professional directory, and professional brochures and monographs/books also are available. Holds two meetings each year; see the ASA website for dates and locations.

Publications:
Acoustics Today
Frequency: quarterly
Type: magazine
JASA Express Letters
Frequency: as accepted
Type: short journal articles published online
Journal of the Acoustical Society of America
Frequency: monthly
Type: professional journal

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ADARA: Professional Networking for Excellence in Service Delivery with Individuals Who Are Deaf or Hard of Hearing

President: Timothy Beatty
Public Information Contact: Sherri Gallagher, National Office Coordinator
Address: P.O. Box 480
Voice: (301) 293-8969
TTY: (301) 293-8969
Fax: (301) 293-9698
Internet: www.adara.org
Last updated: 2011 Jun 30

Description:
The mission of ADARA is to facilitate professional development, networking opportunities, and public policies for a multidisciplinary membership of professionals who provide personal services to individuals who are deaf, hard-of-hearing, late-deafened, and deaf-blind. Holds biannual convention; contact ADARA for date and location. A professional/consumer newsletter/bulletin and professional online publications are available.

Publications:
JADARA
Frequency: quarterly
Type: journal
The Update
Frequency: quarterly
Type: professional newsletter

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Advocure NF2, Inc.

Chairperson: Marie Drew
Treasurer: Cynthia Henrion
Address: P.O. Box 4118
Last updated: 2011 Jun 30

Description:
Neurofibromatosis Type II (NF2) is a rare, genetic disease that causes tumors to grow throughout the brain and spinal cord, threatening hearing, vision, mobility, and even basic life functions such as swallowing. Advocure NF2, Inc., is a 501(c)(3) public charity and liaison group that advocates for the NF2 Crew (an online-based support community for patients and others) and the NF2 international community. Advocure NF2, Inc., monitors research and drug developments worldwide and works to expedite systemic therapy that may treat and possibly even cure NF2. Its website offers information on understanding and living with NF2, research, and other resources. A quarterly newsletter is available online.

Publications:
NF2 Compass
Frequency: quarterly
Type: newsletter
Frequency:
Frequency:

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Agency for Healthcare Research and Quality (AHRQ)

Director: Carolyn Clancy, M.D.
Public Information Contact: Karen Migdail
Address: 540 Gaither Road
Voice: (301) 427-1855
Toll-free Voice: (800) 358-9295
Toll-free TTY: (888) 586-6340
Internet: www.ahrq.gov
Last updated: 2011 Jun 30

Description:
The Agency for Healthcare Research and Quality (AHRQ) provides practical health care information, research findings, and data to help consumers, health providers, health insurers, researchers, and policymakers make informed decisions about health care issues. Professional and consumer newsletters and bulletins, fact sheets, brochures/pamphlets, online publications, and professional reports are available. Some materials in Spanish are available.

Publications:
AHRQ
Frequency: biweekly
Type: e-newsletter
AHRQ Patient Safety/Health IT
Frequency: monthly
Type: e-newsletter
Research Activities
Frequency: monthly
Type: newsletter

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Alexander Graham Bell Association for the Deaf and Hard of Hearing (AG Bell)

Chief Executive Officer: Emilio Alonso-Mendoza, J.D., CFRE
Director of Communications and Marketing: Susan Boswell
Address: 3417 Volta Place, NW
Voice: (202) 337-5220
Toll-free Voice: (866) 337-5220
TTY: (202) 337-5221
Fax: (202) 337-8314
Internet: www.agbell.org
Last updated: 2014 Apr 4

Description:
The Alexander Graham Bell Association for the Deaf and Hard of Hearing (AG Bell) helps families, health care providers, and education professionals understand childhood hearing loss and the importance of early diagnosis and intervention. Through advocacy, education, research, and financial aid, AG Bell helps to ensure that every child and adult with hearing loss has the opportunity to listen, talk, and thrive. With chapters located throughout the United States and a network of international affiliates, AG Bell supports its mission: advocating independence through listening and talking!

Publications:
AG Bell Update
Frequency: weekly
Type: e-newsletter
The Volta Review
Frequency: biannual
Type: professional journal
Volta Voices
Frequency: bimonthly
Type: magazine

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American Academy of Audiology (AAA)

Executive Director: Cheryl Kreider Carey, C.A.E.
Senior Director of Communications: Amy Miedema
Address: 11480 Commerce Park Drive, Suite 220
Voice: (703) 790-8466
Toll-free Voice: (800) 222-2336
TTY: (703) 790-8466
Fax: (703) 790-8631
Last updated: 2011 Jun 30

Description:
With more than 10,000 members, the American Academy of Audiology (AAA) is the world’s largest professional organization of, by, and for audiologists. Dedicated to providing quality hearing care to the public, AAA enhances the ability of its members to achieve career and practice objectives through professional development, education, research, and increased public awareness of hearing and balance disorders and audiologic services. Holds annual convention; see AAA website for date and location. Resources include a professional magazine and journal, professional computer software/assisted education, online professional/consumer publications (some in Spanish), an audiologist locator, and a professional membership directory. The American Academy of Audiology Foundation promotes philanthropy in support of research, education, and public awareness in audiology and hearing science.

Publications:
Audiology Today
Frequency: bimonthly
Type: magazine for members
Audiology Today
Frequency: monthly
Type: e-newsletter
Journal of the American Academy of Audiology
Frequency: published 10 times a year
Type: peer-reviewed scientific journal

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American Academy of Facial Plastic and Reconstructive Surgery, Inc. (AAFPRS)

Executive Vice President: Stephen Duffy
Public Information Contact: Rita Chua Magness, Director of Publications and Marketing
Address: 310 South Henry Street
Voice: (703) 299-9291
Fax: (703) 299-8898
Internet: www.aafprs.org
Last updated: 2011 Jun 30

Description:
The American Academy of Facial Plastic and Reconstructive Surgery, Inc., (AAFPRS) is the largest association of facial plastic and reconstructive surgeons in the world. The academy’s bylaws provide that AAFPRS fellows be board-certified surgeons with training and experience in facial plastic surgery as well as fellows of the American College of Surgeons or the Royal College of Surgeons. The AAFPRS website provides visitors with information about facial plastic surgery and the names of AAFPRS fellows in their area. Professional and consumer publications are available, with some in Spanish.

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American Academy of Otolaryngology--Head and Neck Surgery (AAO-HNS)

Executive Vice President: David R. Nielsen, M.D.
Public Information Contact: Jeanne McIntyre, Director of Communications
Address: 1650 Diagonal Road
Voice: (703) 836-4444
Fax: (703) 683-5100
Internet: www.entnet.org
Last updated: 2011 Jun 30

Description:
The nonprofit American Academy of Otolaryngology—Head and Neck Surgery (AAO-HNS) strives to unite, serve, and represent the interests of ear, nose, and throat specialists and their patients to the public, government, other medical specialists, and related organizations. AAO-HNS provides leaflets and geographic lists of physicians to the public at no charge. Holds annual meeting; contact AAO-HNS for date and location. AAO-HNS provides a professional bulletin, journal, directory, books, and other materials. Professional/consumer publications are available online and in print, with some in Spanish.

Publications:
The Bulletin
Frequency: monthly
Type: professional magazine
Otolaryngology--Head and Neck Surgery
Frequency: monthly
Type: scientific journal

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American Association for the Advancement of Science (AAAS), EntryPoint!

Director: Virginia Stern
Program Manager: Laureen Summers
Address: 1200 New York Avenue, NW
Voice: (202) 326-6649
TTY: (202) 326-6649
Fax: (202) 371-9849
Last updated: 2011 Jun 30

Description:
In 1975, the American Association for the Advancement of Science (AAAS) initiated the Project on Science, Technology, and Disability to improve entry and advancement in science, math, and engineering for people with disabilities. Through its program EntryPoint!, the project recruits undergraduate and graduate students with disabilities who are majoring in science, engineering, mathematics, computer science, and some business fields for paid, 10-week, summer opportunities at corporations, federal agencies, and university science laboratories. Interested students should visit the website and fill out a pre-application.

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American Association of the Deaf-Blind (AADB)

Executive Director: Jamie Pope
Address: 8630 Fenton Street, Suite 121
Voice: (301) 495-4403
TTY: (301) 495-4402
Fax: (301) 495-4404
Internet: www.aadb.org
Last updated: 2011 Jun 30

Description:
The American Association of the Deaf-Blind (AADB) is a national consumer organization of, for, and by people who have dual hearing and vision loss. The mission of AADB is to ensure that all deaf-blind persons achieve their maximum potential through increased independence, productivity, and integration into the community. Holds biennial conference; contact AADB for date and location.

Publications:
AADB E-News
Frequency: free
Type: e-newsletter for the public
The Deaf-Blind American
Frequency: quarterly magazine
Type: for members, available in large print and Braille, on disk, and by e-mail

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American Auditory Society (AAS)

President: Timothy Trine, Ph.D.
Executive Director: Darla M. Eastlack
Address: 19 Mantua Road
Voice: (856) 423-3118
Fax: (856) 423-3420
Last updated: 2011 Jun 30

Description:
The purpose of the American Auditory Society (AAS) is to increase knowledge and understanding of the ear, hearing, and balance; their disorders and how to prevent them; and habilitation and rehabilitation of individuals with hearing and balance dysfunction. AAS coordinates and disseminates information, particularly through regular meetings, sponsorships, and publication of a professional journal and newsletter and other informational materials. Holds annual meeting; contact AAS for date and location.

Frequency:
Ear & Hearing
Frequency: bimonthly
Type: professional journal

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American Board of Audiology®

Managing Director: Torryn P. Brazell, C.M.P., C.A.E.
Address: 11730 Plaza America Drive, Suite 300
Toll-free Voice: (800) 881-5410
Fax: (703) 790-8631
Last updated: 2011 Jun 30

Description:
The American Board of Audiology (ABA), an autonomous organization, is dedicated to improving audiologic services to the public by promulgating promoting universally recognized standards in professional practice. The ABA encourages audiologists to exceed these prescribed standards, thereby promoting and encouraging a high level of professional development and ethical practice. The ABA offers two specialty certifications in cochlear implants and pediatric audiology.

Publications:
ABA Sounding Board
Frequency: quarterly professional
Type: newsletter
Frequency:
Frequency:

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American Broncho-Esophagological Association (ABEA)

President: Andrew Blitzer, M.D., D.D.S.
Public Information Contact: Gregory Grillone, M.D.
Address: Boston Medical Center, FGH Bldg., 820 Harrison Avenue
Voice: (617) 638-7934
Internet: www.abea.net
Last updated: 2011 Jun 30

Description:
The American Broncho-Esophagological Association (ABEA) is an association of physicians with interest in the function and diseases of the upper aerodigestive tract and the relevant applications of endoscopy. The goals of ABEA are to educate and update physicians in evaluating and managing aerodigestive tract disorders; stimulate and support basic and clinical research; advocate and support endoscopy training in residency and fellowship programs; and provide information useful to patients, industry, scientists, physicians, and other health care professionals at a national otolaryngology meeting.

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American Cleft Palate-Craniofacial Association (ACPA) and Cleft Palate Foundation (CPF)

Executive Director: Nancy C. Smythe
Public Information Contact: Lisa Gist, Director of Family Services
Address: 1504 East Franklin Street, Suite 102
Voice: (919) 933-9044
Toll-free Voice: (800) 24-CLEFT (2-5338)
Fax: (919) 933-9604
Last updated: 2011 Jun 30

Description:
The American Cleft Palate-Craniofacial Association (ACPA) is an international nonprofit association of more than 2,500 health care professionals who are involved in the treatment and research of cleft lip, cleft palate, and other craniofacial abnormalities. ACPA optimizes the interdisciplinary care of persons affected by craniofacial abnormalities. The Cleft Palate Foundation (CPF), which is the public service arm of ACPA, educates and assists the public regarding craniofacial anomalies and encourages research in the field. Holds annual convention; contact ACPA or CPF for date and location. A directory and professional/consumer fact sheets and brochures are available, with some in Spanish.

Publications:
Cleft Palate-Craniofacial Journal
Frequency: bimonthly
Type: professional journal

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American Cochlear Implant Alliance (ACI Alliance)

Executive Director: Donna L. Sorkin, M.A.
Address: P.O. Box 103
Voice: 703-534-6146
Last updated: 2014 Apr 3

Description:
The American Cochlear Implant (ACI) Alliance is committed to eliminating barriers to cochlear implantation by sponsoring research, driving heightened awareness and advocating for improved access to cochlear implants for patients of all ages across the United States. The ACI Alliance educates health care plan executives and government officials about cochlear implant technology, its economic and social benefits, and the relative value associated with coverage. The ACI Alliance engages in collaborative efforts to encourage best clinical practices for standardized outcomes.

Publications:
Calling
Frequency: Quarterly
Type: newsletter
Frequency:
Frequency:

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American Hearing Research Foundation (AHRF)

Executive Director: Sharon Parmet
Executive Director: Sharon Parmet
Address: 8 South Michigan Avenue, Suite 814
Voice: (312) 726-9670
Fax: (312) 726-9695
Last updated: 2011 Jun 30

Description:
The American Hearing Research Foundation (AHRF) is a nonprofit organization. Its purposes are to promote, conduct, and furnish financial assistance for medical research into the causes, prevention, and cure of deafness, impaired hearing, and balance disorders. See the AHRF website for additional information.

Publications:
Soundings
Frequency: triannual
Type: newsletter
Soundwaves
Frequency: published at least monthly
Type: e-newsletter

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American Laryngological Association (ALA)

President: Marvin P. Fried, M.D.
Administrator: Maxine Cunningham
Address: P.O. Box 128186
Voice: (615) 343-0429
Voice: (615) 812-6170
Fax: (615) 322-9102
Internet: www.alahns.org
Last updated: 2011 Jun 30

Description:
The mission of the American Laryngological Association (ALA) is to promote education and research and to disseminate important new scientific information relative to laryngology, which is the study of basic science, evaluation, and management of disorders relating to the larynx. ALA strives to accomplish this mission by promoting and presenting the latest scientific discoveries, publishing peer-reviewed reports, establishing funding sources for pilot research studies that facilitate subsequent funding by the National Institutes of Health, and sponsoring educational seminars and courses as well as public service announcements.

Publications:
The Laryngoscope
Frequency: monthly
Type: professional journal

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American Neurotology Society (ANS)

President: Jeffrey T. Vrabec, M.D.
Public Information Contact: Kristen Bordignon, Administrator
Address: Administrative Office, 1980 Warson Road
Voice: (217) 638-0801
Fax: (217) 679-1677
Last updated: 2011 Jun 30

Description:
The American Neurotology Society (ANS) is composed of physicians and audiologists devoted to the fields of neurotology and otology. The purpose of ANS is to exchange and disseminate information about the physiology, pathology, and clinical management of the sensorineural systems of audition and equilibrium, and to stimulate education and basic and clinical research relating to these systems. Holds two scientific meetings per year, which are open to anyone in the health sciences and particularly to individuals with major interest areas in hearing and balance. For meeting dates and locations, contact the ANS administrative office.

Publications:
Otology & Neurotology Journal
Frequency: ten times/year
Type: professional journal

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American Otological Society (AOS)

President: Herman A. Jenkins, MD
Public Information Contact: Shirley Gossard, Administrator
Address: Administrative Office, 3096 Riverdale Road
Voice: (352) 751-0932
Fax: (352) 751-0696
Last updated: 2011 Jun 30

Description:
The American Otological Society (AOS) is a professional organization that works to advance and promote medical and surgical otology/neurotology, including the rehabilitation of individuals with hearing and balance disorders, and to encourage, promote, and sponsor research in otology/neurotology, lateral skull base surgery, and related disciplines. The educational mission of AOS is to foster dialogue and share information on advances in the understanding and management of otological and neurotologic disorders. Holds annual meeting for members; visit the AOS website for date and location. AOS also publishes peer-reviewed papers and discussions presented during the scientific program of its meeting as well as proceedings of its business meetings.

Publications:
Otology & Neurotology
Frequency: published eight times a year,
Type: professional journal

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American Society for Deaf Children (ASDC)

Director of Advocacy: Cheri Dowling
:
Address: 800 Florida Avenue, NE, #2047
Voice: (800) 942-2732
Toll-free Voice: (800) 942-2732
TTY:
Fax: (410) 795-0965
Last updated: 2011 Jun 30

Description:
The American Society for Deaf Children (ASDC) supports and educates families of deaf and hard-of-hearing children, and advocates for high-quality programs and services. Holds convention every two years; contact ASDC for date and location. Consumer brochures and a magazine are available.

Publications:
The Endeavor
Frequency: quarterly
Type: consumer magazine

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American Speech-Language-Hearing Association (ASHA)

Executive Director: Arlene A. Pietranton, Ph.D., C.A.E.
Public Information Contact: ASHA Action Center
Address: 2200 Research Boulevard
Voice: (301) 296-5700
Toll-free Voice: (800) 638-8255
TTY: (301) 296-5650
Internet: www.asha.org
Last updated: 2011 Jun 30

Description:
The mission of the American Speech-Language-Hearing Association (ASHA) is to promote the interests of and provide the highest quality services for professionals in audiology, speech-language pathology, and speech and hearing science, and to advocate for people with communication disabilities. Holds annual conference; contact ASHA for date and location. Professional brochures/pamphlets, journals, and professional/consumer online publications are available. Some materials are available in Spanish.

Publications:
American Journal of Audiology
Frequency: semiannual
Type: journal
American Journal of Speech-Language Pathology
Frequency: quarterly
Type: journal
ASHA Leader
Frequency: at least monthly
Type: newspaper

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American Speech-Language-Hearing Foundation (ASHFoundation)

Executive Director: Nancy J. Minghetti
Public Information Contact: Emily Diaz
Address: 2200 Research Boulevard
Voice: (301) 296-8703
Last updated: 2011 Jun 30

Description:
The American Speech-Language-Hearing Foundation (ASHFoundation) supports the advancement of knowledge and the improvement of practice in serving children and adults with speech, language, or hearing disorders. ASHFoundation supports research, master’s and doctoral scholarships, and special projects that facilitate innovative directions in the field of communication sciences and disorders. This private organization is supported, in part, by the tax-deductible contributions of individuals, corporations, and organizations. See the website for information and funding guidelines.

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American Tinnitus Association (ATA)

Executive Director: Michael Malusevic
Director of Public Affairs: Jennifer Born
Address: P.O. Box 5
Voice: (503) 248-9985
Voice: 800-634-8978
Toll-free Voice: (800) 634-8978
Fax: (503) 248-0024
Internet: www.ata.org
Last updated: 2011 Jun 30

Description:
The American Tinnitus Association (ATA) exists to cure tinnitus by developing resources that advance tinnitus research. Founded in 1971, ATA has raised and allocated millions of dollars toward medical research projects focused on a cure for tinnitus. ATA also advocates for effective public policies that support its mission. ATA publishes a triannual magazine in April, August, and December. The magazine includes detailed articles on current research, treatment, and other information for those living with tinnitus and others interested in staying current in this field. Articles from prior issues are available on the ATA website. A consumer directory, fact sheets, and other publications for professionals and consumers also are available online and in print.

Publications:
Tinnitus Today
Frequency: triannual
Type: journal
ATA Electronic Newsletter
Frequency: triannual
Type: newsletter

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Aphasia Hope Foundation (AHF)

Founder/Executive Director: Judi Stradinger
Public Information Contact: Sandy Caudell, Program Director
Address: P.O. Box 26304
Voice: (913) 839-8083
Last updated: 2011 Jun 30

Description:
The Aphasia Hope Foundation (AHF) is a nonprofit organization with a twofold mission: (1) to promote research into the cure and prevention of aphasia; and (2) to provide survivors of aphasia and their caregivers access to the best possible treatments, both physical and emotional, for living with this disease. AHF maintains an electronic bulletin board and a Web-based forum for posting questions to aphasia professionals and caregivers. AHF also provides information on ongoing research and legislation focusing on aphasia and offers an outlet through which persons with aphasia can share their stories.

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Asperger Syndrome Education Network (ASPEN)

President: Lori Shery
Address: 9 Aspen Circle
Voice: (732) 321-0880
Internet: www.aspennj.org
Last updated: 2011 Jun 30

Description:
The Asperger Syndrome Education Network (ASPEN) supports families and individuals whose lives are affected by autism spectrum disorders (ASD) (i.e., Asperger syndrome, pervasive developmental disorder, and high-functioning autism), and nonverbal learning disabilities (NLD). ASPEN provides education about the issues surrounding these disorders, support to individuals with ASD and NLD in knowing that they are not alone, and help so that they may achieve their maximum potential. ASPEN advocacy areas include educational programs, medical research funding, adult issues, and increased public awareness and understanding. ASPEN is a national volunteer 501(c)(3) nonprofit organization with headquarters in New Jersey. Members receive a newsletter and resource directory and access to ASPEN’s lending library.

Publications:
Aspects
Frequency: 2 times a year
Type: newsletter

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Association for Chemoreception Sciences (AChemS)

Executive Director: Tisha Kehn
Address: 5841 Cedar Lake Road, Suite 204
Voice: (952) 646-2035
Fax: (952) 545-6073
Internet: www.achems.org
Last updated: 2011 Jun 30

Description:
The Association for Chemoreception Sciences (AChemS) is an international association that advances understanding of the senses of taste and smell. It encourages basic, clinical, and applied research in the chemical senses (gustation, olfaction, and trigeminal sensation); promotes an appreciation of chemosensory research; represents the interests of the chemosensory research community; and serves as a resource for those requiring chemosensory expertise. Holds annual meeting; contact AChemS for date and location. A professional newsletter and directory are available.

Publications:
Chemical Senses
Frequency: published nine times a year,
Type: professional journal

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Association for Research in Otolaryngology (ARO)

President: Debara Tucci, M.D.
Executive Director: Darla M. Eastlack
Address: 19 Mantua Road
Voice: (856) 423-0041
Fax: (856) 423-3420
Internet: www.aro.org
Last updated: 2011 Jun 30

Description:
The Association for Research in Otolaryngology (ARO) is an international scientific society of researchers who investigate basic science and clinical problems associated with hearing, speech, balance, taste and smell, and diseases of the head and neck. ARO’s goals are to encourage both basic and clinical research in the broad field of otolaryngology and related areas and to foster friendly assembly and stimulate scientific interest among its members. Holds mid-winter research meeting; contact ARO for date and location.

Publications:
Journal of the Association for Research in Otolaryngology (JARO)
Frequency: quarterly
Type: professional journal

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Association of Academic Physiatrists (AAP)

Executive Director: Lawrence C. Pencak, M.A.
Public Information Contact: Vincent A. Fields, Sr., M.B.A., Deputy Director
Address: 1106 North Charles Street, Suite 201
Voice: (410) 637-8300
Fax: (410) 637-8399
Last updated: 2011 Jun 30

Description:
The mission of the Association of Academic Physiatrists (AAP) is to promote excellence in the education, research, and practice of physical medicine and rehabilitation (PM&R) in the academic arena. To accomplish this, AAP facilitates the exchange of ideas and information on teaching the art and science of PM&R. AAP promotes the dissemination of information and academic life skills to future physicians who will be practicing PM&R and encourages information exchange with other fields of medicine. Holds annual conference; contact AAP for date and location. A professional newsletter, journal, brochures, and a residency training directory are available.

Publications:
AAP Newsletter
Frequency: monthly
Type: professional newsletter
American Journal of Physical Medicine and Rehabilitation
Frequency: monthly
Type: journal

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Association of Late-Deafened Adults (ALDA)

President: Cynthia Amerman
ALDA eNews: Ken Arcia
Address: 8038 Macintosh Lane
Voice: (815) 332-1515
Toll-free Voice: (866) 402-ALDA (2532)
Toll-free TTY: (866) 402-ALDA (2532)
Internet: www.alda.org
Last updated: 2011 Jun 30

Description:
The Association of Late-Deafened Adults (ALDA) serves as a resource center providing information and referrals, self-help, and support groups for people deafened as adults. ALDA works to increase public awareness of the special needs of deafened adults. Holds annual conference; contact ALDA for date and location. A professional/consumer directory, proceedings of conventions, and fact sheets are available.

Publications:
ALDANews
Frequency: quarterly
Type: professional/consumer newsletter
ALDA eNews
Frequency: monthly, or as needed
Type: e-mail news update

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Association of University Centers on Disabilities (AUCD)

Executive Director: George Jesien, Ph.D.
Address: 1010 Wayne Avenue, Suite 920
Voice: (301) 588-8252
Fax: (301) 588-2842
Internet: www.aucd.org
Last updated: 2011 Jun 30

Description:
The Association of University Centers on Disabilities (AUCD) is the national association representing University Centers for Excellence in Developmental Disabilities, Maternal and Child Health Leadership Education in Neurodevelopmental Disabilities Programs, and Developmental Disabilities Research Centers. Its mission is to help member centers by advancing policy and practice for and with people with developmental and other disabilities, their families, and communities. Contact AUCD for date and location of annual meeting. A professional newsletter/bulletin, proceedings, and fact sheets are available.

Publications:
AUCDigest
Frequency: monthly
Type: newsletter
InBrief
Frequency: weekly
Type: legislative news update

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AUDIENT

Program Manager: Sharon Kerpel
Public Information Contacts: Sharon Kerpel, Casey Tart, and Marsha Rastatter
Address: 221 Yale Ave N, Suite 450
Voice: (206) 838-7194
Toll-free Voice: (877) AUDIENT (283-4368)
Fax: (206) 838-7195
Last updated: 2011 Jun 30

Description:
AUDIENT is a nationwide program that helps low-income individuals obtain hearing aids at a reduced cost. Program fees include either one or two new digital hearing aids, the fitting, and three follow-up visits. The cost to the patient for one hearing aid is approximately $760 to $1,400; for two hearing aids, the cost is approximately $1,290 to $2,400.

Frequency:

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Audiology and Speech Pathology Services, U.S. Department of Veterans Affairs (VA)

Director: Lucille B. Beck, Ph.D.
Public Information Contact: Cathy Greener
Address: VA Medical Center, 50 Irving Street, NW
Voice: (202) 745-8578
Voice: (202) 745-8270
Fax: (202) 745-8579
Last updated: 2011 Jun 30

Description:
Audiology and Speech Pathology Services of the U.S. Department of Veterans Affairs (VA) provides high-quality, comprehensive, state-of-the-art clinical services to eligible veterans. Diagnostic and treatment services are offered in a timely manner and in an environment that fosters respect, communication, and compassion. Audiology services include evaluation and treatment of hearing loss and tinnitus, along with assessment of balance problems and, in some locations, balance rehabilitation. Diagnostic auditory and vestibular assessment, provision of hearing aids and assistive and alerting devices, cochlear implant management, and auditory rehabilitation also are available. Speech pathology services include evaluation and treatment of speech, language, voice, and swallowing disorders.

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Autism Society of America

President/COO: Scott Badesch
Address: 4340 East West Highway, Suite 350
Voice: (301) 657-0881
Toll-free Voice: (800) 3-AUTISM (28-8476)
Fax: (301) 657-0869
Last updated: 2011 Jun 30

Description:
The Autism Society is a national charitable organization dedicated to improving the lives of individuals on the autism spectrum, their families, and the professionals who work with them by providing current, reliable information about autism, the various options, approaches, and available services. It provides toll-free phone support and a free online Information and Referral database (Autism Source) with information about local, state, and national programs and services. The Autism Society’s nationwide network of chapters is designed to provide information and support for families in their local area. The Autism Society advocates at the local, state, and national levels to improve public policy, increase awareness, and promote research that leads to applied best practices to improve the quality of life for those living with autism throughout the life span.

Publications:
Autism Advocate
Frequency: quarterly
Type: magazine

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Autism Speaks

President: Mark Roithmayr
Executive Vice President, Programs and Services: Peter Bell
Address: 2 Park Avenue, 11th Floor
Voice: (212) 252-8584
Voice: (609) 228-7346
Fax: (212) 252-8676
Last updated: 2011 Jun 30

Description:
The goal of Autism Speaks is to change the future for all who struggle with autism spectrum disorders. This organization is dedicated to funding global biomedical research into the causes, prevention, treatments, and cure for autism; raising public awareness about autism and its effects on individuals, families, and society; and bringing hope to all who deal with the hardships of autism.

Publications:
e-Speaks
Frequency: weekly
Type: newsletter
Speaking Out
Frequency: quarterly
Type: newsletter

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