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AARP

Chief Executive Officer: William D. Novelli
Manager, Media Services: Steve Hahn
Address: 601 E Street, NWWashingtonDC20049
Toll-free Voice: (888) 687-2277
TTY: (202) 434-6561
Toll-free TTY: (877) 434-7598
Fax: (202) 434-6499
Last updated: 2011 Jun 30

Description:
AARP is a nonprofit, nonpartisan membership organization that helps people who are ages 50 and older to have independence, choice, and control in ways that are beneficial and affordable to them and society as a whole. The AARP Foundation is an affiliated charity that provides security, protection, and empowerment to older persons in need with support from thousands of volunteers, donors, and sponsors. AARP has offices in all 50 states, the District of Columbia, Puerto Rico, and the U.S. Virgin Islands.

Publications:
AARP Bulletin
Frequency: monthly
Type: newsletter
AARP Segunda Juventud
Frequency: bimonthly
Type: Spanish-language magazine
AARP: The Magazine
Frequency: bimonthly
Type: magazine

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AbleData

Director: Katherine Belknap, M.A.
Information Specialist: Juanita Hardy
Address: 8630 Fenton Street, Suite 930Silver SpringMD20910
Voice: (301) 608-8998
Toll-free Voice: (800) 227-0216
TTY: (301) 608-8912
Fax: (301) 608-8958
Last updated: 2014 Apr 1

Description:
The AbleData project helps people who have disabilities, including communication disorders, by providing information about assistive devices, rehabilitation equipment, and other products for people with disabilities. Resources include a database of more than 40,000 products. A database of citations of books, articles, and other resources related to assistive technology also is available, along with fact sheets, brochures, and online publications. AbleData is sponsored by the National Institute on Disability and Rehabilitation Research.

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Academy of Doctors of Audiology (ADA)

President: Charles Stone, Au.D.
Executive Director: Stephanie Czuhajewski
Address: 1020 Monarch Street, Suite 300 BLexingtonKY40513
Toll-free Voice: (866) 493-5544
Fax: (859) 321-1595
Last updated: 2011 Jun 30

Description:
The Academy of Doctors of Audiology (ADA), founded in 1976, provides valuable resources to the private practitioner in audiology and to other audiology professionals who have responsibility for quality patient care and business operations. Member benefits include a quarterly business-focused publication, online forums, and various practice management resources. ADA strives to be the leader in professional development, high ethical standards, career enhancement, practice improvement, and student outreach.

Publications:
Audiology Practices
Frequency: quarterly
Type: professional magazine

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Academy of Rehabilitative Audiology (ARA)

President: Linda Thibodeau, Ph.D.
Association Coordinator: Joy Benn
Address: P.O. Box 2323AlbanyNY12220-0323
Fax: (888) 552-7441
Last updated: 2014 May 2

Description:
The Academy of Rehabilitative Audiology (ARA) was founded in 1966 as a forum for the exchange of ideas, knowledge, and experience related to rehabilitative aspects of audiology and associated disciplines. Membership in ARA is open to professionals holding a graduate degree in audiology, speech-language pathology,or the education of persons with hearing impairment. Associate and student memberships are also available. Holds annual institute;contact ARA for date and location. A professional newsletter/bulletin, directory, and books and monographs are available.

Publications:
The Pinnacle
Frequency: quarterly
Type: professional newsletter

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Acoustic Neuroma Association (ANA)

Executive Director: Judy B. Vitucci
Address: 600 Peachtree Parkway, Suite 108CummingGA 30041
Voice: (770) 205-8211
Toll-free Voice: (877) 200-8211
Fax: (877) 202-0239
Last updated: 2011 Jun 30

Description:
The Acoustic Neuroma Association (ANA) is a patient-focused organization that provides information and support to those affected by acoustic neuroma. An acoustic neuroma, also called a vestibular schwannoma, is a slow-growing, benign tumor that develops on the eighth cranial nerve: early symptoms include hearing loss, balance problems, and tinnitus. ANA publishes a quarterly newsletter and other consumer information, organizes local support groups, promotes research, and maintains an interactive website. Also holds a national symposium; contact ANA for date and location.

Publications:
NOTES
Frequency: quarterly
Type: consumer newsletter

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Acoustical Society of America (ASA)

Executive Director: Charles E. Schmid, Ph.D.
Public Information Contact: Elaine Moran
Address: 2 Huntington Quadrangle, Suite 1NO1MelvilleNY11747-4502
Voice: (516) 576-2360
TTY: (516) 576-2360
Fax: (516) 576-2377
Last updated: 2014 Apr 29

Description:
The mission of the Acoustical Society of America (ASA) is to promote the understanding and practical applications of acoustics. ASA publishes a monthly journal covering all topics in acoustics, including speech and hearing. A magazine, a professional directory, and professional brochures and monographs/books also are available. Holds two meetings each year; see the ASA website for dates and locations.

Publications:
Acoustics Today
Frequency: quarterly
Type: magazine
JASA Express Letters
Frequency: as accepted
Type: short journal articles published online
Journal of the Acoustical Society of America
Frequency: monthly
Type: professional journal

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ADARA: Professional Networking for Excellence in Service Delivery with Individuals Who Are Deaf or Hard of Hearing

President: Timothy Beatty
Public Information Contact: Sherri Gallagher, National Office Coordinator
Address: P.O. Box 480MyersvilleMD 21773
Voice: (301) 293-8969
TTY: (301) 293-8969
Fax: (301) 293-9698
Last updated: 2011 Jun 30

Description:
The mission of ADARA is to facilitate professional development, networking opportunities, and public policies for a multidisciplinary membership of professionals who provide personal services to individuals who are deaf, hard-of-hearing, late-deafened, and deaf-blind. Holds biannual convention; contact ADARA for date and location. A professional/consumer newsletter/bulletin and professional online publications are available.

Publications:
JADARA
Frequency: quarterly
Type: journal
The Update
Frequency: quarterly
Type: professional newsletter

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Advocure NF2, Inc.

Chairperson: Marie Drew
Treasurer: Cynthia Henrion
Address: P.O. Box 4118ClearwaterFL33758-4118
Last updated: 2011 Jun 30

Description:
Neurofibromatosis Type II (NF2) is a rare, genetic disease that causes tumors to grow throughout the brain and spinal cord, threatening hearing, vision, mobility, and even basic life functions such as swallowing. Advocure NF2, Inc., is a 501(c)(3) public charity and liaison group that advocates for the NF2 Crew (an online-based support community for patients and others) and the NF2 international community. Advocure NF2, Inc., monitors research and drug developments worldwide and works to expedite systemic therapy that may treat and possibly even cure NF2. Its website offers information on understanding and living with NF2, research, and other resources. A quarterly newsletter is available online.

Publications:
NF2 Compass
Frequency: quarterly
Type: newsletter
Frequency:
Frequency:

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Agency for Healthcare Research and Quality (AHRQ)

Director: Carolyn Clancy, M.D.
Public Information Contact: Karen Migdail
Address: 540 Gaither RoadRockvilleMD 20850
Voice: (301) 427-1855
Toll-free Voice: (800) 358-9295
Toll-free TTY: (888) 586-6340
Last updated: 2011 Jun 30

Description:
The Agency for Healthcare Research and Quality (AHRQ) provides practical health care information, research findings, and data to help consumers, health providers, health insurers, researchers, and policymakers make informed decisions about health care issues. Professional and consumer newsletters and bulletins, fact sheets, brochures/pamphlets, online publications, and professional reports are available. Some materials in Spanish are available.

Publications:
AHRQ
Frequency: biweekly
Type: e-newsletter
AHRQ Patient Safety/Health IT
Frequency: monthly
Type: e-newsletter
Research Activities
Frequency: monthly
Type: newsletter

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Alexander Graham Bell Association for the Deaf and Hard of Hearing (AG Bell)

Chief Executive Officer: Emilio Alonso-Mendoza, J.D., CFRE
Director of Communications and Marketing: Susan Boswell
Address: 3417 Volta Place, NWWashingtonDC20007-2778
Voice: (202) 337-5220
Toll-free Voice: (866) 337-5220
TTY: (202) 337-5221
Fax: (202) 337-8314
Last updated: 2014 Apr 4

Description:
The Alexander Graham Bell Association for the Deaf and Hard of Hearing (AG Bell) helps families, health care providers, and education professionals understand childhood hearing loss and the importance of early diagnosis and intervention. Through advocacy, education, research, and financial aid, AG Bell helps to ensure that every child and adult with hearing loss has the opportunity to listen, talk, and thrive. With chapters located throughout the United States and a network of international affiliates, AG Bell supports its mission: advocating independence through listening and talking!

Publications:
AG Bell Update
Frequency: weekly
Type: e-newsletter
The Volta Review
Frequency: biannual
Type: professional journal
Volta Voices
Frequency: bimonthly
Type: magazine

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American Academy of Audiology (AAA)

Executive Director: Cheryl Kreider Carey, C.A.E.
Senior Director of Communications: Amy Miedema
Address: 11480 Commerce Park Drive, Suite 220RestonVA 20191
Voice: (703) 790-8466
Toll-free Voice: (800) 222-2336
TTY: (703) 790-8466
Fax: (703) 790-8631
Last updated: 2011 Jun 30

Description:
With more than 10,000 members, the American Academy of Audiology (AAA) is the world’s largest professional organization of, by, and for audiologists. Dedicated to providing quality hearing care to the public, AAA enhances the ability of its members to achieve career and practice objectives through professional development, education, research, and increased public awareness of hearing and balance disorders and audiologic services. Holds annual convention; see AAA website for date and location. Resources include a professional magazine and journal, professional computer software/assisted education, online professional/consumer publications (some in Spanish), an audiologist locator, and a professional membership directory. The American Academy of Audiology Foundation promotes philanthropy in support of research, education, and public awareness in audiology and hearing science.

Publications:
Audiology Today
Frequency: bimonthly
Type: magazine for members
Audiology Today
Frequency: monthly
Type: e-newsletter
Journal of the American Academy of Audiology
Frequency: published 10 times a year
Type: peer-reviewed scientific journal

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American Academy of Facial Plastic and Reconstructive Surgery, Inc. (AAFPRS)

Executive Vice President: Stephen Duffy
Public Information Contact: Rita Chua Magness, Director of Publications and Marketing
Address: 310 South Henry StreetAlexandriaVA 22314
Voice: (703) 299-9291
Fax: (703) 299-8898
Last updated: 2011 Jun 30

Description:
The American Academy of Facial Plastic and Reconstructive Surgery, Inc., (AAFPRS) is the largest association of facial plastic and reconstructive surgeons in the world. The academy’s bylaws provide that AAFPRS fellows be board-certified surgeons with training and experience in facial plastic surgery as well as fellows of the American College of Surgeons or the Royal College of Surgeons. The AAFPRS website provides visitors with information about facial plastic surgery and the names of AAFPRS fellows in their area. Professional and consumer publications are available, with some in Spanish.

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American Academy of Otolaryngology--Head and Neck Surgery (AAO-HNS)

Executive Vice President: David R. Nielsen, M.D.
Public Information Contact: Jeanne McIntyre, Director of Communications
Address: 1650 Diagonal RoadAlexandriaVA22314-2857
Voice: (703) 836-4444
Fax: (703) 683-5100
Last updated: 2014 Apr 25

Description:
The nonprofit American Academy of Otolaryngology—Head and Neck Surgery (AAO-HNS) strives to unite, serve, and represent the interests of ear, nose, and throat specialists and their patients to the public, government, other medical specialists, and related organizations. AAO-HNS provides leaflets and geographic lists of physicians to the public at no charge. Holds annual meeting; contact AAO-HNS for date and location. AAO-HNS provides a professional bulletin, journal, directory, books, and other materials. Professional/consumer publications are available online and in print, with some in Spanish.

Publications:
The Bulletin
Frequency: monthly
Type: professional magazine
Otolaryngology--Head and Neck Surgery
Frequency: monthly
Type: scientific journal

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American Association for the Advancement of Science (AAAS), Entry Point Internship Program

Director: Richard Weibl
Program Manager: Laureen Summers
Address: 1200 New York Avenue, NWWashingtonDC20005
Voice: (202) 326-6649
TTY: (202) 326-6649
Fax: (202) 371-9849
Last updated: 2014 May 5

Description:
In 1975, the American Association for the Advancement of Science (AAAS) initiated the Project on Science, Technology, and Disability to improve entry and advancement in science, math, and engineering for people with disabilities. The Entry Point Internship Program for Students with Disabilities recruits undergraduate and graduate students with disabilities who are majoring in science, engineering, mathematics, computer science, and some business fields for paid, 10-week, summer opportunities at corporations, federal agencies, and university science laboratories. Interested students should visit the website and fill out a pre-application.

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American Association of the Deaf-Blind (AADB)

Address: P.O. Box 2831KensingtonMD20891
Voice: (301) 495-4403
Fax: (301) 495-4404
Last updated: 2014 May 5

Description:
The American Association of the Deaf-Blind (AADB) is a national consumer organization of, for, and by people who have dual hearing and vision loss. The mission of AADB is to ensure that all deaf-blind persons achieve their maximum potential through increased independence, productivity, and integration into the community.

Publications:
AADB E-News
Frequency: free
Type: e-newsletter for the public
The Deaf-Blind American
Frequency: quarterly magazine
Type: for members, available in large print and Braille, on disk, and by e-mail

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American Auditory Society (AAS)

President: Timothy Trine, Ph.D.
Executive Director: Darla M. Eastlack
Address: 19 Mantua RoadMt. RoyalNJ08061
Voice: (856) 423-3118
Fax: (856) 423-3420
Last updated: 2011 Jun 30

Description:
The purpose of the American Auditory Society (AAS) is to increase knowledge and understanding of the ear, hearing, and balance; their disorders and how to prevent them; and habilitation and rehabilitation of individuals with hearing and balance dysfunction. AAS coordinates and disseminates information, particularly through regular meetings, sponsorships, and publication of a professional journal and newsletter and other informational materials. Holds annual meeting; contact AAS for date and location.

Frequency:
Ear & Hearing
Frequency: bimonthly
Type: professional journal

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American Board of Audiology®

Managing Director: Torryn P. Brazell, C.M.P., C.A.E.
Address: 11730 Plaza America Drive, Suite 300RestonVA20190
Toll-free Voice: (800) 881-5410
Fax: (703) 790-8631
Last updated: 2011 Jun 30

Description:
The American Board of Audiology (ABA), an autonomous organization, is dedicated to improving audiologic services to the public by promulgating promoting universally recognized standards in professional practice. The ABA encourages audiologists to exceed these prescribed standards, thereby promoting and encouraging a high level of professional development and ethical practice. The ABA offers two specialty certifications in cochlear implants and pediatric audiology.

Publications:
ABA Sounding Board
Frequency: quarterly professional
Type: newsletter
Frequency:
Frequency:

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American Broncho-Esophagological Association (ABEA)

President: Ellen Deutsch, M.D.
Public Information Contact: Gregory Grillone, M.D.
Address: c/o American College of Surgeons, 633 N. Saint Clair Street, 27th FloorChicagoIL60611
Voice: (617) 638-7934
Last updated: 2014 May 2

Description:
The American Broncho-Esophagological Association (ABEA) is an association of physicians with interest in the function and diseases of the upper aerodigestive tract and the relevant applications of endoscopy. The goals of ABEA are to educate and update physicians in evaluating and managing aerodigestive tract disorders; stimulate and support basic and clinical research; advocate and support endoscopy training in residency and fellowship programs; and provide information useful to patients, industry, scientists, physicians, and other health care professionals at a national otolaryngology meeting.

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American Cleft Palate-Craniofacial Association (ACPA) and Cleft Palate Foundation (CPF)

Executive Director: Nancy C. Smythe
Public Information Contact: Lisa Gist, Director of Family Services
Address: 1504 East Franklin Street, Suite 102Chapel HillNC 27514
Voice: (919) 933-9044
Toll-free Voice: (800) 24-CLEFT (2-5338)
Fax: (919) 933-9604
Last updated: 2011 Jun 30

Description:
The American Cleft Palate-Craniofacial Association (ACPA) is an international nonprofit association of more than 2,500 health care professionals who are involved in the treatment and research of cleft lip, cleft palate, and other craniofacial abnormalities. ACPA optimizes the interdisciplinary care of persons affected by craniofacial abnormalities. The Cleft Palate Foundation (CPF), which is the public service arm of ACPA, educates and assists the public regarding craniofacial anomalies and encourages research in the field. Holds annual convention; contact ACPA or CPF for date and location. A directory and professional/consumer fact sheets and brochures are available, with some in Spanish.

Publications:
Cleft Palate-Craniofacial Journal
Frequency: bimonthly
Type: professional journal

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American Cochlear Implant Alliance (ACI Alliance)

Executive Director: Donna L. Sorkin, M.A.
Address: P.O. Box 103McLeanVA22101
Voice: 703-534-6146
Last updated: 2014 Apr 3

Description:
The American Cochlear Implant (ACI) Alliance is committed to eliminating barriers to cochlear implantation by sponsoring research, driving heightened awareness and advocating for improved access to cochlear implants for patients of all ages across the United States. The ACI Alliance educates health care plan executives and government officials about cochlear implant technology, its economic and social benefits, and the relative value associated with coverage. The ACI Alliance engages in collaborative efforts to encourage best clinical practices for standardized outcomes.

Publications:
Calling
Frequency: Quarterly
Type: newsletter
Frequency:
Frequency:

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American Hearing Research Foundation (AHRF)

Executive Director: Sharon Parmet
Executive Director: Sharon Parmet
Address: 8 South Michigan Avenue, Suite 814ChicagoIL 60603-4539
Voice: (312) 726-9670
Fax: (312) 726-9695
Last updated: 2011 Jun 30

Description:
The American Hearing Research Foundation (AHRF) is a nonprofit organization. Its purposes are to promote, conduct, and furnish financial assistance for medical research into the causes, prevention, and cure of deafness, impaired hearing, and balance disorders. See the AHRF website for additional information.

Publications:
Soundings
Frequency: triannual
Type: newsletter
Soundwaves
Frequency: published at least monthly
Type: e-newsletter

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American Laryngological Association (ALA)

President: Marvin P. Fried, M.D.
Administrator: Maxine Cunningham
Address: P.O. Box 128186NashvilleTN 37232
Voice: (615) 343-0429
Voice: (615) 812-6170
Fax: (615) 322-9102
Last updated: 2011 Jun 30

Description:
The mission of the American Laryngological Association (ALA) is to promote education and research and to disseminate important new scientific information relative to laryngology, which is the study of basic science, evaluation, and management of disorders relating to the larynx. ALA strives to accomplish this mission by promoting and presenting the latest scientific discoveries, publishing peer-reviewed reports, establishing funding sources for pilot research studies that facilitate subsequent funding by the National Institutes of Health, and sponsoring educational seminars and courses as well as public service announcements.

Publications:
The Laryngoscope
Frequency: monthly
Type: professional journal

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American Neurotology Society (ANS)

President: Jeffrey T. Vrabec, M.D.
Public Information Contact: Kristen Bordignon, Administrator
Address: Administrative Office, 1980 Warson RoadSpringfieldIL62704
Voice: (217) 638-0801
Fax: (217) 679-1677
Last updated: 2011 Jun 30

Description:
The American Neurotology Society (ANS) is composed of physicians and audiologists devoted to the fields of neurotology and otology. The purpose of ANS is to exchange and disseminate information about the physiology, pathology, and clinical management of the sensorineural systems of audition and equilibrium, and to stimulate education and basic and clinical research relating to these systems. Holds two scientific meetings per year, which are open to anyone in the health sciences and particularly to individuals with major interest areas in hearing and balance. For meeting dates and locations, contact the ANS administrative office.

Publications:
Otology & Neurotology Journal
Frequency: ten times/year
Type: professional journal

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American Otological Society (AOS)

President: John W. House, M.D.
Public Information Contact: Kristen Bordignon, Administrator
Address: Administrative Office, 1980 Warson RdSpringfieldIL62704
Voice: (217) 638-0801
Fax: (217) 679-1677
Last updated: 2014 May 5

Description:
The American Otological Society (AOS) is a professional organization that works to advance and promote medical and surgical otology/neurotology, including the rehabilitation of individuals with hearing and balance disorders, and to encourage, promote, and sponsor research in otology/neurotology, lateral skull base surgery, and related disciplines. The educational mission of AOS is to foster dialogue and share information on advances in the understanding and management of otological and neurotologic disorders. Holds annual meeting for members; visit the AOS website for date and location. AOS also publishes peer-reviewed papers and discussions presented during the scientific program of its meeting as well as proceedings of its business meetings.

Publications:
Otology & Neurotology
Frequency: published eight times a year,
Type: professional journal

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American Society for Deaf Children (ASDC)

Director of Advocacy: Cheri Dowling
:
Address: 800 Florida Avenue, NE, #2047WashingtonDC20002-3695
Voice: (800) 942-2732
Toll-free Voice: (800) 942-2732
TTY:
Fax: (410) 795-0965
Last updated: 2011 Jun 30

Description:
The American Society for Deaf Children (ASDC) supports and educates families of deaf and hard-of-hearing children, and advocates for high-quality programs and services. Holds convention every two years; contact ASDC for date and location. Consumer brochures and a magazine are available.

Publications:
The Endeavor
Frequency: quarterly
Type: consumer magazine

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American Speech-Language-Hearing Association (ASHA)

Executive Director: Arlene A. Pietranton, Ph.D., C.A.E.
Public Information Contact: ASHA Action Center
Address: 2200 Research BoulevardRockvilleMD20850
Voice: (301) 296-5700
Toll-free Voice: (800) 638-8255
TTY: (301) 296-5650
Last updated: 2014 May 5

Description:
The mission of the American Speech-Language-Hearing Association (ASHA) is to promote the interests of and provide the highest quality services for professionals in audiology, speech-language pathology, and speech and hearing science, and to advocate for people with communication disabilities. Holds annual conference; contact ASHA for date and location. Professional brochures/pamphlets, journals, and professional/consumer online publications are available. Some materials are available in Spanish.

Publications:
American Journal of Audiology
Frequency: semiannual
Type: journal
American Journal of Speech-Language Pathology
Frequency: quarterly
Type: journal
ASHA Leader
Frequency: at least monthly
Type: newspaper

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American Speech-Language-Hearing Foundation (ASHFoundation)

Executive Director: Nancy J. Minghetti
Public Information Contact: Emily Diaz
Address: 2200 Research BoulevardRockvilleMD20850
Voice: (301) 296-8703
Last updated: 2014 Apr 25

Description:
The American Speech-Language-Hearing Foundation (ASHFoundation) supports the advancement of knowledge and the improvement of practice in serving children and adults with speech, language, or hearing disorders. ASHFoundation supports research, master’s and doctoral scholarships, and special projects that facilitate innovative directions in the field of communication sciences and disorders. This private organization is supported, in part, by the tax-deductible contributions of individuals, corporations, and organizations. See the website for information and funding guidelines.

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American Tinnitus Association (ATA)

Executive Director: Michael Malusevic
Director of Public Affairs: Jennifer Born
Address: P.O. Box 5PortlandOR 97207-0005
Voice: (503) 248-9985
Voice: 800-634-8978
Toll-free Voice: (800) 634-8978
Fax: (503) 248-0024
Last updated: 2011 Jun 30

Description:
The American Tinnitus Association (ATA) exists to cure tinnitus by developing resources that advance tinnitus research. Founded in 1971, ATA has raised and allocated millions of dollars toward medical research projects focused on a cure for tinnitus. ATA also advocates for effective public policies that support its mission. ATA publishes a triannual magazine in April, August, and December. The magazine includes detailed articles on current research, treatment, and other information for those living with tinnitus and others interested in staying current in this field. Articles from prior issues are available on the ATA website. A consumer directory, fact sheets, and other publications for professionals and consumers also are available online and in print.

Publications:
Tinnitus Today
Frequency: triannual
Type: journal
ATA Electronic Newsletter
Frequency: triannual
Type: newsletter

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Aphasia Hope Foundation (AHF)

Founder/Executive Director: Judi Stradinger
Public Information Contact: Sandy Caudell, Program Director
Address: P.O. Box 26304Shawnee MissionKS 66225-6304
Voice: (913) 839-8083
Last updated: 2011 Jun 30

Description:
The Aphasia Hope Foundation (AHF) is a nonprofit organization with a twofold mission: (1) to promote research into the cure and prevention of aphasia; and (2) to provide survivors of aphasia and their caregivers access to the best possible treatments, both physical and emotional, for living with this disease. AHF maintains an electronic bulletin board and a Web-based forum for posting questions to aphasia professionals and caregivers. AHF also provides information on ongoing research and legislation focusing on aphasia and offers an outlet through which persons with aphasia can share their stories.

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Asperger Syndrome Education Network (ASPEN)

President: Lori Shery
Address: 9 Aspen CircleEdisonNJ08820
Voice: (732) 321-0880
Last updated: 2011 Jun 30

Description:
The Asperger Syndrome Education Network (ASPEN) supports families and individuals whose lives are affected by autism spectrum disorders (ASD) (i.e., Asperger syndrome, pervasive developmental disorder, and high-functioning autism), and nonverbal learning disabilities (NLD). ASPEN provides education about the issues surrounding these disorders, support to individuals with ASD and NLD in knowing that they are not alone, and help so that they may achieve their maximum potential. ASPEN advocacy areas include educational programs, medical research funding, adult issues, and increased public awareness and understanding. ASPEN is a national volunteer 501(c)(3) nonprofit organization with headquarters in New Jersey. Members receive a newsletter and resource directory and access to ASPEN’s lending library.

Publications:
Aspects
Frequency: 2 times a year
Type: newsletter

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Association for Chemoreception Sciences (AChemS)

Executive Director: Tisha Kehn
Address: 5841 Cedar Lake Road, Suite 204MinneapolisMN 55416
Voice: (952) 646-2035
Fax: (952) 545-6073
Last updated: 2011 Jun 30

Description:
The Association for Chemoreception Sciences (AChemS) is an international association that advances understanding of the senses of taste and smell. It encourages basic, clinical, and applied research in the chemical senses (gustation, olfaction, and trigeminal sensation); promotes an appreciation of chemosensory research; represents the interests of the chemosensory research community; and serves as a resource for those requiring chemosensory expertise. Holds annual meeting; contact AChemS for date and location. A professional newsletter and directory are available.

Publications:
Chemical Senses
Frequency: published nine times a year,
Type: professional journal

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Association for Research in Otolaryngology (ARO)

President: Jay T. Rubenstein, M.D., Ph.D.
Executive Director: Haley Brust
Address: 19 Mantua RoadMt. RoyalNJ08061
Voice: (856) 423-0041
Fax: (856) 423-3420
Last updated: 2014 May 5

Description:
The Association for Research in Otolaryngology (ARO) is an international scientific society of researchers who investigate basic science and clinical problems associated with hearing, speech, balance, taste and smell, and diseases of the head and neck. ARO’s goals are to encourage both basic and clinical research in the broad field of otolaryngology and related areas and to foster friendly assembly and stimulate scientific interest among its members. Holds mid-winter research meeting; contact ARO for date and location.

Publications:
Journal of the Association for Research in Otolaryngology (JARO)
Frequency: quarterly
Type: professional journal

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Association of Academic Physiatrists (AAP)

Executive Director: Lawrence C. Pencak, M.A.
Communications Manager: Bernadette M. Rensing
Address: 7250 Parkway Drive, Suite 130HanoverMD21076-1341
Voice: (410) 712-7120
Fax: (410) 712-7101
Last updated: 2014 Apr 29

Description:
The mission of the Association of Academic Physiatrists (AAP) is to promote excellence in the education, research, and practice of physical medicine and rehabilitation (PM&R) in the academic arena. To accomplish this, AAP facilitates the exchange of ideas and information on teaching the art and science of PM&R. AAP promotes the dissemination of information and academic life skills to future physicians who will be practicing PM&R and encourages information exchange with other fields of medicine. Holds annual conference; contact AAP for date and location. A professional newsletter, journal, brochures, and a residency training directory are available.

Publications:
AAP Newsletter
Frequency: monthly
Type: professional newsletter
American Journal of Physical Medicine and Rehabilitation
Frequency: monthly
Type: journal

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Association of Late-Deafened Adults (ALDA)

President: Mary Lou Mistretta
ALDA eNews: Ken Arcia
Address: 8038 Macintosh LaneRockfordIL61107
Voice: (815) 332-1515
Toll-free Voice: (866) 402-ALDA (2532)
Toll-free TTY: (866) 402-ALDA (2532)
Last updated: 2014 Apr 29

Description:
The Association of Late-Deafened Adults (ALDA) serves as a resource center providing information and referrals, self-help, and support groups for people deafened as adults. ALDA works to increase public awareness of the special needs of deafened adults. Holds annual conference; contact ALDA for date and location. A professional/consumer directory, proceedings of conventions, and fact sheets are available.

Publications:
ALDANews
Frequency: quarterly
Type: professional/consumer newsletter
ALDA eNews
Frequency: monthly, or as needed
Type: e-mail news update

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Association of University Centers on Disabilities (AUCD)

Executive Director: George Jesien, Ph.D.
Address: 1010 Wayne Avenue, Suite 920Silver SpringMD 20910
Voice: (301) 588-8252
Fax: (301) 588-2842
Last updated: 2011 Jun 30

Description:
The Association of University Centers on Disabilities (AUCD) is the national association representing University Centers for Excellence in Developmental Disabilities, Maternal and Child Health Leadership Education in Neurodevelopmental Disabilities Programs, and Developmental Disabilities Research Centers. Its mission is to help member centers by advancing policy and practice for and with people with developmental and other disabilities, their families, and communities. Contact AUCD for date and location of annual meeting. A professional newsletter/bulletin, proceedings, and fact sheets are available.

Publications:
AUCDigest
Frequency: monthly
Type: newsletter
InBrief
Frequency: weekly
Type: legislative news update

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AUDIENT

Program Manager: Sharon Kerpel
Public Information Contacts: Sharon Kerpel, Casey Tart, and Marsha Rastatter
Address: 221 Yale Ave N, Suite 450SeattleWA 98109
Voice: (206) 838-7194
Toll-free Voice: (877) AUDIENT (283-4368)
Fax: (206) 838-7195
Last updated: 2011 Jun 30

Description:
AUDIENT is a nationwide program that helps low-income individuals obtain hearing aids at a reduced cost. Program fees include either one or two new digital hearing aids, the fitting, and three follow-up visits. The cost to the patient for one hearing aid is approximately $760 to $1,400; for two hearing aids, the cost is approximately $1,290 to $2,400.

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Audiology and Speech Pathology Services, U.S. Department of Veterans Affairs (VA)

Director: Lucille B. Beck, Ph.D.
Public Information Contact: Cathy Greener
Address: VA Medical Center, 50 Irving Street, NWWashingtonDC20422
Voice: (202) 745-8578
Voice: (202) 745-8270
Fax: (202) 745-8579
Last updated: 2014 Apr 29

Description:
Audiology and Speech Pathology Services of the U.S. Department of Veterans Affairs (VA) provides high-quality, comprehensive, state-of-the-art clinical services to eligible veterans. Diagnostic and treatment services are offered in a timely manner and in an environment that fosters respect, communication, and compassion. Audiology services include evaluation and treatment of hearing loss and tinnitus, along with assessment of balance problems and, in some locations, balance rehabilitation. Diagnostic auditory and vestibular assessment, provision of hearing aids and assistive and alerting devices, cochlear implant management, and auditory rehabilitation also are available. Speech pathology services include evaluation and treatment of speech, language, voice, and swallowing disorders.

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Autism Society of America

President/CEO: Scott Badesch
Address: 4340 East West Highway, Suite 350BethesdaMD20814
Voice: (301) 657-0881
Toll-free Voice: (800) 3-AUTISM (28-8476)
Fax: (301) 657-0869
Last updated: 2014 May 1

Description:
The Autism Society is a national charitable organization dedicated to improving the lives of individuals on the autism spectrum, their families, and the professionals who work with them by providing current, reliable information about autism, the various options, approaches, and available services. It provides toll-free phone support and a free online Information and Referral database (Autism Source) with information about local, state, and national programs and services. The Autism Society’s nationwide network of chapters is designed to provide information and support for families in their local area. The Autism Society advocates at the local, state, and national levels to improve public policy, increase awareness, and promote research that leads to applied best practices to improve the quality of life for those living with autism throughout the life span.

Publications:
Autism Advocate
Frequency: quarterly
Type: magazine

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Autism Speaks

President: Liz Feld
Executive Vice President, Programs and Services: Peter Bell
Address: 1 E. 33rd Street, 4th FloorNew YorkNY10016
Voice: (212) 252-8584
Voice: (609) 228-7346
Fax: (212) 252-8676
Last updated: 2014 May 2

Description:
The goal of Autism Speaks is to change the future for all who struggle with autism spectrum disorders. This organization is dedicated to funding global biomedical research into the causes, prevention, treatments, and cure for autism; raising public awareness about autism and its effects on individuals, families, and society; and bringing hope to all who deal with the hardships of autism.

Publications:
e-Speaks
Frequency: weekly
Type: newsletter
Speaking Out
Frequency: quarterly
Type: newsletter

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BEGINNINGS for Parents of Children Who Are Deaf or Hard of Hearing, Inc. (BEGINNINGS)

Executive Director: Joni Alberg, Ph.D.
Public Information Contact: Judy Werbicki, Administrative Assistant
Address: 302 Jefferson Street, Suite 110RaleighNC27605
Voice: (919) 715-4092
Toll-free Voice: (800) 541-4327 (In-state only)
TTY: (919) 715-4092
Fax: (919) 715-4093
Last updated: 2014 Apr 29

Description:
BEGINNINGS for Parents of Children Who Are Deaf or Hard of Hearing, Inc., (BEGINNINGS) provides support and information in an impartial manner to parents and professionals dealing with deaf and hard-of-hearing issues in children. BEGINNINGS also provides impartial information on communication options, placement, and educational programs; workshops for professional personnel who work with children who are deaf and hard-of-hearing; and advocacy and support for young people. Fact sheets, brochures, a parent manual, and reports are available, with some materials in Spanish.

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Better Hearing Institute (BHI)

Executive Director: Carole Rogin
Public Information Contact: Carole Rogin
Address: 1444 I Street, Suite 700WashingtonDC20005
Voice: (202) 449-1100
Toll-free Voice: (800) EAR-WELL (327-9355)
Fax: (202) 216-9646
Last updated: 2014 Apr 29

Description:
Founded in 1973, the Better Hearing Institute (BHI) conducts research and engages in hearing health education with the goal of helping people with hearing loss benefit from proper treatment. BHI maintains a “Hearing Helpline” telephone service that provides information on hearing loss, sources of assistance, and other hearing help to callers anywhere in the United States and Canada. BHI also publishes periodic studies of the hearing-impaired population based on its survey of 80,000 households. BHI receives funding from the hearing aid industry to support its professional/consumer outreach efforts.

Publications:
MarkeTrak
Frequency: published periodically
Type: reports based on survey data
Your Guide to Better Hearing, A Guide to Your Child's Hearing Health, and Your Guide to Hearing Aids
Frequency:
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Birth Defect Research for Children, Inc. (BDRC)

Executive Director: Betty Mekdeci
Address: 976 Lake Baldwin Lane, Suite 104OrlandoFL32814
Voice: (407) 895-0802
Last updated: 2011 Jun 30

Description:
Birth Defect Research for Children, Inc., (BDRC) provides parents and expectant parents with information about specific birth defects and their causes and treatments, support group referrals, and parent-matching services. BDRC also provides information about environmental exposures that may be associated with birth defects. To study these exposures further, BDRC sponsors the National Birth Defect Registry, an online research project that collects data on birth defects and prenatal/preconception exposures of both parents. A consumer newsletter, fact sheets, and other publications are available.

Publications:
Birth Defect News
Frequency: monthly
Type: e-mail newsletter

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Boys Town National Research Hospital (BTNRH)

Director: John K. Arch, FACHE
Public Information Contact: Mary Pat Moeller, Ph.D.
Address: 555 North 30th StreetOmaha--Select Other--68131
Voice: (402) 452-5033
Voice: (402) 452-5068
TTY: (402) 498-6543
Fax: (402) 452-5027
Last updated: 2014 Apr 29

Description:
The Boys Town National Research Hospital (BTNRH) is internationally recognized for clinical service and research into the treatment of childhood deafness and communication disorders. Research is conducted in 20 state-of-the-art laboratories and represents three broad areas: neurobiological studies of hearing; hereditary communication disorders; and clinical, educational, and behavioral studies of human communication.

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Brain Injury Association of America

President/CEO: Susan Connors
Director of Consumer Services: Greg Ayotte
Address: 1608 Spring Hill RoadViennaVA 22182
Voice: (703) 761-0750
Toll-free Voice: (800) 444-6443
Fax: (703) 761-0755
Last updated: 2011 Jun 30

Description:
A traumatic brain injury can cause a wide range of functional changes affecting thinking, language, learning, emotions, behavior, and sensation. The mission of the Brain Injury Association of America (BIAA) is to be the voice of brain injury, and to offer help, hope, and healing to all those affected by brain injury. BIAA offers a toll-free National Brain Injury Information Center (800-444-6443), with information about brain injury and local resources available to callers. BIAA also offers certification for professionals who work with people with brain injury. Webinars are available on a wide range of topics. Check the BIAA marketplace for information about available webinars.

Publications:
Challenge!
Frequency: quarterly
Type: newsletter

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Center for Hearing and Communication

Executive Director: Laurie Hanin, Ph.D.
Director, Audiology Services: Ellen Lafargue
Director, Communication Services: Lois Kam Heymann
Address: 50 BroadwayNew YorkNY10004
Voice: (917) 305-7700
TTY: (917) 305-7999
Fax: (917) 305-7888
Last updated: 2011 Jun 30

Description:
The nonprofit Center for Hearing and Communication works to improve the quality of life for people with all degrees of hearing loss and to offer comprehensive services regardless of age or mode of communication. State-of-the-art services include hearing assessment, hearing aid fitting and dispensing, speech-language and auditory evaluation and therapy, otology, cochlear implant evaluation and training, assistive listening devices and FM system counseling, tinnitus and hyperacusis therapy, and evaluation/treatment of children with auditory processing disorder (APD) and other listening challenges. Holds quarterly cochlear implant support group, weekly group assistive device demonstrations, and other meetings. Print and online publications are available.

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Center on Human Policy (CHP)

Director: Steven J. Taylor, Ph.D.
Information Coordinator: Rachael A. Zubal-Ruggieri
Address: Syracuse University, School of Education, 805 South Crouse AvenueSyracuseNY 13244-2280
Voice: (315) 443-3851
Toll-free Voice: (800) 894-0826
Fax: (315) 443-4338
Last updated: 2011 Jun 30

Description:
The Center on Human Policy (CHP) is a Syracuse University-based policy, research, and advocacy organization involved in the national movement to ensure the rights of people with disabilities. CHP is involved in a variety of activities, including policy studies, research, information and referral, training and consultation, and information dissemination. A range of professional/consumer publications is available. The Center on Human Policy, Law, and Disability Studies (CHPLDS) is an expansion of CHP. CHPLDS is a network of academic programs, centers, student organizations, and affiliated faculty that—through research, teaching, and advocacy—promotes and protects the rights of people with disabilities and examines disability as an aspect of diversity in society.

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Centers for Medicare and Medicaid Services (CMS)

Acting Administrator: Charlene Frizzera
Public Information Contact: Peter Ashkenaz, Acting Director
Address: 7500 Security BoulevardBaltimoreMD21244-1850
Voice: (410) 786-3000
Voice: (202) 690-6145
Toll-free Voice: (877) 267-2323
Last updated: 2011 Jun 30

Description:
The Centers for Medicare and Medicaid Services (CMS) is a federal agency with responsibilities that include the Medicare and Medicaid programs, two national health care programs benefiting about 75 million Americans; the State Children’s Health Insurance Program; regulation of all non-research laboratory testing performed on humans in the United States; and programs assisting millions of Americans and small companies in obtaining health insurance coverage. The website www.cms.gov targets health care providers and the public, while www.medicare.gov offers information about services to beneficiaries. Publications are available.

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CHERAB Foundation

Founder: Lisa Geng
Address: P.O. Box 8524Port St. Lucie FL34985
Voice: (772) 335-5135
Last updated: 2011 Jun 30

Description:
The CHERAB Foundation (CHERAB) is a worldwide nonprofit organization that helps individuals with speech and language delays and disorders through communication help, education, and research that is apraxia-based. Its area of emphasis is verbal and oral apraxia, which are severe neurologically based speech and language disorders that hinder children's ability to speak. The foundation is committed to assisting with the development of new therapeutic approaches to, and prevention and cure of, neurologically based speech disorders. CHERAB brings together parents and medical, research, and educational professionals to help give a voice to all. Sign up to receive updates at http://twitter.com/TheLateTalker.

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Childhood Apraxia of Speech Association of North America (CASANA)

President: Mary Sturm, M.D.
Public Information Contact: Sharon Gretz, M.Ed.
Address: 416 Lincoln Avenue, 2nd FloorPittsburghPA15209
Voice: (412) 343-7102
Last updated: 2014 May 5

Description:
The Childhood Apraxia of Speech Association of North America (CASANA) is the only national nonprofit 501(c)(3) charity representing the needs of children with apraxia and their families. CASANA’s goal is to provide credible, reliable, and comprehensive information on apraxia of speech in children. Guided by a professional advisory board of experts in childhood apraxia of speech, CASANA offers information and resources based on the current prevailing professional literature and expert opinion. CASANA programs include: - Information, support, and awareness: online support and information, multimedia, awareness walks, iPads for Apraxia project, CASANA speech therapy funds - Education and Training: workshops, webinars, an annual national conference, and intensive training institutes - Research Support: connects families with researchers; funds research, hosts research symposiums

Publications:
Apraxia-KIDS Newsletter
Type:

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Children of Deaf Adults International, Inc. (CODA)

President: Carmel Batson
National CODA Outreach Contact: Thomas Bull
Address: P.O. Box 30715Santa BarbaraCA93130
Voice: (805) 682-0997
TTY: (805) 682-0997
Last updated: 2011 Jun 30

Description:
Children of Deaf Adults International, Inc., (CODA) promotes family awareness and individual growth in hearing children of deaf parents. CODA provides educational opportunities, promotes self-help, organizes advocacy efforts, and acts as a resource for the membership and various communities. Holds annual conference; contact CODA for date and location. A professional/consumer newsletter, directory, fact sheets, brochures, and books are available.

Publications:
The CODA Connection
Frequency: quarterly
Type: newsletter

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CID - Central Institute for the Deaf

Executive Director: Robin Feder
Communication Director: Kim Readmond
Address: 825 South Taylor AvenueSt. LouisMO63110
Voice: (314) 977-0243
TTY:
Fax: (314) 977-0033
Last updated: 2011 Jun 30

Description:
Founded in 1914, the Central Institute for the Deaf (CID) is a nonprofit organization that helps deaf children learn to speak, listen, and read with proficiency without the use of sign language. CID provides pediatric audiology; research collaborations; continuing education for professionals; and books, tests, and curricula used to help deaf children throughout the world. CID has a proud history of training professionals and conducting pioneering educational, clinical, and biological research in hearing and deafness. CID is a financially independent affiliate of the Washington University School of Medicine.

Publications:
sound effects
Frequency: biannual
Type: newsletter

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Clearinghouse on Disability Information, Office of Special Education and Rehabilitative Services (OSERS)

Director of Communications/Customer Service Team: James Button
Public Information Contact: Carolyn Corlett
Address: 550 12th Street, SW, Room 5133WashingtonDC 20004
Voice: (202) 245-7307
TTY: (202) 205-5637
Fax: (202) 245-7636
Last updated: 2011 Jun 30

Description:
The Clearinghouse on Disability Information, a service of the U.S. Department of Education, responds to people with disabilities and others who request information by conducting research and providing documents related to federal funding available for disability-related programs. Clearinghouse staff members also may refer requests to other sources of disability-related information. Information provided may be useful to disabled individuals and their families, schools and universities, teachers and school administrators, and organizations who serve people with disabilities.

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Collaborative for Communication Access via Captioning (CCAC)

Founder and Chairperson: Lauren E. Storck, Ph.D.
Address: No mailing address see website
Last updated: 2011 Jun 30

Description:
The Collaborative for Communication Access via Captioning (CCAC) is a grassroots volunteer network that advocates for the universal inclusion of quality captioning (subtitles and real-time captioning). Membership forms are available on the website. CCAC collaborates with other groups and individuals to ensure that captioning becomes available in all needed places (education, employment, entertainment, transportation, government, telecommunications, the Internet, social participation, etc.). Members use an active online forum to request and provide guidance to facilitate inclusion of captioning whenever possible. CCAC members also offer local education and awareness workshops, conference presentations, and articles. Consumer members are eligible to request free captioning services from provider members in selected situations.

Publications:
CCAC website articles
Frequency:
CCAC Blog

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Communication Service for the Deaf, Inc. (CSD)

Chief Executive Officer: Benjamin Soukup, L.L.D.
Public Information Contact: Rick Norris, Public Relations
Address: 102 North Krohn PlaceSioux FallsSD57103
Voice: (605) 367-5760
Toll-free Voice: (800) 642-6410
TTY: (605) 367-5761
Toll-free TTY: (866) 273-3323
Fax: (605) 367-5958
Last updated: 2011 Jun 30

Description:
Communication Service for the Deaf, Inc., (CSD) is a world leader in providing broad-based quality human service programs and telecommunication relay services for consumers who are deaf and hard-of-hearing. CSD has a staff of approximately 2,000 people in facilities across the United States. CSD endeavors to increase opportunities for greater independence, ensure communication accessibility, and promote public awareness of issues affecting everyone who is deaf or hard-of-hearing.

Publications:
SIGNews
Frequency: monthly
Type: newspaper for the signing community

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Conference of Educational Administrators of Schools and Programs for the Deaf (CEASD)

Executive Director: Joe Finnegan
Executive Director: Joe Finnegan
Address: P.O. Box 1778St. AugustineFL32085-1778
Voice: (904) 810-5200
TTY: (904) 810-5200
Fax: (904) 810-5525
Last updated: 2011 Jun 30

Description:
The Conference of Educational Administrators of Schools and Programs for the Deaf (CEASD) is an association of schools and programs involved with the education of deaf and hard-of-hearing individuals. Founded in 1868, CEASD is committed to promoting excellence within a continuum of equitable educational opportunities for children and adults who are deaf or hard-of-hearing. At the national level, CEASD serves as an advocate for the deaf and hard-of-hearing with governmental bodies that establish educational policy and implement federal legislation. Holds annual convention; contact CEASD for date and location. A professional journal, newsletter, directory, brochures/pamphlets, and online publications are available.

Publications:
American Annals of the Deaf
Frequency: quarterly journal
Type: supplemented by an annual reference issue of schools and programs

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Council for Accreditation in Occupational Hearing Conservation (CAOHC)

Executive Director: Kim Breitbach
Executive Director: Kim Breitbach
Address: 555 East Wells Street, Suite 1100MilwaukeeWI53202-3823
Voice: (414) 276-5338
Fax: (414) 276-2146
Last updated: 2011 Jun 30

Description:
The main objective of the Council for Accreditation in Occupational Hearing Conservation CAOHC) is to provide education, information, and guidance to industry and mining and to those serving industry and mining for the successful implementation of an occupational hearing conservation program. See the website for the “Scope of Practice: The Professional Supervisor of the Audiometric Monitoring Program” (the audiometric portion of a hearing conservation program), “CAOHC Certified Occupational Hearing Conservationist Scope of Practice and Limitations,” archived newsletters, and other comprehensive information.

Publications:
UPDATE
Frequency: triannual
Type: professional newsletter
Hearing Conservation Manual
Frequency: every 5 years
Type: comprehensive manual related to hearing conservation

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Council for Exceptional Children (CEC)

Executive Director: Bruce Ramirez
Public Information Contact: Diane Shinn, Communications Director
Address: 2900 Crystal Drive, Suite 1000ArlingtonVA22202
Voice: (703) 620-3660
Toll-free Voice: (888) 232-7733
Toll-free TTY: (866) 915-5000
Fax: (703) 264-9494
Last updated: 2011 Jun 30

Description:
The Council for Exceptional Children (CEC) is the largest professional organization dedicated to improving the educational success of individuals with disabilities or gifts. CEC advocates for appropriate government policies, sets professional standards, provides professional development, advocates for underserved individuals with exceptionalities, and helps professionals obtain conditions and resources for effective professional practice. Holds annual convention; contact CEC for date and location. Professional journals, brochures, and a newsletter are available.

Publications:
Exceptional Children
Frequency: quarterly
Type: professional journal
Teaching Exceptional Children
Frequency: published six times a year
Type: professional magazine

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Council for Learning Disabilities (CLD)

Executive Director: Linda Nease
Address: 11184 Antioch Road, #405Overland ParkKS66210
Voice: (913) 491-1011
Fax: (913) 491-1012
Last updated: 2014 Apr 29

Description:
The Council for Learning Disabilities (CLD) is an international organization that promotes evidence-based teaching, collaboration, research, leadership, and advocacy. CLD is composed of professionals who represent diverse disciplines and are committed to enhancing the education and quality of life for individuals with learning disabilities and others who experience challenges in learning.

Publications:
LD Forum
Frequency: published five times a year
Type: professional newsletter
Learning Disabilities Quarterly
Frequency:

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Council of Academic Programs in Communication Sciences and Disorders (CAPCSD)

President: Ken Apel
Executive Director: Mary Chavez Rudolph, Ph.D.
Address: 3000 So. Jamaica Ct., Suite 390DenverCO80014
Voice: (303) 835-9089
Fax: (800) 805-5932
Last updated: 2014 May 5

Description:
The Council of Academic Programs in Communication Sciences and Disorders (CAPCSD) is an organization of university programs in speech-language pathology; audiology; and speech, language, and hearing sciences. It represents more than 2,000 faculty and administrators from universities in the United States and abroad. CAPCSD advocates for academic programs in communication sciences and disorders and facilitates information exchange among programs and personnel. It also serves as an advisory group to professional associations, legislative bodies, and government agencies. Holds annual conference; contact CAPCSD for date and location. A professional directory, brochures/pamphlets, and reports are available.

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Council of American Instructors of the Deaf (CAID)

President: Larry K. Quinsland
Address: P.O. Box 377BedfordTX76095-0377
Voice: (817) 354-8414
TTY: (817) 354-8414
Last updated: 2011 Jun 30

Publications:
News & Notes
Frequency: quarterly
Type: professional newsletter
American Annals of the Deaf
Frequency: quarterly
Type: professional journal, supplemented by a reference issue

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Council on Education of the Deaf (CED)

Executive Director: Joseph Fischgrund
Address: Gallaudet University, P.O. Box 2074, 800 Florida Avenue, NE WashingtonDC20002
Voice: (202) 250-2661
Fax: (859) 622-4443
Last updated: 2014 Apr 29

Description:
The Council on Education of the Deaf (CED) is an organization sponsored by five major national organizations dedicated to quality education for all deaf and hard of hearing students. CED promulgates nationally recognized students for teachers of deaf and hard of hearing students in all educational settings, accredits university programs preparing teachers of deaf and hard-of-hearing students, and collaborates with a variety of other related organizations through several national committees and workgroups.

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DB-LINK at the National Consortium on Deaf-Blindness (formerly the National Information Clearinghouse on Children Who Are Deaf-Blind)

Associate Director, NCDB: John Reiman, Ph.D.
Address: 345 North Monmouth AvenueMonmouthOR 97361
Toll-free Voice: (800) 438-9376
Toll-free TTY: (800) 854-7013
Fax: (503) 838-8150
Last updated: 2011 Jun 30

Description:
DB-LINK, part of the National Consortium on Deaf-Blindness (NCDB), is home to the largest collection of information related to deaf-blindness worldwide. A team of information specialists makes this extensive resource available in response to direct requests and via the website. Contact DB-LINK to access quality information about deaf-blindness, order a newsletter and other publications, find resources by state, receive tailored information packets to support teaching or training, and connect to a network of experts and families. Information is free. NCDB is funded by the U.S. Department of Education’s Office of Special Education Programs.

Publications:
Deaf-Blind Perspectives
Frequency: semiannual
Type: consumer/professional newsletter

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Described and Captioned Media Program (DCMP), National Association of the Deaf

Project Director: Jason Stark
Address: 1447 East Main StreetSpartanburgSC29307
Voice: (800) 237-6213
Toll-free Voice: (800) 237-6213
Toll-free TTY: (800) 237-6819
Fax: (800) 538-5636
Last updated: 2011 Jun 30

Description:
The Described and Captioned Media Program (DCMP) provides services designed to support and improve the academic achievement of students who are blind, visually impaired, deaf, hard-of-hearing, or deaf-blind. These services include: (1) a library of free-loan described and captioned educational media; and (2) a clearinghouse of information related to educational media access, including a gateway to Internet resources related to accessibility. There are no user registration or service fees. The DCMP is funded by the U.S. Department of Education and administered by the National Association of the Deaf.

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Disability Rights Office, Consumer & Governmental Affairs Bureau, Federal Communications Commission (FCC)

Chief: Thomas Chandler
Address: 445 12th Street, SWWashingtonDC 20554
Voice: (202) 418-2516
Toll-free Voice: (888) 225-5322
TTY: (202) 418-0189
Toll-free TTY: (888) 835-5322
Fax: (866) 418-0232
Last updated: 2011 Jun 30

Description:
The Disabilities Rights Office, housed within the Consumer and Governmental Affairs Bureau at the Federal Communications Commission (FCC), ensures that FCC actions and policies enable people with disabilities to have the same access as everyone else to telecommunications. FCC implements mandates for nationwide telephone relay services, accessibility, and usability of telecommunications wireline and wireless products and services. These services include hearing aid compatibility of phones, closed captioning of television programming, and accessibility of emergency information on television.

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Disability Rights Section, Civil Rights Division, U.S. Department of Justice (DOJ)

Public Information Contact: Information Specialists
Address: 950 Pennsylvania Avenue, NWWashingtonDC20530
Toll-free Voice: (800) 514-0301
Toll-free TTY: (800) 514-0383
Fax: (202) 514-0404
Last updated: 2011 Jun 30

Description:
The Disability Rights Section (DRS) is part of the Civil Rights Division of the U.S. Department of Justice (DOJ). DRS focuses on all disabilities and is especially knowledgeable about the interpretation of the Americans with Disabilities Act of 1990. The organization offers an information line for all inquiries as well as assistance to state and local government entities, private-sector business professionals, and the general public. Fact sheets, brochures/pamphlets, online publications, and a professional report are available. Some materials in Spanish and other languages are available.

Publications:
Enforcing the ADA: A Status Report from the Department of Justice
Frequency: quarterly
Type: report

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Disability, Inc./Sign Language USA, LLC/CAPCOM

Executive Director: Richard F. Rosen, Ph.D.
Address: P.O. Box 1246McLeanVA22101
Voice: (703) 628-5472
Voice: 1-855-SIGNUSA 1-855-744-6872
TTY: (703) 628-5472 (via relay)
Fax: (520) 544-8911
Last updated: 2011 Jun 30

Description:
Disability, Inc./Sign Language USA, LLC/CAPCOM provides sign language interpreters and support services for people with disabilities. Live or live-video sign language interpreting is available 24 hours a day, 7 days a week. Services include legal counsel to deaf persons, other legal services, assistance with home mortgages, product information, and the accessibility status of businesses and other locations. Fact sheets and brochures are available.

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Dogs for the Deaf, Inc.

President/CEO: Robin Dickson
Information Resources Coordinator: Kimberly Miller
Address: 10175 Wheeler RoadCentral PointOR97502
Voice: (541) 826-9220
Toll-free Voice: (800) 990-DOGS (3647)
TTY: (541) 826-9220
Fax: (541) 826-6696
Last updated: 2014 Apr 30

Description:
Dogs for the Deaf, Inc.'s mission is to rescue and professionally train dogs to help people and enhance lives, maintaining a lifelong commitment to all dogs we rescue and all people we serve. Our Hearing Dogs are trained to alert people to household sounds that are necessary for everyday safety and independence. Autism Assistance Dogs are trained to enhance the safety of children with autism by acting as an anchor and preventing the child from bolting. Program Assistance Dogs go to work with and assist professionals such as physicians, teachers, counselors, and court room advocates. Career Change Dogs are wonderful dogs who are happy and healthy but just not suited to working for a living.

Publications:
Canine Listener
Frequency: quarterly
Type: newsletter

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Dyslexia Research Institute (DRI)

Director: Patricia K. Hardman, Ph.D.
Public Information Contact: Amber Mitchell
Address: 5246 Centerville RoadTallahasseeFL32309
Voice: (850) 893-2216
Fax: (850) 893-2440
Last updated: 2014 Apr 30

Description:
The goal of the Dyslexia Research Institute (DRI) is to expand the knowledge of parents and professionals in the areas of dyslexia and attention deficit disorders. Direct instruction is provided through a full multisensoral curriculum for both adults and children. DRI runs a full-time school, called Woodland Hall Academy, for dyslexic individuals. DRI provides instruction through informational seminars, teacher training, and advocacy/consultation. Research papers are available.

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Dysphagia Research Society

President: Cathy Lazarus, Ph.D.
Association Manager: Tammy McMillan
Address: 4550 Post Oak Place, Suite 342HoustonTX77027
Voice: (713) 965-0566
Fax: (713) 960-0488
Last updated: 2014 Apr 30

Description:
The Dysphagia Research Society (DRS) was established to serve researchers and clinicians from different areas of inquiry who share a research interest in normal and disordered swallowing and related functions. Its purposes are to enhance and encourage research in these areas, attract new investigators to the field and encourage interdisciplinary research, promote the dissemination of knowledge, provide a multidisciplinary forum for presenting research, and foster new methodologies and instrumentation in dysphagia research and its clinical applications. DRS holds an annual conference; see website for details. DRS also publishes a professional journal and a newsletter biannually.

Publications:
Dysphagia
Frequency: quarterly
Type: journal
Frequency:
Frequency:

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Easter Seals, Inc.

President/Chief Executive Officer: James E. Williams, Jr.
Information and Referral Specialist: Rosemary Garza
Address: 233 South Wacker Drive, Suite 2400ChicagoIL60606
Voice: (312) 726-6200
Toll-free Voice: (800) 221-6827
TTY: (312) 726-4258
Fax: (312) 726-1494
Last updated: 2011 Jun 30

Description:
The mission of Easter Seals, Inc., is to create solutions that change the lives of children and adults with disabilities and their families. Easter Seals operates 450 sites in the United States. Its primary services are medical rehabilitation with early intervention, physical therapy, occupational therapy, speech therapy, job training and employment, children’s services (including inclusive childcare), adult and senior services, camping, recreation, and respite.

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Educational Audiology Association

Executive Administrator: Jesse Haynes
Educational Audiology Association:
Address: 3030 West 81st AvenueWestminsterCO80031-4111
Voice: (800) 460-7322
Fax: (303) 458-0002
Last updated: 2011 Jun 30

Description:
The Educational Audiology Association (EAA) is an international organization of audiologists and related professionals who deliver a full spectrum of hearing services to all children, particularly those in educational settings. The mission of EAA is to act as the primary resource and active advocate for its members through its publications and products, continuing educational activities, networking opportunities, and other professional endeavors. EAA was established in 1984 to advocate for educational audiologists and the students they serve. The American Academy of Audiology and the American Speech-Language-Hearing Association recognize EAA as a related professional organization that facilitates direct communication between these organizations and others to provide a forum for EAA issues.

Publications:
Educational Audiology Review
Frequency: quarterly
Type: newsletter
Journal of Educational Audiology
Frequency: annually
Type: professional journal

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Foundation Fighting Blindness, Inc. (FFB)

Chief Executive Officer: William T. Schmidt
Constituent Service Coordinator: Mitsy Palmer
Address: 11435 Cronhill DriveOwings MillsMD21117-2220
Voice: (410) 568-0150
Toll-free Voice: (800) 683-5555
Toll-free TTY: (800) 683-5551
Fax: (410) 363-2393
Last updated: 2011 Jun 30

Description:
The mission of the Foundation Fighting Blindness, Inc., (FFB) is to drive the research that will provide preventions, treatments, and cures for people affected by retinitis pigmentosa, macular degeneration, Usher syndrome, and the entire spectrum of retinal degenerative diseases. FFB offers its information and referral services to affected individuals and their families as well as to doctors and eye care professionals. FFB also provides comprehensive information kits on retinitis pigmentosa, macular degeneration, and Usher syndrome. Holds a national conference approximately yearly: contact FFB for details. Publications feature articles on coping, research updates, and foundation news.

Publications:
InFocus
Frequency: triannual
Type: newsletter
InSight
Frequency: published about five times a year
Type: e-newsletter

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Friends of Libraries for Deaf Action (FOLDA)

Founding President: Alice L. Hagemeyer, M.L.S.
Address: 2930 Craiglawn RoadSilver SpringMD20904-1816
Voice: (301) 563-9062
Fax: (301) 572-5168
Last updated: 2014 Apr 30

Description:
Friends of Libraries for Deaf Action (FOLDA) is a public service of Library for Deaf Action, the deaf-owned deaf cultural programming business of Alice L. Hagemeyer. FOLDA has no membership dues. FOLDA serves members of library friends groups and OSD (Organizations Serving the Deaf) in their need of library resources to advocate cost effective and efficient library services for the deaf community in their jurisdiction - locally, nationally, and globally. We welcome announcements and news relating deaf resources and library programs. To register for free subscription to FOLDA-E NEWS, please email your name, email address, and the name of your town to folda86@aol.com.

Publications:
FOLDA E: News
Frequency: regularly updated
Type: newsletter

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Gallaudet University, Laurent Clerc National Deaf Education Center, Public Relations and Publications

Director of Public Relations and Publications: Danielle Puzio
Information Services Coordinator: Anita Gilbert
Address: 800 Florida Avenue, NEWashingtonDC20002
Voice: (202) 651-5051
TTY: (202) 651-5051
Fax: (202) 651-5708
Last updated: 2011 Jun 30

Description:
The Public Relations and Publications Office at Gallaudet University’s (GU’s) Laurent Clerc National Deaf Education Center provides information about diverse topics related to deaf and hard-of-hearing children and young adults from infancy to age 21. The office responds to inquiries and also collaborates with authors from within the Gallaudet community and nationwide to design, produce, and disseminate books, videotapes, periodicals, and other information related to deaf and hard-of-hearing children, their families, and the professionals who serve them. Fact sheets, brochures, and a directory are available.

Frequency:
Odyssey
Frequency: semiannual
Type: magazine
World Around You
Frequency: monthly
Type: online magazine for deaf and hard-of-hearing teens

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Gallaudet University (GU) and Laurent Clerc National Deaf Education Center

President: Dr. T. Alan Hurwitz
Executive Director, Communications and Public Relations: Catherine Murphy
Address: 800 Florida Avenue, NEWashingtonDC20002-3695
Voice: (202) 651-5000
Toll-free Voice: (800) 995-0550
TTY: (202) 651-5000
TTY: (202) 651-5866 (videophone)
Fax: (202) 651-5508
Last updated: 2011 Jun 30

Description:
Gallaudet University is the world’s only university in which all programs and services are specifically designed to accommodate deaf and hard-of-hearing students. The Laurent Clerc National Deaf Education Center ensures that the diverse population of deaf and hard-of-hearing students (birth through age 21) in the nation are educated and empowered and have the linguistic competence to maximize their potential as productive and contributing members of society. The Research Institute is a leading center for research on deafness. National and international programs, including regional extension centers, conferences, sign language classes, summer programs, and international outreach, annually serve approximately 33,000 people.

Publications:
Gallaudet Today
Frequency: quarterly
Type: magazine/newsletter combination
On the Green
Frequency: biweekly
Type: newsletter

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Genetic Alliance

President /CEO: Sharon F. Terry, M.A.
Address: 4301 Connecticut Avenue, NW, Suite 404WashingtonDC20008-2369
Voice: (202) 966-5557
Toll-free Voice: (800) 336-GENE (4363)
Fax: (202) 966-8553
Last updated: 2011 Jun 30

Description:
Genetic Alliance improves health through the authentic engagement of communities and individuals. The organization is committed to transforming health through genetics and promoting an environment of openness centered on the health of individuals, families, and communities. Genetic Alliance’s network includes disease-specific advocacy organizations, universities, private companies, government agencies, and public policy organizations.

Publications:
Advocacy in Genetics
Frequency: quarterly
Type: newsletter
Policy Bulletin
Frequency: weekly
Type: newsletter
Newborn Screening Newsletter
Frequency: quarterly
Type: newsletter

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Global and Regional Asperger Syndrome Partnership (GRASP)

Executive Director: Kate Palmer
Deputy Director: Alison Alpert
Address: 419 Lafayette StreetNew YorkNY10003
Voice: (888) 474-7277
Fax: (888) 474-7277
Last updated: 2014 May 2

Description:
The Global and Regional Asperger Syndrome Partnership (GRASP) is the largest peer-run organization in the world serving individuals diagnosed on the autism spectrum. GRASP operates a support and advocacy network, conducts educational outreach, and serves as an informational clearinghouse on autism-related issues. Its bylaws stipulate that the executive director, all members of its advisory board, and half of its board of directors must be on the autism spectrum. GRASP has many professional affiliations and works with parents’ organizations, universities, service agencies, research institutions, autism organizations, and advocacy organizations. GRASP offers 27 peer-run regional support groups and many online. Visitors to the website can subscribe to an e-list to stay informed of new educational articles.

Publications:
GRASP Newsletter
Frequency: monthly
Type: newsletter
Frequency:
Frequency:

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Goodwill Industries International, Inc.

President/CEO: Jim Gibbons
Public Information Contact: Lauren Lawson, Media Relations Manager
Address: 15810 Indianola DriveRockvilleMD20855
Voice: (301) 530-6500
Toll-free Voice: (800) 741-0197
TTY: (301) 530-9759
Fax: (301) 530-1516
Last updated: 2011 Jun 30

Description:
Goodwill Industries International, Inc., is a network of 183 community-based, independent agencies in the United States, Canada, and 14 other countries. Each organization serves people with workplace disabilities and disadvantages, including those who are deaf or hard-of-hearing or who have other communication disorders, by providing career training and employment services as well as job placement opportunities and post-employment support. To pay for its programs, Goodwill sells donated clothes and other household items in more than 2,300 retail stores, and online at www.shopgoodwill.com. A magazine and other publications are available, with some materials in Spanish.

Publications:
Working!
Frequency: quarterly
Type: magazine

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Hands & Voices Headquarters

Executive Director: Janet DesGeorges
Address: P.O. Box 3093BoulderCO80307
Voice: (303) 492-6283
Toll-free Voice: (866) 422-0422
Toll-free TTY: (866) 422-0422
Fax: (303) 492-3274
Last updated: 2014 Apr 30

Description:
Hands & Voices Headquarters is an international nonprofit organization dedicated to supporting families and their children who are deaf or hard-of-hearing as well as the professionals who serve them. This organization is a parent-driven, parent/professional collaborative group that is unbiased toward any communication modes and methods. Its membership includes those who are deaf or hard-of hearing and their families who communicate orally or with signs, cued speech, or combined methods. Hands & Voices exists to help children reach their highest potential. See the website for local chapters.

Publications:
The Communicator
Frequency: quarterly
Type: newsletter

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Hard of Hearing Advocates (HOHA)

Director: Janet Keeler
Address: P.O. Box 1184 or 245 Prospect StreetUptonMA01701
Voice: (508) 875-8662
Last updated: 2011 Jun 30

Description:
The goal of Hard of Hearing Advocates (HOHA) is to create and implement programs and solutions in areas in which people who are hard-of-hearing have undue problems. HOHA identifies specific problem areas, develops solutions, and seeks support to implement these solutions. The HOHA website has an online discussion board where hard-of-hearing people can discuss problems, solutions, and issues related to hearing loss.

Publications:
Hearing Awareness Kit
Frequency:

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Hear Me Foundation

Executive Director: Tamala Irish
Executive Director: Tamala Irish
Address: 4814 Woodstream Village DriveKingwoodTX77345
Voice: (281) 359-6725
Fax: (281) 361-9109
Last updated: 2011 Jun 30

Description:
The mission of the Hear Me Foundation is to promote positive life experiences via camp activities and year-round events primarily for oral-deaf and hard-of-hearing children, their siblings, and their families. The Hear Me Foundation provides families with the resources to learn specific skills necessary to monitor their child’s healthy development, including listening, speech, language, and emotional and socialization skills. The foundation also is a service provider for the Interactive Metronome, a training system to improve a child’s coordination, focus, and attention span. Holds annual meeting (Camp Hear Me); contact the Hear Me Foundation for date and location.

Frequency:
Frequency:
Frequency:

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HEAR NOW

Public Information Contact: Joanita Stelter
Address: 6700 Washington Avenue SouthEden PrairieMN55344
Voice: 800-328-8602
Toll-free Voice: (800) 648-4327
Fax: (952) 947-4997
Last updated: 2011 Jun 30

Description:
HEAR NOW, a domestic program of the Starkey Hearing Foundation, provides hearing aids to people with no other resources to acquire hearing aids. HEAR NOW is a program of last resort; all other options must be used before service is awarded. Professional/consumer fact sheets and brochures are available.

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Hearing Education and Awareness for Rockers (H.E.A.R.)

Executive Director: Kathy Peck
Voice: (415) 409-3277
Last updated: 2014 Apr 30

Description:
Hearing Education and Awareness for Rockers (H.E.A.R.) is world-renowned for its efforts to educate the public about the dangers of excessive noise and to provide adequate hearing protection to musicians and music fans. H.E.A.R. promotes awareness about hearing damage by disseminating public service information and announcements to the media, producing hearing conservation “rocumentary” DVDs, and by establishing information and earplug tables at music events in the United States. H.E.A.R. programs include the H.E.A.R. Partner program in cities worldwide, custom musicians’ hearing protection programs, hearing screening clinics, and online hearing health and music resources. The professional/consumer hearing education conservation program "Listen Smart: Safely Handling the Power of Sound" is available as a DVD.

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Hearing Health Foundation

Executive Director: Andrea Boidman
Address: 363 Seventh Avenue, 10th FloorNew YorkNY10001-3904
Voice: (212) 257-6140
Toll-free Voice: (866) 454-3924
TTY: (888) 435-6104
Toll-free TTY: (888) 435-6104
Fax: (212) 257-6139
Internet: http://hhf.org
Last updated: 2014 Apr 30

Description:
Hearing Health Foundation is the largest private funder of hearing research, with a mission to prevent and cure hearing loss through groundbreaking research. Since 1958, Hearing Health Foundation has given away millions of dollars to hearing and balance research, including work that led to cochlear implant technology and now through the Hearing Restoration Project is working on a cure for hearing loss. Hearing Health Foundation also publishes Hearing Health magazine, a free consumer resource on hearing loss and related technology, research, and products. To learn more, subscribe to our magazine, or support this work, visit www.hhf.org.

Publications:
Hearing Health
Frequency: quarterly
Type: magazine
Hearing Health E-News
Frequency: monthly
Type: e-newsletter

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Hearing Industries Association (HIA)

Executive Director: Carole M. Rogin
Address: 1444 I Street, NW, Suite 700WashingtonDC20005
Voice: (202) 449-1090
Fax: (202) 216-9646
Last updated: 2011 Jun 30

Description:
The Hearing Industries Association (HIA) is the national trade association of manufacturers of hearing aids, assistive listening devices, component parts, and power sources. Together, these companies produce the majority of the over 2 million hearing aids that are purchased in the United States on an annual basis. The HIA website maintains a database of media articles related to hearing aids use, research, and proposed legislation affecting their use. Fact sheets and statistical reports are available for purchase by request.

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Hearing Loss Association of America

Address: 7910 Woodmont Avenue, Suite 1200BethesdaMD20814
Voice: (301) 657-2248
Fax: (301) 913-9413
Last updated: 2014 Apr 30

Description:
The Hearing Loss Association of America (HLAA) is a nonprofit organization with a mission to open the world of communication to people with hearing loss through education, information, support, and advocacy. HLAA provides assistance and resources for people with hearing loss and their families to learn how to adjust to living with hearing loss. HLAA is working to eradicate the stigma associated with hearing loss and raise public awareness about the need for prevention and the importance of regular hearing screenings throughout life. HLAA has an extensive network of chapters and state associations across the country. HLAA also holds annual conventions for people with hearing loss and professionals; see website for details.

Publications:
Hearing Loss Magazine
Frequency: bimonthly
Type: magazine

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HEATH Resource Center at the National Youth Transitions Center (National Clearinghouse on Postsecondary Education for Individuals with Disabilities)

Address: 2134 G Street, NW WashingtonDC20052
Last updated: 2014 May 5

Description:
The HEATH Resource Center is an online clearinghouse on postsecondary education for individuals with disabilities. Since 2000, the HEATH Resource Center has served as a national clearinghouse on postsecondary education for individuals with disabilities, managed by the George Washington University Graduate School of Education and Human Development. Now, the HSC Foundation has partnered with the George Washington University to expand the content of this resource and to designate it as the official resource site of the HSC Foundation's National Youth Transitions Center.

Publications:
HEATH Resource Center Newsletter
Frequency: Quaterly
Type: newsletter

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Helen Keller National Center for Deaf-Blind Youths and Adults (HKNC)

Executive Director: Joseph J. McNulty
Address: 141 Middle Neck RoadSands PointNY11050
Voice: (516) 944-8900
TTY: (516) 944-8637
Fax: (516) 944-7302
Last updated: 2011 Jun 30

Description:
The mission of the Helen Keller National Center for Deaf-Blind Youths and Adults (HKNC) is to enable all individuals who are deaf-blind to live and work in the community of their choice. HKNC provides comprehensive vocational rehabilitation training and assistance with job and residential placements. Services in the field include 10 regional offices, more than 40 affiliated agencies, a National Training Team, the Older Adult Program, and the National Consortium on Deaf-Blindness. HKNC serves all adult Americans who are deaf-blind or have severe vision and hearing impairments and maintains a national registry of individuals who are deaf-blind. Professional fact sheets and brochures/pamphlets are available, with some materials in Braille.

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Holley Institute

President: Ardis J. Gardella
Address: 22151 Moross Road, Professional Building I, Suite 223DetroitMI48236-2172
Voice: (313) 343-7583
Voice: (313) 343-7484
TTY: (313) 343-8789
Fax: (313) 343-4111
Last updated: 2011 Jun 30

Description:
The mission of the Holley Institute, a nonprofit organization founded in 1993, is to assist deaf, deaf-blind, and hard-of-hearing individuals by providing services and programs aimed at improving their quality of life. Institute volunteers screen newborn infants for hearing loss at St. John Hospital in Detroit, MI. The institute owns and operates the Holley Family Village, located in Brooklyn, MI, where it offers educational, recreational, and mental health programs for deaf, deaf-blind, and hard-of-hearing children, teens, adults, and their families. The institute also offers American Sign Language classes at some Michigan locations.

Publications:
The Holley Institute Newsletter
Frequency: published quarterly
Type: other

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House Research Institute

Chief Executive Officer: James D. Boswell
Director of Community Education and Outreach: Marilee J. Potthoff
Address: 2100 West Third StreetLos AngelesCA90057
Voice: (213) 483-4431
TTY: (213) 484-2642
Fax: (213) 483-8789
Last updated: 2014 Apr 30

Description:
The House Research Institute (formerly called the House Ear Institute) is a private, nonprofit 501(c)(3) organization dedicated to advancing hearing science through research and education to improve quality of life. Scientists are exploring the developing ear and ear diseases at the cellular and molecular level as well as investigating the complex ear-brain interaction. They also are working to improve hearing aids and auditory implants, clinical treatments, and intervention methods. Professional/consumer brochures, books, and audiovisuals are available.

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The Hyperacusis Network

Publisher: Dan Malcore
Address: 4417 Anapaula LaneGreen BayWI54311
Voice: (920) 866-3377
Last updated: 2014 Apr 30

Description:
The Hyperacusis Network is an international support group established to care for individuals with a decreased sound tolerance (DST). The network helps educate individuals, families, and the medical community and families about this rare auditory disorder by explaining treatment options, sharing ways to cope, and reporting on current ongoing research. In addition, the network provides a listing of clinicians worldwide who are specifically trained to diagnose and treat hyperacusis. A message board is provided so individuals can share their experiences. The network also offers hearing protection products designed specifically for hyperacusis. Fact sheets, brochures/pamphlets, online publications and resources are available through our website. Membership is free.

Publications:
The Hyperacusis Network
Frequency: biannual
Type: professional/consumer newsletter

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Hyperacusis Research Limited

President: Bryan Pollard
Address: P.O. Box 1295MarlboroMA 01752
Last updated: 2011 Jun 30

Description:
Hyperacusis Research Limited is dedicated to improving the quality of life for patients who suffer from hyperacusis and hyperacusis-related disorders. Hyperacusis Research is working through research conferences to raise awareness of this challenging auditory disorder. Central to the mission of Hyperacusis Research is facilitating and supporting biomedical research that will lead to novel, effective therapies for the treatment of hyperacusis. Hyperacusis Research is supporting innovative research projects across borders and disciplines with an emphasis on collaboration and knowledge sharing between supported individuals and institutions. Information about managing noise and ongoing research is available on the Hyperacusis Research website.

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International Deaf/Tek, Inc.

President: Brenda Monene, R.N., M.Ed.
Address: 104 Catbriar CourtSummervilleSC29485
Voice: (843) 873-8444
Last updated: 2011 Jun 30

Description:
International Deaf/Tek, Inc., maintains Deaftek.USA, a website that focuses on employment opportunities for deaf individuals and the people who serve them. Organizations, agencies, schools, businesses, and other entities wishing to fill positions may send employment announcements to this site at no charge. Employment opportunities are posted according to category and remain on the site for two months unless longer or shorter times are requested.

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International Hearing Society (IHS)

Executive Director: Kathleen Mennillo, M.B.A.
Public Information Contact: Amanda Ciccantelli
Address: 16880 Middlebelt Road, Suite 4LivoniaMI48154
Voice: (734) 522-7200
Toll-free Voice: (800) 521-5247
Fax: (734) 522-0200
Last updated: 2011 Jun 30

Description:
The International Hearing Society (IHS) was formed in 1951 as a professional organization of hearing instrument specialists, the professionals who test hearing and select, fit, and dispense hearing instruments. The society conducts programs pertaining to competence qualification, education, and training, and promotes specialty-level accreditation. IHS sponsors a national toll-free Hearing Aid Helpline, which provides consumers with information and referrals to hearing instrument specialists. Holds annual convention and exhibition; contact IHS for date and location. Consumer fact sheets and brochures are available.

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Job Accommodation Network (JAN)

Co-directors: Anne Hirsh and Lou Orslene
Address: P.O. Box 6080MorgantownWV26506-6080
Toll-free Voice: (800) 526-7234 or (800) ADA-WORK (232-9675)
Toll-free TTY: (877) 781-9403
Fax: (304) 293-5407
Last updated: 2011 Jun 30

Description:
The Job Accommodation Network (JAN) is funded by the U.S. Department of Labor’s Office of Disability Employment Policy. JAN is an information and consulting service that provides users with individualized solutions for workplace accommodations. JAN also provides information regarding the Americans with Disabilities Act, the Rehabilitation Act, and other disability-related legislation. In addition, JAN consultants have access to a vast network of resources, organizations, support groups, government agencies, and more that can provide assistance to persons with disabilities. JAN is used primarily by employers, rehabilitation professionals, and individuals with disabilities. All services are free and confidential. Professional/consumer publications are available.

Publications:
The JAN E-News
Frequency: quarterly
Type: newsletter

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John Tracy Clinic

President: Barbara F. Hecht, Ph.D.
Address: 806 West Adams BoulevardLos AngelesCA90007
Voice: (213) 748-5481
Toll-free Voice: (800) 522-4582
TTY: (213) 747-2924
Fax: (213) 749-1651
Last updated: 2011 Jun 30

Description:
The John Tracy Clinic provides free services to parents of children, ages birth to 5 years, with hearing loss. The clinic has more than 60 years of experience in early intervention and the spoken language option. Correspondence courses are available worldwide. Three-week summer sessions are offered. A master’s and credential program in teacher education is offered both onsite and online. A professional/consumer newsletter and fact sheets, brochures/ pamphlets, and online publications are available. Most materials are available in Spanish.

Publications:
John Tracy Clinic Bulletin
Frequency: semiannual
Type: newsletter

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Learning Disabilities Association of America (LDA)

Executive Director: Mary-Clare Reynolds
Address: 4156 Library RoadPittsburghPA15234-1349
Voice: (412) 341-1515
Toll-free Voice: (888) 300-6710
Fax: (412) 344-0224
Last updated: 2014 Apr 30

Description:
The Learning Disabilities Association of America (LDA) is a nonprofit organization dedicated to identifying causes and promoting prevention of learning disabilities and to enhancing the quality of life for all individuals with learning disabilities and their families. LDA encourages effective identification and intervention, fosters research, and protects the rights of individuals with learning disabilities under the law. The association is an information and referral service for both parents and professionals. LDA, which has more than 100 state and local chapters across the country, sponsors an annual conference and offers membership. A professional journal, membership newsletter (Newsbriefs), and information via our website are all available. Some materials in Spanish are also available.

Publications:
Learning Disabilities
Frequency: three or four times a year
Type: multidisciplinary journal

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MAAP Services for Autism, Asperger, and PDD/NOS (MAAP Services)

President: Susan J. Moreno
Address: P.O. Box 524Crown PointIN46307
Voice: (219) 662-1311
Fax: (219) 662-0638
Last updated: 2011 Jun 30

Description:
MAAP Services for the Autism Spectrum (MAAP Services) is a nonprofit 501(c)(3) organization dedicated to providing information and advice to families of more advanced individuals with autism, Asperger syndrome, and other pervasive developmental disorders. MAAP Services provides information and referrals to parents, caregivers, and professionals who are experiencing this spectrum of challenges as well as helping the individuals themselves. The organization also provides a website; printed materials; annual conferences; public presentations; and personal contact via e-mail, phone, and written correspondence. The MAAP Services newsletter is distributed in 56 countries.

Publications:
The MAAP
Frequency: Quarterly
Type: newsletter

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MdDS Balance Disorder Foundation

President: Marilyn Josselyn
Foundation Board Member: Linda McManus
Address: 22406 Shannondell DriveAudubonPA19403
Voice: (610) 382-2060
Fax: (210) 641-6077
Last updated: 2011 Jun 30

Description:
The MdDS Balance Disorder Foundation is an international, all-volunteer 501(c)(3) organization that seeks to promote awareness of, find a cure for, and assist patients suffering with MdDS. Mal de debarquement syndrome (MdDS) or disembarkment syndrome is a rare disorder of perceived motion that most often develops after an ocean cruise or other type of travel or motion experience. More common in females, MdDS symptoms include persistent and long-lasting sensations of motion (rocking, swaying, or bobbing); this perceived motion is associated with fatigue, imbalance, and impaired cognitive function. MdDS is frequently misdiagnosed or goes undiagnosed because many in the health care community are unaware. Unfortunately, effective MdDS treatments/therapies are lacking and the cause of MdDS remains unknown.

Publications:
Mal de Debarquement Support News
Frequency: quarterly
Type: newsletter

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Media Access Group at WGBH

Director: Larry Goldberg
Public Information Contact: Mary Watkins
Address: 1 Guest StreetBostonMA02134
Voice: (617) 300-3400
TTY: (617) 300-2489
Fax: (617) 300-1035
Last updated: 2011 Jun 30

Description:
The Media Access Group at WGBH consists of the Caption Center, which provides captioning for television, Web-based media, and feature films; the Descriptive Video Service, which creates audio descriptions for blind and visually impaired audiences for these and other media formats; and the WGBH-Carl and Ruth Shapiro Family National Center for Accessible Media (NCAM), which promotes accessibility for classrooms, the Internet, movie theaters, and more through ongoing research and development, outreach, and public policy initiatives. E-mail news updates and professional/consumer fact sheets are available.

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Monell Chemical Senses Center

Director/President: Gary K. Beauchamp, Ph.D.
Public Information Contact: Leslie Stein, Ph.D.
Address: 3500 Market StreetPhiladelphiaPA19104
Voice: (267) 519-4700
Fax: (215) 573-0909
Last updated: 2011 Jun 30

Description:
The Monell Chemical Senses Center (Monell) is the world’s only nonprofit basic research institute devoted to the study of taste, smell, and chemical irritation. Its mission is to advance knowledge of the mechanisms and functions of the chemical senses to benefit human health and well-being. Monell’s interdisciplinary research relates to significant public health and quality-of-life issues across the lifespan, including obesity, diabetes, hypertension, pediatric health, occupational safety, and environmental issues. It has an education and training program for postdoctoral scientists, senior scientists, and graduate students. Monell is a resource for information about the chemical senses for the public, medical professionals, the media, and academics. A newsletter is available.

Publications:
The Monell Connection
Frequency: semiannual
Type: newsletter

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National AMBUCS, Inc.

Executive Director: Joseph Copeland
Address: P.O. Box 5127High PointNC 27262
Voice: (336) 852-0052
Fax: (336) 852-6830
Last updated: 2011 Jun 30

Description:
The mission of National AMBUCS, Inc., is to create mobility and independence for people with disabilities. AMBUCS members are committed to performing valuable civic service and improving their communities. Some of our programs include home ramp building for people in wheel chairs and the funding of college scholarships for therapists. One of our most successful programs in recent years has been the distribution of the AmTryke® therapeutic tricycle.

Publications:
AMBUCS Leader
Frequency: monthly
Type: newsletter
AMBUCS Magazine
Frequency: quarterly
Type: magazine
AmTryke Catalog
Frequency: bi-annually
Type: magazine

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National Aphasia Association (NAA)

Executive Director: Ellayne Ganzfried, M.S., CCC-SLP
Address: 350 7th Avenue, Suite 902New YorkNY10001
Voice: (212) 267-2814
Toll-free Voice: (800) 922-4622
Fax: (212) 267-2812
Last updated: 2011 Jun 30

Description:
The mission of the National Aphasia Association (NAA) is to educate the public about aphasia as a disorder that impairs a person’s ability to communicate without impairing a person’s intellect. NAA provides people with aphasia, their families, support systems, and health care professionals with resources that can help individuals affected by aphasia recover lost skills, compensate for skills that cannot be recovered, and minimize the psychosocial impact of a language impairment. Holds regional conferences; contact NAA for dates and locations. A professional/consumer newsletter, directory, fact sheets, and other publications are available.

Publications:
NAA Newsletter
Frequency: Quarterly
Type: e-newsletter

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National Association of State Directors of Special Education, Inc. (NASDSE)

Executive Director: Bill East, Ed.D.
Address: 225 Reinekers Lane, Suite 420AlexandriaVA22314
Voice: (703) 519-3800
Fax: (703) 519-3808
Last updated: 2014 Apr 30

Description:
The National Association of State Directors of Special Education, Inc., (NASDSE) is a nonprofit organization established to promote and support education programs and related services for children and youth with disabilities in the United States and outlying areas. NASDSE provides services to state agencies to facilitate their efforts to maximize educational outcomes for individuals with disabilities. Holds annual meeting; contact NASDSE for date and location. Miscellaneous reports are released throughout the year, with most available online.

Publications:
NASDE Works!
Frequency: quarterly
Type: newsletter

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National Association of the Deaf (NAD)

Chief Executive Officer: Howard Rosenblum
Address: 8630 Fenton Street, Suite 820Silver SpringMD20910-4500
Voice: (301) 587-1788
Fax: (301) 587-1791
Last updated: 2011 Jun 30

Description:
The National Association of the Deaf (NAD), founded in 1880, is a federation of state associations, organizational and corporate affiliates, and individuals advocating for the civil rights of deaf and hard-of-hearing Americans. NAD’s advocacy work encompasses a broad spectrum of areas such as accessibility, education, employment, health care, mental health, rehabilitation, technology, telecommunications, and transportation. The NAD Web site offers advocacy information and resources related to legal rights and other concerns affecting individuals who are deaf or hard-of-hearing.

Publications:
NADmag
Frequency: published two times a year (Summer/Winter)
Type: professional/consumer magazine

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National Black Association for Speech-Language and Hearing (NBASLH)

Chairperson: Arnell Brady
Public Information Contact: Diane Yenerall
Address: 700 McKnight Park Drive, Suite 708PittsburghPA15237
Voice: (855) 727-2836
Fax: (888) 729-3489
Last updated: 2014 Apr 30

Description:
The National Black Association for Speech-Language and Hearing (NBASLH) is a nonprofit organization dedicated to the sharing of information about communication impairments and differences among black people; the professional development of speech-language pathologists, audiologists, and students; and the advocacy of quality service delivery to the black community. Holds annual convention; contact NBASLH for date and location. A professional journal and newsletter/bulletin are available.

Publications:
ECHO
Frequency: annual
Type: professional journal
Resound
Frequency: semiannual
Type: professional newsletter

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National Board for Certification in Hearing Instrument Sciences (NBC-HIS)

Executive Director: Linda K. Jackson
Executive Assistant: Carolyne Pope
Address: 33966 W. 8 Mile Road, Suite 101Farmington HillsMI48335
Voice: (734) 522-2900
Fax: (734) 522-0900
Last updated: 2014 May 2

Description:
The National Board for Certification in Hearing Instrument Sciences (NBC-HIS) is an independent, nonprofit corporation established to develop and promulgate eligibility standards for certification; to develop, process, administer, and score certification examinations based on research; and to award board certification to successful applicants. A professional directory, fact sheets, and online publications are available.

Publications:
Hear & Now
Frequency: quarterly
Type: newsletter

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National Captioning Institute (NCI)

President /CEO: Gene Chao
National Director of Sales and Marketing: Juan Mario Agudelo
Address: 3725 Concorde Parkway, #100ChantillyVA20151
Voice: (703) 917-7600
TTY: (703) 917-7600
Fax: (703) 917-9853
Last updated: 2011 Jun 30

Description:
The National Captioning Institute (NCI) is a nonprofit organization that provides closed-captioning services to television networks, program producers, advertisers, producers of home entertainment videos, and other organizations in the government and private sectors. It was established in 1979, with the mission of ensuring that deaf and hard-of-hearing people have access to television’s entertainment and news through the technology of closed captioning. As part of its commitment to media access, NCI now offers Internet captioning as well as described video service for people who are blind or have low vision.

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National Center for Health Statistics, Centers for Disease Control and Prevention (CDC)

Acting Director: Charles J. Rothwell, M.S., M.B.A.
Address: 3311 Toledo Road, Room 7204HyattsvilleMD20782
Voice: (301) 458-4000
Toll-free Voice: (866) 441-NCHS (6247)
Last updated: 2014 May 5

Description:
The National Center for Health Statistics (NCHS), part of the Centers for Disease Control and Prevention (CDC), compiles statistical information to help guide policies to improve the health of Americans. Holds a biennial data user conference; consult the NCHS website for date and location. NCHS disseminates data and statistics online and in print.

Publications:
Health, United States
Frequency: annual
Type: report on health trends of Americans

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National Center for Learning Disabilities (NCLD)

Executive Director: James H. Wendorf
Executive Assistant: Marcia Griffith-Pauyo
Address: 381 Park Avenue South, Suite 1401New YorkNY 10016
Voice: (212) 545-7510
Toll-free Voice: (888) 575-7373
Fax: (212) 545-9665
Last updated: 2011 Jun 30

Description:
The National Center for Learning Disabilities (NCLD) works to ensure that the nation’s 15 million children, adolescents, and adults with learning disabilities have every opportunity to succeed in school, work, and life. NCLD provides essential information to parents, professionals, and individuals with learning disabilities; promotes research and programs to foster effective learning; and advocates for policies to protect and strengthen educational rights and opportunities. Get Ready to Read!, a program of NCLD, is a national campaign to build the early literacy skills of all preschool children.

Publications:
Early Learning & Literacy
Frequency: monthly
Type: e-newsletter
LD Essentials
Frequency: quarterly
Type: newsletter
LD News
Frequency: monthly
Type: e-newsletter

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National Center for Voice and Speech (NCVS)

Director: Ingo Titze, Ph.D.
Public Information Contact: Eric Hunter
Address: University of Utah, Vice President for Research, 201 Presidents Circle Room 210Salt Lake CityUT84112-9011
Voice: (801) 596-2012
Fax: (801) 585-6212
Last updated: 2014 Apr 25

Description:
The National Center for Voice and Speech (NCVS) is an interdisciplinary team of investigators and health care professionals dedicated to vocology, which deals with the powers, limitations, and enhancement of voice and speech. A primary outreach of NCVS is the Summer Vocology Institute, which provides background in vocology and related topics as well as real-world experience in applying those concepts in laboratory, performance, and health services settings. NCVS is headquartered at the University of Utah, under its Vice President for Research, with active associates in several universities across the country. Professional/consumer publications are available, with some materials in Spanish and French.

Publications:
Vocal Vibrations
Frequency: semiannual
Type: newsletter

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National Center on Deafness (NCOD)

Director: Roslyn Rosen
Address: 18111 Nordhoff Street, California State UniversityNorthridgeCA 91330-8267
Voice: (818) 677-2611
TTY: (818) 677-2611
Fax: (818) 677-4899
Last updated: 2011 Jun 30

Description:
The National Center on Deafness (NCOD) is housed in Jeanne M. Chisholm Hall on the campus of California State University, Northridge. Established in 1962, NCOD was the first postsecondary program in the nation to provide paid professional sign language interpreters for deaf and hard-of-hearing students as well as captioning services as requested. The program has grown to be the largest of its type in the western United States, serving approximately 200 students who are deaf and hard-of-hearing each year. NCOD also provides transition services, academic and career planning, tutorial assistance, and cocurricular events for the students. Additionally, NCOD provides outreach and training through a federal grant.

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National Cued Speech Association (NCSA), Deaf Children's Literacy Project

President: Shannon Howell
Executive Director: Sarina Roffe
Address: 1300 Pennsylvania Avenue, NW, Suite 190-713WashingtonDC20004
Toll-free Voice: (800) 459-3529
Toll-free TTY: (800) 459-3529
Last updated: 2014 May 1

Description:
The National Cued Speech Association (NCSA) and its Deaf Children's Literacy Project promote the effective use of cued speech for communication, language acquisition (in more than 67 languages), and literacy through the use of cued speech. NCSA provides education, awareness, and support for people with language, hearing, speech, and learning needs through publications, exhibits, family/professional learning vacations, and conferences. NCSA sets standards of cueing and certifies instructors of cued speech. Visit NCSA's bookstore for books, games, computer software, and more.

Publications:
On Cue
Frequency: triannual
Type: newsletter

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National Dissemination Center for Children with Disabilities (NICHCY)

Director: Elaine M. Mulligan
Address: 1825 Connecticut Avenue, NWWashingtonDC20009
Voice: (202) 884-8200
Toll-free Voice: (800) 695-0285
TTY: (202) 884-8200
Toll-free TTY: (800) 695-0285
Fax: (202) 884-8441
Last updated: 2014 May 5

Description:
The National Dissemination Center for Children with Disabilities (NICHCY) is a national information and referral center that provides information on disabilities and disability-related issues to families, educators, and other professionals. With a special focus on children and young adults ages birth to 22, NICHCY answers questions in both English and Spanish. Fact sheets on specific disabilities, state resource sheets, and information about the Individuals with Disabilities Education Act are available. All NICHCY publications are available online at nichcy.org/publications.

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National Family Association for Deaf-Blind (NFADB)

President: Clara Berg
Public Information Contact: Lori Bookstaver
Address: 141 Middle Neck RoadSands PointNY11050
Voice: (516) 944-8900
Toll-free Voice: (800) 255-0411
Toll-free TTY: (800) 255-0411
Fax: (516) 883-9060
Last updated: 2014 May 1

Description:
The National Family Association for Deaf-Blind (NFADB) is founded on the belief that people who are deaf-blind are valued members of society and are entitled to the same opportunities and choices as other people. NFADB supports national policy to benefit people who are deaf-blind, encourages the founding and strengthening of family organizations in each state, shares information related to deaf-blindness, provides resources and referrals, and assists in the development of materials that benefit family members.

Publications:
News from Advocates for Deaf-Blind
Frequency: semiannual
Type: newsletter

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National Hearing Conservation Association (NHCA)

President: Rick Neitzel
Public Information Contact: Erin Erickson, Executive Director
Address: 3030 West 81st AvenueWestminsterCO80031
Voice: (303) 224-9022
Fax: (303) 458-0002
Last updated: 2011 Jun 30

Description:
The National Hearing Conservation Association (NHCA), an association of hearing conservation professionals, is dedicated to preventing hearing loss caused by noise and other environmental factors in all sectors of society. NHCA promotes professional development by improving its members’ skills and practices, providing education and encouraging research, stimulating information exchange and distribution, promoting development of improved and more effective occupational hearing conservation programs, and participating in standards and regulatory activities. Holds annual conference; contact NHCA for date and location.

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National Institute for Occupational Safety and Health (NIOSH)

Director: John Howard, M.D., J.D.
Public Affairs Director: Fred Blosser
Address: 395 E Street, SW, Suite 9200, Patriots Plaza Building WashingtonDC20201
Toll-free Voice: (800) 232-4636
Fax: (202) 245-0664
Last updated: 2014 May 19

Description:
Job-related hearing loss affects workers across many occupational sectors, including agriculture, construction, manufacturing and utilities, mining, and transportation. The National Institute for Occupational Safety and Health (NIOSH) conducts research in hearing loss and noise exposure surveillance, noise control engineering, hearing protection devices, hearing conservation programs, and other risk factors for occupational hearing loss. Together with the National Institute on Deafness and Other Communication Disorders, NIOSH supports the National Health and Nutrition Examination Survey, which collects a representative sample of the hearing health status of persons in the United States. NIOSH scientists participate in providing scientific bases for federal regulations, making authoritative recommendations to prevent occupational hearing loss, and developing acoustic standards. Professional and consumer information related to workplace noise and hearing safety are available in print and online.

Publications:
NIOSH eNews
Frequency: Monthly
Type: newsletter

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National Institute on Deafness and Other Communication Disorders (NIDCD) Information Clearinghouse

Project Officer: Susan Dambrauskas
Address: 1 Communication AvenueBethesdaMD20892-3456
Toll-free Voice: (800) 241-1044
Toll-free TTY: (800) 241-1055
Fax: (301) 770-8977
Last updated: 2014 May 5

Description:
The National Institute on Deafness and Other Communication Disorders (NIDCD) Information Clearinghouse, a service of NIDCD, is a national resource center for health information on hearing, balance, smell, taste, voice, speech, and language for health professionals, patients, and the public.

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National Institute on Deafness and Other Communication Disorders (NIDCD)

Director: James F. Battey, Jr., M.D., Ph.D.
Public Information Contact: Susan Dambrauskas, Chief, Office of Health Communication and Public Liaison
Address: Office of Health Communication and Public Liaison, 31 Center Drive, MSC 2320BethesdaMD 20892-2320
Voice: (301) 496-7243
Toll-free Voice: (800) 241-1044
Toll-free TTY: (800) 241-1055
Fax: (301) 402-0018
Last updated: 2011 Jun 30

Description:
The National Institute on Deafness and Other Communication Disorders (NIDCD), one of the National Institutes of Health, supports and conducts research and research training on the normal and disordered processes of hearing, balance, taste, smell, voice, speech, and language. The NIDCD develops health information based on scientific discovery and disseminates it to the public. In October 2008, the NIDCD launched It's a Noisy Planet. Protect Their Hearing (www.noisyplanet.nidcd.nih.gov). This national campaign is designed to increase awareness among parents of youth ages 8 to 12 about the causes and prevention of noise-induced hearing loss. The NIDCD provides a toll-free telephone service through its information clearinghouse. Fact sheets, brochures, teaching curricula, and reports are available, with many in Spanish.

Publications:
Inside
Frequency: quarterly
Type: newsletter
NIDCD Resources Directory
Frequency: biannual
Type: print and online directory of organizations and their resources

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National Institute on Disability and Rehabilitation Research, Office of Special Education and Rehabilitative Services (OSERS)

Acting Director: Ruth Brannon
Address: 550 12th Street, SW, Room 6056WashingtonDC 20024-6122
Voice: (202) 245-7640
Fax: (202) 245-7630
Last updated: 2011 Jun 30

Description:
The National Institute on Disability and Rehabilitation Research (NIDRR) is part of the Office of Special Education and Rehabilitative Services (OSERS), U.S. Department of Education. NIDRR supports a comprehensive program of national and international research into all aspects of the rehabilitation of people with disabilities and their successful integration into education, work, and community life. Grants are awarded to institutions of higher education and qualified organizations; the fellowship program provides grants to individuals with advanced rehabilitation credentials. NIDRR administers the Interagency Committee on Disability Research. An online directory of projects and publications is available.

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National Organization for Hearing Research Foundation (NOHR)

President: Geraldine Dietz Fox
Public Information Contact: Sarah Schreiner
Address: P.O. Box 421NarberthPA19072
Voice: (610) 664-3135
Fax: (610) 668-1428
Last updated: 2014 May 2

Description:
The National Organization for Hearing Research Foundation (NOHR) is a 501(c)(3) public charity whose primary objective is to fund research into the prevention, causes, treatments, and cures for hearing loss and deafness. NOHR funds grant proposals that target innovative auditory projects; proposal submissions are reviewed by members of NOHR’s Scientific Review Committee. The most important review criteria for research proposals are scientific value and potential to yield significant new insights in the field of auditory science. Regeneration of sensory hair cells of the inner ear is a research funding priority, and examinations by other scientific disciplines are encouraged. Grant application information is available upon request.

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National Organization for Rare Disorders (NORD)

President/CEO: Peter L. Saltonstall
Vice President, Information Services: Mary Dunkle, Vice President for Communications
Address: 55 Kenosia AvenueDanburyCT06813-1968
Voice: (203) 744-0100
Toll-free Voice: (800) 999-6673
TTY: (203) 797-9590
Fax: (203) 798-2291
Last updated: 2014 May 1

Description:
The National Organization for Rare Disorders (NORD) is a nonprofit voluntary health agency that serves as a clearinghouse for information on rare disorders. A rare disorder is a disease or condition that affects fewer than 200,000 Americans. Cumulatively, there are more than 6,000 rare diseases affecting more than 25 million Americans. NORD is committed to the identification, treatment, and cure of rare diseases through education, advocacy, research, and service programs. NORD administers medication assistance programs for certain rare-disease drugs as well as research grants and fellowships.

Publications:
NORD Resource Guide
Frequency: every two years
Type: resource guide
Orphan Disease Update
Frequency: biannual
Type: newsletter
Physician’s Guides
Frequency:

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National Rehabilitation Information Center (NARIC)

Project Director: Mark X. Odum
Public Information Contact: Catherine Graves, Library Information Specialist II
Address: 8201 Corporate Drive, Suite 600LandoverMD 20785
Voice: (301) 459-5900
Toll-free Voice: (800) 346-2742
TTY: (301) 459-5984
Fax: (301) 459-4263
Last updated: 2011 Jun 30

Description:
The National Rehabilitation Information Center (NARIC) is a library and information center focusing on disability and rehabilitation research. NARIC’s collection contains more than 40,000 documents, both federally funded and commercially produced. NARIC’s information specialists provide quick information and referrals, customized database searches, and document delivery. Internet users can access NARIC’s databases, bulletins, and a live reference chat service at the NARIC website. Referral sheets, general information packets, and customized literature searches are available.

Publications:
reSearch
Frequency: bimonthly
Type: research brief

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National Service Animal Center (NSAC)

President/CEO: Lawrence L. Norvell
Information and Resources: Michelle Cobey
Address: 875 124th Avenue, NE, #101 BellevueWA 98055
Voice: (425) 679-5500
Fax: (425) 679-5539
Last updated: 2011 Jun 30

Description:
The National Service Animal Resource Center, a department of the Delta Society, provides information through its website about the selection, training, stewardship, and roles of service dogs; referral to service-dog training programs and related resources; education for businesses, health care professionals, and the general public on service-dog issues; and self-advocacy on behalf of people with service dogs.

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National Spasmodic Dysphonia Association, Inc. (NSDA)

Executive Director: Kimberly A. Kuman
Address: 300 Park Boulevard, Suite 415ItascaIL 60143
Voice: (630) 250-4504
Toll-free Voice: (800) 795-NSDA (6732)
Fax: (630) 250-4505
Last updated: 2011 Jun 30

Description:
The National Spasmodic Dysphonia Association (NSDA) is a nonprofit 501(c)(3) organization dedicated to advancing medical research into the causes of and treatments for spasmodic dysphonia; promoting physician and public awareness of the disorder through outreach; and sponsoring support activities for people with spasmodic dysphonia and their families through educational materials, annual symposiums, support groups, and online resources. NSDA is the only organization that is dedicated solely to spasmodic dysphonia.

Publications:
Our Voice
Frequency: semiannual
Type: newsletter
Understanding Spasmodic Dysphonia
Frequency:
What Is Spasmodic Dysphonia?
Frequency:

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National Stuttering Association (NSA)

Executive Director: Tammy Flores
Address: 119 West 40th Street, 14th FloorNew YorkNY10018
Voice: (212) 944-4050
Toll-free Voice: (800) 937-8888
Fax: (212) 944-8244
Last updated: 2014 May 5

Description:
The National Stuttering Association (NSA) is a national network of support groups created to meet the needs of children and adults who stutter. NSA offers information and support, provides referrals to specialists, serves as an advocate for the stuttering community, and raises the consciousness of the general public about the disorder. Holds annual convention; contact NSA for date and location. Professional and consumer fact sheets, brochures/pamphlets, and books are available.

Publications:
Family Voices
Frequency: quarterly newsletter
Type: by and for children, teens, parents, speech-language pathologists, and others who support individuals who stutter
Letting Go
Frequency: quarterly newsletter
Type: about stuttering research, therapy options, and coping strategies

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National Technical Institute for the Deaf (NTID)

President of NTID & Vice President and Dean for RIT: Gerard Buckley, Ph.D.
Address: 52 Lomb Memorial DriveRochesterNY 14623-5604
Voice: (585) 475-6400
TTY: (585) 475-6400
Fax: (585) 475-5623
Last updated: 2011 Jun 30

Description:
The National Technical Institute for the Deaf (NTID), a college of the Rochester Institute of Technology (RIT), is the world’s first and largest technological college for students who are deaf or hard-of-hearing. NTID offers associate degrees in more than 30 technological and professional programs as well as bachelor’s or master’s degrees in more than 200 programs offered by RIT’s nine other colleges. A professional journal, other publications, and computer software/assisted education are available.

Publications:
NTID Research Bulletin
Frequency: published occasionally
Type: free professional journal
Frequency:

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National Temporal Bone, Hearing, and Balance Pathology Resource Registry

Director: Joseph B. Nadol, Jr., M.D.
Public Information Contact: Nicole Pelletier, Registry Coordinator
Address: Massachusetts Eye and Ear Infirmary, 243 Charles StreetBostonMA 02114-3096
Voice: (617) 573-3711
Toll-free Voice: (800) 822-1327
Toll-free TTY: (800) 439-0183
Fax: (617) 573-3838
Last updated: 2011 Jun 30

Description:
The National Temporal Bone, Hearing, and Balance Pathology Resource Registry, which is sponsored by the National Institute on Deafness and Other Communication Disorders, promotes research into hearing and balance disorders through the study of the temporal bone and related brain structures. The registry maintains a computerized database of all U.S. temporal bone collections, disseminates information on temporal bone donation, enrolls individuals with hearing/balance disorders as temporal bone donors, educates professionals about temporal bone research, and conserves at-risk collections. Free searches of the registry’s database are available to interested otopathologic researchers. A professional/consumer newsletter, brochures/pamphlets, and online publications are available.

Publications:
The Registry
Frequency: semiannual
Type: newsletter

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Neurofibromatosis Network

President: Cheri Stewart
Address: 213 Wheaton AvenueWheatonIL60187
Voice: (630) 510-1115
Last updated: 2014 May 5

Description:
Neurofibromatosis, Inc., (NF, Inc.) is a national nonprofit organization dedicated to all people affected by neurofibromatosis (NF) and other related disorders. NF, Inc., distributes materials on NF1 and NF2; promotes national, state, and local community involvement; supports research; has a governing board with NF2 representation; and provides real-time captioning at meetings. A toll-free helpline and website provide access to peer counseling and information 24 hours a day. A professional directory and professional/consumer publications are available.

Publications:
Neurofibromatosis Ink
Frequency: semiannual
Type: professional/consumer newsletter

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NISH

President/CEO: E. Robert Chamberlin
Public Information Contact: Nancyellen Gentile, Vice President of Corporate Communications, Marketing, and Government Affairs
Address: 8401 Old Courthouse RoadViennaVA22182
Voice: (571) 226-4660
TTY: (703) 560-6512
Fax: (703) 849-8916
Last updated: 2014 May 5

Description:
NISH is one of two national, nonprofit agencies designated by the U.S. AbilityOne Commission to enable the creation of employment opportunities for people with significant disabilities. NISH works through a national network of over 550 nonprofit agencies that provide products and services to the Federal Government; contracts range from custodial and food serves to secure document destruction and facilities management. NISH also provides legislative and regulatory assistance, engineering and technical assistance, and extensive professional training.

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Noise Pollution Clearinghouse (NPC)

Executive Director: Les Blomberg
Public Information Contact: Information Specialists
Address: P.O. Box 1137MontpelierVT 05601-1137
Voice: (802) 229-1659
Toll-free Voice: (888) 200-8332
Fax: (802) 223-3266
Last updated: 2011 Jun 30

Description:
The mission of the Noise Pollution Clearinghouse (NPC) is to create more livable cities and more natural rural and wilderness areas by reducing noise pollution at the source. NPC seeks to raise awareness about noise pollution; creates, collects, and distributes resources on noise pollution; and establishes networks among environmental, professional, medical, governmental, citizen, and activist groups working on noise pollution issues. Consumer fact sheets and newsletters are available.

Publications:
Quiet Zone
Frequency: semiannual
Type: newsletter
NPC Special Report
Frequency: quarterly
Type: issue briefs

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Occupational Safety and Health Administration (OSHA)

Director: Francis Meilinger
Public Information Contact: Francis Meilinger
Address: 200 Constitution Avenue, NW, Room N-3647WashingtonDC20210
Voice: (202) 693-1999
Toll-free Voice: (800) 321-OSHA (6742)
Toll-free TTY: (877) 889-5627
Fax: (202) 693-1635
Last updated: 2014 May 5

Description:
The Occupational Safety and Health Administration (OSHA), a division of the U.S. Department of Labor, is the lead federal organization devoted to protecting the safety and health of America’s workers. OSHA produces and enforces protective standards for occupational safety and health and also provides employers and employees with technical and consultative assistance. OSHA also works with employers through various programs and partnerships to help them develop effective safety and health systems to reduce injuries and illnesses in the workplace. Assistance products and tools are available. Additional resources are available through the OSHA Publications Office. The Department of Labor’s Office of Disability Employment Policy (ODEP) provides national leadership by developing and influencing disability and related employment policy as well as practices that affect the employment of people with disabilities, including communication disorders.

Publications:
Quick Takes
Frequency: bimonthly
Type: newsletter

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Office of Disability Employment Policy (ODEP), U.S. Dept. of Labor

Assistant Secretary: Kathy Martinez
Supervisor, Policy Communication and Outreach: Barbara Haight
Address: Suite S1303, 200 Constitution Avenue, NWWashingtonDC 20210
Voice: (202) 693-7880
Toll-free Voice: (866) 633-7365
TTY: (202) 693-7881
Fax: (202) 693-7888
Last updated: 2011 Jun 30

Description:
The Department of Labor’s Office of Disability Employment Policy (ODEP) provides national leadership by developing and influencing disability and related employment policy, as well as practices that affect the employment of people with disabilities, including communication disorders.

Publications:
Business Sense
Frequency: monthly
Type: newsletter

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Office of Special Education Programs (OSEP), Office of Special Education and Rehabilitative Services (OSERS)

Acting Director/Official Deputy: Patricia J. Guard
Address: U.S. Department of Education, 550 12th Street, SW, Room 4109WashingtonDC 20202-2600
Voice: (202) 245-7459
Fax: (202) 245-7616
Last updated: 2011 Jun 30

Description:
The Office of Special Education Programs (OSEP), an office within the U.S. Department of Education, is dedicated to improving results for infants, toddlers, children, and youth with disabilities—including communication disorders—from birth through age 21 and providing leadership and financial support to assist states and local districts. OSEP awards formula grants to states as well as discretionary grants to institutions of higher education and other nonprofit organizations to support research, demonstrations, technical assistance and dissemination, technology and personnel development, and parent-training and information centers. Professional and consumer publications are available.

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Postsecondary Education Programs Network (pepnet 2)

pepnet 2 Director: Cathy McLeod
Address: 18111 Nordhoff StreetNorthridgeCA 91330-8267
Last updated: 2011 Jun 30

Description:
Pepnet2 (pn2) recognizes the full range of postsecondary education and training options available for individuals who are deaf or hard-of-hearing, including those with co-occurring disabilities, and strives to enhance the capacity of those institutions to appropriately serve this diverse student population. Pn2 is a national collaboration of professionals with expertise in a broad array of content areas and a variety of environments, including research, technology, personnel development, media production, and technical assistance. Our mission and the focus of our resources is to increase the education, career, and lifetime choices available to individuals who are deaf or hard-of- hearing. Our resources include live, one-on-one assistance in a variety of communication modes, in-person and online training, and materials that are downloadable, printable or available as hard copies. Pn2 is funded through a cooperative agreement with the Research to Practice Division, Office of Special Education Programs, U.S. Department of Education.

Publications:
PEPNet Perspectives
Frequency: semiannual
Type: newsletter

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Quota International

Executive Director: Kathleen Treiber
Public Information Contact: Nancy Fitzpatrick, M.S., Deputy Executive
Address: 1420 21st Street, NWWashingtonDC20036
Voice: (202) 331-9694
Fax: (202) 331-4395
Last updated: 2011 Jun 30

Description:
Quota International, founded in 1919, is a volunteer service organization with clubs in North and South America, the Caribbean, the South Pacific, Southeast Asia, and Europe. Under the motto of “We Share,” Quota members perform activities that meet the special needs of people in their communities. Quota members are known especially for service to disadvantaged women and children and individuals who are deaf, hard-of-hearing, and speech impaired. Quota clubs provide equipment, treatment, programs, vocational training, and education related to speech and hearing and promote hearing protection through a Healthy Hearing Ear Plugs campaign. Holds a biennual convention; see website for details.

Publications:
The Quotarian Magazine for members
Frequency: twice a year
Type: magazine

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Recurrent Respiratory Papillomatosis Foundation (RRPF)

Director: Bill Stern
Address: P.O. Box 6643LawrencevilleNJ 08648-0643
Voice: (609) 530-1443
Fax: (866) 498-7559
Last updated: 2011 Jun 30

Description:
The Recurrent Respiratory Papillomatosis Foundation (RRPF) was created to provide family support; promote public awareness; and aid in the prevention, cure, and treatment of recurrent respiratory papillomatosis (RRP), a rare disease that affects the voice. The most common symptoms of RRP are a hoarse or strained voice, dysphonia (difficulty in speaking), or aphonia (loss of voice). The organization focuses primarily on networking within the RRP community, including patients, families, medical practitioners, and researchers. Its goal is to stimulate more RRP-related research that may lead to more effective treatments and, ultimately, a cure for this disease. Professional/consumer brochures/pamphlets are available.

Publications:
RRP Medical Reference Service
Frequency: annually produced
Type: listing of current references/abstracts
RRP Newsletter
Frequency: published annually
Type: other

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Registry of Interpreters for the Deaf, Inc. (RID)

President: Brenda Walker Prudhom
Director of Communications: Tina Schultz
Address: 333 Commerce StreetAlexandriaVA 22314