Directory of Organizations
Advocure NF2, Inc.
Chairperson: Marie Drew
Treasurer: Cynthia Henrion
Address: P.O. Box 4118, Clearwater, FL, 33758-4118
Last updated: 2011 Jun 30
Neurofibromatosis Type II (NF2) is a rare, genetic disease that causes tumors to grow throughout the brain and spinal cord, threatening hearing, vision, mobility, and even basic life functions such as swallowing. Advocure NF2, Inc., is a 501(c)(3) public charity and liaison group that advocates for the NF2 Crew (an online-based support community for patients and others) and the NF2 international community. Advocure NF2, Inc., monitors research and drug developments worldwide and works to expedite systemic therapy that may treat and possibly even cure NF2. Its website offers
information on understanding and living with NF2, research, and other resources. A quarterly newsletter is available online.