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American Academy of Otolaryngology--Head and Neck Surgery (AAO-HNS)

Executive Vice President: David R. Nielsen, M.D.
Public Information Contact: Jeanne McIntyre, Director of Communications
Address: 1650 Diagonal Road
Voice: (703) 836-4444
Fax: (703) 683-5100
Internet: www.entnet.org
Last updated: 2011 Jun 30

Description:
The nonprofit American Academy of Otolaryngology—Head and Neck Surgery (AAO-HNS) strives to unite, serve, and represent the interests of ear, nose, and throat specialists and their patients to the public, government, other medical specialists, and related organizations. AAO-HNS provides leaflets and geographic lists of physicians to the public at no charge. Holds annual meeting; contact AAO-HNS for date and location. AAO-HNS provides a professional bulletin, journal, directory, books, and other materials. Professional/consumer publications are available online and in print, with some in Spanish.

Publications:
The Bulletin
Frequency: monthly
Type: professional magazine
Otolaryngology--Head and Neck Surgery
Frequency: monthly
Type: scientific journal

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American Broncho-Esophagological Association (ABEA)

President: Andrew Blitzer, M.D., D.D.S.
Public Information Contact: Gregory Grillone, M.D.
Address: Boston Medical Center, FGH Bldg., 820 Harrison Avenue
Voice: (617) 638-7934
Internet: www.abea.net
Last updated: 2011 Jun 30

Description:
The American Broncho-Esophagological Association (ABEA) is an association of physicians with interest in the function and diseases of the upper aerodigestive tract and the relevant applications of endoscopy. The goals of ABEA are to educate and update physicians in evaluating and managing aerodigestive tract disorders; stimulate and support basic and clinical research; advocate and support endoscopy training in residency and fellowship programs; and provide information useful to patients, industry, scientists, physicians, and other health care professionals at a national otolaryngology meeting.

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American Laryngological Association (ALA)

President: Marvin P. Fried, M.D.
Administrator: Maxine Cunningham
Address: P.O. Box 128186
Voice: (615) 343-0429
Voice: (615) 812-6170
Fax: (615) 322-9102
Internet: www.alahns.org
Last updated: 2011 Jun 30

Description:
The mission of the American Laryngological Association (ALA) is to promote education and research and to disseminate important new scientific information relative to laryngology, which is the study of basic science, evaluation, and management of disorders relating to the larynx. ALA strives to accomplish this mission by promoting and presenting the latest scientific discoveries, publishing peer-reviewed reports, establishing funding sources for pilot research studies that facilitate subsequent funding by the National Institutes of Health, and sponsoring educational seminars and courses as well as public service announcements.

Publications:
The Laryngoscope
Frequency: monthly
Type: professional journal

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American Speech-Language-Hearing Association (ASHA)

Executive Director: Arlene A. Pietranton, Ph.D., C.A.E.
Public Information Contact: ASHA Action Center
Address: 2200 Research Boulevard
Voice: (301) 296-5700
Toll-free Voice: (800) 638-8255
TTY: (301) 296-5650
Internet: www.asha.org
Last updated: 2011 Jun 30

Description:
The mission of the American Speech-Language-Hearing Association (ASHA) is to promote the interests of and provide the highest quality services for professionals in audiology, speech-language pathology, and speech and hearing science, and to advocate for people with communication disabilities. Holds annual conference; contact ASHA for date and location. Professional brochures/pamphlets, journals, and professional/consumer online publications are available. Some materials are available in Spanish.

Publications:
American Journal of Audiology
Frequency: semiannual
Type: journal
American Journal of Speech-Language Pathology
Frequency: quarterly
Type: journal
ASHA Leader
Frequency: at least monthly
Type: newspaper

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National Black Association for Speech-Language and Hearing (NBASLH)

Chairperson: Arnell Brady
Public Information Contact: Diane Yenerall
Address: 800 Perry Highway, Suite 3
Voice: (412) 366-1177
Fax: (412) 366-8804
Internet: www.nbaslh.org
Last updated: 2011 Jun 30

Description:
The National Black Association for Speech-Language and Hearing (NBASLH) is a nonprofit organization dedicated to the sharing of information about communication impairments and differences among black people; the professional development of speech-language pathologists, audiologists, and students; and the advocacy of quality service delivery to the black community. Holds annual convention; contact NBASLH for date and location. A professional journal and newsletter/bulletin are available.

Publications:
ECHO
Frequency: annual
Type: professional journal
Resound
Frequency: semiannual
Type: professional newsletter

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National Institute on Deafness and Other Communication Disorders (NIDCD)

Director: James F. Battey, Jr., M.D., Ph.D.
Public Information Contact: Susan Dambrauskas, Chief, Office of Health Communication and Public Liaison
Address: Office of Health Communication and Public Liaison, 31 Center Drive, MSC 2320
Voice: (301) 496-7243
Toll-free Voice: (800) 241-1044
Toll-free TTY: (800) 241-1055
Fax: (301) 402-0018
Last updated: 2011 Jun 30

Description:
The National Institute on Deafness and Other Communication Disorders (NIDCD), one of the National Institutes of Health, supports and conducts research and research training on the normal and disordered processes of hearing, balance, taste, smell, voice, speech, and language. The NIDCD develops health information based on scientific discovery and disseminates it to the public. In October 2008, the NIDCD launched It's a Noisy Planet. Protect Their Hearing (www.noisyplanet.nidcd.nih.gov). This national campaign is designed to increase awareness among parents of youth ages 8 to 12 about the causes and prevention of noise-induced hearing loss. The NIDCD provides a toll-free telephone service through its information clearinghouse. Fact sheets, brochures, teaching curricula, and reports are available, with many in Spanish.

Publications:
Inside
Frequency: quarterly
Type: newsletter
NIDCD Resources Directory
Frequency: biannual
Type: print and online directory of organizations and their resources

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National Institute on Deafness and Other Communication Disorders (NIDCD) Information Clearinghouse

Project Officer: Susan Dambrauskas
Project Manager: Charlotte Ball
Address: 1 Communication Avenue
Toll-free Voice: (800) 241-1044
Toll-free TTY: (800) 241-1055
Fax: (301) 770-8977
Last updated: 2011 Jun 30

Description:
The National Institute on Deafness and Other Communication Disorders (NIDCD) Information Clearinghouse, a service of NIDCD, is a national resource center for health information on hearing, balance, smell, taste, voice, speech, and language for health professionals, patients, and the public.

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National Organization for Rare Disorders (NORD)

President/CEO: Peter L. Saltonstall
Vice President, Information Services: Mary Dunkle, Vice President for Communications
Address: P.O. Box 1968, 55 Kenosia Avenue
Voice: (203) 744-0100
Toll-free Voice: (800) 999-6673
TTY: (203) 797-9590
Fax: (203) 798-2291
Last updated: 2011 Jun 30

Description:
The National Organization for Rare Disorders (NORD) is a nonprofit voluntary health agency that serves as a clearinghouse for information on rare disorders. A rare disorder is a disease or condition that affects fewer than 200,000 Americans. Cumulatively, there are more than 6,000 rare diseases affecting more than 25 million Americans. NORD is committed to the identification, treatment, and cure of rare diseases through education, advocacy, research, and service programs. NORD administers medication assistance programs for certain rare-disease drugs as well as research grants and fellowships.

Publications:
NORD Resource Guide
Frequency: every two years
Type: resource guide
Orphan Disease Update
Frequency: biannual
Type: newsletter
Physician’s Guides
Frequency:

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National Spasmodic Dysphonia Association, Inc. (NSDA)

Executive Director: Kimberly A. Kuman
Address: 300 Park Boulevard, Suite 415
Voice: (630) 250-4504
Toll-free Voice: (800) 795-NSDA (6732)
Fax: (630) 250-4505
Last updated: 2011 Jun 30

Description:
The National Spasmodic Dysphonia Association (NSDA) is a nonprofit 501(c)(3) organization dedicated to advancing medical research into the causes of and treatments for spasmodic dysphonia; promoting physician and public awareness of the disorder through outreach; and sponsoring support activities for people with spasmodic dysphonia and their families through educational materials, annual symposiums, support groups, and online resources. NSDA is the only organization that is dedicated solely to spasmodic dysphonia.

Publications:
Our Voice
Frequency: semiannual
Type: newsletter
Understanding Spasmodic Dysphonia
Frequency:
What Is Spasmodic Dysphonia?
Frequency:

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