Skip to main content
Skip to main content

Directory of Organizations

New Search

Autism Society of America

President/CEO: Scott Badesch
Address: 4340 East West Highway, Suite 350
Voice: (301) 657-0881
Toll-free Voice: (800) 3-AUTISM (28-8476)
Fax: (301) 657-0869
Last updated: 2014 May 1

Description:
The Autism Society is a national charitable organization dedicated to improving the lives of individuals on the autism spectrum, their families, and the professionals who work with them by providing current, reliable information about autism, the various options, approaches, and available services. It provides toll-free phone support and a free online Information and Referral database (Autism Source) with information about local, state, and national programs and services. The Autism Society’s nationwide network of chapters is designed to provide information and support for families in their local area. The Autism Society advocates at the local, state, and national levels to improve public policy, increase awareness, and promote research that leads to applied best practices to improve the quality of life for those living with autism throughout the life span.

Publications:
Autism Advocate
Frequency: quarterly
Type: magazine

seperator

Top

American Association for the Advancement of Science (AAAS), Entry Point Internship Program

Director: Richard Weibl
Program Manager: Laureen Summers
Address: 1200 New York Avenue, NW
Voice: (202) 326-6649
TTY: (202) 326-6649
Fax: (202) 371-9849
Last updated: 2014 May 5

Description:
In 1975, the American Association for the Advancement of Science (AAAS) initiated the Project on Science, Technology, and Disability to improve entry and advancement in science, math, and engineering for people with disabilities. The Entry Point Internship Program for Students with Disabilities recruits undergraduate and graduate students with disabilities who are majoring in science, engineering, mathematics, computer science, and some business fields for paid, 10-week, summer opportunities at corporations, federal agencies, and university science laboratories. Interested students should visit the website and fill out a pre-application.

seperator

Top

American Speech-Language-Hearing Association (ASHA)

Executive Director: Arlene A. Pietranton, Ph.D., C.A.E.
Public Information Contact: ASHA Action Center
Address: 2200 Research Boulevard
Voice: (301) 296-5700
Toll-free Voice: (800) 638-8255
TTY: (301) 296-5650
Last updated: 2014 May 5

Description:
The mission of the American Speech-Language-Hearing Association (ASHA) is to promote the interests of and provide the highest quality services for professionals in audiology, speech-language pathology, and speech and hearing science, and to advocate for people with communication disabilities. Holds annual conference; contact ASHA for date and location. Professional brochures/pamphlets, journals, and professional/consumer online publications are available. Some materials are available in Spanish.

Publications:
American Journal of Audiology
Frequency: semiannual
Type: journal
American Journal of Speech-Language Pathology
Frequency: quarterly
Type: journal
ASHA Leader
Frequency: at least monthly
Type: newspaper

seperator

Top

Asperger Syndrome Education Network (ASPEN)

President: Lori Shery
Address: 9 Aspen Circle
Voice: (732) 321-0880
Last updated: 2011 Jun 30

Description:
The Asperger Syndrome Education Network (ASPEN) supports families and individuals whose lives are affected by autism spectrum disorders (ASD) (i.e., Asperger syndrome, pervasive developmental disorder, and high-functioning autism), and nonverbal learning disabilities (NLD). ASPEN provides education about the issues surrounding these disorders, support to individuals with ASD and NLD in knowing that they are not alone, and help so that they may achieve their maximum potential. ASPEN advocacy areas include educational programs, medical research funding, adult issues, and increased public awareness and understanding. ASPEN is a national volunteer 501(c)(3) nonprofit organization with headquarters in New Jersey. Members receive a newsletter and resource directory and access to ASPEN’s lending library.

Publications:
Aspects
Frequency: 2 times a year
Type: newsletter

seperator

Top

Birth Defect Research for Children, Inc. (BDRC)

Executive Director: Betty Mekdeci
Address: 976 Lake Baldwin Lane, Suite 104
Voice: (407) 895-0802
Last updated: 2011 Jun 30

Description:
Birth Defect Research for Children, Inc., (BDRC) provides parents and expectant parents with information about specific birth defects and their causes and treatments, support group referrals, and parent-matching services. BDRC also provides information about environmental exposures that may be associated with birth defects. To study these exposures further, BDRC sponsors the National Birth Defect Registry, an online research project that collects data on birth defects and prenatal/preconception exposures of both parents. A consumer newsletter, fact sheets, and other publications are available.

Publications:
Birth Defect News
Frequency: monthly
Type: e-mail newsletter

seperator

Top

Childhood Apraxia of Speech Association of North America (CASANA)

President: Mary Sturm, M.D.
Public Information Contact: Sharon Gretz, M.Ed.
Address: 416 Lincoln Avenue, 2nd Floor
Voice: (412) 343-7102
Last updated: 2014 May 5

Description:
The Childhood Apraxia of Speech Association of North America (CASANA) is the only national nonprofit 501(c)(3) charity representing the needs of children with apraxia and their families. CASANA’s goal is to provide credible, reliable, and comprehensive information on apraxia of speech in children. Guided by a professional advisory board of experts in childhood apraxia of speech, CASANA offers information and resources based on the current prevailing professional literature and expert opinion. CASANA programs include: - Information, support, and awareness: online support and information, multimedia, awareness walks, iPads for Apraxia project, CASANA speech therapy funds - Education and Training: workshops, webinars, an annual national conference, and intensive training institutes - Research Support: connects families with researchers; funds research, hosts research symposiums

Publications:
Apraxia-KIDS Newsletter
Type:

seperator

Top

Council for Exceptional Children (CEC)

Executive Director: Bruce Ramirez
Public Information Contact: Diane Shinn, Communications Director
Address: 2900 Crystal Drive, Suite 1000
Voice: (703) 620-3660
Toll-free Voice: (888) 232-7733
Toll-free TTY: (866) 915-5000
Fax: (703) 264-9494
Last updated: 2011 Jun 30

Description:
The Council for Exceptional Children (CEC) is the largest professional organization dedicated to improving the educational success of individuals with disabilities or gifts. CEC advocates for appropriate government policies, sets professional standards, provides professional development, advocates for underserved individuals with exceptionalities, and helps professionals obtain conditions and resources for effective professional practice. Holds annual convention; contact CEC for date and location. Professional journals, brochures, and a newsletter are available.

Publications:
Exceptional Children
Frequency: quarterly
Type: professional journal
Teaching Exceptional Children
Frequency: published six times a year
Type: professional magazine

seperator

Top

Council for Learning Disabilities (CLD)

Executive Director: Linda Nease
Address: 11184 Antioch Road, #405
Voice: (913) 491-1011
Fax: (913) 491-1012
Last updated: 2014 Apr 29

Description:
The Council for Learning Disabilities (CLD) is an international organization that promotes evidence-based teaching, collaboration, research, leadership, and advocacy. CLD is composed of professionals who represent diverse disciplines and are committed to enhancing the education and quality of life for individuals with learning disabilities and others who experience challenges in learning.

Publications:
LD Forum
Frequency: published five times a year
Type: professional newsletter
Learning Disabilities Quarterly
Frequency:

seperator

Top

Center for Hearing and Communication

Executive Director: Laurie Hanin, Ph.D.
Director, Audiology Services: Ellen Lafargue
Director, Communication Services: Lois Kam Heymann
Address: 50 Broadway
Voice: (917) 305-7700
TTY: (917) 305-7999
Fax: (917) 305-7888
Last updated: 2011 Jun 30

Description:
The nonprofit Center for Hearing and Communication works to improve the quality of life for people with all degrees of hearing loss and to offer comprehensive services regardless of age or mode of communication. State-of-the-art services include hearing assessment, hearing aid fitting and dispensing, speech-language and auditory evaluation and therapy, otology, cochlear implant evaluation and training, assistive listening devices and FM system counseling, tinnitus and hyperacusis therapy, and evaluation/treatment of children with auditory processing disorder (APD) and other listening challenges. Holds quarterly cochlear implant support group, weekly group assistive device demonstrations, and other meetings. Print and online publications are available.

seperator

Top

Dyslexia Research Institute (DRI)

Director: Patricia K. Hardman, Ph.D.
Public Information Contact: Amber Mitchell
Address: 5246 Centerville Road
Voice: (850) 893-2216
Fax: (850) 893-2440
Last updated: 2014 Apr 30

Description:
The goal of the Dyslexia Research Institute (DRI) is to expand the knowledge of parents and professionals in the areas of dyslexia and attention deficit disorders. Direct instruction is provided through a full multisensoral curriculum for both adults and children. DRI runs a full-time school, called Woodland Hall Academy, for dyslexic individuals. DRI provides instruction through informational seminars, teacher training, and advocacy/consultation. Research papers are available.

seperator

Top

Educational Audiology Association

Executive Administrator: Jesse Haynes
Educational Audiology Association:
Address: 3030 West 81st Avenue
Voice: (800) 460-7322
Fax: (303) 458-0002
Last updated: 2011 Jun 30

Description:
The Educational Audiology Association (EAA) is an international organization of audiologists and related professionals who deliver a full spectrum of hearing services to all children, particularly those in educational settings. The mission of EAA is to act as the primary resource and active advocate for its members through its publications and products, continuing educational activities, networking opportunities, and other professional endeavors. EAA was established in 1984 to advocate for educational audiologists and the students they serve. The American Academy of Audiology and the American Speech-Language-Hearing Association recognize EAA as a related professional organization that facilitates direct communication between these organizations and others to provide a forum for EAA issues.

Publications:
Educational Audiology Review
Frequency: quarterly
Type: newsletter
Journal of Educational Audiology
Frequency: annually
Type: professional journal

seperator

Top

HEATH Resource Center at the National Youth Transitions Center (National Clearinghouse on Postsecondary Education for Individuals with Disabilities)

Address: 2134 G Street, NW
Last updated: 2014 May 5

Description:
The HEATH Resource Center is an online clearinghouse on postsecondary education for individuals with disabilities. Since 2000, the HEATH Resource Center has served as a national clearinghouse on postsecondary education for individuals with disabilities, managed by the George Washington University Graduate School of Education and Human Development. Now, the HSC Foundation has partnered with the George Washington University to expand the content of this resource and to designate it as the official resource site of the HSC Foundation's National Youth Transitions Center.

Publications:
HEATH Resource Center Newsletter
Frequency: Quaterly
Type: newsletter

seperator

Top

Hear Me Foundation

Executive Director: Tamala Irish
Executive Director: Tamala Irish
Address: 4814 Woodstream Village Drive
Voice: (281) 359-6725
Fax: (281) 361-9109
Last updated: 2011 Jun 30

Description:
The mission of the Hear Me Foundation is to promote positive life experiences via camp activities and year-round events primarily for oral-deaf and hard-of-hearing children, their siblings, and their families. The Hear Me Foundation provides families with the resources to learn specific skills necessary to monitor their child’s healthy development, including listening, speech, language, and emotional and socialization skills. The foundation also is a service provider for the Interactive Metronome, a training system to improve a child’s coordination, focus, and attention span. Holds annual meeting (Camp Hear Me); contact the Hear Me Foundation for date and location.

Frequency:
Frequency:
Frequency:

seperator

Top

Learning Disabilities Association of America (LDA)

Executive Director: Mary-Clare Reynolds
Address: 4156 Library Road
Voice: (412) 341-1515
Toll-free Voice: (888) 300-6710
Fax: (412) 344-0224
Last updated: 2014 Apr 30

Description:
The Learning Disabilities Association of America (LDA) is a nonprofit organization dedicated to identifying causes and promoting prevention of learning disabilities and to enhancing the quality of life for all individuals with learning disabilities and their families. LDA encourages effective identification and intervention, fosters research, and protects the rights of individuals with learning disabilities under the law. The association is an information and referral service for both parents and professionals. LDA, which has more than 100 state and local chapters across the country, sponsors an annual conference and offers membership. A professional journal, membership newsletter (Newsbriefs), and information via our website are all available. Some materials in Spanish are also available.

Publications:
Learning Disabilities
Frequency: three or four times a year
Type: multidisciplinary journal

seperator

Top

National Institute on Disability and Rehabilitation Research, Office of Special Education and Rehabilitative Services (OSERS)

Acting Director: Ruth Brannon
Address: 550 12th Street, SW, Room 6056
Voice: (202) 245-7640
Fax: (202) 245-7630
Last updated: 2011 Jun 30

Description:
The National Institute on Disability and Rehabilitation Research (NIDRR) is part of the Office of Special Education and Rehabilitative Services (OSERS), U.S. Department of Education. NIDRR supports a comprehensive program of national and international research into all aspects of the rehabilitation of people with disabilities and their successful integration into education, work, and community life. Grants are awarded to institutions of higher education and qualified organizations; the fellowship program provides grants to individuals with advanced rehabilitation credentials. NIDRR administers the Interagency Committee on Disability Research. An online directory of projects and publications is available.

seperator

Top

National Center for Learning Disabilities (NCLD)

Executive Director: James H. Wendorf
Executive Assistant: Marcia Griffith-Pauyo
Address: 381 Park Avenue South, Suite 1401
Voice: (212) 545-7510
Toll-free Voice: (888) 575-7373
Fax: (212) 545-9665
Last updated: 2011 Jun 30

Description:
The National Center for Learning Disabilities (NCLD) works to ensure that the nation’s 15 million children, adolescents, and adults with learning disabilities have every opportunity to succeed in school, work, and life. NCLD provides essential information to parents, professionals, and individuals with learning disabilities; promotes research and programs to foster effective learning; and advocates for policies to protect and strengthen educational rights and opportunities. Get Ready to Read!, a program of NCLD, is a national campaign to build the early literacy skills of all preschool children.

Publications:
Early Learning & Literacy
Frequency: monthly
Type: e-newsletter
LD Essentials
Frequency: quarterly
Type: newsletter
LD News
Frequency: monthly
Type: e-newsletter

seperator

Top

National Dissemination Center for Children with Disabilities (NICHCY)

Director: Elaine M. Mulligan
Address: 1825 Connecticut Avenue, NW
Voice: (202) 884-8200
Toll-free Voice: (800) 695-0285
TTY: (202) 884-8200
Toll-free TTY: (800) 695-0285
Fax: (202) 884-8441
Last updated: 2014 May 5

Description:
The National Dissemination Center for Children with Disabilities (NICHCY) is a national information and referral center that provides information on disabilities and disability-related issues to families, educators, and other professionals. With a special focus on children and young adults ages birth to 22, NICHCY answers questions in both English and Spanish. Fact sheets on specific disabilities, state resource sheets, and information about the Individuals with Disabilities Education Act are available. All NICHCY publications are available online at nichcy.org/publications.

seperator

Top

National Institute on Deafness and Other Communication Disorders (NIDCD) Information Clearinghouse

Project Officer: Susan Dambrauskas
Address: 1 Communication Avenue
Toll-free Voice: (800) 241-1044
Toll-free TTY: (800) 241-1055
Fax: (301) 770-8977
Last updated: 2014 May 5

Description:
The National Institute on Deafness and Other Communication Disorders (NIDCD) Information Clearinghouse, a service of NIDCD, is a national resource center for health information on hearing, balance, smell, taste, voice, speech, and language for health professionals, patients, and the public.

seperator

Top

Office of Special Education Programs (OSEP), Office of Special Education and Rehabilitative Services (OSERS)

Acting Director/Official Deputy: Patricia J. Guard
Address: U.S. Department of Education, 550 12th Street, SW, Room 4109
Voice: (202) 245-7459
Fax: (202) 245-7616
Last updated: 2011 Jun 30

Description:
The Office of Special Education Programs (OSEP), an office within the U.S. Department of Education, is dedicated to improving results for infants, toddlers, children, and youth with disabilities—including communication disorders—from birth through age 21 and providing leadership and financial support to assist states and local districts. OSEP awards formula grants to states as well as discretionary grants to institutions of higher education and other nonprofit organizations to support research, demonstrations, technical assistance and dissemination, technology and personnel development, and parent-training and information centers. Professional and consumer publications are available.

seperator

Top

St. Joseph Institute for the Deaf (SJI)

President: Deborah S. Wilson
Chief Operating Officer: Cindy Costello
Address: 1809 Clarkson Road
Voice: (636) 532-3211
Fax: (636) 532-4560
Last updated: 2011 Jun 30

Description:
St. Joseph Institute for the Deaf (SJI) is committed to the spiritual and emotional growth and personal development of hearing-impaired children and young adults. SJI teaches children with hearing loss to hear, speak, and read from birth to eighth grade, regardless of race, religion, gender, or finances. Programs include early intervention; toddler, preschool, and kindergarten through eighth-grade classes; I-Hear teletherapy services; evaluations; local district partnerships; and mainstream consultancy. SJI has an onsite audiology clinic in Chesterfield, Mo.

seperator

Top

Vestibular Disorders Association (VEDA)

Executive Director: Cynthia Ryan
Address: 5108 NE 15th Avenue
Voice: (503) 229-7705
Toll-free Voice: (800) 837-8428
Fax: (503) 229-8064
Last updated: 2014 May 5

Description:
The Vestibular Disorders Association (VEDA) is a nonprofit organization that provides information, support, and advocacy to people with vestibular disorders and the health professionals who treat them. Such disorders include labyrinthitis, benign paroxysmal positional vertigo (BPPV), Ménière’s disease, Mal de Debarquement, ototoxicity, and perilymph fistula. Frequently reported symptoms of these disorders are dizziness, unsteadiness or imbalance, vertigo, nausea, hearing loss, visual disturbances, and tinnitus. A provider directory of health care specialists, a support group directory, resource library, and more are available on our website. Membership benefits include a quarterly newsletter and access to our member support network.

Publications:
On the Level
Frequency: quarterly
Type: newsletter

seperator

Top