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AARP

Chief Executive Officer: William D. Novelli
Manager, Media Services: Steve Hahn
Address: 601 E Street, NW
Toll-free Voice: (888) 687-2277
TTY: (202) 434-6561
Toll-free TTY: (877) 434-7598
Fax: (202) 434-6499
Internet: www.aarp.org
Last updated: 2011 Jun 30

Description:
AARP is a nonprofit, nonpartisan membership organization that helps people who are ages 50 and older to have independence, choice, and control in ways that are beneficial and affordable to them and society as a whole. The AARP Foundation is an affiliated charity that provides security, protection, and empowerment to older persons in need with support from thousands of volunteers, donors, and sponsors. AARP has offices in all 50 states, the District of Columbia, Puerto Rico, and the U.S. Virgin Islands.

Publications:
AARP Bulletin
Frequency: monthly
Type: newsletter
AARP Segunda Juventud
Frequency: bimonthly
Type: Spanish-language magazine
AARP: The Magazine
Frequency: bimonthly
Type: magazine

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Academy of Rehabilitative Audiology (ARA)

President: John Greer Clark, Ph.D.
Association Coordinator: Joy Benn
Address: P.O. Box 86
Fax: (888) 552-7441
Internet: www.audrehab.org
Last updated: 2011 Jun 30

Description:
The Academy of Rehabilitative Audiology (ARA) was founded in 1966 as a forum for the exchange of ideas, knowledge, and experience related to rehabilitative aspects of audiology and associated disciplines. Membership in ARA is open to professionals holding a graduate degree in audiology, speech-language pathology,or the education of persons with hearing impairment. Associate and student memberships are also available. Holds annual institute;contact ARA for date and location. A professional newsletter/bulletin, directory, and books and monographs are available.

Publications:
The Pinnacle
Frequency: quarterly
Type: professional newsletter

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Association of Late-Deafened Adults (ALDA)

President: Cynthia Amerman
ALDA eNews: Ken Arcia
Address: 8038 Macintosh Lane
Voice: (815) 332-1515
Toll-free Voice: (866) 402-ALDA (2532)
Toll-free TTY: (866) 402-ALDA (2532)
Internet: www.alda.org
Last updated: 2011 Jun 30

Description:
The Association of Late-Deafened Adults (ALDA) serves as a resource center providing information and referrals, self-help, and support groups for people deafened as adults. ALDA works to increase public awareness of the special needs of deafened adults. Holds annual conference; contact ALDA for date and location. A professional/consumer directory, proceedings of conventions, and fact sheets are available.

Publications:
ALDANews
Frequency: quarterly
Type: professional/consumer newsletter
ALDA eNews
Frequency: monthly, or as needed
Type: e-mail news update

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Advocure NF2, Inc.

Chairperson: Marie Drew
Treasurer: Cynthia Henrion
Address: P.O. Box 4118
Last updated: 2011 Jun 30

Description:
Neurofibromatosis Type II (NF2) is a rare, genetic disease that causes tumors to grow throughout the brain and spinal cord, threatening hearing, vision, mobility, and even basic life functions such as swallowing. Advocure NF2, Inc., is a 501(c)(3) public charity and liaison group that advocates for the NF2 Crew (an online-based support community for patients and others) and the NF2 international community. Advocure NF2, Inc., monitors research and drug developments worldwide and works to expedite systemic therapy that may treat and possibly even cure NF2. Its website offers information on understanding and living with NF2, research, and other resources. A quarterly newsletter is available online.

Publications:
NF2 Compass
Frequency: quarterly
Type: newsletter
Frequency:
Frequency:

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Better Hearing Institute (BHI)

President: Cathy Henderson Jones
Public Information Contact: Sergei Kochkin, Ph.D., Executive Director
Address: 1444 I Street, Suite 700
Voice: (202) 449-1100
Toll-free Voice: (800) EAR-WELL (327-9355)
Fax: (202) 216-9646
Last updated: 2011 Jun 30

Description:
Founded in 1973, the Better Hearing Institute (BHI) conducts research and engages in hearing health education with the goal of helping people with hearing loss benefit from proper treatment. BHI maintains a “Hearing Helpline” telephone service that provides information on hearing loss, sources of assistance, and other hearing help to callers anywhere in the United States and Canada. BHI also publishes periodic studies of the hearing-impaired population based on its survey of 80,000 households. BHI receives funding from the hearing aid industry to support its professional/consumer outreach efforts.

Publications:
MarkeTrak
Frequency: published periodically
Type: reports based on survey data
Your Guide to Better Hearing, A Guide to Your Child's Hearing Health, and Your Guide to Hearing Aids
Frequency:
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Communication Service for the Deaf, Inc. (CSD)

Chief Executive Officer: Benjamin Soukup, L.L.D.
Public Information Contact: Rick Norris, Public Relations
Address: 102 North Krohn Place
Voice: (605) 367-5760
Toll-free Voice: (800) 642-6410
TTY: (605) 367-5761
Toll-free TTY: (866) 273-3323
Fax: (605) 367-5958
Internet: www.c-s-d.org
Last updated: 2011 Jun 30

Description:
Communication Service for the Deaf, Inc., (CSD) is a world leader in providing broad-based quality human service programs and telecommunication relay services for consumers who are deaf and hard-of-hearing. CSD has a staff of approximately 2,000 people in facilities across the United States. CSD endeavors to increase opportunities for greater independence, ensure communication accessibility, and promote public awareness of issues affecting everyone who is deaf or hard-of-hearing.

Publications:
SIGNews
Frequency: monthly
Type: newspaper for the signing community

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Dogs for the Deaf, Inc.

President/CEO: Robin Dickson
Information Resources Coordinator: Kimberly Miller
Address: 10175 Wheeler Road
Voice: (541) 826-9220
Toll-free Voice: (800) 990-DOGS (3647)
TTY: (541) 826-9220
Fax: (541) 826-6696
Last updated: 2011 Jun 30

Description:
Dogs for the Deaf, Inc., rescues dogs from shelters and trains them to respond to environmental sounds such as smoke alarms, door bells, alarm clocks, baby cries, telephones, and the sound of a person’s name. The dogs also are obedience-trained and socialized. They are then placed, free of charge, in the homes of deaf and hard-of-hearing applicants who live in the United States and Canada and who want and need the benefits of a professionally trained hearing dog. Professional/consumer newsletter, fact sheets, and online publications are available.

Publications:
Canine Listener
Frequency: quarterly
Type: newsletter

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Hard of Hearing Advocates (HOHA)

Director: Janet Keeler
Address: P.O. Box 1184 or 245 Prospect Street
Voice: (508) 875-8662
Last updated: 2011 Jun 30

Description:
The goal of Hard of Hearing Advocates (HOHA) is to create and implement programs and solutions in areas in which people who are hard-of-hearing have undue problems. HOHA identifies specific problem areas, develops solutions, and seeks support to implement these solutions. The HOHA website has an online discussion board where hard-of-hearing people can discuss problems, solutions, and issues related to hearing loss.

Publications:
Hearing Awareness Kit
Frequency:

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Hearing Loss Association of America

Executive Director: Brenda Battat, M.A.
Address: 7910 Woodmont Avenue, Suite 1200
Voice: (301) 657-2248
TTY: (301) 657-2249
Fax: (301) 913-9413
Last updated: 2011 Jun 30

Description:
The Hearing Loss Association of America (HLAA) is a nonprofit organization with a mission to open the world of communication to people with hearing loss through education, information, support, and advocacy. HLAA provides assistance and resources for people with hearing loss and their families to learn how to adjust to living with hearing loss. HLAA is working to eradicate the stigma associated with hearing loss and raise public awareness about the need for prevention and the importance of regular hearing screenings throughout life. Its national support network includes an office in the District of Columbia area, 14 state organizations, and 200 local chapters. HLAA also holds annual conventions for people with hearing loss and professionals; see website for details.

Publications:
Hearing Loss Magazine
Frequency: bimonthly
Type: magazine

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Hearing Health Foundation

Executive Director: Andrea Boidman
Associate, Development and Operations: Leticia Bido
Address: 363 Seventh Avenue, 10th Floor
Voice: (212) 257-6140
Toll-free Voice: (866) 454-3924
TTY: (888) 435-6104
Toll-free TTY: (888) 435-6104
Fax: (212) 257-6139
Last updated: 2011 Jun 30

Description:
The Hearing Health Foundation's mission is to help individuals attain a lifetime of healthy hearing and balance through quality research, education, and advocacy. Throughout its 53-year history, the Hearing Health Foundation (formerly the Deafness Research Foundation) has awarded over 2,200 grants totaling more than $26 million to researchers exploring new avenues in hearing and balance science. Foundation-funded research has led to innovations in the diagnosis and treatment of otitis media (middle ear infections), cochlear implants, and implantable hearing aids as well as breakthroughs in molecular biology and hair cell regeneration.

Publications:
Hearing Health
Frequency: quarterly
Type: magazine
Hearing Health E-News
Frequency: monthly
Type: e-newsletter

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House Research Institute

Chief Executive Officer: James D. Boswell
Manager of Media Relations: Kirsten A. Holguin
Address: 2100 West Third Street
Voice: (213) 483-4431
TTY: (213) 484-2642
Fax: (213) 483-8789
Internet: www.hei.org
Last updated: 2011 Jun 30

Description:
The House Research Institute (formerly called the House Ear Institute) is a private, nonprofit 501(c)(3) organization dedicated to advancing hearing science through research and education to improve quality of life. Scientists are exploring the developing ear and ear diseases at the cellular and molecular level as well as investigating the complex ear-brain interaction. They also are working to improve hearing aids and auditory implants, clinical treatments, and intervention methods. Professional/consumer brochures, books, and audiovisuals are available.

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Media Access Group at WGBH

Director: Larry Goldberg
Public Information Contact: Mary Watkins
Address: 1 Guest Street
Voice: (617) 300-3400
TTY: (617) 300-2489
Fax: (617) 300-1035
Internet: access.wgbh.org
Last updated: 2011 Jun 30

Description:
The Media Access Group at WGBH consists of the Caption Center, which provides captioning for television, Web-based media, and feature films; the Descriptive Video Service, which creates audio descriptions for blind and visually impaired audiences for these and other media formats; and the WGBH-Carl and Ruth Shapiro Family National Center for Accessible Media (NCAM), which promotes accessibility for classrooms, the Internet, movie theaters, and more through ongoing research and development, outreach, and public policy initiatives. E-mail news updates and professional/consumer fact sheets are available.

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National Board for Certification in Hearing Instrument Sciences (NBC-HIS)

Executive Director: Linda K. Jackson
Executive Assistant: Carolyne Pope
Address: 16880 Middlebelt Road, Suite 3
Voice: (734) 522-2900
Fax: (734) 522-0900
Internet: www.nbc-his.com
Last updated: 2011 Jun 30

Description:
The National Board for Certification in Hearing Instrument Sciences (NBC-HIS) is an independent, nonprofit corporation established to develop and promulgate eligibility standards for certification; to develop, process, administer, and score certification examinations based on research; and to award board certification to successful applicants. A professional directory, fact sheets, and online publications are available.

Publications:
Hear & Now
Frequency: quarterly
Type: newsletter

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National Institute on Deafness and Other Communication Disorders (NIDCD)

Director: James F. Battey, Jr., M.D., Ph.D.
Public Information Contact: Susan Dambrauskas, Chief, Office of Health Communication and Public Liaison
Address: Office of Health Communication and Public Liaison, 31 Center Drive, MSC 2320
Voice: (301) 496-7243
Toll-free Voice: (800) 241-1044
Toll-free TTY: (800) 241-1055
Fax: (301) 402-0018
Last updated: 2011 Jun 30

Description:
The National Institute on Deafness and Other Communication Disorders (NIDCD), one of the National Institutes of Health, supports and conducts research and research training on the normal and disordered processes of hearing, balance, taste, smell, voice, speech, and language. The NIDCD develops health information based on scientific discovery and disseminates it to the public. In October 2008, the NIDCD launched It's a Noisy Planet. Protect Their Hearing (www.noisyplanet.nidcd.nih.gov). This national campaign is designed to increase awareness among parents of youth ages 8 to 12 about the causes and prevention of noise-induced hearing loss. The NIDCD provides a toll-free telephone service through its information clearinghouse. Fact sheets, brochures, teaching curricula, and reports are available, with many in Spanish.

Publications:
Inside
Frequency: quarterly
Type: newsletter
NIDCD Resources Directory
Frequency: biannual
Type: print and online directory of organizations and their resources

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National Institute on Deafness and Other Communication Disorders (NIDCD) Information Clearinghouse

Project Officer: Susan Dambrauskas
Project Manager: Charlotte Ball
Address: 1 Communication Avenue
Toll-free Voice: (800) 241-1044
Toll-free TTY: (800) 241-1055
Fax: (301) 770-8977
Last updated: 2011 Jun 30

Description:
The National Institute on Deafness and Other Communication Disorders (NIDCD) Information Clearinghouse, a service of NIDCD, is a national resource center for health information on hearing, balance, smell, taste, voice, speech, and language for health professionals, patients, and the public.

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National Organization for Hearing Research Foundation (NOHR)

President: Geraldine Dietz Fox
Public Information Contact: Sarah Schreiner
Address: 225 Haverford Avenue, Suite 1
Voice: (610) 664-3135
Fax: (610) 668-1428
Last updated: 2011 Jun 30

Description:
The National Organization for Hearing Research Foundation (NOHR) is a 501(c)(3) public charity whose primary objective is to fund research into the prevention, causes, treatments, and cures for hearing loss and deafness. NOHR funds grant proposals that target innovative auditory projects; proposal submissions are reviewed by members of NOHR’s Scientific Review Committee. The most important review criteria for research proposals are scientific value and potential to yield significant new insights in the field of auditory science. Regeneration of sensory hair cells of the inner ear is a research funding priority, and examinations by other scientific disciplines are encouraged. Grant application information is available upon request.

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Neurofibromatosis, Inc. (NF, Inc.)

President: Miguel Lessing
NF-2 Consultant: Marie Drew
Address: P.O. Box 66884
Voice: (630) 627-1115
Toll-free Voice: (800) 942-6825
Internet: www.nfinc.org
Last updated: 2011 Jun 30

Description:
Neurofibromatosis, Inc., (NF, Inc.) is a national nonprofit organization dedicated to all people affected by neurofibromatosis (NF) and other related disorders. NF, Inc., distributes materials on NF1 and NF2; promotes national, state, and local community involvement; supports research; has a governing board with NF2 representation; and provides real-time captioning at meetings. A toll-free helpline and website provide access to peer counseling and information 24 hours a day. A professional directory and professional/consumer publications are available.

Publications:
Neurofibromatosis Ink
Frequency: semiannual
Type: professional/consumer newsletter

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St. Joseph Institute for the Deaf (SJI)

President: Deborah S. Wilson
Chief Operating Officer: Cindy Costello
Address: 1809 Clarkson Road
Voice: (636) 532-3211
Fax: (636) 532-4560
Internet: www.sjid.org
Last updated: 2011 Jun 30

Description:
St. Joseph Institute for the Deaf (SJI) is committed to the spiritual and emotional growth and personal development of hearing-impaired children and young adults. SJI teaches children with hearing loss to hear, speak, and read from birth to eighth grade, regardless of race, religion, gender, or finances. Programs include early intervention; toddler, preschool, and kindergarten through eighth-grade classes; I-Hear teletherapy services; evaluations; local district partnerships; and mainstream consultancy. SJI has an onsite audiology clinic in Chesterfield, Mo.

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Holley Institute

President: Ardis J. Gardella
Address: 22151 Moross Road, Professional Building I, Suite 223
Voice: (313) 343-7583
Voice: (313) 343-7484
TTY: (313) 343-8789
Fax: (313) 343-4111
Last updated: 2011 Jun 30

Description:
The mission of the Holley Institute, a nonprofit organization founded in 1993, is to assist deaf, deaf-blind, and hard-of-hearing individuals by providing services and programs aimed at improving their quality of life. Institute volunteers screen newborn infants for hearing loss at St. John Hospital in Detroit, MI. The institute owns and operates the Holley Family Village, located in Brooklyn, MI, where it offers educational, recreational, and mental health programs for deaf, deaf-blind, and hard-of-hearing children, teens, adults, and their families. The institute also offers American Sign Language classes at some Michigan locations.

Publications:
The Holley Institute Newsletter
Frequency: published quarterly
Type: other

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Telecommunications for the Deaf and Hard of Hearing Inc. (TDI)

Executive Director: Claude L. Stout
Public Relations Director: James D. House
Address: 8630 Fenton Street, Suite 604
Voice: (301) 589-3786
Voice: (301) 563-9112
TTY: (301) 589-3006
Fax: (301) 589-3797
Last updated: 2011 Jun 30

Description:
Telecommunications for the Deaf and Hard of Hearing, Inc., (TDI) is a consumer advocacy organization that provides leadership in achieving equal access to telecommunications, media, and information technologies for 36 million Americans who are deaf and hard-of-hearing.TDI administers the E911 Stakeholder Council, dedicated to increasing access to emergency services, as well as the Community Emergency Preparedness Information Network (www.cepintdi.org), a program funded by the Federal Emergency Management Agency, and administers biennial conferences in odd-numbered years.

Publications:
Blue Book
Frequency: annual
Type: directory
TDI eNotes
Frequency:
TDI World
Frequency: quarterly
Type: magazine

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Vestibular Disorders Association (VEDA)

Executive Director: Lisa Haven, Ph.D.
Address: P.O. Box 13305
Voice: (503) 229-7705
Toll-free Voice: (800) 837-8428
Fax: (503) 229-8064
Last updated: 2011 Jun 30

Description:
The Vestibular Disorders Association (VEDA) is a nonprofit organization that provides information, support, and advocacy to people with vestibular disorders and the health professionals who treat them. Such disorders include labyrinthitis, benign paroxysmal positional vertigo (BPPV), Ménière’s disease, ototoxicity, and perilymph fistula. Frequently reported symptoms of these disorders are dizziness, unsteadiness or imbalance, vertigo, nausea, hearing loss, visual disturbances, and tinnitus. A provider directory of health care specialists, newsletter, short publications, books, and DVDs/videos are available, with some in Spanish.

Publications:
On the Level
Frequency: quarterly
Type: newsletter

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Virginia Merrill Bloedel Hearing Research Center (VMBHRC)

Director: Jay Rubinstein, M.D., Ph.D.
Business Development Manager: Carolyn Higgins
Address: University of Washington, Box 357923
Voice: (206) 685-2962
Voice: (206) 616-4105
Fax: (206) 616-1828
Last updated: 2011 Jun 30

Description:
The Virginia Merrill Bloedel Hearing Research Center (VMBHRC) at the University of Washington conducts interdisciplinary research on hearing, hearing loss, and related communication disorders. Through its diverse programs that foster national and international collaboration between top experts in the field, the center advances the fight against deafness and disequilibrium on the fronts of protection, intervention, and regeneration. The center provides invaluable support to patients, the scientific community, and the general public.

Publications:
Bloedel Sound
Frequency: annually
Type: newsletter

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