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Academy of Rehabilitative Audiology (ARA)

President: John Greer Clark, Ph.D.
Association Coordinator: Joy Benn
Address: P.O. Box 86
Fax: (888) 552-7441
Internet: www.audrehab.org
Last updated: 2011 Jun 30

Description:
The Academy of Rehabilitative Audiology (ARA) was founded in 1966 as a forum for the exchange of ideas, knowledge, and experience related to rehabilitative aspects of audiology and associated disciplines. Membership in ARA is open to professionals holding a graduate degree in audiology, speech-language pathology,or the education of persons with hearing impairment. Associate and student memberships are also available. Holds annual institute;contact ARA for date and location. A professional newsletter/bulletin, directory, and books and monographs are available.

Publications:
The Pinnacle
Frequency: quarterly
Type: professional newsletter

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Alexander Graham Bell Association for the Deaf and Hard of Hearing (AG Bell)

Chief Executive Officer: Emilio Alonso-Mendoza, J.D., CFRE
Director of Communications and Marketing: Susan Boswell
Address: 3417 Volta Place, NW
Voice: (202) 337-5220
Toll-free Voice: (866) 337-5220
TTY: (202) 337-5221
Fax: (202) 337-8314
Internet: www.agbell.org
Last updated: 2014 Apr 4

Description:
The Alexander Graham Bell Association for the Deaf and Hard of Hearing (AG Bell) helps families, health care providers, and education professionals understand childhood hearing loss and the importance of early diagnosis and intervention. Through advocacy, education, research, and financial aid, AG Bell helps to ensure that every child and adult with hearing loss has the opportunity to listen, talk, and thrive. With chapters located throughout the United States and a network of international affiliates, AG Bell supports its mission: advocating independence through listening and talking!

Publications:
AG Bell Update
Frequency: weekly
Type: e-newsletter
The Volta Review
Frequency: biannual
Type: professional journal
Volta Voices
Frequency: bimonthly
Type: magazine

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Autism Society of America

President/COO: Scott Badesch
Address: 4340 East West Highway, Suite 350
Voice: (301) 657-0881
Toll-free Voice: (800) 3-AUTISM (28-8476)
Fax: (301) 657-0869
Last updated: 2011 Jun 30

Description:
The Autism Society is a national charitable organization dedicated to improving the lives of individuals on the autism spectrum, their families, and the professionals who work with them by providing current, reliable information about autism, the various options, approaches, and available services. It provides toll-free phone support and a free online Information and Referral database (Autism Source) with information about local, state, and national programs and services. The Autism Society’s nationwide network of chapters is designed to provide information and support for families in their local area. The Autism Society advocates at the local, state, and national levels to improve public policy, increase awareness, and promote research that leads to applied best practices to improve the quality of life for those living with autism throughout the life span.

Publications:
Autism Advocate
Frequency: quarterly
Type: magazine

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American Society for Deaf Children (ASDC)

Director of Advocacy: Cheri Dowling
:
Address: 800 Florida Avenue, NE, #2047
Voice: (800) 942-2732
Toll-free Voice: (800) 942-2732
TTY:
Fax: (410) 795-0965
Last updated: 2011 Jun 30

Description:
The American Society for Deaf Children (ASDC) supports and educates families of deaf and hard-of-hearing children, and advocates for high-quality programs and services. Holds convention every two years; contact ASDC for date and location. Consumer brochures and a magazine are available.

Publications:
The Endeavor
Frequency: quarterly
Type: consumer magazine

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American Speech-Language-Hearing Association (ASHA)

Executive Director: Arlene A. Pietranton, Ph.D., C.A.E.
Public Information Contact: ASHA Action Center
Address: 2200 Research Boulevard
Voice: (301) 296-5700
Toll-free Voice: (800) 638-8255
TTY: (301) 296-5650
Internet: www.asha.org
Last updated: 2011 Jun 30

Description:
The mission of the American Speech-Language-Hearing Association (ASHA) is to promote the interests of and provide the highest quality services for professionals in audiology, speech-language pathology, and speech and hearing science, and to advocate for people with communication disabilities. Holds annual conference; contact ASHA for date and location. Professional brochures/pamphlets, journals, and professional/consumer online publications are available. Some materials are available in Spanish.

Publications:
American Journal of Audiology
Frequency: semiannual
Type: journal
American Journal of Speech-Language Pathology
Frequency: quarterly
Type: journal
ASHA Leader
Frequency: at least monthly
Type: newspaper

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BEGINNINGS for Parents of Children Who Are Deaf or Hard of Hearing, Inc. (BEGINNINGS)

Executive Director: Joni Alberg, Ph.D.
Public Information Contact: Judy Werbicki, Administrative Assistant
Address: 302 Jefferson Street, Suite 110
Voice: (919) 850-2746
Toll-free Voice: (800) 541-4327 (In-state only)
TTY: (919) 850-2746
Fax: (919) 850-2804
Internet: www.ncbegin.org
Last updated: 2011 Jun 30

Description:
BEGINNINGS for Parents of Children Who Are Deaf or Hard of Hearing, Inc., (BEGINNINGS) provides support and information in an impartial manner to parents and professionals dealing with deaf and hard-of-hearing issues in children. BEGINNINGS also provides impartial information on communication options, placement, and educational programs; workshops for professional personnel who work with children who are deaf and hard-of-hearing; and advocacy and support for young people. Fact sheets, brochures, a parent manual, and reports are available, with some materials in Spanish.

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Center on Human Policy (CHP)

Director: Steven J. Taylor, Ph.D.
Information Coordinator: Rachael A. Zubal-Ruggieri
Address: Syracuse University, School of Education, 805 South Crouse Avenue
Voice: (315) 443-3851
Toll-free Voice: (800) 894-0826
Fax: (315) 443-4338
Last updated: 2011 Jun 30

Description:
The Center on Human Policy (CHP) is a Syracuse University-based policy, research, and advocacy organization involved in the national movement to ensure the rights of people with disabilities. CHP is involved in a variety of activities, including policy studies, research, information and referral, training and consultation, and information dissemination. A range of professional/consumer publications is available. The Center on Human Policy, Law, and Disability Studies (CHPLDS) is an expansion of CHP. CHPLDS is a network of academic programs, centers, student organizations, and affiliated faculty that—through research, teaching, and advocacy—promotes and protects the rights of people with disabilities and examines disability as an aspect of diversity in society.

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CID - Central Institute for the Deaf

Executive Director: Robin Feder
Communication Director: Kim Readmond
Address: 825 South Taylor Avenue
Voice: (314) 977-0243
TTY:
Fax: (314) 977-0033
Internet: www.cid.edu
Last updated: 2011 Jun 30

Description:
Founded in 1914, the Central Institute for the Deaf (CID) is a nonprofit organization that helps deaf children learn to speak, listen, and read with proficiency without the use of sign language. CID provides pediatric audiology; research collaborations; continuing education for professionals; and books, tests, and curricula used to help deaf children throughout the world. CID has a proud history of training professionals and conducting pioneering educational, clinical, and biological research in hearing and deafness. CID is a financially independent affiliate of the Washington University School of Medicine.

Publications:
sound effects
Frequency: biannual
Type: newsletter

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Conference of Educational Administrators of Schools and Programs for the Deaf (CEASD)

Executive Director: Joe Finnegan
Executive Director: Joe Finnegan
Address: P.O. Box 1778
Voice: (904) 810-5200
TTY: (904) 810-5200
Fax: (904) 810-5525
Internet: www.ceasd.org
Last updated: 2011 Jun 30

Description:
The Conference of Educational Administrators of Schools and Programs for the Deaf (CEASD) is an association of schools and programs involved with the education of deaf and hard-of-hearing individuals. Founded in 1868, CEASD is committed to promoting excellence within a continuum of equitable educational opportunities for children and adults who are deaf or hard-of-hearing. At the national level, CEASD serves as an advocate for the deaf and hard-of-hearing with governmental bodies that establish educational policy and implement federal legislation. Holds annual convention; contact CEASD for date and location. A professional journal, newsletter, directory, brochures/pamphlets, and online publications are available.

Publications:
American Annals of the Deaf
Frequency: quarterly journal
Type: supplemented by an annual reference issue of schools and programs

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Council for Exceptional Children (CEC)

Executive Director: Bruce Ramirez
Public Information Contact: Diane Shinn, Communications Director
Address: 2900 Crystal Drive, Suite 1000
Voice: (703) 620-3660
Toll-free Voice: (888) 232-7733
Toll-free TTY: (866) 915-5000
Fax: (703) 264-9494
Internet: www.cec.sped.org
Last updated: 2011 Jun 30

Description:
The Council for Exceptional Children (CEC) is the largest professional organization dedicated to improving the educational success of individuals with disabilities or gifts. CEC advocates for appropriate government policies, sets professional standards, provides professional development, advocates for underserved individuals with exceptionalities, and helps professionals obtain conditions and resources for effective professional practice. Holds annual convention; contact CEC for date and location. Professional journals, brochures, and a newsletter are available.

Publications:
Exceptional Children
Frequency: quarterly
Type: professional journal
Teaching Exceptional Children
Frequency: published six times a year
Type: professional magazine

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Council for Learning Disabilities (CLD)

Executive Director: Linda Nease
Address: 11184 Antioch Road, #405
Voice: (913) 491-1011
Fax: (913) 491-1012
Last updated: 2011 Jun 30

Description:
The Council for Learning Disabilities (CLD) is an international organization of and for professionals who represent diverse disciplines and who are committed to enhancing the education and development of students with learning disabilities. CLD promotes evidence-based teaching, collaboration, research, leadership, and advocacy. CLD establishes standards of excellence and promotes innovative strategies for research and practice. Holds annual convention; contact CLD for date and location.

Publications:
LD Forum
Frequency: published five times a year
Type: professional newsletter
Learning Disabilities Quarterly
Frequency:

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Council on Education of the Deaf (CED)

Executive Director: Karen Dilka
Address: Gallaudet University, P.O. Box 2094, 800 Florida Avenue, NE
Voice: (859) 622-1043
Fax: (859) 622-4443
Internet: www.deafed.net
Last updated: 2011 Jun 30

Description:
The Council on Education of the Deaf (CED) is a national professional organization responsible for setting and implementing policy related to education of deaf and hard-of-hearing students in schools. This includes setting certification and accreditation standards, certifying teachers, and evaluating university teacher preparation programs for accreditation approval. Established in 1930, CED has fostered cooperative networks in the field of education of deaf students. The CED board is composed of representatives from its seven member organizations, which are identified on the CED website. Professional online publications, application forms, and standards and manuals are available.

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Clearinghouse on Disability Information, Office of Special Education and Rehabilitative Services (OSERS)

Director of Communications/Customer Service Team: James Button
Public Information Contact: Carolyn Corlett
Address: 550 12th Street, SW, Room 5133
Voice: (202) 245-7307
TTY: (202) 205-5637
Fax: (202) 245-7636
Last updated: 2011 Jun 30

Description:
The Clearinghouse on Disability Information, a service of the U.S. Department of Education, responds to people with disabilities and others who request information by conducting research and providing documents related to federal funding available for disability-related programs. Clearinghouse staff members also may refer requests to other sources of disability-related information. Information provided may be useful to disabled individuals and their families, schools and universities, teachers and school administrators, and organizations who serve people with disabilities.

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CHERAB Foundation

Founder: Lisa Geng
Address: P.O. Box 8524
Voice: (772) 335-5135
Last updated: 2011 Jun 30

Description:
The CHERAB Foundation (CHERAB) is a worldwide nonprofit organization that helps individuals with speech and language delays and disorders through communication help, education, and research that is apraxia-based. Its area of emphasis is verbal and oral apraxia, which are severe neurologically based speech and language disorders that hinder children's ability to speak. The foundation is committed to assisting with the development of new therapeutic approaches to, and prevention and cure of, neurologically based speech disorders. CHERAB brings together parents and medical, research, and educational professionals to help give a voice to all. Sign up to receive updates at http://twitter.com/TheLateTalker.

Frequency:

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Educational Audiology Association

Executive Administrator: Jesse Haynes
Educational Audiology Association:
Address: 3030 West 81st Avenue
Voice: (800) 460-7322
Fax: (303) 458-0002
Internet: www.edaud.org
Last updated: 2011 Jun 30

Description:
The Educational Audiology Association (EAA) is an international organization of audiologists and related professionals who deliver a full spectrum of hearing services to all children, particularly those in educational settings. The mission of EAA is to act as the primary resource and active advocate for its members through its publications and products, continuing educational activities, networking opportunities, and other professional endeavors. EAA was established in 1984 to advocate for educational audiologists and the students they serve. The American Academy of Audiology and the American Speech-Language-Hearing Association recognize EAA as a related professional organization that facilitates direct communication between these organizations and others to provide a forum for EAA issues.

Publications:
Educational Audiology Review
Frequency: quarterly
Type: newsletter
Journal of Educational Audiology
Frequency: annually
Type: professional journal

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Gallaudet University (GU) and Laurent Clerc National Deaf Education Center

President: Dr. T. Alan Hurwitz
Executive Director, Communications and Public Relations: Catherine Murphy
Address: 800 Florida Avenue, NE
Voice: (202) 651-5000
Toll-free Voice: (800) 995-0550
TTY: (202) 651-5000
TTY: (202) 651-5866 (videophone)
Fax: (202) 651-5508
Last updated: 2011 Jun 30

Description:
Gallaudet University is the world’s only university in which all programs and services are specifically designed to accommodate deaf and hard-of-hearing students. The Laurent Clerc National Deaf Education Center ensures that the diverse population of deaf and hard-of-hearing students (birth through age 21) in the nation are educated and empowered and have the linguistic competence to maximize their potential as productive and contributing members of society. The Research Institute is a leading center for research on deafness. National and international programs, including regional extension centers, conferences, sign language classes, summer programs, and international outreach, annually serve approximately 33,000 people.

Publications:
Gallaudet Today
Frequency: quarterly
Type: magazine/newsletter combination
On the Green
Frequency: biweekly
Type: newsletter

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Gallaudet University, Laurent Clerc National Deaf Education Center, Public Relations and Publications

Director of Public Relations and Publications: Danielle Puzio
Information Services Coordinator: Anita Gilbert
Address: 800 Florida Avenue, NE
Voice: (202) 651-5051
TTY: (202) 651-5051
Fax: (202) 651-5708
Last updated: 2011 Jun 30

Description:
The Public Relations and Publications Office at Gallaudet University’s (GU’s) Laurent Clerc National Deaf Education Center provides information about diverse topics related to deaf and hard-of-hearing children and young adults from infancy to age 21. The office responds to inquiries and also collaborates with authors from within the Gallaudet community and nationwide to design, produce, and disseminate books, videotapes, periodicals, and other information related to deaf and hard-of-hearing children, their families, and the professionals who serve them. Fact sheets, brochures, and a directory are available.

Frequency:
Odyssey
Frequency: semiannual
Type: magazine
World Around You
Frequency: monthly
Type: online magazine for deaf and hard-of-hearing teens

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Hearing Education and Awareness for Rockers (H.E.A.R.)

Executive Director: Kathy Peck
Address: P.O. Box 460847
Voice: (415) 409-EARS (3277)
Internet: www.hearnet.com
Last updated: 2011 Jun 30

Description:
Hearing Education and Awareness for Rockers (H.E.A.R.) is world-renowned for its efforts to educate the public about the dangers of excessive noise and to provide adequate hearing protection to musicians and music fans. H.E.A.R. promotes awareness about hearing damage by disseminating public service information and announcements to the media, producing hearing conservation “rocumentary” DVDs, and by establishing information and earplug tables at music events in the United States. H.E.A.R. programs include the H.E.A.R. Partner program in cities worldwide, custom musicians’ hearing protection programs, hearing screening clinics, and online hearing health and music resources. The professional/consumer hearing education conservation program "Listen Smart: Safely Handling the Power of Sound" is available as a DVD.

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Hear Me Foundation

Executive Director: Tamala Irish
Executive Director: Tamala Irish
Address: 4814 Woodstream Village Drive
Voice: (281) 359-6725
Fax: (281) 361-9109
Last updated: 2011 Jun 30

Description:
The mission of the Hear Me Foundation is to promote positive life experiences via camp activities and year-round events primarily for oral-deaf and hard-of-hearing children, their siblings, and their families. The Hear Me Foundation provides families with the resources to learn specific skills necessary to monitor their child’s healthy development, including listening, speech, language, and emotional and socialization skills. The foundation also is a service provider for the Interactive Metronome, a training system to improve a child’s coordination, focus, and attention span. Holds annual meeting (Camp Hear Me); contact the Hear Me Foundation for date and location.

Frequency:
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Hands & Voices National

Executive Director: Leeanne Seaver, M.A.
Address: P.O. Box 3093
Voice: (217) 357-3647
Toll-free Voice: (866) 422-0422
Toll-free TTY: (866) 422-0422
Fax: (217) 357-3647
Last updated: 2011 Jun 30

Description:
Hands & Voices National is a nationwide nonprofit organization dedicated to supporting families and their children who are deaf or hard-of-hearing as well as the professionals who serve them. This organization is a parent-driven, parent/professional collaborative group that is unbiased toward any communication modes and methods. Its membership includes those who are deaf or hard-of hearing and their families who communicate orally or with signs, cued speech, or combined methods. Hands & Voices National exists to help children reach their highest potential. See the website for local chapters.

Publications:
The Communicator
Frequency: quarterly
Type: newsletter

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Hearing Loss Association of America

Executive Director: Brenda Battat, M.A.
Address: 7910 Woodmont Avenue, Suite 1200
Voice: (301) 657-2248
TTY: (301) 657-2249
Fax: (301) 913-9413
Last updated: 2011 Jun 30

Description:
The Hearing Loss Association of America (HLAA) is a nonprofit organization with a mission to open the world of communication to people with hearing loss through education, information, support, and advocacy. HLAA provides assistance and resources for people with hearing loss and their families to learn how to adjust to living with hearing loss. HLAA is working to eradicate the stigma associated with hearing loss and raise public awareness about the need for prevention and the importance of regular hearing screenings throughout life. Its national support network includes an office in the District of Columbia area, 14 state organizations, and 200 local chapters. HLAA also holds annual conventions for people with hearing loss and professionals; see website for details.

Publications:
Hearing Loss Magazine
Frequency: bimonthly
Type: magazine

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John Tracy Clinic

President: Barbara F. Hecht, Ph.D.
Address: 806 West Adams Boulevard
Voice: (213) 748-5481
Toll-free Voice: (800) 522-4582
TTY: (213) 747-2924
Fax: (213) 749-1651
Internet: www.jtc.org
Last updated: 2011 Jun 30

Description:
The John Tracy Clinic provides free services to parents of children, ages birth to 5 years, with hearing loss. The clinic has more than 60 years of experience in early intervention and the spoken language option. Correspondence courses are available worldwide. Three-week summer sessions are offered. A master’s and credential program in teacher education is offered both onsite and online. A professional/consumer newsletter and fact sheets, brochures/ pamphlets, and online publications are available. Most materials are available in Spanish.

Publications:
John Tracy Clinic Bulletin
Frequency: semiannual
Type: newsletter

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Learning Disabilities Association of America (LDA)

Executive Director: Mary-Clare Reynolds
Address: 4156 Library Road, Suite 1
Voice: (412) 341-1515
Toll-free Voice: (888) 300-6710
Fax: (412) 344-0224
Last updated: 2011 Jun 30

Description:
The Learning Disabilities Association of America (LDA) is a nonprofit organization dedicated to identifying causes and promoting prevention of learning disabilities and to enhancing the quality of life for all individuals with learning disabilities and their families. LDA encourages effective identification and intervention, fosters research, and protects the rights of individuals with learning disabilities under the law. The association is an information and referral service for both parents and professionals. LDA, which has more than 300 local chapters across the country, sponsors an annual conference and offers membership. Professional journals, news briefs, and brochures are available. Some materials in Spanish are available.

Publications:
Learning Disabilities
Frequency: three or four times a year
Type: multidisciplinary journal

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MAAP Services for Autism, Asperger, and PDD/NOS (MAAP Services)

President: Susan J. Moreno
Address: P.O. Box 524
Voice: (219) 662-1311
Fax: (219) 662-0638
Last updated: 2011 Jun 30

Description:
MAAP Services for the Autism Spectrum (MAAP Services) is a nonprofit 501(c)(3) organization dedicated to providing information and advice to families of more advanced individuals with autism, Asperger syndrome, and other pervasive developmental disorders. MAAP Services provides information and referrals to parents, caregivers, and professionals who are experiencing this spectrum of challenges as well as helping the individuals themselves. The organization also provides a website; printed materials; annual conferences; public presentations; and personal contact via e-mail, phone, and written correspondence. The MAAP Services newsletter is distributed in 56 countries.

Publications:
The MAAP
Frequency: Quarterly
Type: newsletter

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National Institute on Disability and Rehabilitation Research, Office of Special Education and Rehabilitative Services (OSERS)

Acting Director: Ruth Brannon
Address: 550 12th Street, SW, Room 6056
Voice: (202) 245-7640
Fax: (202) 245-7630
Last updated: 2011 Jun 30

Description:
The National Institute on Disability and Rehabilitation Research (NIDRR) is part of the Office of Special Education and Rehabilitative Services (OSERS), U.S. Department of Education. NIDRR supports a comprehensive program of national and international research into all aspects of the rehabilitation of people with disabilities and their successful integration into education, work, and community life. Grants are awarded to institutions of higher education and qualified organizations; the fellowship program provides grants to individuals with advanced rehabilitation credentials. NIDRR administers the Interagency Committee on Disability Research. An online directory of projects and publications is available.

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National Association of State Directors of Special Education, Inc. (NASDSE)

Executive Director: Bill East, Ed.D.
Address: 1800 Diagonal Road, Suite 320
Voice: (703) 519-3800
Fax: (703) 519-3808
Internet: www.nasdse.org
Last updated: 2011 Jun 30

Description:
The National Association of State Directors of Special Education, Inc., (NASDSE) is a nonprofit organization established to promote and support education programs and related services for children and youth with disabilities in the United States and outlying areas. NASDSE provides services to state agencies to facilitate their efforts to maximize educational outcomes for individuals with disabilities. Holds annual meeting; contact NASDSE for date and location. Miscellaneous reports are released throughout the year, with most available online.

Publications:
NASDE Works!
Frequency: quarterly
Type: newsletter

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National Association of the Deaf (NAD)

Chief Executive Officer: Howard Rosenblum
Address: 8630 Fenton Street, Suite 820
Voice: (301) 587-1788
Fax: (301) 587-1791
Internet: www.nad.org
Last updated: 2011 Jun 30

Description:
The National Association of the Deaf (NAD), founded in 1880, is a federation of state associations, organizational and corporate affiliates, and individuals advocating for the civil rights of deaf and hard-of-hearing Americans. NAD’s advocacy work encompasses a broad spectrum of areas such as accessibility, education, employment, health care, mental health, rehabilitation, technology, telecommunications, and transportation. The NAD Web site offers advocacy information and resources related to legal rights and other concerns affecting individuals who are deaf or hard-of-hearing.

Publications:
NADmag
Frequency: published two times a year (Summer/Winter)
Type: professional/consumer magazine

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National Cued Speech Association (NCSA), Deaf Children's Literacy Project

President: Shannon Howell
Executive Director: Marah Baltzell
Address: 1300 Pennsylvania Avenue, NW, Suite 190-713
Toll-free Voice: (800) 459-3529
Toll-free TTY: (800) 459-3529
Last updated: 2011 Jun 30

Description:
The National Cued Speech Association (NCSA) and its Deaf Children's Literacy Project promote the effective use of cued speech for communication, language acquisition (in more than 50 languages), and literacy through the use of cued speech. NCSA provides education, awareness, and support for people with language, hearing, speech, and learning needs through publications, exhibits, family/professional learning vacations, and conferences. NCSA sets standards of cueing and certifies instructors of cued speech. Visit NCSA's bookstore for books, games, computer software, and more.

Publications:
On Cue
Frequency: triannual
Type: newsletter

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National Dissemination Center for Children with Disabilities (NICHCY)

Director: Elaine M. Mulligan
Information Specialist:
Address: 1825 Connecticut Avenue, NW, Suite 700
Voice: (202) 884-8200
Toll-free Voice: (800) 695-0285
TTY: (202) 884-8200
Toll-free TTY: (800) 695-0285
Fax: (202) 884-8441
Internet: nichcy.org
Last updated: 2011 Jun 30

Description:
The National Dissemination Center for Children with Disabilities (NICHCY) is a national information and referral center that provides information on disabilities and disability-related issues to families, educators, and other professionals. With a special focus on children and young adults ages birth to 22, NICHCY answers questions in both English and Spanish. Fact sheets on specific disabilities, state resource sheets, and information about the Individuals with Disabilities Education Act are available. All NICHCY publications are available online at www.nichcy.org/publications.

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National Institute on Deafness and Other Communication Disorders (NIDCD)

Director: James F. Battey, Jr., M.D., Ph.D.
Public Information Contact: Susan Dambrauskas, Chief, Office of Health Communication and Public Liaison
Address: Office of Health Communication and Public Liaison, 31 Center Drive, MSC 2320
Voice: (301) 496-7243
Toll-free Voice: (800) 241-1044
Toll-free TTY: (800) 241-1055
Fax: (301) 402-0018
Last updated: 2011 Jun 30

Description:
The National Institute on Deafness and Other Communication Disorders (NIDCD), one of the National Institutes of Health, supports and conducts research and research training on the normal and disordered processes of hearing, balance, taste, smell, voice, speech, and language. The NIDCD develops health information based on scientific discovery and disseminates it to the public. In October 2008, the NIDCD launched It's a Noisy Planet. Protect Their Hearing (www.noisyplanet.nidcd.nih.gov). This national campaign is designed to increase awareness among parents of youth ages 8 to 12 about the causes and prevention of noise-induced hearing loss. The NIDCD provides a toll-free telephone service through its information clearinghouse. Fact sheets, brochures, teaching curricula, and reports are available, with many in Spanish.

Publications:
Inside
Frequency: quarterly
Type: newsletter
NIDCD Resources Directory
Frequency: biannual
Type: print and online directory of organizations and their resources

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National Stuttering Association (NSA)

Public Information Contact: Tammy Flores
Executive Director:
Address: 119 West 40th Street, 14th Floor
Voice: (212) 944-4050
Toll-free Voice: (800) 937-8888
Fax: (212) 944-8244
Last updated: 2011 Jun 30

Description:
The National Stuttering Association (NSA) is a national network of support groups created to meet the needs of children and adults who stutter. NSA offers information and support, provides referrals to specialists, serves as an advocate for the stuttering community, and raises the consciousness of the general public about the disorder. Holds annual convention; contact NSA for date and location. Professional and consumer fact sheets, brochures/pamphlets, and books are available.

Publications:
Family Voices
Frequency: quarterly newsletter
Type: by and for children, teens, parents, speech-language pathologists, and others who support individuals who stutter
Letting Go
Frequency: quarterly newsletter
Type: about stuttering research, therapy options, and coping strategies

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Office of Special Education Programs (OSEP), Office of Special Education and Rehabilitative Services (OSERS)

Acting Director/Official Deputy: Patricia J. Guard
Address: U.S. Department of Education, 550 12th Street, SW, Room 4109
Voice: (202) 245-7459
Fax: (202) 245-7616
Last updated: 2011 Jun 30

Description:
The Office of Special Education Programs (OSEP), an office within the U.S. Department of Education, is dedicated to improving results for infants, toddlers, children, and youth with disabilities—including communication disorders—from birth through age 21 and providing leadership and financial support to assist states and local districts. OSEP awards formula grants to states as well as discretionary grants to institutions of higher education and other nonprofit organizations to support research, demonstrations, technical assistance and dissemination, technology and personnel development, and parent-training and information centers. Professional and consumer publications are available.

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Stuttering Foundation of America (SFA)

President: Jane Fraser
Public Information Contact: Joan Warner, Coordinator
Address: 1805 Moriah Woods Boulevard, Suite 3
Voice: (901) 761-0343
Toll-free Voice: (800) 992-9392
Fax: (901) 761-0484
Last updated: 2011 Jun 30

Description:
The Stuttering Foundation (SFA) provides resources, services, and support to individuals who stutter, their families, and professionals who serve them. SFA offers comprehensive, up-to-date information on stuttering through its publications, workshops, and conferences. In addition, SFA supports research into the causes of stuttering. The foundation’s worldwide referral list provides names of speechlanguage pathologists who specialize in stuttering treatment. SFA sponsors the annual National Stuttering Awareness Week the second week of May and supports International Stuttering Awareness Day, October 22. Many materials are free online and available in Spanish, French, and other languages. SFA also provides information through its Spanish-language website, www.tartamudez.org.

Publications:
Stuttering Foundation News
Frequency: quarterly
Type: newsletter
Stuttering Foundation Resource Guide
Frequency: updated bi-annually
Type: Resource guide for help on stuttering
eNews
Frequency: monthly
Type: Updates on research

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St. Joseph Institute for the Deaf (SJI)

President: Deborah S. Wilson
Chief Operating Officer: Cindy Costello
Address: 1809 Clarkson Road
Voice: (636) 532-3211
Fax: (636) 532-4560
Internet: www.sjid.org
Last updated: 2011 Jun 30

Description:
St. Joseph Institute for the Deaf (SJI) is committed to the spiritual and emotional growth and personal development of hearing-impaired children and young adults. SJI teaches children with hearing loss to hear, speak, and read from birth to eighth grade, regardless of race, religion, gender, or finances. Programs include early intervention; toddler, preschool, and kindergarten through eighth-grade classes; I-Hear teletherapy services; evaluations; local district partnerships; and mainstream consultancy. SJI has an onsite audiology clinic in Chesterfield, Mo.

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TASH

Executive Director: Barb Trader
Public Information Contact: Tabitha Johnson-Graham, Membership Coordinator
Address: 1025 Vermont Avenue, 7th Floor
Voice: (202) 263-5600
Fax: (202) 637-0138
Internet: www.tash.org
Last updated: 2011 Jun 30

Description:
TASH is an international membership association of people with disabilities, their family members, other advocates, and professionals who work in the disability field. The association promotes the full participation of people with disabilities in integrated community settings that support the same quality of life available to people without disabilities. TASH sponsors an annual conference and topical workshops; see website for details. TASH also provides information and referral resources, renders targeted advocacy, and produces a magazine and quarterly journal.

Publications:
Research and Practice for Persons with Severe Disabilities
Frequency: quarterly
Type: professional scientific journal
TASH Connections
Frequency: bimonthly
Type: news magazine

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United States Society for Augmentative and Alternative Communication (USSAAC)

President: Patricia Ourand, M.S., CCC-SLP
Public Information Contact: Barbara Figueiredo, USSAAC Office Manager
Address: P.O. Box 1195
Voice: (928) 585-8525
Fax: (410) 296-5710
Internet: www.USSAAC.org
Last updated: 2011 Jun 30

Description:
The purposes of the United States Society for Augmentative and Alternative Communication (USSAAC) are to enhance the communication effectiveness of people who can benefit from augmentative and alternative communication and to support the goals of the International Society for Augmentative and Alternative Communication. USSAAC supports individuals in their right to communicate and participate fully in society; promotes public awareness; influences national and state public policy and legislation; disseminates legislative, regulatory, and funding information; facilitates high-quality service delivery; and promotes transdisciplinary professional education. Sponsors a conference every two years; visit the USSAAC website for date and location.

Publications:
SpeakUp
Frequency: triannual
Type: magazine

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Voice Academy

Project Director: Julie Ostrem, M.B.A.
Public Information Contact: Julie Ostrem
Address: University of Iowa, Speech Pathology & Audiology
Voice: (319) 335-6600
Fax: (319) 335-6603
Last updated: 2011 Jun 30

Description:
The Voice Academy is a self-paced, no-cost website created to help school teachers prevent and self-manage voice disorders, which, unfortunately, are common in the profession. This website features a virtual school where teachers explore topics such as voice production basics, safe classroom acoustics, amplification system use, and the healthy body/healthy voice connection. The website also features an auxiliary curriculum for school-based speech-language pathologists or other advocates to present a 50-minute healthy voice seminar to their teacher colleagues.

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