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Academy of Rehabilitative Audiology (ARA)

President: John Greer Clark, Ph.D.
Association Coordinator: Joy Benn
Address: P.O. Box 86
Fax: (888) 552-7441
Internet: www.audrehab.org
Last updated: 2011 Jun 30

Description:
The Academy of Rehabilitative Audiology (ARA) was founded in 1966 as a forum for the exchange of ideas, knowledge, and experience related to rehabilitative aspects of audiology and associated disciplines. Membership in ARA is open to professionals holding a graduate degree in audiology, speech-language pathology,or the education of persons with hearing impairment. Associate and student memberships are also available. Holds annual institute;contact ARA for date and location. A professional newsletter/bulletin, directory, and books and monographs are available.

Publications:
The Pinnacle
Frequency: quarterly
Type: professional newsletter

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Alexander Graham Bell Association for the Deaf and Hard of Hearing (AG Bell)

Chief Executive Officer: Emilio Alonso-Mendoza, J.D., CFRE
Director of Communications and Marketing: Susan Boswell
Address: 3417 Volta Place, NW
Voice: (202) 337-5220
Toll-free Voice: (866) 337-5220
TTY: (202) 337-5221
Fax: (202) 337-8314
Internet: www.agbell.org
Last updated: 2014 Apr 4

Description:
The Alexander Graham Bell Association for the Deaf and Hard of Hearing (AG Bell) helps families, health care providers, and education professionals understand childhood hearing loss and the importance of early diagnosis and intervention. Through advocacy, education, research, and financial aid, AG Bell helps to ensure that every child and adult with hearing loss has the opportunity to listen, talk, and thrive. With chapters located throughout the United States and a network of international affiliates, AG Bell supports its mission: advocating independence through listening and talking!

Publications:
AG Bell Update
Frequency: weekly
Type: e-newsletter
The Volta Review
Frequency: biannual
Type: professional journal
Volta Voices
Frequency: bimonthly
Type: magazine

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American Society for Deaf Children (ASDC)

Director of Advocacy: Cheri Dowling
:
Address: 800 Florida Avenue, NE, #2047
Voice: (800) 942-2732
Toll-free Voice: (800) 942-2732
TTY:
Fax: (410) 795-0965
Last updated: 2011 Jun 30

Description:
The American Society for Deaf Children (ASDC) supports and educates families of deaf and hard-of-hearing children, and advocates for high-quality programs and services. Holds convention every two years; contact ASDC for date and location. Consumer brochures and a magazine are available.

Publications:
The Endeavor
Frequency: quarterly
Type: consumer magazine

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Association of Late-Deafened Adults (ALDA)

President: Cynthia Amerman
ALDA eNews: Ken Arcia
Address: 8038 Macintosh Lane
Voice: (815) 332-1515
Toll-free Voice: (866) 402-ALDA (2532)
Toll-free TTY: (866) 402-ALDA (2532)
Internet: www.alda.org
Last updated: 2011 Jun 30

Description:
The Association of Late-Deafened Adults (ALDA) serves as a resource center providing information and referrals, self-help, and support groups for people deafened as adults. ALDA works to increase public awareness of the special needs of deafened adults. Holds annual conference; contact ALDA for date and location. A professional/consumer directory, proceedings of conventions, and fact sheets are available.

Publications:
ALDANews
Frequency: quarterly
Type: professional/consumer newsletter
ALDA eNews
Frequency: monthly, or as needed
Type: e-mail news update

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Advocure NF2, Inc.

Chairperson: Marie Drew
Treasurer: Cynthia Henrion
Address: P.O. Box 4118
Last updated: 2011 Jun 30

Description:
Neurofibromatosis Type II (NF2) is a rare, genetic disease that causes tumors to grow throughout the brain and spinal cord, threatening hearing, vision, mobility, and even basic life functions such as swallowing. Advocure NF2, Inc., is a 501(c)(3) public charity and liaison group that advocates for the NF2 Crew (an online-based support community for patients and others) and the NF2 international community. Advocure NF2, Inc., monitors research and drug developments worldwide and works to expedite systemic therapy that may treat and possibly even cure NF2. Its website offers information on understanding and living with NF2, research, and other resources. A quarterly newsletter is available online.

Publications:
NF2 Compass
Frequency: quarterly
Type: newsletter
Frequency:
Frequency:

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Children of Deaf Adults International, Inc. (CODA)

President: Carmel Batson
National CODA Outreach Contact: Thomas Bull
Address: P.O. Box 30715
Voice: (805) 682-0997
TTY: (805) 682-0997
Last updated: 2011 Jun 30

Description:
Children of Deaf Adults International, Inc., (CODA) promotes family awareness and individual growth in hearing children of deaf parents. CODA provides educational opportunities, promotes self-help, organizes advocacy efforts, and acts as a resource for the membership and various communities. Holds annual conference; contact CODA for date and location. A professional/consumer newsletter, directory, fact sheets, brochures, and books are available.

Publications:
The CODA Connection
Frequency: quarterly
Type: newsletter

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Described and Captioned Media Program (DCMP), National Association of the Deaf

Project Director: Jason Stark
Address: 1447 East Main Street
Voice: (800) 237-6213
Toll-free Voice: (800) 237-6213
Toll-free TTY: (800) 237-6819
Fax: (800) 538-5636
Internet: www.dcmp.org
Last updated: 2011 Jun 30

Description:
The Described and Captioned Media Program (DCMP) provides services designed to support and improve the academic achievement of students who are blind, visually impaired, deaf, hard-of-hearing, or deaf-blind. These services include: (1) a library of free-loan described and captioned educational media; and (2) a clearinghouse of information related to educational media access, including a gateway to Internet resources related to accessibility. There are no user registration or service fees. The DCMP is funded by the U.S. Department of Education and administered by the National Association of the Deaf.

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Disability Rights Office, Consumer & Governmental Affairs Bureau, Federal Communications Commission (FCC)

Chief: Thomas Chandler
Address: 445 12th Street, SW
Voice: (202) 418-2516
Toll-free Voice: (888) 225-5322
TTY: (202) 418-0189
Toll-free TTY: (888) 835-5322
Fax: (866) 418-0232
Last updated: 2011 Jun 30

Description:
The Disabilities Rights Office, housed within the Consumer and Governmental Affairs Bureau at the Federal Communications Commission (FCC), ensures that FCC actions and policies enable people with disabilities to have the same access as everyone else to telecommunications. FCC implements mandates for nationwide telephone relay services, accessibility, and usability of telecommunications wireline and wireless products and services. These services include hearing aid compatibility of phones, closed captioning of television programming, and accessibility of emergency information on television.

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Friends of Libraries for Deaf Action (FOLDA)

Founding President: Alice L. Hagemeyer, M.L.S.
Address: 2930 Craiglawn Road
Voice: (301) 563-9062 (VP)ophone)
TTY: (301) 572-5168
Fax: (301) 572-5168
Internet: www.folda.net
Last updated: 2011 Jun 30

Description:
Friends of Libraries for Deaf Action (FOLDA) is a public service of Library for Deaf Action, the deaf-owned deaf cultural programming business of Alice L. Hagemeyer. FOLDA has no membership dues. FOLDA encourages the deaf community to become involved in activities of their local public library and its friends. Organizations serving the deaf wishing to keep up with library news and deaf cultural programs may register at http://imadeamericagreat.webs.com/foldaenews.htm.

Publications:
FOLDA E: News
Frequency: regularly updated
Type: newsletter

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Hands & Voices National

Executive Director: Leeanne Seaver, M.A.
Address: P.O. Box 3093
Voice: (217) 357-3647
Toll-free Voice: (866) 422-0422
Toll-free TTY: (866) 422-0422
Fax: (217) 357-3647
Last updated: 2011 Jun 30

Description:
Hands & Voices National is a nationwide nonprofit organization dedicated to supporting families and their children who are deaf or hard-of-hearing as well as the professionals who serve them. This organization is a parent-driven, parent/professional collaborative group that is unbiased toward any communication modes and methods. Its membership includes those who are deaf or hard-of hearing and their families who communicate orally or with signs, cued speech, or combined methods. Hands & Voices National exists to help children reach their highest potential. See the website for local chapters.

Publications:
The Communicator
Frequency: quarterly
Type: newsletter

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Hear Me Foundation

Executive Director: Tamala Irish
Executive Director: Tamala Irish
Address: 4814 Woodstream Village Drive
Voice: (281) 359-6725
Fax: (281) 361-9109
Last updated: 2011 Jun 30

Description:
The mission of the Hear Me Foundation is to promote positive life experiences via camp activities and year-round events primarily for oral-deaf and hard-of-hearing children, their siblings, and their families. The Hear Me Foundation provides families with the resources to learn specific skills necessary to monitor their child’s healthy development, including listening, speech, language, and emotional and socialization skills. The foundation also is a service provider for the Interactive Metronome, a training system to improve a child’s coordination, focus, and attention span. Holds annual meeting (Camp Hear Me); contact the Hear Me Foundation for date and location.

Frequency:
Frequency:
Frequency:

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Hearing Loss Association of America

Executive Director: Brenda Battat, M.A.
Address: 7910 Woodmont Avenue, Suite 1200
Voice: (301) 657-2248
TTY: (301) 657-2249
Fax: (301) 913-9413
Last updated: 2011 Jun 30

Description:
The Hearing Loss Association of America (HLAA) is a nonprofit organization with a mission to open the world of communication to people with hearing loss through education, information, support, and advocacy. HLAA provides assistance and resources for people with hearing loss and their families to learn how to adjust to living with hearing loss. HLAA is working to eradicate the stigma associated with hearing loss and raise public awareness about the need for prevention and the importance of regular hearing screenings throughout life. Its national support network includes an office in the District of Columbia area, 14 state organizations, and 200 local chapters. HLAA also holds annual conventions for people with hearing loss and professionals; see website for details.

Publications:
Hearing Loss Magazine
Frequency: bimonthly
Type: magazine

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Media Access Group at WGBH

Director: Larry Goldberg
Public Information Contact: Mary Watkins
Address: 1 Guest Street
Voice: (617) 300-3400
TTY: (617) 300-2489
Fax: (617) 300-1035
Internet: access.wgbh.org
Last updated: 2011 Jun 30

Description:
The Media Access Group at WGBH consists of the Caption Center, which provides captioning for television, Web-based media, and feature films; the Descriptive Video Service, which creates audio descriptions for blind and visually impaired audiences for these and other media formats; and the WGBH-Carl and Ruth Shapiro Family National Center for Accessible Media (NCAM), which promotes accessibility for classrooms, the Internet, movie theaters, and more through ongoing research and development, outreach, and public policy initiatives. E-mail news updates and professional/consumer fact sheets are available.

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National Association of the Deaf (NAD)

Chief Executive Officer: Howard Rosenblum
Address: 8630 Fenton Street, Suite 820
Voice: (301) 587-1788
Fax: (301) 587-1791
Internet: www.nad.org
Last updated: 2011 Jun 30

Description:
The National Association of the Deaf (NAD), founded in 1880, is a federation of state associations, organizational and corporate affiliates, and individuals advocating for the civil rights of deaf and hard-of-hearing Americans. NAD’s advocacy work encompasses a broad spectrum of areas such as accessibility, education, employment, health care, mental health, rehabilitation, technology, telecommunications, and transportation. The NAD Web site offers advocacy information and resources related to legal rights and other concerns affecting individuals who are deaf or hard-of-hearing.

Publications:
NADmag
Frequency: published two times a year (Summer/Winter)
Type: professional/consumer magazine

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National Captioning Institute (NCI)

President /CEO: Gene Chao
National Director of Sales and Marketing: Juan Mario Agudelo
Address: 3725 Concorde Parkway, #100
Voice: (703) 917-7600
TTY: (703) 917-7600
Fax: (703) 917-9853
Internet: www.ncicap.org
Last updated: 2011 Jun 30

Description:
The National Captioning Institute (NCI) is a nonprofit organization that provides closed-captioning services to television networks, program producers, advertisers, producers of home entertainment videos, and other organizations in the government and private sectors. It was established in 1979, with the mission of ensuring that deaf and hard-of-hearing people have access to television’s entertainment and news through the technology of closed captioning. As part of its commitment to media access, NCI now offers Internet captioning as well as described video service for people who are blind or have low vision.

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National Center on Deafness (NCOD)

Director: Roslyn Rosen
Address: 18111 Nordhoff Street, California State University
Voice: (818) 677-2611
TTY: (818) 677-2611
Fax: (818) 677-4899
Last updated: 2011 Jun 30

Description:
The National Center on Deafness (NCOD) is housed in Jeanne M. Chisholm Hall on the campus of California State University, Northridge. Established in 1962, NCOD was the first postsecondary program in the nation to provide paid professional sign language interpreters for deaf and hard-of-hearing students as well as captioning services as requested. The program has grown to be the largest of its type in the western United States, serving approximately 200 students who are deaf and hard-of-hearing each year. NCOD also provides transition services, academic and career planning, tutorial assistance, and cocurricular events for the students. Additionally, NCOD provides outreach and training through a federal grant.

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National Institute on Deafness and Other Communication Disorders (NIDCD)

Director: James F. Battey, Jr., M.D., Ph.D.
Public Information Contact: Susan Dambrauskas, Chief, Office of Health Communication and Public Liaison
Address: Office of Health Communication and Public Liaison, 31 Center Drive, MSC 2320
Voice: (301) 496-7243
Toll-free Voice: (800) 241-1044
Toll-free TTY: (800) 241-1055
Fax: (301) 402-0018
Last updated: 2011 Jun 30

Description:
The National Institute on Deafness and Other Communication Disorders (NIDCD), one of the National Institutes of Health, supports and conducts research and research training on the normal and disordered processes of hearing, balance, taste, smell, voice, speech, and language. The NIDCD develops health information based on scientific discovery and disseminates it to the public. In October 2008, the NIDCD launched It's a Noisy Planet. Protect Their Hearing (www.noisyplanet.nidcd.nih.gov). This national campaign is designed to increase awareness among parents of youth ages 8 to 12 about the causes and prevention of noise-induced hearing loss. The NIDCD provides a toll-free telephone service through its information clearinghouse. Fact sheets, brochures, teaching curricula, and reports are available, with many in Spanish.

Publications:
Inside
Frequency: quarterly
Type: newsletter
NIDCD Resources Directory
Frequency: biannual
Type: print and online directory of organizations and their resources

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National Institute on Deafness and Other Communication Disorders (NIDCD) Information Clearinghouse

Project Officer: Susan Dambrauskas
Project Manager: Charlotte Ball
Address: 1 Communication Avenue
Toll-free Voice: (800) 241-1044
Toll-free TTY: (800) 241-1055
Fax: (301) 770-8977
Last updated: 2011 Jun 30

Description:
The National Institute on Deafness and Other Communication Disorders (NIDCD) Information Clearinghouse, a service of NIDCD, is a national resource center for health information on hearing, balance, smell, taste, voice, speech, and language for health professionals, patients, and the public.

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Postsecondary Education Programs Network (pepnet 2)

pepnet 2 Director: Cathy McLeod
Address: 18111 Nordhoff Street
Internet: www.pepnet.org
Last updated: 2011 Jun 30

Description:
Pepnet2 (pn2) recognizes the full range of postsecondary education and training options available for individuals who are deaf or hard-of-hearing, including those with co-occurring disabilities, and strives to enhance the capacity of those institutions to appropriately serve this diverse student population. Pn2 is a national collaboration of professionals with expertise in a broad array of content areas and a variety of environments, including research, technology, personnel development, media production, and technical assistance. Our mission and the focus of our resources is to increase the education, career, and lifetime choices available to individuals who are deaf or hard-of- hearing. Our resources include live, one-on-one assistance in a variety of communication modes, in-person and online training, and materials that are downloadable, printable or available as hard copies. Pn2 is funded through a cooperative agreement with the Research to Practice Division, Office of Special Education Programs, U.S. Department of Education.

Publications:
PEPNet Perspectives
Frequency: semiannual
Type: newsletter

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Stuttering Foundation of America (SFA)

President: Jane Fraser
Public Information Contact: Joan Warner, Coordinator
Address: 1805 Moriah Woods Boulevard, Suite 3
Voice: (901) 761-0343
Toll-free Voice: (800) 992-9392
Fax: (901) 761-0484
Last updated: 2011 Jun 30

Description:
The Stuttering Foundation (SFA) provides resources, services, and support to individuals who stutter, their families, and professionals who serve them. SFA offers comprehensive, up-to-date information on stuttering through its publications, workshops, and conferences. In addition, SFA supports research into the causes of stuttering. The foundation’s worldwide referral list provides names of speechlanguage pathologists who specialize in stuttering treatment. SFA sponsors the annual National Stuttering Awareness Week the second week of May and supports International Stuttering Awareness Day, October 22. Many materials are free online and available in Spanish, French, and other languages. SFA also provides information through its Spanish-language website, www.tartamudez.org.

Publications:
Stuttering Foundation News
Frequency: quarterly
Type: newsletter
Stuttering Foundation Resource Guide
Frequency: updated bi-annually
Type: Resource guide for help on stuttering
eNews
Frequency: monthly
Type: Updates on research

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Telecommunications for the Deaf and Hard of Hearing Inc. (TDI)

Executive Director: Claude L. Stout
Public Relations Director: James D. House
Address: 8630 Fenton Street, Suite 604
Voice: (301) 589-3786
Voice: (301) 563-9112
TTY: (301) 589-3006
Fax: (301) 589-3797
Last updated: 2011 Jun 30

Description:
Telecommunications for the Deaf and Hard of Hearing, Inc., (TDI) is a consumer advocacy organization that provides leadership in achieving equal access to telecommunications, media, and information technologies for 36 million Americans who are deaf and hard-of-hearing.TDI administers the E911 Stakeholder Council, dedicated to increasing access to emergency services, as well as the Community Emergency Preparedness Information Network (www.cepintdi.org), a program funded by the Federal Emergency Management Agency, and administers biennial conferences in odd-numbered years.

Publications:
Blue Book
Frequency: annual
Type: directory
TDI eNotes
Frequency:
TDI World
Frequency: quarterly
Type: magazine

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