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Autism Society of America

President/CEO: Scott Badesch
Address: 4340 East West Highway, Suite 350
Voice: (301) 657-0881
Toll-free Voice: (800) 3-AUTISM (28-8476)
Fax: (301) 657-0869
Last updated: 2014 May 1

Description:
The Autism Society is a national charitable organization dedicated to improving the lives of individuals on the autism spectrum, their families, and the professionals who work with them by providing current, reliable information about autism, the various options, approaches, and available services. It provides toll-free phone support and a free online Information and Referral database (Autism Source) with information about local, state, and national programs and services. The Autism Society’s nationwide network of chapters is designed to provide information and support for families in their local area. The Autism Society advocates at the local, state, and national levels to improve public policy, increase awareness, and promote research that leads to applied best practices to improve the quality of life for those living with autism throughout the life span.

Publications:
Autism Advocate
Frequency: quarterly
Type: magazine

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American Association for the Advancement of Science (AAAS), Entry Point Internship Program

Director: Richard Weibl
Program Manager: Laureen Summers
Address: 1200 New York Avenue, NW
Voice: (202) 326-6649
TTY: (202) 326-6649
Fax: (202) 371-9849
Last updated: 2014 May 5

Description:
In 1975, the American Association for the Advancement of Science (AAAS) initiated the Project on Science, Technology, and Disability to improve entry and advancement in science, math, and engineering for people with disabilities. The Entry Point Internship Program for Students with Disabilities recruits undergraduate and graduate students with disabilities who are majoring in science, engineering, mathematics, computer science, and some business fields for paid, 10-week, summer opportunities at corporations, federal agencies, and university science laboratories. Interested students should visit the website and fill out a pre-application.

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American Speech-Language-Hearing Association (ASHA)

Executive Director: Arlene A. Pietranton, Ph.D., C.A.E.
Public Information Contact: ASHA Action Center
Address: 2200 Research Boulevard
Voice: (301) 296-5700
Toll-free Voice: (800) 638-8255
TTY: (301) 296-5650
Last updated: 2014 May 5

Description:
The mission of the American Speech-Language-Hearing Association (ASHA) is to promote the interests of and provide the highest quality services for professionals in audiology, speech-language pathology, and speech and hearing science, and to advocate for people with communication disabilities. Holds annual conference; contact ASHA for date and location. Professional brochures/pamphlets, journals, and professional/consumer online publications are available. Some materials are available in Spanish.

Publications:
American Journal of Audiology
Frequency: semiannual
Type: journal
American Journal of Speech-Language Pathology
Frequency: quarterly
Type: journal
ASHA Leader
Frequency: at least monthly
Type: newspaper

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Autism Speaks

President: Liz Feld
Executive Vice President, Programs and Services: Peter Bell
Address: 1 E. 33rd Street, 4th Floor
Voice: (212) 252-8584
Voice: (609) 228-7346
Fax: (212) 252-8676
Last updated: 2014 May 2

Description:
The goal of Autism Speaks is to change the future for all who struggle with autism spectrum disorders. This organization is dedicated to funding global biomedical research into the causes, prevention, treatments, and cure for autism; raising public awareness about autism and its effects on individuals, families, and society; and bringing hope to all who deal with the hardships of autism.

Publications:
e-Speaks
Frequency: weekly
Type: newsletter
Speaking Out
Frequency: quarterly
Type: newsletter

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Asperger Syndrome Education Network (ASPEN)

President: Lori Shery
Address: 9 Aspen Circle
Voice: (732) 321-0880
Last updated: 2011 Jun 30

Description:
The Asperger Syndrome Education Network (ASPEN) supports families and individuals whose lives are affected by autism spectrum disorders (ASD) (i.e., Asperger syndrome, pervasive developmental disorder, and high-functioning autism), and nonverbal learning disabilities (NLD). ASPEN provides education about the issues surrounding these disorders, support to individuals with ASD and NLD in knowing that they are not alone, and help so that they may achieve their maximum potential. ASPEN advocacy areas include educational programs, medical research funding, adult issues, and increased public awareness and understanding. ASPEN is a national volunteer 501(c)(3) nonprofit organization with headquarters in New Jersey. Members receive a newsletter and resource directory and access to ASPEN’s lending library.

Publications:
Aspects
Frequency: 2 times a year
Type: newsletter

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Birth Defect Research for Children, Inc. (BDRC)

Executive Director: Betty Mekdeci
Address: 976 Lake Baldwin Lane, Suite 104
Voice: (407) 895-0802
Last updated: 2011 Jun 30

Description:
Birth Defect Research for Children, Inc., (BDRC) provides parents and expectant parents with information about specific birth defects and their causes and treatments, support group referrals, and parent-matching services. BDRC also provides information about environmental exposures that may be associated with birth defects. To study these exposures further, BDRC sponsors the National Birth Defect Registry, an online research project that collects data on birth defects and prenatal/preconception exposures of both parents. A consumer newsletter, fact sheets, and other publications are available.

Publications:
Birth Defect News
Frequency: monthly
Type: e-mail newsletter

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Council for Exceptional Children (CEC)

Executive Director: Bruce Ramirez
Public Information Contact: Diane Shinn, Communications Director
Address: 2900 Crystal Drive, Suite 1000
Voice: (703) 620-3660
Toll-free Voice: (888) 232-7733
Toll-free TTY: (866) 915-5000
Fax: (703) 264-9494
Last updated: 2011 Jun 30

Description:
The Council for Exceptional Children (CEC) is the largest professional organization dedicated to improving the educational success of individuals with disabilities or gifts. CEC advocates for appropriate government policies, sets professional standards, provides professional development, advocates for underserved individuals with exceptionalities, and helps professionals obtain conditions and resources for effective professional practice. Holds annual convention; contact CEC for date and location. Professional journals, brochures, and a newsletter are available.

Publications:
Exceptional Children
Frequency: quarterly
Type: professional journal
Teaching Exceptional Children
Frequency: published six times a year
Type: professional magazine

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Council for Learning Disabilities (CLD)

Executive Director: Linda Nease
Address: 11184 Antioch Road, #405
Voice: (913) 491-1011
Fax: (913) 491-1012
Last updated: 2014 Apr 29

Description:
The Council for Learning Disabilities (CLD) is an international organization that promotes evidence-based teaching, collaboration, research, leadership, and advocacy. CLD is composed of professionals who represent diverse disciplines and are committed to enhancing the education and quality of life for individuals with learning disabilities and others who experience challenges in learning.

Publications:
LD Forum
Frequency: published five times a year
Type: professional newsletter
Learning Disabilities Quarterly
Frequency:

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CHERAB Foundation

Founder: Lisa Geng
Address: P.O. Box 8524
Voice: (772) 335-5135
Last updated: 2011 Jun 30

Description:
The CHERAB Foundation (CHERAB) is a worldwide nonprofit organization that helps individuals with speech and language delays and disorders through communication help, education, and research that is apraxia-based. Its area of emphasis is verbal and oral apraxia, which are severe neurologically based speech and language disorders that hinder children's ability to speak. The foundation is committed to assisting with the development of new therapeutic approaches to, and prevention and cure of, neurologically based speech disorders. CHERAB brings together parents and medical, research, and educational professionals to help give a voice to all. Sign up to receive updates at http://twitter.com/TheLateTalker.

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Easter Seals, Inc.

President/Chief Executive Officer: James E. Williams, Jr.
Information and Referral Specialist: Rosemary Garza
Address: 233 South Wacker Drive, Suite 2400
Voice: (312) 726-6200
Toll-free Voice: (800) 221-6827
TTY: (312) 726-4258
Fax: (312) 726-1494
Last updated: 2011 Jun 30

Description:
The mission of Easter Seals, Inc., is to create solutions that change the lives of children and adults with disabilities and their families. Easter Seals operates 450 sites in the United States. Its primary services are medical rehabilitation with early intervention, physical therapy, occupational therapy, speech therapy, job training and employment, children’s services (including inclusive childcare), adult and senior services, camping, recreation, and respite.

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Genetic Alliance

President /CEO: Sharon F. Terry, M.A.
Address: 4301 Connecticut Avenue, NW, Suite 404
Voice: (202) 966-5557
Toll-free Voice: (800) 336-GENE (4363)
Fax: (202) 966-8553
Last updated: 2011 Jun 30

Description:
Genetic Alliance improves health through the authentic engagement of communities and individuals. The organization is committed to transforming health through genetics and promoting an environment of openness centered on the health of individuals, families, and communities. Genetic Alliance’s network includes disease-specific advocacy organizations, universities, private companies, government agencies, and public policy organizations.

Publications:
Advocacy in Genetics
Frequency: quarterly
Type: newsletter
Policy Bulletin
Frequency: weekly
Type: newsletter
Newborn Screening Newsletter
Frequency: quarterly
Type: newsletter

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Global and Regional Asperger Syndrome Partnership (GRASP)

Executive Director: Kate Palmer
Deputy Director: Alison Alpert
Address: 419 Lafayette Street
Voice: (888) 474-7277
Fax: (888) 474-7277
Last updated: 2014 May 2

Description:
The Global and Regional Asperger Syndrome Partnership (GRASP) is the largest peer-run organization in the world serving individuals diagnosed on the autism spectrum. GRASP operates a support and advocacy network, conducts educational outreach, and serves as an informational clearinghouse on autism-related issues. Its bylaws stipulate that the executive director, all members of its advisory board, and half of its board of directors must be on the autism spectrum. GRASP has many professional affiliations and works with parents’ organizations, universities, service agencies, research institutions, autism organizations, and advocacy organizations. GRASP offers 27 peer-run regional support groups and many online. Visitors to the website can subscribe to an e-list to stay informed of new educational articles.

Publications:
GRASP Newsletter
Frequency: monthly
Type: newsletter
Frequency:
Frequency:

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Hear Me Foundation

Executive Director: Tamala Irish
Executive Director: Tamala Irish
Address: 4814 Woodstream Village Drive
Voice: (281) 359-6725
Fax: (281) 361-9109
Last updated: 2011 Jun 30

Description:
The mission of the Hear Me Foundation is to promote positive life experiences via camp activities and year-round events primarily for oral-deaf and hard-of-hearing children, their siblings, and their families. The Hear Me Foundation provides families with the resources to learn specific skills necessary to monitor their child’s healthy development, including listening, speech, language, and emotional and socialization skills. The foundation also is a service provider for the Interactive Metronome, a training system to improve a child’s coordination, focus, and attention span. Holds annual meeting (Camp Hear Me); contact the Hear Me Foundation for date and location.

Frequency:
Frequency:
Frequency:

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HEATH Resource Center at the National Youth Transitions Center (National Clearinghouse on Postsecondary Education for Individuals with Disabilities)

Address: 2134 G Street, NW
Last updated: 2014 May 5

Description:
The HEATH Resource Center is an online clearinghouse on postsecondary education for individuals with disabilities. Since 2000, the HEATH Resource Center has served as a national clearinghouse on postsecondary education for individuals with disabilities, managed by the George Washington University Graduate School of Education and Human Development. Now, the HSC Foundation has partnered with the George Washington University to expand the content of this resource and to designate it as the official resource site of the HSC Foundation's National Youth Transitions Center.

Publications:
HEATH Resource Center Newsletter
Frequency: Quaterly
Type: newsletter

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The Hyperacusis Network

Publisher: Dan Malcore
Address: 4417 Anapaula Lane
Voice: (920) 866-3377
Last updated: 2014 Apr 30

Description:
The Hyperacusis Network is an international support group established to care for individuals with a decreased sound tolerance (DST). The network helps educate individuals, families, and the medical community and families about this rare auditory disorder by explaining treatment options, sharing ways to cope, and reporting on current ongoing research. In addition, the network provides a listing of clinicians worldwide who are specifically trained to diagnose and treat hyperacusis. A message board is provided so individuals can share their experiences. The network also offers hearing protection products designed specifically for hyperacusis. Fact sheets, brochures/pamphlets, online publications and resources are available through our website. Membership is free.

Publications:
The Hyperacusis Network
Frequency: biannual
Type: professional/consumer newsletter

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MAAP Services for Autism, Asperger, and PDD/NOS (MAAP Services)

President: Susan J. Moreno
Address: P.O. Box 524
Voice: (219) 662-1311
Fax: (219) 662-0638
Last updated: 2011 Jun 30

Description:
MAAP Services for the Autism Spectrum (MAAP Services) is a nonprofit 501(c)(3) organization dedicated to providing information and advice to families of more advanced individuals with autism, Asperger syndrome, and other pervasive developmental disorders. MAAP Services provides information and referrals to parents, caregivers, and professionals who are experiencing this spectrum of challenges as well as helping the individuals themselves. The organization also provides a website; printed materials; annual conferences; public presentations; and personal contact via e-mail, phone, and written correspondence. The MAAP Services newsletter is distributed in 56 countries.

Publications:
The MAAP
Frequency: Quarterly
Type: newsletter

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National AMBUCS, Inc.

Executive Director: Joseph Copeland
Address: P.O. Box 5127
Voice: (336) 852-0052
Fax: (336) 852-6830
Last updated: 2011 Jun 30

Description:
The mission of National AMBUCS, Inc., is to create mobility and independence for people with disabilities. AMBUCS members are committed to performing valuable civic service and improving their communities. Some of our programs include home ramp building for people in wheel chairs and the funding of college scholarships for therapists. One of our most successful programs in recent years has been the distribution of the AmTryke® therapeutic tricycle.

Publications:
AMBUCS Leader
Frequency: monthly
Type: newsletter
AMBUCS Magazine
Frequency: quarterly
Type: magazine
AmTryke Catalog
Frequency: bi-annually
Type: magazine

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National Cued Speech Association (NCSA), Deaf Children's Literacy Project

President: Shannon Howell
Executive Director: Sarina Roffe
Address: 1300 Pennsylvania Avenue, NW, Suite 190-713
Toll-free Voice: (800) 459-3529
Toll-free TTY: (800) 459-3529
Last updated: 2014 May 1

Description:
The National Cued Speech Association (NCSA) and its Deaf Children's Literacy Project promote the effective use of cued speech for communication, language acquisition (in more than 67 languages), and literacy through the use of cued speech. NCSA provides education, awareness, and support for people with language, hearing, speech, and learning needs through publications, exhibits, family/professional learning vacations, and conferences. NCSA sets standards of cueing and certifies instructors of cued speech. Visit NCSA's bookstore for books, games, computer software, and more.

Publications:
On Cue
Frequency: triannual
Type: newsletter

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National Dissemination Center for Children with Disabilities (NICHCY)

Director: Elaine M. Mulligan
Address: 1825 Connecticut Avenue, NW
Voice: (202) 884-8200
Toll-free Voice: (800) 695-0285
TTY: (202) 884-8200
Toll-free TTY: (800) 695-0285
Fax: (202) 884-8441
Last updated: 2014 May 5

Description:
The National Dissemination Center for Children with Disabilities (NICHCY) is a national information and referral center that provides information on disabilities and disability-related issues to families, educators, and other professionals. With a special focus on children and young adults ages birth to 22, NICHCY answers questions in both English and Spanish. Fact sheets on specific disabilities, state resource sheets, and information about the Individuals with Disabilities Education Act are available. All NICHCY publications are available online at nichcy.org/publications.

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National Institute on Deafness and Other Communication Disorders (NIDCD)

Director: James F. Battey, Jr., M.D., Ph.D.
Public Information Contact: Susan Dambrauskas, Chief, Office of Health Communication and Public Liaison
Address: Office of Health Communication and Public Liaison, 31 Center Drive, MSC 2320
Voice: (301) 496-7243
Toll-free Voice: (800) 241-1044
Toll-free TTY: (800) 241-1055
Fax: (301) 402-0018
Last updated: 2011 Jun 30

Description:
The National Institute on Deafness and Other Communication Disorders (NIDCD), one of the National Institutes of Health, supports and conducts research and research training on the normal and disordered processes of hearing, balance, taste, smell, voice, speech, and language. The NIDCD develops health information based on scientific discovery and disseminates it to the public. In October 2008, the NIDCD launched It's a Noisy Planet. Protect Their Hearing (www.noisyplanet.nidcd.nih.gov). This national campaign is designed to increase awareness among parents of youth ages 8 to 12 about the causes and prevention of noise-induced hearing loss. The NIDCD provides a toll-free telephone service through its information clearinghouse. Fact sheets, brochures, teaching curricula, and reports are available, with many in Spanish.

Publications:
Inside
Frequency: quarterly
Type: newsletter
NIDCD Resources Directory
Frequency: biannual
Type: print and online directory of organizations and their resources

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National Institute on Deafness and Other Communication Disorders (NIDCD) Information Clearinghouse

Project Officer: Susan Dambrauskas
Address: 1 Communication Avenue
Toll-free Voice: (800) 241-1044
Toll-free TTY: (800) 241-1055
Fax: (301) 770-8977
Last updated: 2014 May 5

Description:
The National Institute on Deafness and Other Communication Disorders (NIDCD) Information Clearinghouse, a service of NIDCD, is a national resource center for health information on hearing, balance, smell, taste, voice, speech, and language for health professionals, patients, and the public.

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Stuttering Foundation of America (SFA)

President: Jane Fraser
Public Information Contact: Joan Warner, Coordinator
Address: 1805 Moriah Woods Boulevard, Suite 3
Voice: (901) 761-0343
Toll-free Voice: (800) 992-9392
Fax: (901) 761-0484
Last updated: 2011 Jun 30

Description:
The Stuttering Foundation (SFA) provides resources, services, and support to individuals who stutter, their families, and professionals who serve them. SFA offers comprehensive, up-to-date information on stuttering through its publications, workshops, and conferences. In addition, SFA supports research into the causes of stuttering. The foundation’s worldwide referral list provides names of speechlanguage pathologists who specialize in stuttering treatment. SFA sponsors the annual National Stuttering Awareness Week the second week of May and supports International Stuttering Awareness Day, October 22. Many materials are free online and available in Spanish, French, and other languages. SFA also provides information through its Spanish-language website, www.tartamudez.org.

Publications:
Stuttering Foundation News
Frequency: quarterly
Type: newsletter
Stuttering Foundation Resource Guide
Frequency: updated bi-annually
Type: Resource guide for help on stuttering
eNews
Frequency: monthly
Type: Updates on research

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St. Joseph Institute for the Deaf (SJI)

President: Deborah S. Wilson
Chief Operating Officer: Cindy Costello
Address: 1809 Clarkson Road
Voice: (636) 532-3211
Fax: (636) 532-4560
Last updated: 2011 Jun 30

Description:
St. Joseph Institute for the Deaf (SJI) is committed to the spiritual and emotional growth and personal development of hearing-impaired children and young adults. SJI teaches children with hearing loss to hear, speak, and read from birth to eighth grade, regardless of race, religion, gender, or finances. Programs include early intervention; toddler, preschool, and kindergarten through eighth-grade classes; I-Hear teletherapy services; evaluations; local district partnerships; and mainstream consultancy. SJI has an onsite audiology clinic in Chesterfield, Mo.

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TASH

Executive Director: Barb Trader
Public Information Contact : Amy Feinberg, Operations Manager
Address: 1001 Connecticut Ave., NW, Suite 235
Voice: (202) 540-9020
Fax: (202) 540-9019
Last updated: 2014 May 5

Description:
TASH is an international membership association of people with disabilities, their family members, other advocates, and professionals who work in the disability field. The association promotes the full participation of people with disabilities in integrated community settings that support the same quality of life available to people without disabilities. TASH sponsors an annual conference and topical workshops; see website for details. TASH also provides information and referral resources, renders targeted advocacy, and produces a magazine and quarterly journal.

Publications:
Research and Practice for Persons with Severe Disabilities
Frequency: quarterly
Type: professional scientific journal
TASH Connections
Frequency: bimonthly
Type: news magazine

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United States Society for Augmentative and Alternative Communication (USSAAC)

President: Chris Klein
Public Information Contact: Barbara Figueiredo, USSAAC Office Manager
Address: 34 Market Street
Voice: (928) 585-8525
Fax: (410) 296-5710
Last updated: 2014 May 2

Description:
The purposes of the United States Society for Augmentative and Alternative Communication (USSAAC) are to enhance the communication effectiveness of people who can benefit from augmentative and alternative communication and to support the goals of the International Society for Augmentative and Alternative Communication. USSAAC supports individuals in their right to communicate and participate fully in society; promotes public awareness; influences national and state public policy and legislation; disseminates legislative, regulatory, and funding information; facilitates high-quality service delivery; and promotes transdisciplinary professional education. Sponsors a conference every two years; visit the USSAAC website for date and location.

Publications:
SpeakUp
Frequency: triannual
Type: magazine

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